Guest guest Posted October 28, 2004 Report Share Posted October 28, 2004 My grandson Branden has the same problem. His lungs are severely scared from reflux and he had a nissan fundoplication (spelling?) done when he was about 2. Kristie - Let's pray that the suspicious " spot " is nothing. Alice lungs Hi First of all, says hi. She is going to see the doctor next Tuesday to be seen for her painful wrist, elbow and shoulder. Those of you with air hunger, have any of you been diagnosed with lung fibrosis. I have been diagnosed with this and we don't know if it is mito thing or is related to the poor air (possible asbestes exposure) at the school I work in. My air exchange is down to about 50%. laurie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2004 Report Share Posted October 28, 2004 Kristie I hope the spot is nothing to be concerned about. I had an hour and a half appointment with my neurologist today and left with pages of labs to get. He wants me to see another pulmonologist since he was concerned that the reason for the fibrosis had not been determined and this is someone he knows is interested in neuromuscular diseases. Since the connective tissue issues were not addressed he ordered some initial labs for that. He ordered another 24 hour urine to check my kidney spilling as I am having more cramping. He also ordered some initial labs for the lipomas. That will be on hold until I see my orthopod and the new pulmonologist. He keep telling me about different diseases that presented in different ways and had to be checked. He even talked about Jerry 's pulmonary fibrosis and the things they had ruled out before calling it idiopathic. At another point he said " I don't why I know all this stuff as a neurologist " . He is a very good diagnostician and loves puzzles. I'm glad to give him this puzzle. I'll keep you posted when I finally get some feedback from the labs, etc. laurie > > Reply-To: > Date: Thu, 28 Oct 2004 19:30:06 -0400 > To: " Mitoldies " > > Subject: Re : lungs > > Laurie, > > > > I have very scared lungs and the last time they did a CAT scan the > Radiologist and Pulmonologist both remarked about all the fibrous tissue in > my lungs. I'm due to have the CAT scan repeated the first part of November > to look at a suspicious " spot " and will also have complete PFT's at that > time as well. We will have to compare notes then. > > > > Kristie > > > > > > > > Message: 4 > > Date: Wed, 27 Oct 2004 19:17:44 -0400 > > > > Subject: lungs > > > > Hi > > > > First of all, says hi. She is going to see the doctor next Tuesday to > > be seen for her painful wrist, elbow and shoulder. > > > > Those of you with air hunger, have any of you been diagnosed with lung > > fibrosis. I have been diagnosed with this and we don't know if it is mito > > thing or is related to the poor air (possible asbestes exposure) at the > > school I work in. My air exchange is down to about 50%. > > > > laurie > > > > > > Quote Link to comment Share on other sites More sharing options...
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