Re: we met another little boy with clubfoot

[Guest guest]

That must have been so great.

I would love to meet someone who I could chat with face to face. Not that you

all aren't there for me but wow. I am so sick - eventhough this has been stated

before- - of all the people coming up to me and saying -- - my so and so wore

those shoes. I had a woman stop me in the mall to tell me that her, her mother

and her daughter were pigeon-toed. And it was great to see me taking my child

out to have him photographed in his brace. But she says " if he only needs it

while he is sleeping why do you have him in it for his pictures " .

I smiled politely until that statement and I very matter of factly said " he was

born with clubfeet, this is a small part of his treatment and he wears the shoes

and bar 24 hours aday. Thanks for sharing your story, but we have to go. " and

Again, the whole time wishing for that bird to come and eat her.....

But later that night while we were at the picture people a little boy noticed

the bar and he, his 2 brothers, mother and father all sat wide eyed while I

explained how was born with " crooked feet " , showed them the picture

from his birth and explained the processed and the youngest boy who was about 12

looked at me with adoring eyes and said, " wow, he is lucky that you did it this

way huh? " and his brother who was about 14 or so said, " Man, I never want to

have surgery. "

They totally made my night.....

dm

Gerace cgerace@...> wrote:

Yesterday, I took and Christian to New York City to see the Radio

City Christmas show, tree etc. and when we were waiting to be seated we met

a little boy who was still in his casts. His mom noticed Christian's bar

and decided to strike up a conversation with me. She is also using the

Ponseti Method but her doctor is NOT certified. She says she is happy with

the results so far. Anyway, I just thought it was amazing in that sea of

people to meet another person like that.

Mommy to (12-17-98) and

Christian (1-30-04) LCF - DBB 23/7

[Guest guest]

That must have been so great.

I would love to meet someone who I could chat with face to face. Not that you

all aren't there for me but wow. I am so sick - eventhough this has been stated

before- - of all the people coming up to me and saying -- - my so and so wore

those shoes. I had a woman stop me in the mall to tell me that her, her mother

and her daughter were pigeon-toed. And it was great to see me taking my child

out to have him photographed in his brace. But she says " if he only needs it

while he is sleeping why do you have him in it for his pictures " .

I smiled politely until that statement and I very matter of factly said " he was

born with clubfeet, this is a small part of his treatment and he wears the shoes

and bar 24 hours aday. Thanks for sharing your story, but we have to go. " and

Again, the whole time wishing for that bird to come and eat her.....

But later that night while we were at the picture people a little boy noticed

the bar and he, his 2 brothers, mother and father all sat wide eyed while I

explained how was born with " crooked feet " , showed them the picture

from his birth and explained the processed and the youngest boy who was about 12

looked at me with adoring eyes and said, " wow, he is lucky that you did it this

way huh? " and his brother who was about 14 or so said, " Man, I never want to

have surgery. "

They totally made my night.....

dm

Gerace cgerace@...> wrote:

Yesterday, I took and Christian to New York City to see the Radio

City Christmas show, tree etc. and when we were waiting to be seated we met

a little boy who was still in his casts. His mom noticed Christian's bar

and decided to strike up a conversation with me. She is also using the

Ponseti Method but her doctor is NOT certified. She says she is happy with

the results so far. Anyway, I just thought it was amazing in that sea of

people to meet another person like that.

Mommy to (12-17-98) and

Christian (1-30-04) LCF - DBB 23/7

[Guest guest]

I too would love to meet someone who has a child or had a club foot. Everybody

stares it would be nice for someone to come up and say 'oh, your baby has a club

foot, so does mine' blah blah blah.

Anyway I'm sure I will bump into someone - or maybe I look too scary!

Sharon

Dawn-Marie dawnmarie2251@...> wrote:

That must have been so great.

I would love to meet someone who I could chat with face to face. Not that you

all aren't there for me but wow. I am so sick - eventhough this has been stated

before- - of all the people coming up to me and saying -- - my so and so wore

those shoes. I had a woman stop me in the mall to tell me that her, her mother

and her daughter were pigeon-toed. And it was great to see me taking my child

out to have him photographed in his brace. But she says " if he only needs it

while he is sleeping why do you have him in it for his pictures " .

I smiled politely until that statement and I very matter of factly said " he was

born with clubfeet, this is a small part of his treatment and he wears the shoes

and bar 24 hours aday. Thanks for sharing your story, but we have to go. " and

Again, the whole time wishing for that bird to come and eat her.....

But later that night while we were at the picture people a little boy noticed

the bar and he, his 2 brothers, mother and father all sat wide eyed while I

explained how was born with " crooked feet " , showed them the picture

from his birth and explained the processed and the youngest boy who was about 12

looked at me with adoring eyes and said, " wow, he is lucky that you did it this

way huh? " and his brother who was about 14 or so said, " Man, I never want to

have surgery. "

They totally made my night.....

dm

Gerace cgerace@...> wrote:

Yesterday, I took and Christian to New York City to see the Radio

City Christmas show, tree etc. and when we were waiting to be seated we met

a little boy who was still in his casts. His mom noticed Christian's bar

and decided to strike up a conversation with me. She is also using the

Ponseti Method but her doctor is NOT certified. She says she is happy with

the results so far. Anyway, I just thought it was amazing in that sea of

people to meet another person like that.

Mommy to (12-17-98) and

Christian (1-30-04) LCF - DBB 23/7

[Guest guest]

It is neat how we all gravitate together! I have met a couple of

other people with CF kids and when you talk, it's like you have an

instant connection!

& Grace

> Yesterday, I took and Christian to New York City to see the

Radio

> City Christmas show, tree etc. and when we were waiting to be

seated we met

> a little boy who was still in his casts. His mom noticed

Christian's bar

> and decided to strike up a conversation with me. She is also using

the

> Ponseti Method but her doctor is NOT certified. She says she is

happy with

> the results so far. Anyway, I just thought it was amazing in that

sea of

> people to meet another person like that.

>

>

>

>

>

> Mommy to (12-17-98) and

>

> Christian (1-30-04) LCF - DBB 23/7

>

>

>

>

>

>

[Guest guest]

That's funny you mention that about the pictures being taken. We had

the girls Christmas pictures done and then I had Ava done for her

6mnths photo. The photographer kept trying to get her " adjusted " and

becoming annoyed, because she said her shoes were showing in the

picture. My dh said, " who cares there just her shoes " . I told her we

wanted them in the picture they are a big part of her at this age why

hide them they are nothing to be ashamed of and if they were pretty

shoes she wouldn't be trying to hide them! She didn't say a word and

just took the picture, maybe I was being to harsh but you know

somedays you can only handle so much. We had an appt. but still had

to wait 2 hours til our sitting.

KK

> Yesterday, I took and Christian to New York City to see the

Radio

> City Christmas show, tree etc. and when we were waiting to be

seated we met

> a little boy who was still in his casts. His mom noticed

Christian's bar

> and decided to strike up a conversation with me. She is also using

the

> Ponseti Method but her doctor is NOT certified. She says she is

happy with

> the results so far. Anyway, I just thought it was amazing in that

sea of

> people to meet another person like that.

>

>

>

>

>

> Mommy to (12-17-98) and

>

> Christian (1-30-04) LCF - DBB 23/7

>

>

>

>

>

>

[Guest guest]

We had Kelsey's one year picture taken in her post-tenotomy big pink

cast. It shows up in most of the pictures but I agree that it is part

of who she was at that time and we now have it documented. Our

photographer was better though. She wanted to show the cast because she

thought it was cute.

Jenni

fabegirls wrote:

>That's funny you mention that about the pictures being taken. We had

>the girls Christmas pictures done and then I had Ava done for her

>6mnths photo. The photographer kept trying to get her " adjusted " and

>becoming annoyed, because she said her shoes were showing in the

>picture. My dh said, " who cares there just her shoes " . I told her we

>wanted them in the picture they are a big part of her at this age why

>hide them they are nothing to be ashamed of and if they were pretty

>shoes she wouldn't be trying to hide them! She didn't say a word and

>just took the picture, maybe I was being to harsh but you know

>somedays you can only handle so much. We had an appt. but still had

>to wait 2 hours til our sitting.

>KK

>

>>Yesterday, I took and Christian to New York City to see the

>>

>>

>Radio

>

>

>>City Christmas show, tree etc. and when we were waiting to be

>>

>>

>seated we met

>

>

>>a little boy who was still in his casts. His mom noticed

>>

>>

>Christian's bar

>

>

>>and decided to strike up a conversation with me. She is also using

>>

>>

>the

>

>

>>Ponseti Method but her doctor is NOT certified. She says she is

>>

>>

>happy with

>

>

>>the results so far. Anyway, I just thought it was amazing in that

>>

>>

>sea of

>

>

>>people to meet another person like that.

>>

>>

>>

>>

>>

>>Mommy to (12-17-98) and

>>

>>Christian (1-30-04) LCF - DBB 23/7

>>

>>

>>

>>

>>

>>

[Guest guest]

We had Kelsey's one year picture taken in her post-tenotomy big pink

cast. It shows up in most of the pictures but I agree that it is part

of who she was at that time and we now have it documented. Our

photographer was better though. She wanted to show the cast because she

thought it was cute.

Jenni

fabegirls wrote:

>That's funny you mention that about the pictures being taken. We had

>the girls Christmas pictures done and then I had Ava done for her

>6mnths photo. The photographer kept trying to get her " adjusted " and

>becoming annoyed, because she said her shoes were showing in the

>picture. My dh said, " who cares there just her shoes " . I told her we

>wanted them in the picture they are a big part of her at this age why

>hide them they are nothing to be ashamed of and if they were pretty

>shoes she wouldn't be trying to hide them! She didn't say a word and

>just took the picture, maybe I was being to harsh but you know

>somedays you can only handle so much. We had an appt. but still had

>to wait 2 hours til our sitting.

>KK

>

>>Yesterday, I took and Christian to New York City to see the

>>

>>

>Radio

>

>

>>City Christmas show, tree etc. and when we were waiting to be

>>

>>

>seated we met

>

>

>>a little boy who was still in his casts. His mom noticed

>>

>>

>Christian's bar

>

>

>>and decided to strike up a conversation with me. She is also using

>>

>>

>the

>

>

>>Ponseti Method but her doctor is NOT certified. She says she is

>>

>>

>happy with

>

>

>>the results so far. Anyway, I just thought it was amazing in that

>>

>>

>sea of

>

>

>>people to meet another person like that.

>>

>>

>>

>>

>>

>>Mommy to (12-17-98) and

>>

>>Christian (1-30-04) LCF - DBB 23/7

>>

>>

>>

>>

>>

>>

[Guest guest]

That is really awesome! I have'nt run into any other cf babies out and

about. Only in the doctors office.

On another note, how was the Christmas Spectacular this year!! I was in

NYC last weekend also to see the tree, windows, etc. The line for Toys R

Us was 4 blocks long!!!!!!! I didn't have my kids with me, but I still

wanted to go in. There was no chance I was going to wait 3 hours just to

get in a store. I heard it was pretty amazing though. I did see the

Producers. That was fabulous!!! And definately not for kids.

Shook

Retail Operations Manager/Baking Instructor

Vie de France Yamazaki, Inc.

2070 Chain Bridge Rd. Suite 500

Vienna, VA 22182

x374

x374

fax

[Guest guest]

Hi ,

The show was very good. They made some slight changes to last year's

program but nothing crazy. There was no intermission and the whole shoe

seemed a lot shorter! Anyway, we did make it over to the Toys R Us and there

is a 25 foot Dinosaur in the Jurassic Park section that was

infatuated with! He wouldn't move for about 10 minutes. There wasn't a

line to get into the store but the line to get on the Ferris wheel in the

store was nuts! Have you gone into " The American Girl " store? Oh My

Goodness! is still young for them but how adorable! If I had a

little girl I would be broke because of that store.

Mommy to (12-17-98) and

Christian (1-30-04) LCF - DBB 23/7

_____

From: susan.shook@...

Sent: Thursday, December 16, 2004 8:43 AM

To: nosurgery4clubfoot

Subject: Re: we met another little boy with clubfoot

That is really awesome! I have'nt run into any other cf babies out and

about. Only in the doctors office.

On another note, how was the Christmas Spectacular this year!! I was in

NYC last weekend also to see the tree, windows, etc. The line for Toys R

Us was 4 blocks long!!!!!!! I didn't have my kids with me, but I still

wanted to go in. There was no chance I was going to wait 3 hours just to

get in a store. I heard it was pretty amazing though. I did see the

Producers. That was fabulous!!! And definately not for kids.

Shook

Retail Operations Manager/Baking Instructor

Vie de France Yamazaki, Inc.

2070 Chain Bridge Rd. Suite 500

Vienna, VA 22182

x374

x374

fax

[Guest guest]

You know I saw that store but didn't know what it was all about, so I

didn't go in. I'm glad because I am already broke!

That's weird about the X-mas show. My sisters saw it last week and there

was an intermission. Maybe they change it from day to night.

Shook

Retail Operations Manager/Baking Instructor

Vie de France Yamazaki, Inc.

2070 Chain Bridge Rd. Suite 500

Vienna, VA 22182

x374

x374

fax

[Guest guest]

You know I saw that store but didn't know what it was all about, so I

didn't go in. I'm glad because I am already broke!

That's weird about the X-mas show. My sisters saw it last week and there

was an intermission. Maybe they change it from day to night.

Shook

Retail Operations Manager/Baking Instructor

Vie de France Yamazaki, Inc.

2070 Chain Bridge Rd. Suite 500

Vienna, VA 22182

x374

x374

fax

[Guest guest]

I thought that it was a little weird with no intermission also.

Next time you are in the city, and you have the opportunity, check the store

out! There is a café with special high chairs for the dolls, a doll salon,

a theatre, etc… its definitely something to see! It made me want to buy one

for myself! Of course, at $100.00 each I walked out empty handed…LOL

Mommy to (12-17-98) and

Christian (1-30-04) LCF - DBB 23/7

_____

From: susan.shook@...

Sent: Thursday, December 16, 2004 10:29 AM

To: nosurgery4clubfoot

Subject: RE: we met another little boy with clubfoot

You know I saw that store but didn't know what it was all about, so I

didn't go in. I'm glad because I am already broke!

That's weird about the X-mas show. My sisters saw it last week and there

was an intermission. Maybe they change it from day to night.

Shook

Retail Operations Manager/Baking Instructor

Vie de France Yamazaki, Inc.

2070 Chain Bridge Rd. Suite 500

Vienna, VA 22182

x374

x374

fax

[Guest guest]

I thought that it was a little weird with no intermission also.

Next time you are in the city, and you have the opportunity, check the store

out! There is a café with special high chairs for the dolls, a doll salon,

a theatre, etc… its definitely something to see! It made me want to buy one

for myself! Of course, at $100.00 each I walked out empty handed…LOL

Mommy to (12-17-98) and

Christian (1-30-04) LCF - DBB 23/7

_____

From: susan.shook@...

Sent: Thursday, December 16, 2004 10:29 AM

To: nosurgery4clubfoot

Subject: RE: we met another little boy with clubfoot

You know I saw that store but didn't know what it was all about, so I

didn't go in. I'm glad because I am already broke!

That's weird about the X-mas show. My sisters saw it last week and there

was an intermission. Maybe they change it from day to night.

Shook

Retail Operations Manager/Baking Instructor

Vie de France Yamazaki, Inc.

2070 Chain Bridge Rd. Suite 500

Vienna, VA 22182

x374

x374

fax