Guest guest Posted October 21, 2004 Report Share Posted October 21, 2004 Maggie From what I have heard, the doctors can't even sort it out. I have been told that they are tightening what the call " mito " in light of the research that is linking so many things to malfunction in or out of the mitochondria. So one doctor may say yes it is and another say no it isn't connected. Sure would be nice for us to know where things are headed. I hope you get some explanation soon. Laurie > > Reply-To: > Date: Thu, 21 Oct 2004 05:36:16 -0000 > To: > Subject: Re: whoewe - > > > , thanks for pointing that out (about the CoQ10 deficiency > being considered as a form of mito). That was what I believed... > but couldn't remember if it was actually listed anywhere handy. > > It's pretty confusing to me - as the doctors are saying NOT a > mitochondrial disease (there's no evidence of any problem with the > mitochondria) and they're viewing my problem as metabolic disorder. > Unclear about whether the CoQ10 deficiency is primary or a secondary > problem brought on by another deficiency (carnitine?) > > I was left with the impression that some doctors feel that metabolic > disorders can be a result of mitochondrial diseases -- OR they can > be the CAUSE of a problem in energy production and not be considered > a mitochondrial disease. Do you know if this is a common view of > most mito doctors -- or one of those issues that is disputed? > > Thanks for trying to help me sort this out. I'm really not sure if > it matters very much what they call it. The treatment would > probably be the same mito cocktail with an increase of CoQ10. > > Maggie > > > >>>> >>>> >>>>> Thinking of you and praying for the best. You have been and > will >>>>> >>>>> >>>> be >>>> >>>> >>>>> in my thoughts and prayers for Monday the 19th and always. >>>>> >>>>> >>>> Blessing >>>> >>>> >>>>> to you whoewe. >>>>> aho!! >>>>> >>>>> >>> >>> >>> >>> >>> >>> >>> Medical advice, information, opinions, data and statements > contained herein are not necessarily those of the list moderators. > The author of this e mail is entirely responsible for its content. > List members are reminded of their responsibility to evaluate the > content of the postings and consult with their physicians regarding > changes in their own treatment. >>> >>> Personal attacks are not permitted on the list and anyone who > sends one is automatically moderated or removed depending on the > severity of the attack. >>> >>> Quote Link to comment Share on other sites More sharing options...
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