Guest guest Posted November 12, 2004 Report Share Posted November 12, 2004 It sounds like he must be very busy. I have emailed him with photos of Ethan's feet 3 times and it was only a day or two til I got a response. The last time, in September, I got a reply the same afternoon. Good luck, I know he will make every effort to get back to you as soon as he can. Tina Dylan 3-21-00 Ethan 3-06-04 bcf s 15/24 #3 EDD 5-25-05 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2004 Report Share Posted November 12, 2004 It sounds like he must be very busy. I have emailed him with photos of Ethan's feet 3 times and it was only a day or two til I got a response. The last time, in September, I got a reply the same afternoon. Good luck, I know he will make every effort to get back to you as soon as he can. Tina Dylan 3-21-00 Ethan 3-06-04 bcf s 15/24 #3 EDD 5-25-05 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2004 Report Share Posted November 22, 2004 I spoke to Joyce on Friday and she said that Dr. Ponseti likes to look at the pictures in color and she doesn't have a color printer so she has to send them out to be printed. Boy we know what that office needs from Santa. Tommy Lee 4/23/04BLCF..waiting for Dr. Ponseti's opinion patiently!--- In nosurgery4clubfoot , " thejuggasmomma " wrote: > > I got an e-mail from Joyce yesterday saying that she was going to > print the pictures of Jordan's feet and hopefully get an answer from > Dr. Ponseti today. Yeah! We have been waiting since November 1st. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2004 Report Share Posted November 23, 2004 We also got a reply from Dr. Ponseti. Just as I suspected Jordan's feet are not corrected. He suggested that we put her back in casts. Should be fun... (she's two years old) Here is his response... But, here is my question...Should I print this e-mail and take it with us to her first appointment with Dr. Frick on December 7th or not? November 22, 2004 Dear Mrs. Canady: You are right. The picture you sent show that both feet are still turning in some. They don't appear to be fully corrected. We tend to treat a first relapse with two or three more plaster casts, each worn for one or two weeks. The feet should be turned out to at least 60 degrees of abduction in the last cast. That trains the bones and joints to realign in a straight position. Jordan would then have to wear the brace at night and naptime until she is 3 - 3 1/2 years old. If she had a further relapse, she would need to be casted to get the feet straight before an anterior tibial tendon transfer could be done. The tendon transfer is to better balance the foot but the deformity must be corrected with casting before the tenotomy. I am curious how many degress are the shoes turned out on the bar. After the feet are fully corrected, the shoes should be turned out to 60 and preferably 70 degrees, but the child will not tolerate this unless the feet are corrected to this degree with casts. I.V. Ponseti, M.D. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2004 Report Share Posted November 24, 2004 I'm not sure what you are referring to when you say " an ATTT does NOT hold correction for club foot!!! " Ponseti uses the ATTT as a very last resort to correct feet that for whatever reason did not respond to the normal correction methods, or for kids who came to the Ponseti-Method too old for traditional correction to be effective. At age 2 my son couldn't walk - he hobbled like one of those little China women who've had their feet bound, and his feet were all balled up, he walked on the outer edges with his toes curled up under. This after 2 years worth of non-ponseti care. Ponseti and Dietz performed the ATTT on him in on May 30th, four months later he didn't only walk, he was running and could wear shoes, nice regular shoes. I admit his feet are not perfect nor with out some minor issues, but all in all it was the ATTT that gave my son his legs and I'm truely thankful. The major difference that seperates the ATTT from other operations is that the are not " breaking " bones, cutting bones, or anything to that nature which comes back to haunt the patient in later years - they simply tighten a certain tendon. s. Re: Dr. Ponseti E-mail May I ask how much an ATTT costs??? I seem to remember hearing that it was somewhere in the $ 1500 - $ 2500 dollar range....hmmmm...makes you wonder! I hate to say something like that but it really does make me wonder when it has been said time and time again that an ATTT does NOT hold correction for club foot!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2004 Report Share Posted November 24, 2004 I'm not sure what you are referring to when you say " an ATTT does NOT hold correction for club foot!!! " Ponseti uses the ATTT as a very last resort to correct feet that for whatever reason did not respond to the normal correction methods, or for kids who came to the Ponseti-Method too old for traditional correction to be effective. At age 2 my son couldn't walk - he hobbled like one of those little China women who've had their feet bound, and his feet were all balled up, he walked on the outer edges with his toes curled up under. This after 2 years worth of non-ponseti care. Ponseti and Dietz performed the ATTT on him in on May 30th, four months later he didn't only walk, he was running and could wear shoes, nice regular shoes. I admit his feet are not perfect nor with out some minor issues, but all in all it was the ATTT that gave my son his legs and I'm truely thankful. The major difference that seperates the ATTT from other operations is that the are not " breaking " bones, cutting bones, or anything to that nature which comes back to haunt the patient in later years - they simply tighten a certain tendon. s. Re: Dr. Ponseti E-mail May I ask how much an ATTT costs??? I seem to remember hearing that it was somewhere in the $ 1500 - $ 2500 dollar range....hmmmm...makes you wonder! I hate to say something like that but it really does make me wonder when it has been said time and time again that an ATTT does NOT hold correction for club foot!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2004 Report Share Posted November 24, 2004 I'm not sure what you are referring to when you say " an ATTT does NOT hold correction for club foot!!! " Ponseti uses the ATTT as a very last resort to correct feet that for whatever reason did not respond to the normal correction methods, or for kids who came to the Ponseti-Method too old for traditional correction to be effective. At age 2 my son couldn't walk - he hobbled like one of those little China women who've had their feet bound, and his feet were all balled up, he walked on the outer edges with his toes curled up under. This after 2 years worth of non-ponseti care. Ponseti and Dietz performed the ATTT on him in on May 30th, four months later he didn't only walk, he was running and could wear shoes, nice regular shoes. I admit his feet are not perfect nor with out some minor issues, but all in all it was the ATTT that gave my son his legs and I'm truely thankful. The major difference that seperates the ATTT from other operations is that the are not " breaking " bones, cutting bones, or anything to that nature which comes back to haunt the patient in later years - they simply tighten a certain tendon. s. Re: Dr. Ponseti E-mail May I ask how much an ATTT costs??? I seem to remember hearing that it was somewhere in the $ 1500 - $ 2500 dollar range....hmmmm...makes you wonder! I hate to say something like that but it really does make me wonder when it has been said time and time again that an ATTT does NOT hold correction for club foot!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2004 Report Share Posted November 24, 2004 Yes, that's what I meant. -M > > >>> > > >>> > > >>> > > >>> > > >>>>We also got a reply from Dr. Ponseti. > > >>>>Just as I suspected Jordan's feet are not corrected. He > suggested > > >>>>that we put her back in casts. Should be fun... (she's two > years > > >>>>old) > > >>>> > > >>>>Here is his response... > > >>>> > > >>>>But, here is my question...Should I print this e-mail and take > it > > >>>>with us to her first appointment with Dr. Frick on December 7th > or > > >>>>not? > > >>>> > > >>>> > > >>>>November 22, 2004 > > >>>> > > >>>>Dear Mrs. Canady: > > >>>> > > >>>>You are right. The picture you sent show that both feet are > still > > >>>>turning in some. They don't appear to be fully corrected. We > tend > > >>>>to treat a first relapse with two or three more plaster casts, > each > > >>>>worn for one or two weeks. The feet should be turned out to at > > >>>>least 60 degrees of abduction in the last cast. That trains the > > >>>>bones and joints to realign in a straight position. Jordan > would > > >>>>then have to wear the brace at night and naptime until she is > 3 - 3 > > >>>>1/2 years old. If she had a further relapse, she would need to > be > > >>>>casted to get the feet straight before an anterior tibial tendon > > >>>>transfer could be done. The tendon transfer is to better > balance > > >>>>the foot but the deformity must be corrected with casting before > > >>>> > > >>>> > > >>the > > >> > > >> > > >>>>tenotomy. > > >>>> > > >>>>I am curious how many degress are the shoes turned out on the > bar. > > >>>>After the feet are fully corrected, the shoes should be turned > out > > >>>>to 60 and preferably 70 degrees, but the child will not tolerate > > >>>>this unless the feet are corrected to this degree with casts. > > >>>> > > >>>>I.V. Ponseti, M.D. > > >>>> > > >>>> > > >>>> > > >>>> > > >>>> > > >>>> > > >>>> > > >>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2004 Report Share Posted November 24, 2004 Sorry!!! I meant AFO's!!! So many abbreviations...got mixed up! - & Grace > I'm not sure what you are referring to when you say " an ATTT does > NOT hold correction for club foot!!! " > > Ponseti uses the ATTT as a very last resort to correct feet that for whatever reason did not respond to the normal correction methods, or for kids who came to the Ponseti-Method too old for traditional correction to be effective. At age 2 my son couldn't walk - he hobbled like one of those little China women who've had their feet bound, and his feet were all balled up, he walked on the outer edges with his toes curled up under. This after 2 years worth of non- ponseti care. Ponseti and Dietz performed the ATTT on him in on May 30th, four months later he didn't only walk, he was running and could wear shoes, nice regular shoes. I admit his feet are not perfect nor with out some minor issues, but all in all it was the ATTT that gave my son his legs and I'm truely thankful. > > The major difference that seperates the ATTT from other operations is that the are not " breaking " bones, cutting bones, or anything to that nature which comes back to haunt the patient in later years - they simply tighten a certain tendon. > s. > > > Re: Dr. Ponseti E-mail > > > > > May I ask how much an ATTT costs??? I seem to remember hearing that > it was somewhere in the $ 1500 - $ 2500 dollar range....hmmmm...makes > you wonder! I hate to say something like that but it really does make > me wonder when it has been said time and time again that an ATTT does > NOT hold correction for club foot!!! > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2004 Report Share Posted November 24, 2004 Ah! That makes much more sense! LOL! Pooy on AFO's. s. Sorry!!! I meant AFO's!!! So many abbreviations...got mixed up! - & Grace Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2004 Report Share Posted November 24, 2004 Kori, it's my understanding that she hasn't been to see Dr. Frick yet...this will be the first appointment! Daiga > > > >We also got a reply from Dr. Ponseti. > >Just as I suspected Jordan's feet are not corrected. He suggested > >that we put her back in casts. Should be fun... (she's two years > >old) > > > >Here is his response... > > > >But, here is my question...Should I print this e-mail and take it > >with us to her first appointment with Dr. Frick on December 7th or > >not? > > > > > >November 22, 2004 > > > >Dear Mrs. Canady: > > > >You are right. The picture you sent show that both feet are still > >turning in some. They don't appear to be fully corrected. We tend > >to treat a first relapse with two or three more plaster casts, each > >worn for one or two weeks. The feet should be turned out to at > >least 60 degrees of abduction in the last cast. That trains the > >bones and joints to realign in a straight position. Jordan would > >then have to wear the brace at night and naptime until she is 3 - 3 > >1/2 years old. If she had a further relapse, she would need to be > >casted to get the feet straight before an anterior tibial tendon > >transfer could be done. The tendon transfer is to better balance > >the foot but the deformity must be corrected with casting before the > >tenotomy. > > > >I am curious how many degress are the shoes turned out on the bar. > >After the feet are fully corrected, the shoes should be turned out > >to 60 and preferably 70 degrees, but the child will not tolerate > >this unless the feet are corrected to this degree with casts. > > > >I.V. Ponseti, M.D. > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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