Re: Digest Number 1147

[Guest guest]

Hi, Jackie,

>I'm sure I'm in this malabsorption subset. So what do I do?

As far as B vitamins, there are a couple of different sublingual B vitamin

formulations around. The one I use is call Sublingual B Total, from

Pharmaceutical Laboratories, Inc. (800) 856-7040

I have no financial interest in them, but have found them to be the best &

most affordable so far.

Note that sublingual formulas cannot include thiamine (B1). Thiamine cannot

be absorbed at the same pH, because it is a weak acid itself, and it turns

out to shorten the shelf life of the other B vits if included in a combo

formula. As far as I know there is no sublingual thiamine available - you

would have to get Rx injectible form.

I would suggest trying the sublingual B Total (GNC has an equivalent) & see

if that makes a difference to you. If you know the smell of thiamine you

might be able to tell whether you need that also, but be prepared to explain

to your doc, as this is off-label and highly unorthodox use for it.

Jerry

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[Guest guest]

In a message dated 9/27/00 8:11:47 AM Eastern Daylight Time,

egroups writes:

<< bluupoint@... >>

Andi, You don't say if you are on a diuretic. Many of us are..the most

common one we take is Aldactone..some also take Lasic if the Aldactone

doesn't work. The basic diet with a decrease in SODIUM is what the doctor

will tell you. But, it is important you tell them and show them you have

edema...then they can prescribe the med for you. Also, try to wear socks

that are not tight...get ones with loose elastic tops.

Joanne (PBC) List Moderator

[Guest guest]

sometimes it is hard to sustain self-esteem on

spectrum. great post. thank you.

--- >

> The ASA welcomes all therapies and people. They have

> specific

> tracts, sessions, and events for adults on the

> spectrum and adult

> issues. For the first time I received the

> opportunity to interact

> and meet with a number of adults ranging from low

> skills to high

> functioning skills, from " definitely autistic " to

> PDD to Asperger's

> to ADD and others of a range. I was acutally a bit

> nervous on how I

> may " fit in " or not.

>

> All the adults were exceptionally wonderful! If

> anyone is thinking

> that unless the person is completely " cured " they

> will have a

> horrible life, I can attest that you do not have to

> live with that

> fear! A number of these adults had exceptionally

> good social skills -

> even clearly out-stripping many of the NT folks

> there! I saw

> kindness, openness, involvement, joking. Eye contact

> was a bit weak

> but I think that is a bit over-rated anyway.

> Definitely lots of

> conversation and interaction. I met several adults

> with autism who

> had written books and they were just fantastic. At

> one point I was

> in a conversation with the theme " if society was run

> from an

> autism/sensory sensitive view. " There was general

> agreement that:

> 1. telemarketing should be a federal offense

> 2. asking " do you want paper or plastic " isn't

> annoying particularly

> since they only

> 3. Why do hotels use so much orange multi-patterned

> carpeting?

> 4. If I WANTED " fries with that " I would have SAID

> french fries with

> my order.

> 5. there should be " stimming " contests and how-to

> sessions

> 6. there wouldn't be beaurocratic run-arounds

> because people with

> autism wouldn't see the point in having such a

> system

> 7. traffic jams would be eliminated because no one

> would show up and

> continually participate in such a time-wasting

> unproductive activity

> (talk about a meaningless repetitive action!)

> ...and other such items.

>

> It was quite a grand experience. One of the the most

> memorable

> moments was during Dr. Wakefield's keynote

> presentation when his

> computer wouldn't boot and show his slides. It was a

> really awkward

> 10 mintues, until someone started playing on a piano

> in the room " if

> you are happy and you know it (clap your hands) " and

> the entire 1500

> people started signing and clapping at the clapping

> parts. That

> continued until the computer problem got fixed and

> people raved

> about how great and fun it was turning possibly the

> worse moment of

> the conference into the best. The worse " social "

> situation turned

> into the best. Guess what? That person playing the

> piano was an

> autistic adult...who took some initiative and

> managed to

> socially " fix " a troubling problem. It was

> positively GREAT! I will

> just call this charming person " Shore " and

> note that he is

> working on his Ph.D. in special education and uses

> his ability and

> insight to mentor and help children with autism.

> This is definitely

> someone I would never want to see " defeated. "

>

> (I realize what the " defeated " is supposed to mean

> in

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[Guest guest]

Amy, I first want to say No, I do not push everyone on this list for a cure

your the first one I ran across in 2 years that even stated they knew the

cause of their childs Autisim thats what got me so interested in the first

place. Its not everyday you see that on a post. Also I thought maybe if this

Dr. found a cause he knew of a cure. I guess I was wrong sometimes the way

people state things seems nasty or maybe its just the lack of mental

knowledge in what they are doing or saying. I never said your daughter did

not have a known cause or cure. Great for you ,and her no matter whats ever

said or done the child is never to blame. I just wanted to clear this up

because for some reason you seem so resentful to me. I really don't loose any

sleep over it , but that thing that bothers me the most is how can you have

an e-mail address like you do ,and seem so hateful? I do not claim to be or

make my self look like I am totally reglious, although I do believe in God.

You know what my sister is a missionary for Campus Crusade For Christ out of

Ohio State where she graduated from I will have her pray for you that you

become more understanding of other peoples comments , but at the same time

look at your own! Sorry for any hurt feelings or mean intent at first it

really was not there. I just never heard of someone knowing the cause of

their childs Autisim ,and being so blunt and acting like we never had those

test's done. I am not sure when your daughter was dx ,but Mine was a couple

of years ago so I would like to think I know something ,and I am not a new

comer to this group. Sometimes people need to listen , and not talk. I did

for a while. This group has a great bunch of people , and its not meant for

this stuff so I am done with this topic ,and I hope your daughter all the

best in the world she deserves it! le(mother of Noelle in Ohio)

[Guest guest]

Ok girls, lets just try and get on ok.......i know we all can read different

things into emails, and i too can do the same, and have done in the past. it

is great if you can find the cause of Autism, for me, i just accept the

blessings that God has given me, and one of them is my sweet Hannah, as we

should all accept our kids. Lets just start afresh ok.....seems like the

best thing we can do. Cheryl S [aussie]

-- Re: Digest Number 1147

Amy, I first want to say No, I do not push everyone on this list for a cure

your the first one I ran across in 2 years that even stated they knew the

cause of their childs Autisim thats what got me so interested in the first

place. Its not everyday you see that on a post. Also I thought maybe if this

Dr. found a cause he knew of a cure. I guess I was wrong sometimes the way

people state things seems nasty or maybe its just the lack of mental

knowledge in what they are doing or saying. I never said your daughter did

not have a known cause or cure. Great for you ,and her no matter whats ever

said or done the child is never to blame. I just wanted to clear this up

because for some reason you seem so resentful to me. I really don't loose

any

sleep over it , but that thing that bothers me the most is how can you have

an e-mail address like you do ,and seem so hateful? I do not claim to be or

make my self look like I am totally reglious, although I do believe in God.

You know what my sister is a missionary for Campus Crusade For Christ out of

Ohio State where she graduated from I will have her pray for you that you

become more understanding of other peoples comments , but at the same time

look at your own! Sorry for any hurt feelings or mean intent at first it

really was not there. I just never heard of someone knowing the cause of

their childs Autisim ,and being so blunt and acting like we never had those

test's done. I am not sure when your daughter was dx ,but Mine was a couple

of years ago so I would like to think I know something ,and I am not a new

comer to this group. Sometimes people need to listen , and not talk. I did

for a while. This group has a great bunch of people , and its not meant for

this stuff so I am done with this topic ,and I hope your daughter all the

best in the world she deserves it! le(mother of Noelle in Ohio)

[Guest guest]

Dannilyn-

You're right, this list is not meant for the content of what you just

wrote!

If you want to post personal feelings/problems with things I've said, you

are welcome to e-mail me off the list. The rest on the list have nothing

to do with this!!

Amy

[Guest guest]

You are so right Cheryl

Pennie

P.S. How are things down under?

[Guest guest]

Things here are fine, just getting Hannah all organised for

school......i don’t want it to be a long year for her, her next 2 week

break won’t be now till about the 19th April......sheesh, that is a few

weeks to go, but I am hoping they go quickly for her, without too many

stressful times, here's hoping a praying!. Cheryl S

Re: Digest Number 1147

You are so right Cheryl

Pennie

P.S. How are things down under?

[Guest guest]

Abby is having a great year. Speech is wonderful, lost her two front

teeth-she is still to cute! Oh and she has picked up a couple of boyfriends

this year. LOL

Pennie

[Guest guest]

Hi ,

I am a huge Pete fan, and I think it's wonderful to

hear that you're spreading his TLC approach through

your classes. What gets my blood boiling is how the

approach that he's spent years developing and teaching

so well can be OK in your BCIA-accredited courses and

not under his own banner.

I know that intellectual property is something that

many people don't consider. As a writer (who has seen

my exact words in another writer's magazine article),

it's an area I am a little familiar with. If a

publisher turned down my wowie-zowie article because

he or she doubted my expertise but decided to publish

another writer's rehashing of my research because his

or her credentials were better, I would definitely

consider it plagiarism.

In fact, I also teach writing classes for large

corporations and government agencies. I have put a lot

of work into the workbook and other classroom

materials I've created as well as the unique approach

I use, which effectively changes the way people write

after just one day of instruction. If I were to

discover that some folks who had participated in my

class had started teaching their own writing classes

using my approach or had adapted my materials for

their classes, I would not be happy. But that's just

me. Pete is probably a better person than I. We are

all interested in spreading his approach. But I

thought I would raise the issue.

As a BCIA-certified instructor, can't you speak on his

behalf and point out that you're teaching his stuff?

Wouldn't it be better if he were teaching it himself?

Jane

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