Guest guest Posted October 11, 2004 Report Share Posted October 11, 2004 Hi Our son also has bilateral clubfeet. He is in his FAB for 13 hours. He has nights when he cries out regularly. He is 17 months. Some nights we don't hear a peep others it is 2 or 3 times or maybe just once. I still am trying to work out if it is his shoes that wake him up when he slams them against the side of the cot. I think he is a bit young to put in a bed yet, but we have got him one, I am just holding back as long as poss. His bed is in the shape of a car with a roof so now I am wondering if we will have the same trouble with the sides of it. On the other hand I wonder if he would have been like that anyway. The shoes don't seem to bother him at all. He seems to go back to sleep if I give him milk which I really could do with stopping now. It is hard to tell if it is shoe related. I have put alot of it down to teething as he seems to suffer when he gets a tooth. Rach, Steve & Connor -- sleeping problems in Ponseti toddlers My two-year-old had bilateral talipes and has been successfully treated using Ponseti. He has been in his Denis Brown boots and bar since he was 2 months old and hasn't given us much trouble at all. However, he does have disturbed sleep and appears to cry in his sleep regularly. This has increased between the ages of 18 months and two years. Has anyone else had what appears to be boots-and-bar -related sleeping problems with their toddlers? Has this influenced when you are likely to transfer your children out of their cot environment and into a proper bed? For more details please click here http://www.estatesgazettegroup.com/contact_new.html>. r============================ DISCLAIMER ============================= This message is intended only for the use of the person(s) (\ " Intended Recipient\ " ) to whom it is addressed. It may contain information, which is privileged and confidential. Accordingly any dissemination, distribution, copying or other use of this message or any of its content by any person other than the Intended Recipient may constitute a breach of civil or criminal law and is strictly prohibited. If you are not the Intended Recipient, please contact the sender as soon as possible. Business Information Ltd. and its subsidiary companies Tel: +44 (0)20 8652 3500 ======================================================================= Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2004 Report Share Posted October 11, 2004 My older son who turned 2 last month does not have clubbed feet but does wake in the night sometimes crying. Most times he falls back to sleep with out help. Other nights he is hysterical. I am not sure if it is growing pains or nightmares. It did increase around 18 months. I have not experienced the dbb yet. We are still in casts from 's tenonomy last month. Maybe it is just part of growing up. I have heard other moms say that they use the pack and play instead of a traditional crib and that helps. It prevents the bar from getting stuck between the bars. Dawn-Marie 9/14/02 Jonthan 7/20/04, 7 days left in tenonomy casts. --- Rach rach@...> wrote: > > Hi > > Our son also has bilateral clubfeet. He is in his > FAB for 13 hours. He has > nights when he cries out regularly. He is 17 months. > Some nights we don't > hear a peep others it is 2 or 3 times or maybe just > once. I still am trying > to work out if it is his shoes that wake him up when > he slams them against > the side of the cot. I think he is a bit young to > put in a bed yet, but we > have got him one, I am just holding back as long as > poss. His bed is in the > shape of a car with a roof so now I am wondering if > we will have the same > trouble with the sides of it. On the other hand I > wonder if he would have > been like that anyway. The shoes don't seem to > bother him at all. He seems > to go back to sleep if I give him milk which I > really could do with stopping > now. It is hard to tell if it is shoe related. I > have put alot of it down to > teething as he seems to suffer when he gets a tooth. > > > Rach, Steve & Connor > -- sleeping problems in > Ponseti toddlers > > > My two-year-old had bilateral talipes and has been > successfully treated > using Ponseti. He has been in his Denis Brown boots > and bar since he was 2 > months old and hasn't given us much trouble at all. > However, he does have > disturbed sleep and appears to cry in his sleep > regularly. This has > increased between the ages of 18 months and two > years. > Has anyone else had what appears to be boots-and-bar > -related sleeping > problems with their toddlers? Has this influenced > when you are likely to > transfer your children out of their cot environment > and into a proper bed? > > > > For more details please click here > http://www.estatesgazettegroup.com/contact_new.html>. > > > > > > r============================ DISCLAIMER > ============================= > This message is intended only for the use of the > person(s) > (\ " Intended Recipient\ " ) to whom it is addressed. It > may contain > information, which is privileged and confidential. > Accordingly > any dissemination, distribution, copying or other > use of this > message or any of its content by any person other > than the Intended > Recipient may constitute a breach of civil or > criminal law and is > strictly prohibited. If you are not the Intended > Recipient, please > contact the sender as soon as possible. > > Business Information Ltd. and its subsidiary > companies > Tel: +44 (0)20 8652 3500 > > ======================================================================= > > > > > > [Non-text portions of this message have been > removed] > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2004 Report Share Posted October 11, 2004 Hi , I have 2-year-old twins (one with clubfoot, one without) and both are in cot beds, ie big cots that convert to beds later (the sides come off). Alister is in the DBB at night and bangs them against the cot during his sleep, but that doesn't seem to wake him and he has been sleeping through for ages now. (no DBB) on the other hand wakes up regularly, possibly due to teething even though this doesn't seem to bother his brother either... So I guess it partially depends on the child as well, even though the DBB seem to disturb some children at night. Could it be that your son is simply teething? I think the back molars are usually coming through around this age... Anyway, I'm planning on leaving both of them in their cot beds (with the sides attached) for as long as possible, then I don't have to worry about them getting into trouble if they wake up at night... Good luck, with Alister (*11 Sep 02, RCF) and (*11 Sep 02, normal feet) --- Rach rach@...> wrote: > > Hi > > Our son also has bilateral clubfeet. He is in his > FAB for 13 hours. He has > nights when he cries out regularly. He is 17 months. > Some nights we don't > hear a peep others it is 2 or 3 times or maybe just > once. I still am trying > to work out if it is his shoes that wake him up when > he slams them against > the side of the cot. I think he is a bit young to > put in a bed yet, but we > have got him one, I am just holding back as long as > poss. His bed is in the > shape of a car with a roof so now I am wondering if > we will have the same > trouble with the sides of it. On the other hand I > wonder if he would have > been like that anyway. The shoes don't seem to > bother him at all. He seems > to go back to sleep if I give him milk which I > really could do with stopping > now. It is hard to tell if it is shoe related. I > have put alot of it down to > teething as he seems to suffer when he gets a tooth. > > > Rach, Steve & Connor > -- sleeping problems in > Ponseti toddlers > > > My two-year-old had bilateral talipes and has been > successfully treated > using Ponseti. He has been in his Denis Brown boots > and bar since he was 2 > months old and hasn't given us much trouble at all. > However, he does have > disturbed sleep and appears to cry in his sleep > regularly. This has > increased between the ages of 18 months and two > years. > Has anyone else had what appears to be boots-and-bar > -related sleeping > problems with their toddlers? Has this influenced > when you are likely to > transfer your children out of their cot environment > and into a proper bed? > > > > For more details please click here > http://www.estatesgazettegroup.com/contact_new.html>. > > > > > > r============================ DISCLAIMER > ============================= > This message is intended only for the use of the > person(s) > (\ " Intended Recipient\ " ) to whom it is addressed. It > may contain > information, which is privileged and confidential. > Accordingly > any dissemination, distribution, copying or other > use of this > message or any of its content by any person other > than the Intended > Recipient may constitute a breach of civil or > criminal law and is > strictly prohibited. If you are not the Intended > Recipient, please > contact the sender as soon as possible. > > Business Information Ltd. and its subsidiary > companies > Tel: +44 (0)20 8652 3500 > > ======================================================================= > > > > > > [Non-text portions of this message have been > removed] > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2004 Report Share Posted October 11, 2004 Have you considered just giving him a mattress on the floor as a bed? That worked well for my older son when he was about 18 months old. If he rolled off it wasn't far and he could crawl back on easily. s. sleeping problems in > Ponseti toddlers > > > My two-year-old had bilateral talipes and has been > successfully treated > using Ponseti. He has been in his Denis Brown boots > and bar since he was 2 > months old and hasn't given us much trouble at all. > However, he does have > disturbed sleep and appears to cry in his sleep > regularly. This has > increased between the ages of 18 months and two > years. > Has anyone else had what appears to be boots-and-bar > -related sleeping > problems with their toddlers? Has this influenced > when you are likely to > transfer your children out of their cot environment > and into a proper bed? > > > > For more details please click here > http://www.estatesgazettegroup.com/contact_new.html>. > > > > > > r============================ DISCLAIMER > ============================= > This message is intended only for the use of the > person(s) > (\ " Intended Recipient\ " ) to whom it is addressed. It > may contain > information, which is privileged and confidential. > Accordingly > any dissemination, distribution, copying or other > use of this > message or any of its content by any person other > than the Intended > Recipient may constitute a breach of civil or > criminal law and is > strictly prohibited. If you are not the Intended > Recipient, please > contact the sender as soon as possible. > > Business Information Ltd. and its subsidiary > companies > Tel: +44 (0)20 8652 3500 > > ======================================================================= > > > > > > [Non-text portions of this message have been > removed] > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2004 Report Share Posted October 11, 2004 Our son is 12 months old and has slept through the night about six times in the past year. That's it. He wakes up all the time. His big brother on the other hand is a fantastic sleeper. Could just be the child and not the brace, kwim? s. sleeping problems in Ponseti toddlers My two-year-old had bilateral talipes and has been successfully treated using Ponseti. He has been in his Denis Brown boots and bar since he was 2 months old and hasn't given us much trouble at all. However, he does have disturbed sleep and appears to cry in his sleep regularly. This has increased between the ages of 18 months and two years. Has anyone else had what appears to be boots-and-bar -related sleeping problems with their toddlers? Has this influenced when you are likely to transfer your children out of their cot environment and into a proper bed? For more details please click here http://www.estatesgazettegroup.com/contact_new.html>. r============================ DISCLAIMER ============================= This message is intended only for the use of the person(s) (\ " Intended Recipient\ " ) to whom it is addressed. It may contain information, which is privileged and confidential. Accordingly any dissemination, distribution, copying or other use of this message or any of its content by any person other than the Intended Recipient may constitute a breach of civil or criminal law and is strictly prohibited. If you are not the Intended Recipient, please contact the sender as soon as possible. Business Information Ltd. and its subsidiary companies Tel: +44 (0)20 8652 3500 ======================================================================= Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2004 Report Share Posted October 11, 2004 , Another thing to consider: If your son is growing through a growth spurt, you'll want to check to make sure that his brace is big enough for him. If it is too narrow, it can be uncomfortable. The inside edges of the heels of the shoes should be at a distance equal to the width of his shoulders. There's a picture of this at http://pages.ivillage.com/ponseti_links under the bracing section. Welcome to the board! & (3-16-00) left clubfoot Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2004 Report Share Posted October 11, 2004 Hi there, My daughter will be 2 years old tomorrow and is in the DBB 12-13 hours a night. She is still in a crib also. She bangs the crib off and on in the middle of the night but it doesn't wake her. She also don't cry out in the middle of the night either. I am sorry I am not any help. All I can say is have his brace and shoes checked. > > , > Another thing to consider: > If your son is growing through a growth spurt, you'll want to check > to make sure that his brace is big enough for him. If it is too > narrow, it can be uncomfortable. The inside edges of the heels of > the shoes should be at a distance equal to the width of his > shoulders. There's a picture of this at > http://pages.ivillage.com/ponseti_links under the bracing section. > Welcome to the board! > & (3-16-00) > left clubfoot Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2004 Report Share Posted October 11, 2004 My daughter is almost 3 and still in the FAB, I notice when she isn't sleeping well it is normally because the width of the bar needs to be adjusted, or she needed new shoes (which she does now). I hope you are back to getting some sleep soon!!! > > > > , > > Another thing to consider: > > If your son is growing through a growth spurt, you'll want to check > > to make sure that his brace is big enough for him. If it is too > > narrow, it can be uncomfortable. The inside edges of the heels of > > the shoes should be at a distance equal to the width of his > > shoulders. There's a picture of this at > > http://pages.ivillage.com/ponseti_links under the bracing section. > > Welcome to the board! > > & (3-16-00) > > left clubfoot Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2004 Report Share Posted October 11, 2004 seems to sleep poorly until around 10pm, most of this is due to him scooting up the cot and bashing his head at the top or losing his dummy. In the early months we got the odd cry of agony. I have absolutely no doubt this was due to cramp. We would take his boots off, soothe his feathers, massage his feet and them put them back on again. He'll be in his cot for some time but we'll be getting on of those guards you can get which attaches to the bed to stop him falling out. We're in the UK but assume these are a commonly found item. mum to 10 months old with bilateral clubfeet. Quote Link to comment Share on other sites More sharing options...
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