Guest guest Posted June 13, 2003 Report Share Posted June 13, 2003 Ken - I can only imagine how difficult the job search market is - and you are in my thoughts!!! I am glad to hear that things are going well for in most areas!! I thought it was interesting your note about the " need to fuel his growth " in reference to the G-tube. saw her GI doctor yesterday, and he said exactly the same words -- that our decision to use GH is the right one but that is unable to " fuel her growth " -- and we have to investigate why and what options we might be willing to take.... I will tell you (and everyone) that the top notch endocrinologists in the country who are working on SGA children and growth hormone therapy (the ones all affiliated with the international committee, etc), that so many appear to NOT interested in weight gain. What I mean by that is that it seems clear that they do not believe that weight gain is a priority as much as height gain. I do think that part of this is because many of the patients they see (I am guessing here) may not have weight issues. Whereas almost all of our kids do!!! But I do think it slightly ironic. If our kids already struggle to gain weight at a normal rate, and now suddenly you are growing their height at 50-100% FASTER, now their weight has to grow even MORE -- how do we do it!!! Add to that the 4-5 year old or older child is suddenly even more active with school -- more recesses, sports, after school activities - and the need for calories even greater.... also has not gained any weight, although she is 48 pounds now (she was 27 pounds at 4yrs 9 months and 30 pounds when she was 5 and a couple months). The problem for us is that her height has continued to grow and she is above 49 inches tall, so her weight for height SUCKS!!! I will tell you that this is my " poor me " day. I keep wanting this to " get better. " I keep thinking " oh, in another year it will be more normal.... " and yes, it is definitely better now that she is on GH and older, and not getting sick, and teased, and all that. But.... > Hi everyone, > > I haven't written in a while. I have been busy using the internet > looking for a job. By the time I get done with my job search I don't > have the energy to write. > > A couple of things have happened and so I wanted to catche > everyone up. > > First, my son is happy and healthy. He has done real well > in kindergarten. This is gratifying becuse we were advised by > many to hold him back. > > Today, he was hurt a little by one of his friends. We were baby > sitting for friend. This kid is 's age ( 6 ) but he is 71 > pounds and 51.25 inches tall. That puts him in the 98th > percentile. It is funny to watch this boy and my son play. They are > at opposite ends of the growth curve but try to do the same > things. One can't becuse he can't control his large body and the > can't becuse of his small size. Today my son's friend got carried > away with his karate demonstration. My son is OK just a little > upset. > > In other news we have been complaining to my son's ped. endo > that he has been the same weight for almost 2 years-- 29.5 lbs. > Today she finally responded to one of our e-mails admitting that > indeed the grwoth hormone has not worked well at all and we > should seriously consider a feeding tube as well to give him the > extra calorie boost he needs to fuel his growth. > > Last, about a year ago we moved to get our son into a better > school system. That decision has proved to be a correct one. We > have gone from one of the worst school districts in the state to > the best. At least we have done one thing right. > > I'll try and write more late. > > Ken M > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2003 Report Share Posted June 13, 2003 Hi , Since I have been out of work I have several job offers. However I have turned them down. I am not interested in mowing my neighbors lawn, cleaning his house or doing his laundry. I am try to figure how unemployed means cheap household help. Hey, if they want to help, they can come and mow my lawn. Then I won't have to spend money on gas. Anyway, I'll keep looking. Ken M > > Hi everyone, > > > > I haven't written in a while. I have been busy using the internet > > looking for a job. By the time I get done with my job search I > don't > > have the energy to write. > > > > A couple of things have happened and so I wanted to catche > > everyone up. > > > > First, my son is happy and healthy. He has done real well > > in kindergarten. This is gratifying becuse we were advised by > > many to hold him back. > > > > Today, he was hurt a little by one of his friends. We were baby > > sitting for friend. This kid is 's age ( 6 ) but he is > 71 > > pounds and 51.25 inches tall. That puts him in the 98th > > percentile. It is funny to watch this boy and my son play. They are > > at opposite ends of the growth curve but try to do the same > > things. One can't becuse he can't control his large body and the > > can't becuse of his small size. Today my son's friend got carried > > away with his karate demonstration. My son is OK just a little > > upset. > > > > In other news we have been complaining to my son's ped. endo > > that he has been the same weight for almost 2 years-- 29.5 lbs. > > Today she finally responded to one of our e-mails admitting that > > indeed the grwoth hormone has not worked well at all and we > > should seriously consider a feeding tube as well to give him the > > extra calorie boost he needs to fuel his growth. > > > > Last, about a year ago we moved to get our son into a better > > school system. That decision has proved to be a correct one. We > > have gone from one of the worst school districts in the state to > > the best. At least we have done one thing right. > > > > I'll try and write more late. > > > > Ken M > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2003 Report Share Posted June 13, 2003 Hi , Since I have been out of work I have several job offers. However I have turned them down. I am not interested in mowing my neighbors lawn, cleaning his house or doing his laundry. I am try to figure how unemployed means cheap household help. Hey, if they want to help, they can come and mow my lawn. Then I won't have to spend money on gas. Anyway, I'll keep looking. Ken M > > Hi everyone, > > > > I haven't written in a while. I have been busy using the internet > > looking for a job. By the time I get done with my job search I > don't > > have the energy to write. > > > > A couple of things have happened and so I wanted to catche > > everyone up. > > > > First, my son is happy and healthy. He has done real well > > in kindergarten. This is gratifying becuse we were advised by > > many to hold him back. > > > > Today, he was hurt a little by one of his friends. We were baby > > sitting for friend. This kid is 's age ( 6 ) but he is > 71 > > pounds and 51.25 inches tall. That puts him in the 98th > > percentile. It is funny to watch this boy and my son play. They are > > at opposite ends of the growth curve but try to do the same > > things. One can't becuse he can't control his large body and the > > can't becuse of his small size. Today my son's friend got carried > > away with his karate demonstration. My son is OK just a little > > upset. > > > > In other news we have been complaining to my son's ped. endo > > that he has been the same weight for almost 2 years-- 29.5 lbs. > > Today she finally responded to one of our e-mails admitting that > > indeed the grwoth hormone has not worked well at all and we > > should seriously consider a feeding tube as well to give him the > > extra calorie boost he needs to fuel his growth. > > > > Last, about a year ago we moved to get our son into a better > > school system. That decision has proved to be a correct one. We > > have gone from one of the worst school districts in the state to > > the best. At least we have done one thing right. > > > > I'll try and write more late. > > > > Ken M > > Quote Link to comment Share on other sites More sharing options...
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