Re: starting treatment at 9 months

[Guest guest]

If you are seeing a qualified Ponseti physician you couldn't be in

better hands.

We didn't switch to a Ponseti trained doctor until Dylan was 14

months old. Unfortunately it was too late to avoid surgery (even

though we tried our hardest). I am convinced that if we had

switched before Dylan was a year old we could have avoided the

surgery he had.

Theresa

-- In nosurgery4clubfoot , " oopsey96 "

wrote:

> my son had treatment on one foot until he was 6 months old in

> australia. the result was only a partial correction. now he is 9

> months old and starting from scratch with the ponseti method in

> canada. we are very frustrated because we thought the worst was

> over. any other late starters out there?

[Guest guest]

If you are seeing a qualified Ponseti physician you couldn't be in

better hands.

We didn't switch to a Ponseti trained doctor until Dylan was 14

months old. Unfortunately it was too late to avoid surgery (even

though we tried our hardest). I am convinced that if we had

switched before Dylan was a year old we could have avoided the

surgery he had.

Theresa

-- In nosurgery4clubfoot , " oopsey96 "

wrote:

> my son had treatment on one foot until he was 6 months old in

> australia. the result was only a partial correction. now he is 9

> months old and starting from scratch with the ponseti method in

> canada. we are very frustrated because we thought the worst was

> over. any other late starters out there?

[Guest guest]

> hello oopsey,

we, me and my 14month old son, are from lithuania. we also underwent

wrong treatment-Kite method-we were casted until 5 months old, then

we had an operation-postero-meidal release on a left foot. THEN we

heard about Ponseti method, and RUSHED TO GERMANY TO SAVE AT LEAST

ONE FOOT. then my son was 7.5 months old when his right foot was

begun to be treated by Ponseti. he underwent 6weekly castsplus

tenotomy, was in dbb-dennis brownie bar-fot three months full time,

and now he is already trying to walk and wearing dbb only during his

sleep.

he tolerated casts well, he crawled, rolled,moved with them a lot.

amazingly, he also tolerated dbb VERY WELL. he crawled, cruised,

pulled up, did what he want,except running:)

dont be afraid. one of the ponseti doctors sent me the 9month old

boy's photos. an experienced man can correct your child's foot. and i

HOPE FIRMLY THAT YOUR CHILD WILL ALSO ADJUST-BECAUSE KIDS TAKE TO SUH

THINGS MORE EASY THAN WE IMAGINE.

good luck.

my son had treatment on one foot until he was 6 months old in

> australia. the result was only a partial correction. now he is 9

> months old and starting from scratch with the ponseti method in

> canada. we are very frustrated because we thought the worst was

> over. any other late starters out there?

[Guest guest]

i know exactly how you feel! my daughter is bilateral club feet and at her

6month check up me and my husband talked about a second opinion because her feet

just did not look right and her ortopedic kept telling us the same thing. that

all she need was massage and time. so we talked with her pediatricain and agreed

to get a second opinion, so we did and at 8months she had her surgery and now at

9months she is in her dbb which she just hates because she wants to move around!

the frustraction i get sometimes to think we could have already been past this

point! but she is being treated now and we just got to be thankful we got a

second opinion!

best wishes and hang in there!

michelle

samantha bl cf 12/16/2003

oopsey96 oopsey96@...> wrote:

my son had treatment on one foot until he was 6 months old in

australia. the result was only a partial correction. now he is 9

months old and starting from scratch with the ponseti method in

canada. we are very frustrated because we thought the worst was

over. any other late starters out there?

[Guest guest]

i know exactly how you feel! my daughter is bilateral club feet and at her

6month check up me and my husband talked about a second opinion because her feet

just did not look right and her ortopedic kept telling us the same thing. that

all she need was massage and time. so we talked with her pediatricain and agreed

to get a second opinion, so we did and at 8months she had her surgery and now at

9months she is in her dbb which she just hates because she wants to move around!

the frustraction i get sometimes to think we could have already been past this

point! but she is being treated now and we just got to be thankful we got a

second opinion!

best wishes and hang in there!

michelle

samantha bl cf 12/16/2003

oopsey96 oopsey96@...> wrote:

my son had treatment on one foot until he was 6 months old in

australia. the result was only a partial correction. now he is 9

months old and starting from scratch with the ponseti method in

canada. we are very frustrated because we thought the worst was

over. any other late starters out there?

[Guest guest]

yeah, it is heartbreaking to restrict them just when they are

craving mobility.my son, jonas, is so close to walking...he's really

going to hate the five weeks of full leg cast. and he doesn't crawl

so i forsee alot of screaming from the belly position. cheers sam

what kind of surgery did samantha have?(i'm new to this)

> my son had treatment on one foot until he was 6 months old in

> australia. the result was only a partial correction. now he is 9

> months old and starting from scratch with the ponseti method in

> canada. we are very frustrated because we thought the worst was

> over. any other late starters out there?

>

>

>

>

[Guest guest]

yeah, it is heartbreaking to restrict them just when they are

craving mobility.my son, jonas, is so close to walking...he's really

going to hate the five weeks of full leg cast. and he doesn't crawl

so i forsee alot of screaming from the belly position. cheers sam

what kind of surgery did samantha have?(i'm new to this)

> my son had treatment on one foot until he was 6 months old in

> australia. the result was only a partial correction. now he is 9

> months old and starting from scratch with the ponseti method in

> canada. we are very frustrated because we thought the worst was

> over. any other late starters out there?

>

>

>

>

[Guest guest]

thanks for your story...it sounds like you guys went through alot.

cheers sam

> > hello oopsey,

> we, me and my 14month old son, are from lithuania. we also

underwent

> wrong treatment-Kite method-we were casted until 5 months old,

then

> we had an operation-postero-meidal release on a left foot. THEN

we

> heard about Ponseti method, and RUSHED TO GERMANY TO SAVE AT LEAST

> ONE FOOT. then my son was 7.5 months old when his right foot was

> begun to be treated by Ponseti. he underwent 6weekly castsplus

> tenotomy, was in dbb-dennis brownie bar-fot three months full

time,

> and now he is already trying to walk and wearing dbb only during

his

> sleep.

> he tolerated casts well, he crawled, rolled,moved with them a lot.

> amazingly, he also tolerated dbb VERY WELL. he crawled, cruised,

> pulled up, did what he want,except running:)

> dont be afraid. one of the ponseti doctors sent me the 9month old

> boy's photos. an experienced man can correct your child's foot.

and i

> HOPE FIRMLY THAT YOUR CHILD WILL ALSO ADJUST-BECAUSE KIDS TAKE TO

SUH

> THINGS MORE EASY THAN WE IMAGINE.

> good luck.

>

>

>

> my son had treatment on one foot until he was 6 months old in

> > australia. the result was only a partial correction. now he is 9

> > months old and starting from scratch with the ponseti method in

> > canada. we are very frustrated because we thought the worst was

> > over. any other late starters out there?

[Guest guest]

thanks for your story...it sounds like you guys went through alot.

cheers sam

> > hello oopsey,

> we, me and my 14month old son, are from lithuania. we also

underwent

> wrong treatment-Kite method-we were casted until 5 months old,

then

> we had an operation-postero-meidal release on a left foot. THEN

we

> heard about Ponseti method, and RUSHED TO GERMANY TO SAVE AT LEAST

> ONE FOOT. then my son was 7.5 months old when his right foot was

> begun to be treated by Ponseti. he underwent 6weekly castsplus

> tenotomy, was in dbb-dennis brownie bar-fot three months full

time,

> and now he is already trying to walk and wearing dbb only during

his

> sleep.

> he tolerated casts well, he crawled, rolled,moved with them a lot.

> amazingly, he also tolerated dbb VERY WELL. he crawled, cruised,

> pulled up, did what he want,except running:)

> dont be afraid. one of the ponseti doctors sent me the 9month old

> boy's photos. an experienced man can correct your child's foot.

and i

> HOPE FIRMLY THAT YOUR CHILD WILL ALSO ADJUST-BECAUSE KIDS TAKE TO

SUH

> THINGS MORE EASY THAN WE IMAGINE.

> good luck.

>

>

>

> my son had treatment on one foot until he was 6 months old in

> > australia. the result was only a partial correction. now he is 9

> > months old and starting from scratch with the ponseti method in

> > canada. we are very frustrated because we thought the worst was

> > over. any other late starters out there?

[Guest guest]

samantha had the achilles lenghthing surgery. and she did good with the full leg

casts up until the last week that she was finally fed up with them! she does not

or did not stand after the surgery and dr. ponseti said that children that have

that surgery are tender for a couple of days just to give it time. and she has

started to stand more,YEA!

im also new just joined a few weeks ago!

oopsey96 oopsey96@...> wrote:

yeah, it is heartbreaking to restrict them just when they are

craving mobility.my son, jonas, is so close to walking...he's really

going to hate the five weeks of full leg cast. and he doesn't crawl

so i forsee alot of screaming from the belly position. cheers sam

what kind of surgery did samantha have?(i'm new to this)

> my son had treatment on one foot until he was 6 months old in

> australia. the result was only a partial correction. now he is 9

> months old and starting from scratch with the ponseti method in

> canada. we are very frustrated because we thought the worst was

> over. any other late starters out there?

>

>

>

>

[Guest guest]

Yep, we sought a second opinion when my son was 6 months old. Now he is 8

months and we are awaiting the removal of the three week tenotomy cast.

Frustration is exactly what we are feeling. This all could have been done

with by now if it was done right the first time!!

Mommy to 12/17/98

and Christian 1/30/04

_____

From: oopsey96

Sent: Wednesday, September 29, 2004 12:06 PM

To: nosurgery4clubfoot

Subject: starting treatment at 9 months

my son had treatment on one foot until he was 6 months old in

australia. the result was only a partial correction. now he is 9

months old and starting from scratch with the ponseti method in

canada. we are very frustrated because we thought the worst was

over. any other late starters out there?

[Guest guest]

Yep, we sought a second opinion when my son was 6 months old. Now he is 8

months and we are awaiting the removal of the three week tenotomy cast.

Frustration is exactly what we are feeling. This all could have been done

with by now if it was done right the first time!!

Mommy to 12/17/98

and Christian 1/30/04

_____

From: oopsey96

Sent: Wednesday, September 29, 2004 12:06 PM

To: nosurgery4clubfoot

Subject: starting treatment at 9 months

my son had treatment on one foot until he was 6 months old in

australia. the result was only a partial correction. now he is 9

months old and starting from scratch with the ponseti method in

canada. we are very frustrated because we thought the worst was

over. any other late starters out there?

[Guest guest]

> my son had treatment on one foot until he was 6 months old in

> australia. the result was only a partial correction. now he is 9

> months old and starting from scratch with the ponseti method in

> canada. we are very frustrated because we thought the worst was

> over. any other late starters out there?

Yes! We're in the same boat starting over at 10.5 months. It's very

frustrating and he says it'll take about 8 casts because of his age.

[Guest guest]

You can't help but feel that way, however we all must look on the bright

side of the future and the great choice you've made of starting over with

a great method of treatment. It is better not to dwell on the past and

focus on today and the future. Everytime I take to the doctor, I

still think about shoulda, coulda, etc. But then I quickly thank G_ _ we

are where we are and it could have been worse. I do better each day by

trying not to think about the past. It is hard, but I cannot live with

that burden on my shoulders. Many of us on this board are in the same

boat and it is easier said than done. Believe me, I know.

Shook

Retail Operations Manager/Baking Instructor

Vie de France Yamazaki, Inc.

2070 Chain Bridge Rd. Suite 500

Vienna, VA 22182

x374

x374

fax

[Guest guest]

,

You are absolutely right about looking ahead and not back. That little

mean frustration monster peeks his head every once in awhile though! :-) I

can't even imagine where we would be right now if the people on this board

and Dr. Ponseti didn't refer me to Dr. Herzenberg. I do thank God everyday

that we are in good hands now and he will be fine.

Mommy to 12/17/98

and Christian 1/30/04

_____

From: susan.shook@...

Sent: Thursday, September 30, 2004 6:51 AM

To: nosurgery4clubfoot

Subject: RE: starting treatment at 9 months

You can't help but feel that way, however we all must look on the bright

side of the future and the great choice you've made of starting over with

a great method of treatment. It is better not to dwell on the past and

focus on today and the future. Everytime I take to the doctor, I

still think about shoulda, coulda, etc. But then I quickly thank G_ _ we

are where we are and it could have been worse. I do better each day by

trying not to think about the past. It is hard, but I cannot live with

that burden on my shoulders. Many of us on this board are in the same

boat and it is easier said than done. Believe me, I know.

Shook

Retail Operations Manager/Baking Instructor

Vie de France Yamazaki, Inc.

2070 Chain Bridge Rd. Suite 500

Vienna, VA 22182

x374

x374

fax

[Guest guest]

My son went back in to casts when he was about 21 months old and wore them off

and on until he was about 29 months old. He adapted pretty quick, they didn't

slow him down very much.

s.

Re: starting treatment at 9 months

yeah, it is heartbreaking to restrict them just when they are

craving mobility.my son, jonas, is so close to walking...he's really

going to hate the five weeks of full leg cast. and he doesn't crawl

so i forsee alot of screaming from the belly position. cheers sam

what kind of surgery did samantha have?(i'm new to this)

> my son had treatment on one foot until he was 6 months old in

> australia. the result was only a partial correction. now he is 9

> months old and starting from scratch with the ponseti method in

> canada. we are very frustrated because we thought the worst was

> over. any other late starters out there?

>

>

>

>

[Guest guest]

We had to back into casts at 6 months - good news was that there were

only 2 casts needed to achieve full correction and then Owen was back

into the FAB. I'm also in Canada - where are you located and what

doctor are you seeing?

Daiga and Owen, 02/04/03

Unilateral LCF, FAB 14/24

> my son had treatment on one foot until he was 6 months old in

> australia. the result was only a partial correction. now he is 9

> months old and starting from scratch with the ponseti method in

> canada. we are very frustrated because we thought the worst was

> over. any other late starters out there?

[Guest guest]

i'm in victoria b.c. seeing dr penny. if i remember correctly, he

spent 5 years in uganda working on kids' feet. he is the only child

specialist on the island but i get a good feeling from him.dr penny

is the one who referred me to this group and he is on ponseti's

approved list. where in canada are you daiga?.

> > my son had treatment on one foot until he was 6 months old in

> > australia. the result was only a partial correction. now he is 9

> > months old and starting from scratch with the ponseti method in

> > canada. we are very frustrated because we thought the worst was

> > over. any other late starters out there?

[Guest guest]

I'm in Dartmouth (Halifax). Owen is being treated locally although

his doctor is not 'certified'. I think that Owen was one of his

first Ponseti patients. We ended up travelling to see Dr. Pirani

(Royal Columbian - New Westminster) when Owen was about 6 months

after I sent photos to Dr. Ponseti. The foot wasn't completely

corrected. Dr. Pirani was able to complete the correction with only

1 cast but we ended up having a second cast applied to maintain the

correction while waiting for the orthotist to finish making

adjustments to the FAB.

I've heard good things about Dr. Penny. I think that you're in good

hands there! I'm sure that your son's correction will go well!

Daiga and Owen, 02/04/03

Unilateral LCF, FAB 14/24

> > > my son had treatment on one foot until he was 6 months old in

> > > australia. the result was only a partial correction. now he is

9

> > > months old and starting from scratch with the ponseti method in

> > > canada. we are very frustrated because we thought the worst was

> > > over. any other late starters out there?

[Guest guest]

wow, we couldn't be further from each other in canada. you made a

big trip to new west...sounds like it was worth the trouble. i'm

thrilled to hear that dr penny has a good rep. cheers sam n jonas---

In nosurgery4clubfoot , " Daiga Grady "

wrote:

> I'm in Dartmouth (Halifax). Owen is being treated locally

although

> his doctor is not 'certified'. I think that Owen was one of his

> first Ponseti patients. We ended up travelling to see Dr. Pirani

> (Royal Columbian - New Westminster) when Owen was about 6 months

> after I sent photos to Dr. Ponseti. The foot wasn't completely

> corrected. Dr. Pirani was able to complete the correction with

only

> 1 cast but we ended up having a second cast applied to maintain

the

> correction while waiting for the orthotist to finish making

> adjustments to the FAB.

>

> I've heard good things about Dr. Penny. I think that you're in

good

> hands there! I'm sure that your son's correction will go well!

>

> Daiga and Owen, 02/04/03

> Unilateral LCF, FAB 14/24

>

>

> > > > my son had treatment on one foot until he was 6 months old

in

> > > > australia. the result was only a partial correction. now he

is

> 9

> > > > months old and starting from scratch with the ponseti method

in

> > > > canada. we are very frustrated because we thought the worst

was

> > > > over. any other late starters out there?

[Guest guest]

wow, we couldn't be further from each other in canada. you made a

big trip to new west...sounds like it was worth the trouble. i'm

thrilled to hear that dr penny has a good rep. cheers sam n jonas---

In nosurgery4clubfoot , " Daiga Grady "

wrote:

> I'm in Dartmouth (Halifax). Owen is being treated locally

although

> his doctor is not 'certified'. I think that Owen was one of his

> first Ponseti patients. We ended up travelling to see Dr. Pirani

> (Royal Columbian - New Westminster) when Owen was about 6 months

> after I sent photos to Dr. Ponseti. The foot wasn't completely

> corrected. Dr. Pirani was able to complete the correction with

only

> 1 cast but we ended up having a second cast applied to maintain

the

> correction while waiting for the orthotist to finish making

> adjustments to the FAB.

>

> I've heard good things about Dr. Penny. I think that you're in

good

> hands there! I'm sure that your son's correction will go well!

>

> Daiga and Owen, 02/04/03

> Unilateral LCF, FAB 14/24

>

>

> > > > my son had treatment on one foot until he was 6 months old

in

> > > > australia. the result was only a partial correction. now he

is

> 9

> > > > months old and starting from scratch with the ponseti method

in

> > > > canada. we are very frustrated because we thought the worst

was

> > > > over. any other late starters out there?

[Guest guest]

My son's clubfoot was treated by Dr.Ponseti at 9 months after 4

months of unsuccesful casting and 5 months of no treatment. The foot

was corrected with three casts and a tenotomy in two weeks. Today he

is a happy two-year-old and the only thing left from the clubfoot is

the FAB he wears during nights and naps - as would every clubfoot-

child no matter at what age the treatment was started.

Don't be frustrated, just think of it as something you must go

through, and before you even notice, it will be over.

Good luck!!

Sanna & Veeti (05/06/02)

> my son had treatment on one foot until he was 6 months old in

> australia. the result was only a partial correction. now he is 9

> months old and starting from scratch with the ponseti method in

> canada. we are very frustrated because we thought the worst was

> over. any other late starters out there?

[Guest guest]

Hi,

We sought a second opinion for my daughter at 10 months. We went

through recasting, second tenotomy and now are back to the DBB 23/7

for two months. I know the frustration! But it is COMPLETELY worth

it when you know you have done all you can to help your child

Good luck!

Marilouise

9/9/03, LCF, DBB 23/7

Owen and 3/20/99

> my son had treatment on one foot until he was 6 months old in

> australia. the result was only a partial correction. now he is 9

> months old and starting from scratch with the ponseti method in

> canada. we are very frustrated because we thought the worst was

> over. any other late starters out there?

[Guest guest]

Boy do I second, third, whatever that! I am so glad that I

decided " That's just the way it will be " was not good enough! And

now I finally know people who are going through the same

frustrations, challenges, and TRIUMPHS!

Marilouise

9/9/03, LCF, DBB 23/7

Owen and 3/20/99

> ,

>

>

>

> You are absolutely right about looking ahead and not back. That

little

> mean frustration monster peeks his head every once in awhile

though! :-) I

> can't even imagine where we would be right now if the people on

this board

> and Dr. Ponseti didn't refer me to Dr. Herzenberg. I do thank God

everyday

> that we are in good hands now and he will be fine.

>

>

>

>

>

> Mommy to 12/17/98

>

> and Christian 1/30/04

>

> _____

>

> From: susan.shook@v... [mailto:susan.shook@v...]

> Sent: Thursday, September 30, 2004 6:51 AM

> To: nosurgery4clubfoot

> Subject: RE: starting treatment at 9 months

>

>

>

> You can't help but feel that way, however we all must look on the

bright

> side of the future and the great choice you've made of starting

over with

> a great method of treatment. It is better not to dwell on the

past and

> focus on today and the future. Everytime I take to the

doctor, I

> still think about shoulda, coulda, etc. But then I quickly thank

G_ _ we

> are where we are and it could have been worse. I do better each

day by

> trying not to think about the past. It is hard, but I cannot live

with

> that burden on my shoulders. Many of us on this board are in the

same

> boat and it is easier said than done. Believe me, I know.

>

>

>

>

>

> Shook

> Retail Operations Manager/Baking Instructor

> Vie de France Yamazaki, Inc.

> 2070 Chain Bridge Rd. Suite 500

> Vienna, VA 22182

> x374

> x374

> fax

>

>

[Guest guest]

Boy do I second, third, whatever that! I am so glad that I

decided " That's just the way it will be " was not good enough! And

now I finally know people who are going through the same

frustrations, challenges, and TRIUMPHS!

Marilouise

9/9/03, LCF, DBB 23/7

Owen and 3/20/99

> ,

>

>

>

> You are absolutely right about looking ahead and not back. That

little

> mean frustration monster peeks his head every once in awhile

though! :-) I

> can't even imagine where we would be right now if the people on

this board

> and Dr. Ponseti didn't refer me to Dr. Herzenberg. I do thank God

everyday

> that we are in good hands now and he will be fine.

>

>

>

>

>

> Mommy to 12/17/98

>

> and Christian 1/30/04

>

> _____

>

> From: susan.shook@v... [mailto:susan.shook@v...]

> Sent: Thursday, September 30, 2004 6:51 AM

> To: nosurgery4clubfoot

> Subject: RE: starting treatment at 9 months

>

>

>

> You can't help but feel that way, however we all must look on the

bright

> side of the future and the great choice you've made of starting

over with

> a great method of treatment. It is better not to dwell on the

past and

> focus on today and the future. Everytime I take to the

doctor, I

> still think about shoulda, coulda, etc. But then I quickly thank

G_ _ we

> are where we are and it could have been worse. I do better each

day by

> trying not to think about the past. It is hard, but I cannot live

with

> that burden on my shoulders. Many of us on this board are in the

same

> boat and it is easier said than done. Believe me, I know.

>

>

>

>

>

> Shook

> Retail Operations Manager/Baking Instructor

> Vie de France Yamazaki, Inc.

> 2070 Chain Bridge Rd. Suite 500

> Vienna, VA 22182

> x374

> x374

> fax

>

>