Re: I just need to vent a little.

[Guest guest]

Hi I can relate my daughter screamed bloody murder when ever she

wore the shoes to sleep. I did the same thing in desperation. I

think I've finally trained her not to sleep on her side at all

though. and it turned out the shoes were rubbing her feet wrong.

>

> I have written in only a few times, as I usually find it very

> helpful just to read other's posts and replies. But I really need

> some support. I feel like I am losing my mind. For almost 10

> months my son Dane has been doing so well. At one week old, he

was

> casted. And he was only casted for 2 weeks before getting fitted

> with the DBB. He didn't need surgery. He wore the DBB fulltime

> (23/7) until he was six months old in June and since then has been

> wearing it only at bedtime. Just in the last few weeks, he has

been

> extremely restless at night. He sleeps fine until he starts

trying

> to turn on his side, then he wakes up crying hysterically. I know

> this because he still sleeps in our room. He then wakes up every

> ten minutes all thru the rest of the night! This has been very

hard

> on all of us, considering that he started sleeping thru the night

at

> just eight weeks old. I feel just aweful complaining about this,

> but it is really taking it's toll on me. Not to mention my poor

> little baby, who can't get a decent night of sleep. Lately I have

> been so frustrated around 2-3AM that I just take the DBB off!!!

He

> then sleeps quietly for the rest of the night. I KNOW this is a

> horrible habit that I have gotten into. And I feel sick about

it.

> But I am soooo exhausted and desperate for sleep and so is Dane.

I

> just made an appointment for him to get fitted with new shoes and

a

> new DBB. I honestly don't know if that'll help, but I am hoping.

> Thank you for listening. I just needed to vent. No one

understands

> how hard this has been on me. I feel selfish saying that, but

it's

> the truth. I waited four long years to have a baby and after

going

> thru IVF, I never expected to have this happen. I didn't even

know

> what Clubfoot was until after Dane was born with it. Blah, blah,

> blah. Enough of my whining. Don't get me wrong, I am extremely

> grateful and I feel VERY blessed to have a healthy beautiful

> baby!!!! Thank you again for listening.

> Sonja

> Dane-10 months

> DBB at bedtime

[Guest guest]

We were also blessed with a good sleeper most of the time, but we've had

our moments of sleepless nights too along the way..

A few suggestions that I can offer from our experience:

When is restless in his sleep or waking up often crying, we check

his FAB to see if it needs adjusting. Maybe the bar needs to be

widened, or his shoes are getting too small?

If he's still in a crib, does his shoe get stuck in the bars when he

moves onto his side? We had this problem when was around 10-11

months, so we moved him into a big travel 'pack & play' type crib with

netting sides, now he can lean his shoes against the sides and sleeps

very well. He's still sleeping comfortably in it and he's 20 months now.

The next step will be a bed.

I think their sleep 'habits' change quite lot between 9 and 12 months,

they're much more active and it could be that he is getting the shoe

stuck.

It's amazing how when you find the problem they sleep so well again.

If you have a homeopathic remedy called " Rescue Remedy " , give him a

couple to chew or in his milk before bed for three consecutive nights,

it relaxes them. We travel quite often and I find it really helps to

settle him into a good sleeping pattern again.

Good luck!

and

www.clubfoot.co.za

I just need to vent a little.

I have written in only a few times, as I usually find it very

helpful just to read other's posts and replies. But I really need

some support. I feel like I am losing my mind. For almost 10

months my son Dane has been doing so well. At one week old, he was

casted. And he was only casted for 2 weeks before getting fitted

with the DBB. He didn't need surgery. He wore the DBB fulltime

(23/7) until he was six months old in June and since then has been

wearing it only at bedtime. Just in the last few weeks, he has been

extremely restless at night. He sleeps fine until he starts trying

to turn on his side, then he wakes up crying hysterically. I know

this because he still sleeps in our room. He then wakes up every

ten minutes all thru the rest of the night! This has been very hard

on all of us, considering that he started sleeping thru the night at

just eight weeks old. I feel just aweful complaining about this,

but it is really taking it's toll on me. Not to mention my poor

little baby, who can't get a decent night of sleep. Lately I have

been so frustrated around 2-3AM that I just take the DBB off!!! He

then sleeps quietly for the rest of the night. I KNOW this is a

horrible habit that I have gotten into. And I feel sick about it.

But I am soooo exhausted and desperate for sleep and so is Dane. I

just made an appointment for him to get fitted with new shoes and a

new DBB. I honestly don't know if that'll help, but I am hoping.

Thank you for listening. I just needed to vent. No one understands

how hard this has been on me. I feel selfish saying that, but it's

the truth. I waited four long years to have a baby and after going

thru IVF, I never expected to have this happen. I didn't even know

what Clubfoot was until after Dane was born with it. Blah, blah,

blah. Enough of my whining. Don't get me wrong, I am extremely

grateful and I feel VERY blessed to have a healthy beautiful

baby!!!! Thank you again for listening.

Sonja

Dane-10 months

DBB at bedtime

[Guest guest]

Sonja,

I can completely understand how you feel. I waited for a long time

to have a baby as well, though I didn't have to go through IVF.

We all want the perfect baby. n was born premature..out of all

the things that could have gone wrong with him, a slight club foot

was all that occured. It is so slight people couldn't even tell, but

he, like every other CF baby has to undergo the full treatment of

casts and DBB. He is only 3 months and already wants to crawl, and

believe it or not, walk. I feel horrible for " binding " him into the

DBB. Part of me KNOWS he needs this and that there isn't any other

option. The other part of me cries and wonders if he thinks he has a

horrible mama.

It is so tempting to just say " Screww the DBB!!! " But I know I

can't. It takes so much strength and will power. You ask

yourself " why? why my son? and why does he have to be treated just

like the more severe cases? "

n just started his DBB though...and I know he is supposed to

be in it 23/7 but he hasn't gotten up to that point yet. I can't

have Daycare deal with it, so he doesn't wear it there. We are

trying to keep him in it as long as possible at home. Sunday he did

VERY well, wore it for 6 hours at a stretch, with a twoish hour

break. Last night he had it on nearly 10, but woke up screaming at

3:30 am.

It tears my heart apart. Just as Dane's screaming tears at you.

Sometimes I think I need to go on Prozac or something just to stay

sane through this situation.

I am so thankful for these groups and everyone's support. I

seriously don't know what I would do without it.

*hugs of support*

Donna

feel free to email me if you ever just want to chat and vent about

it all.

>

> I have written in only a few times, as I usually find it very

> helpful just to read other's posts and replies. But I really need

> some support. I feel like I am losing my mind. For almost 10

> months my son Dane has been doing so well. At one week old, he

was

> casted. And he was only casted for 2 weeks before getting fitted

> with the DBB. He didn't need surgery. He wore the DBB fulltime

> (23/7) until he was six months old in June and since then has been

> wearing it only at bedtime. Just in the last few weeks, he has

been

> extremely restless at night. He sleeps fine until he starts

trying

> to turn on his side, then he wakes up crying hysterically. I know

> this because he still sleeps in our room. He then wakes up every

> ten minutes all thru the rest of the night! This has been very

hard

> on all of us, considering that he started sleeping thru the night

at

> just eight weeks old. I feel just aweful complaining about this,

> but it is really taking it's toll on me. Not to mention my poor

> little baby, who can't get a decent night of sleep. Lately I have

> been so frustrated around 2-3AM that I just take the DBB off!!!

He

> then sleeps quietly for the rest of the night. I KNOW this is a

> horrible habit that I have gotten into. And I feel sick about

it.

> But I am soooo exhausted and desperate for sleep and so is Dane.

I

> just made an appointment for him to get fitted with new shoes and

a

> new DBB. I honestly don't know if that'll help, but I am hoping.

> Thank you for listening. I just needed to vent. No one

understands

> how hard this has been on me. I feel selfish saying that, but

it's

> the truth. I waited four long years to have a baby and after

going

> thru IVF, I never expected to have this happen. I didn't even

know

> what Clubfoot was until after Dane was born with it. Blah, blah,

> blah. Enough of my whining. Don't get me wrong, I am extremely

> grateful and I feel VERY blessed to have a healthy beautiful

> baby!!!! Thank you again for listening.

> Sonja

> Dane-10 months

> DBB at bedtime

[Guest guest]

But ladies - listen, if you don't tolerate the DBB now, you are going to force

your baby to endure more casts later, if not the ATTT surgery! (or worse) I

know it's hard, but what are the alternatives? A little peace now for a whole

lot of pain and suffereing later on when they're old enough to know more about

it all? You don't " work up " to 24/7, you work DOWN from there! If he's not

wearing it, he's at a real high risk of losing correction at an extremely quick

rate, then where will you be? Back to ground zero.

You both have perfect babies. All of us here have perfect babies, made

perfectly the way the good Lord intended them to be, given to us I assume for

our strengths and abilities to give them all they will need for a healthy happy

life. My perfect baby was born after many years of fertility problems too (I

wonder if there's a connection?).....the way I saw it, God was asking me just

how bad did I really want that child I'd been praying for? Would I still want

him if his body was crooked? Of course the answer for all of us is yes.

We need to be having positive thoughts regarding the DBB, not negative ones as

we really can create our own reality here one way or the other. The children

pick up on our feelings and our emotions, we send out these bad vibes and they

can read us like a book as if the cord was still connected....they will feel

what you feel.

If there is no reason for the DBB to be causing pain (i.e. correct fit and

correction of the foot) then it's just a matter of sticking it out guts,

feathers and all. This is a long-term deal, years of this. If you fight it,

you'll end up losing the battle and your baby will suffer.

My heart is with you and I don't mean to deminish your lack of sleep, your

frustration, your broken hearts.....all those feelings are very valid and

probably all of us here have felt them from time to time, but really, your kids

need this thing and they cannot do it themselves. They need you to be strong

for them. God put you in charge of a special-needs baby, it's both an honor and

a duty you have on your shoulders here. Be proud! Tell yourself today is a

good day for getting new feet

s.

Re: I just need to vent a little.

Sonja,

I can completely understand how you feel. I waited for a long time

to have a baby as well, though I didn't have to go through IVF.

We all want the perfect baby. n was born premature..out of all

the things that could have gone wrong with him, a slight club foot

was all that occured. It is so slight people couldn't even tell, but

he, like every other CF baby has to undergo the full treatment of

casts and DBB. He is only 3 months and already wants to crawl, and

believe it or not, walk. I feel horrible for " binding " him into the

DBB. Part of me KNOWS he needs this and that there isn't any other

option. The other part of me cries and wonders if he thinks he has a

horrible mama.

It is so tempting to just say " Screww the DBB!!! " But I know I

can't. It takes so much strength and will power. You ask

yourself " why? why my son? and why does he have to be treated just

like the more severe cases? "

n just started his DBB though...and I know he is supposed to

be in it 23/7 but he hasn't gotten up to that point yet. I can't

have Daycare deal with it, so he doesn't wear it there. We are

trying to keep him in it as long as possible at home. Sunday he did

VERY well, wore it for 6 hours at a stretch, with a twoish hour

break. Last night he had it on nearly 10, but woke up screaming at

3:30 am.

It tears my heart apart. Just as Dane's screaming tears at you.

Sometimes I think I need to go on Prozac or something just to stay

sane through this situation.

I am so thankful for these groups and everyone's support. I

seriously don't know what I would do without it.

*hugs of support*

Donna

feel free to email me if you ever just want to chat and vent about

it all.

>

> I have written in only a few times, as I usually find it very

> helpful just to read other's posts and replies. But I really need

> some support. I feel like I am losing my mind. For almost 10

> months my son Dane has been doing so well. At one week old, he

was

> casted. And he was only casted for 2 weeks before getting fitted

> with the DBB. He didn't need surgery. He wore the DBB fulltime

> (23/7) until he was six months old in June and since then has been

> wearing it only at bedtime. Just in the last few weeks, he has

been

> extremely restless at night. He sleeps fine until he starts

trying

> to turn on his side, then he wakes up crying hysterically. I know

> this because he still sleeps in our room. He then wakes up every

> ten minutes all thru the rest of the night! This has been very

hard

> on all of us, considering that he started sleeping thru the night

at

> just eight weeks old. I feel just aweful complaining about this,

> but it is really taking it's toll on me. Not to mention my poor

> little baby, who can't get a decent night of sleep. Lately I have

> been so frustrated around 2-3AM that I just take the DBB off!!!

He

> then sleeps quietly for the rest of the night. I KNOW this is a

> horrible habit that I have gotten into. And I feel sick about

it.

> But I am soooo exhausted and desperate for sleep and so is Dane.

I

> just made an appointment for him to get fitted with new shoes and

a

> new DBB. I honestly don't know if that'll help, but I am hoping.

> Thank you for listening. I just needed to vent. No one

understands

> how hard this has been on me. I feel selfish saying that, but

it's

> the truth. I waited four long years to have a baby and after

going

> thru IVF, I never expected to have this happen. I didn't even

know

> what Clubfoot was until after Dane was born with it. Blah, blah,

> blah. Enough of my whining. Don't get me wrong, I am extremely

> grateful and I feel VERY blessed to have a healthy beautiful

> baby!!!! Thank you again for listening.

> Sonja

> Dane-10 months

> DBB at bedtime

[Guest guest]

Sonja,

When is the last time that Dane's brace has been adjusted? I think

you're right to go get it re-sized. Does he have the adjustable

length bar? The inside edges of the heels of the shoes should be set

at a distance equal to the width of his shoulders. There's a good

picture of how to " eyeball " this measurement at this site:

http://pages.ivillage.com/ponseti_links under the bracing section.

I hope you're able to figure out what's bugging him and get it

straightened out soon. I know my kids would also go through restless

stages at night when they were going through major milestones

(teething, crawling, walking etc.). It would be very annoying!

Not that you need another thing to worry about- but I'd be a little

cautious about the length of time he is spending in the brace at his

age also. Usually the kids don't go into " night-time only " wear

until they're walking. If his hours were reduced to 10-12

hours/night at 6 months old already, there is a chance that his feet

might be slightly relapsing and the brace is becoming uncomfortable.

I'm not saying this *is* the case- but something to watch for. It's

better to err on the side of caution when using the brace- just to

make sure that you don't have to go back into casts or deal with

relapses at an older age. Usually, the child is wearing the bar 16-

18 hours/day (night and nap time) at Dane's age.

Keep us posted!

& (3-16-00)

left clubfoot

>

> I have written in only a few times, as I usually find it very

> helpful just to read other's posts and replies. But I really need

> some support. I feel like I am losing my mind. For almost 10

> months my son Dane has been doing so well. At one week old, he was

> casted. And he was only casted for 2 weeks before getting fitted

> with the DBB. He didn't need surgery. He wore the DBB fulltime

> (23/7) until he was six months old in June and since then has been

> wearing it only at bedtime. Just in the last few weeks, he has

been

> extremely restless at night. He sleeps fine until he starts trying

> to turn on his side, then he wakes up crying hysterically. I know

> this because he still sleeps in our room. He then wakes up every

> ten minutes all thru the rest of the night! This has been very

hard

> on all of us, considering that he started sleeping thru the night

at

> just eight weeks old. I feel just aweful complaining about this,

> but it is really taking it's toll on me. Not to mention my poor

> little baby, who can't get a decent night of sleep. Lately I have

> been so frustrated around 2-3AM that I just take the DBB off!!! He

> then sleeps quietly for the rest of the night. I KNOW this is a

> horrible habit that I have gotten into. And I feel sick about it.

> But I am soooo exhausted and desperate for sleep and so is Dane. I

> just made an appointment for him to get fitted with new shoes and a

> new DBB. I honestly don't know if that'll help, but I am hoping.

> Thank you for listening. I just needed to vent. No one

understands

> how hard this has been on me. I feel selfish saying that, but it's

> the truth. I waited four long years to have a baby and after going

> thru IVF, I never expected to have this happen. I didn't even know

> what Clubfoot was until after Dane was born with it. Blah, blah,

> blah. Enough of my whining. Don't get me wrong, I am extremely

> grateful and I feel VERY blessed to have a healthy beautiful

> baby!!!! Thank you again for listening.

> Sonja

> Dane-10 months

> DBB at bedtime

[Guest guest]

I of course realize he needs these, and I will do whatever I need to

to prevent future problems and/or surgeries. I am sure the same goes

for Sonja. n's doc is aware of what I am doing as far as

daycare and working on building him up to the full day. At least I

am not giving up! Perhaps because n's case is so slight he

isn't quite as worried about it...While we may seem like we are

giving in to easily to you, with us building up and not having him

in it at daycare...keep in mind that we are complying, we refuse to

be one of those sets of parents who just totally give up and say he

doesn't need it. We know he does. We are just trying to make the

transition as easy on him as possible. As for daycare, well, we

really have no choice. They are wonderful with the kids, and the

only ones in our area that we can afford. we both HAVE to work.

Trust me, if I didn't have to, I would be at home with him right

now! Yes, my boy is perfect. He is the light of my life and my

entire world. I have never thought otherwise..that is why i put

words like " normal " and " perfect " in quotations...these are

societies standards..not ours as parents. We know how wonderful our

children are. It's natural for us to have week moments. Yes we are

strong..and no we can't show our weakness to our little ones. Trust

me, I don't. When he has it on I show him everything positive about

the bar. We play with kicking and standing and do everything just as

we always have.

but..if we can't release here..show our weakness here so that we

have support to keep us strong..where else can we go? We all know

what we have to do...sometimes it's just hard to do it.

> >

> > I have written in only a few times, as I usually find it very

> > helpful just to read other's posts and replies. But I really

need

> > some support. I feel like I am losing my mind. For almost 10

> > months my son Dane has been doing so well. At one week old, he

> was

> > casted. And he was only casted for 2 weeks before getting

fitted

> > with the DBB. He didn't need surgery. He wore the DBB fulltime

> > (23/7) until he was six months old in June and since then has

been

> > wearing it only at bedtime. Just in the last few weeks, he has

> been

> > extremely restless at night. He sleeps fine until he starts

> trying

> > to turn on his side, then he wakes up crying hysterically. I

know

> > this because he still sleeps in our room. He then wakes up

every

> > ten minutes all thru the rest of the night! This has been very

> hard

> > on all of us, considering that he started sleeping thru the

night

> at

> > just eight weeks old. I feel just aweful complaining about

this,

> > but it is really taking it's toll on me. Not to mention my poor

> > little baby, who can't get a decent night of sleep. Lately I

have

> > been so frustrated around 2-3AM that I just take the DBB off!!!

> He

> > then sleeps quietly for the rest of the night. I KNOW this is a

> > horrible habit that I have gotten into. And I feel sick about

> it.

> > But I am soooo exhausted and desperate for sleep and so is

Dane.

> I

> > just made an appointment for him to get fitted with new shoes

and

> a

> > new DBB. I honestly don't know if that'll help, but I am

hoping.

> > Thank you for listening. I just needed to vent. No one

> understands

> > how hard this has been on me. I feel selfish saying that, but

> it's

> > the truth. I waited four long years to have a baby and after

> going

> > thru IVF, I never expected to have this happen. I didn't even

> know

> > what Clubfoot was until after Dane was born with it. Blah,

blah,

> > blah. Enough of my whining. Don't get me wrong, I am extremely

> > grateful and I feel VERY blessed to have a healthy beautiful

> > baby!!!! Thank you again for listening.

> > Sonja

> > Dane-10 months

> > DBB at bedtime

>

>

>

>

>

>

>

[Guest guest]

Just to throw my two cents in:

As long as the feet a fully corrected, the shoes are at the right angle

and the length of the bar is good, the baby will get used to the bar.

used to scream almost non stop for about 5-7 days. He used to

throw himself against the walls, slip out of the shoes, etc....I used to

think they were not tight enough, pushed the plastizoid down so that it

did not let the little heal come out. His feet used to come out purple

on the top...He has been going to home day care. The lady there kept

his bar on all the time. We went through the 23/7. Then he used to

scream and fight when the shoes were put on for the night and 16 hrs.

Now he just turned 2 and he has them for 12-14 hrs ( I figured his feet

were doing better with 14 as much as possible). He cries for his shoes

at night " Mommy shoes ON please. So tired, go to bed " He does not

want to go to sleep without them :-) Things change. Putting on the

shoes is just like brushing the teeth now (actually much better :-)).

learned how to crawl in the bar first at 4 months, then how to

walk - with the bar first (2 steps from surface to surface). His abs

are so strong - he does pull ups on the back of his high chair, lifts

his legs up to his head, pulls then down and again, and again...It is

really sooo worth it!!!! Perfect little feet - not a scratch on them!

Nobody can believe only casts could do that! 's feet were very

turned in! Hang in there. You will start relaxing about it soon. I

would not have done anything different for 's treatment! I cried

a lot but I am sooo happy we found Dr. Ponseti and this board! 's

feet are perfect. His calf muscles are strong and quite developed.

There is a very slight difference from the other non club feet children,

but it is not much. He is working already as a model! And, the weird

thing, he thinks his feet are better than the other kid's ones because

of his night-nighty shoes! He makes sure his feet are very visible to

the camera from all possible angles :-)

Dessi Pickett ( bilateral CF 9-17-02)

Re: I just need to vent a little.

I of course realize he needs these, and I will do whatever I need to

to prevent future problems and/or surgeries. I am sure the same goes

for Sonja. n's doc is aware of what I am doing as far as

daycare and working on building him up to the full day. At least I

am not giving up! Perhaps because n's case is so slight he

isn't quite as worried about it...While we may seem like we are

giving in to easily to you, with us building up and not having him

in it at daycare...keep in mind that we are complying, we refuse to

be one of those sets of parents who just totally give up and say he

doesn't need it. We know he does. We are just trying to make the

transition as easy on him as possible. As for daycare, well, we

really have no choice. They are wonderful with the kids, and the

only ones in our area that we can afford. we both HAVE to work.

Trust me, if I didn't have to, I would be at home with him right

now! Yes, my boy is perfect. He is the light of my life and my

entire world. I have never thought otherwise..that is why i put

words like " normal " and " perfect " in quotations...these are

societies standards..not ours as parents. We know how wonderful our

children are. It's natural for us to have week moments. Yes we are

strong..and no we can't show our weakness to our little ones. Trust

me, I don't. When he has it on I show him everything positive about

the bar. We play with kicking and standing and do everything just as

we always have.

but..if we can't release here..show our weakness here so that we

have support to keep us strong..where else can we go? We all know

what we have to do...sometimes it's just hard to do it.

> >

> > I have written in only a few times, as I usually find it very

> > helpful just to read other's posts and replies. But I really

need

> > some support. I feel like I am losing my mind. For almost 10

> > months my son Dane has been doing so well. At one week old, he

> was

> > casted. And he was only casted for 2 weeks before getting

fitted

> > with the DBB. He didn't need surgery. He wore the DBB fulltime

> > (23/7) until he was six months old in June and since then has

been

> > wearing it only at bedtime. Just in the last few weeks, he has

> been

> > extremely restless at night. He sleeps fine until he starts

> trying

> > to turn on his side, then he wakes up crying hysterically. I

know

> > this because he still sleeps in our room. He then wakes up

every

> > ten minutes all thru the rest of the night! This has been very

> hard

> > on all of us, considering that he started sleeping thru the

night

> at

> > just eight weeks old. I feel just aweful complaining about

this,

> > but it is really taking it's toll on me. Not to mention my poor

> > little baby, who can't get a decent night of sleep. Lately I

have

> > been so frustrated around 2-3AM that I just take the DBB off!!!

> He

> > then sleeps quietly for the rest of the night. I KNOW this is a

> > horrible habit that I have gotten into. And I feel sick about

> it.

> > But I am soooo exhausted and desperate for sleep and so is

Dane.

> I

> > just made an appointment for him to get fitted with new shoes

and

> a

> > new DBB. I honestly don't know if that'll help, but I am

hoping.

> > Thank you for listening. I just needed to vent. No one

> understands

> > how hard this has been on me. I feel selfish saying that, but

> it's

> > the truth. I waited four long years to have a baby and after

> going

> > thru IVF, I never expected to have this happen. I didn't even

> know

> > what Clubfoot was until after Dane was born with it. Blah,

blah,

> > blah. Enough of my whining. Don't get me wrong, I am extremely

> > grateful and I feel VERY blessed to have a healthy beautiful

> > baby!!!! Thank you again for listening.

> > Sonja

> > Dane-10 months

> > DBB at bedtime

>

>

>

>

>

>

>

[Guest guest]

Every time our son begins to fuss at night as you described, it has

turned out that his brace had become too narrow for the width of his

shoulders. When we widened it, sometimes only by 1/4 inch, he

returned to sleeping easily and soundly.

Caroline

mom to Zeke, bcf 18 mos Dr. P

[Guest guest]

Hi All

I know we have all discussed how far apart the shoes should be on the bar

but can we just go over it again. Should the shoes sit in between the

shoulders or on the shoulders. I have a hard job seeing where Connor's

shoulders finish and his arms start due to his little rings of fat . He is

17 months and is starting to wake up again at night. I don't know if it is

his cot or his shoes or what it is.... Our physio tends to like them set on

the narrower side more like lined up with his hips but when we get home I

always move them out to his shoulders. They are sitting just inside his

shoulders as far as I can see but I don't want to keep going against what

the Physio says as she has done such a good job with his feet. He has a 14 "

bar and is set on 12 " . I can't see her ever letting me have a bigger bar

than a 14 " as she didn't really want me to have that one. Do they do a

longer one than that?? She said it could damage their hips if they are set

too wide.

Thanks

Rach, Steve & Connor

(b/l c/f)

-- Re: I just need to vent a little.

Every time our son begins to fuss at night as you described, it has

turned out that his brace had become too narrow for the width of his

shoulders. When we widened it, sometimes only by 1/4 inch, he

returned to sleeping easily and soundly.

Caroline

mom to Zeke, bcf 18 mos Dr. P