symposium and Alaya's recheck

[Guest guest]

I'm finally able to take a few minutes to post since

we got back from the symposium. It was great to put

some faces to names. There were about 15 families

there. I didn't sit in on any of the speakers this

year because I didn't want to leave Tony with all

three kids.

Dr. Buchanan, I think he is an administrator at the

hospital, has been working with Charity and met with

all the parents on Saturday. He would like all of us

to think about contacts we may have to get media

attention for the Ponseti method. Even if it is local

media. The national media frequently pick up local

stories. He would like to see 60 minutes do a story

because it is an hour long program on one topic, but

we will take whatever we can get. Charity did a great

job presenting the quilt to Dr. Ponseti. It is

beautiful. We have been assured that they will find a

place to hang it.

As already mentioned we all headed over to the

rec center and had the first annual Ponseti Clubfoot

Kids Race. Alaya ran all the way around the track

when we first got there then wouldn't run the race.

Oh Well.

On a personal note Dr. Ponseti reduced the angle of

her shoes and said she needs to wear them for another

3 months then he will consider removing them. He

wants to see her back at that time. Tony is excited

because he wants to go Ice Fishing while we are there.

Sounds like FUN to me... Can you hear the sarcasm in

my voice.

I was glad that 's episode of what not to wear

was on while we were there. We don't have TLC at home

Bridget and I watched it together. BTW , you

didn't sound like a hick to me.

We had a great time. We are already looking forward

to next year. I think it would be great if we can

somehow find former patients of Dr. Ponseti's and have

a reunion. Tony suggested that these are the people

we need to get for donations as well. I was also

thinking it would be great to get celebrities who had

CF involved in the effort for national attention. I

know I've seen pictures of Kristi and Mia in the bar,

but I don't know if they were treated with the Ponseti

method. Kristi Yamaguchi, Troy Aikman, Mia Hamm. OK

now I'm dreaming. Enough rambling.

Joanne