- MAGIC help for membership

September 23, 2003

, If you can not afford the $25 membership fee, you can call

MAGIC tollfree at 800-3MAGIC3 and let them know, and they may give

you a membership at no charge for a year. I don't believe they ask

for any financial proof, I think they realize that if a family has

trouble with $25 (considering the cost that people spend on

Starbucks coffees!) that they truly are in need. So don't hesitate

to call them. Salem

> > ,

> > It sounds as if you handled that nurse correctly. You

are

> correct,

> > only 10% of the RSS cases test positive for UPD 7. And that 10%

> seems to only

> > occur in those with " mild " cases of RSS. But, of course, if he

> tests negative

> > does not mean that he doesn't have RSS. I believe you are a

member

> of MAGIC.

> > If so, I would take full advantage of their library. Request

> copies of the

> > info. (maybe someone else could fill in the #'s of the

pertinent

> ones, I don't

> > have the sheet?) and take those to your geneticist appointment.

It

> sounds

> > like you're doing this already, but come knowledgable. Good

luck!

> >

> > (mom to ,5.5, (non-RSS) and Christian, 2.5, RSS, 20# 9oz.,

> Zantac and

> > Periactin)

> >

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