Guest guest Posted October 20, 2004 Report Share Posted October 20, 2004 Thank you , I already have the game plan down for it. I have to take demerol and soma (muscle relaxer) on a regular basis, so I am so use to this stuff that it barely makes a difference when it comes to making me dopey. But I will have to take all that just to withstand laying on a hard table flat for that long. The pain will be tremendous from it, but I will also had a xanax to the regimen. That would be enough to knock out most people for a month, but it will barely touch me. I just called my girlfriend to drive me as I obviously won't drive with those meds in me and she will. She can also bring the iron frying pan too, just in case:) I also have her on high alert that she will need to keep telling me the whole time that she can see me and I am ok, as I wont open my eyes once it starts. She is a good friend, accepts my little quirks. Rats.......funny thing about that, Here in the states I am a minimum 4 star hotel person. But when I am on a missionary journey for some reason I transform completely and can endure just about anything for the sake of the service of love. Love covers a multitude of sins, is a fact! Once I had a zillion young Honduran young people littlerally climbing all over me, touching my earlobes, stairing at and feeling my eyes and nose, patting my face. and the big thing was to run their hands through my hair. Loved my red hair!!! Of course now there is more white than red left. But the fact is, here in America I probably would never take the chance of letting that many children with dirty hands touch me, as even though I have a good immune system, once I get something it lays me out flat for a very long time and is usually serious. But, when I saw those kids so excited because they never saw a red haired blue eyed lady, there was not a way in the world I would of stopped them from touching any part of me, even if I got sick, it would of been worth it. But one of the nicest things they had said to me was that besides my red hair they loved the way I smiled continually. Ah.......my heart is a thousand times stronger from that experience. May that memory never be forgotten is my prayer. Also.............yea for me! I even called and made a foot doctor appointment!!!!! I am on a real roll today!yeahhhhhhhhh Smiles, MRI Sedation, et al...... > > Dear , > If I were you, I would notify the MRI tech and radiologist (and probably > your own doctor) ahead of time that you have claustrophobia, and arrange > to get the mild sedation they offer. I know from talking to MRI techs > about this, that yours is a very common problem. > > Now regarding your ability in the past to being able to share your > mattress with a rat, I would have done one of two things: > > A) Resort to a's advice about the frying pan. (a, is this > an old Midwestern folk remedy? Haha) (NMR: We have an old family story > about a black skillet and my husband. When he was about 8-9 months old, > his Aunt Lois, about 24 at the time, was asked to babysit. It was a very > hot summer day at the family's summer house. His room was on the third > floor, really the attic. He started to squall and cry, and Aunt Lois > could not get him to stop. She went down to the kitchen and got a black > skillet and a wooden spoon. She was very musical, so I guess she was > going to bang out a tune for him. Well, she gave that frying pan one big > whack, and he stopped crying, and was very startled, and made not a peep > for the rest of the time. Well, Lois told his mother what she had done, > and I suspect his mother was not pleased ! Lois was never again asked to > babysit....Lois, BTW, ended up being my best friend. What a wonderful > person she was, and I miss her every day.) > Or I would resort to taking enough Valium to calm a horse. The rat > and I would then have a nice nap together. > I admire your missionary experiences. > > Good luck, . > Sincerely, > S. > > > > > Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. > > Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2004 Report Share Posted October 20, 2004 I hope you get a good tech to do your MRI. I have had them bring me out between sections of the test, even when I would have preferred to stay in and get it over with. Hugs, laurie > > Reply-To: > Date: Wed, 20 Oct 2004 14:59:53 -0400 > To: > > Subject: Re: MRI Sedation, et al...... > > Thank you , > > I already have the game plan down for it. I have to take demerol and soma > (muscle relaxer) on a regular basis, so I am so use to this stuff that it > barely makes a difference when it comes to making me dopey. But I will have > to take all that just to withstand laying on a hard table flat for that > long. The pain will be tremendous from it, but I will also had a xanax to > the regimen. That would be enough to knock out most people for a month, but > it will barely touch me. I just called my girlfriend to drive me as I > obviously won't drive with those meds in me and she will. She can also > bring the iron frying pan too, just in case:) I also have her on high alert > that she will need to keep telling me the whole time that she can see me and > I am ok, as I wont open my eyes once it starts. She is a good friend, > accepts my little quirks. > > Rats.......funny thing about that, Here in the states I am a minimum 4 star > hotel person. But when I am on a missionary journey for some reason I > transform completely and can endure just about anything for the sake of the > service of love. Love covers a multitude of sins, is a fact! Once I had a > zillion young Honduran young people littlerally climbing all over me, > touching my earlobes, stairing at and feeling my eyes and nose, patting my > face. and the big thing was to run their hands through my hair. Loved my red > hair!!! Of course now there is more white than red left. But the fact is, > here in America I probably would never take the chance of letting that many > children with dirty hands touch me, as even though I have a good immune > system, once I get something it lays me out flat for a very long time and is > usually serious. But, when I saw those kids so excited because they never > saw a red haired blue eyed lady, there was not a way in the world I would of > stopped them from touching any part of me, even if I got sick, it would of > been worth it. But one of the nicest things they had said to me was that > besides my red hair they loved the way I smiled continually. Ah.......my > heart is a thousand times stronger from that experience. May that memory > never be forgotten is my prayer. > > Also.............yea for me! I even called and made a foot doctor > appointment!!!!! I am on a real roll today!yeahhhhhhhhh > > Smiles, > > MRI Sedation, et al...... > > >> >> Dear , >> If I were you, I would notify the MRI tech and radiologist (and probably >> your own doctor) ahead of time that you have claustrophobia, and arrange >> to get the mild sedation they offer. I know from talking to MRI techs >> about this, that yours is a very common problem. >> >> Now regarding your ability in the past to being able to share your >> mattress with a rat, I would have done one of two things: >> >> A) Resort to a's advice about the frying pan. (a, is this >> an old Midwestern folk remedy? Haha) (NMR: We have an old family story >> about a black skillet and my husband. When he was about 8-9 months old, >> his Aunt Lois, about 24 at the time, was asked to babysit. It was a very >> hot summer day at the family's summer house. His room was on the third >> floor, really the attic. He started to squall and cry, and Aunt Lois >> could not get him to stop. She went down to the kitchen and got a black >> skillet and a wooden spoon. She was very musical, so I guess she was >> going to bang out a tune for him. Well, she gave that frying pan one big >> whack, and he stopped crying, and was very startled, and made not a peep >> for the rest of the time. Well, Lois told his mother what she had done, >> and I suspect his mother was not pleased ! Lois was never again asked to >> babysit....Lois, BTW, ended up being my best friend. What a wonderful >> person she was, and I miss her every day.) >> Or I would resort to taking enough Valium to calm a horse. The rat >> and I would then have a nice nap together. >> I admire your missionary experiences. >> >> Good luck, . >> Sincerely, >> S. >> >> >> >> >> Medical advice, information, opinions, data and statements contained > herein are not necessarily those of the list moderators. The author of this > e mail is entirely responsible for its content. List members are reminded of > their responsibility to evaluate the content of the postings and consult > with their physicians regarding changes in their own treatment. >> >> Personal attacks are not permitted on the list and anyone who sends one is > automatically moderated or removed depending on the severity of the attack. >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2004 Report Share Posted October 20, 2004 If the doc doesn't order the sedation before hand, they can't give it, so make sure you get a Rx for that too. BDS31@... wrote: >Dear , >If I were you, I would notify the MRI tech and radiologist (and probably >your own doctor) ahead of time that you have claustrophobia, and arrange >to get the mild sedation they offer. I know from talking to MRI techs >about this, that yours is a very common problem. > >Now regarding your ability in the past to being able to share your >mattress with a rat, I would have done one of two things: > >A) Resort to a's advice about the frying pan. (a, is this >an old Midwestern folk remedy? Haha) (NMR: We have an old family story >about a black skillet and my husband. When he was about 8-9 months old, >his Aunt Lois, about 24 at the time, was asked to babysit. It was a very >hot summer day at the family's summer house. His room was on the third >floor, really the attic. He started to squall and cry, and Aunt Lois >could not get him to stop. She went down to the kitchen and got a black >skillet and a wooden spoon. She was very musical, so I guess she was >going to bang out a tune for him. Well, she gave that frying pan one big >whack, and he stopped crying, and was very startled, and made not a peep >for the rest of the time. Well, Lois told his mother what she had done, >and I suspect his mother was not pleased ! Lois was never again asked to >babysit....Lois, BTW, ended up being my best friend. What a wonderful >person she was, and I miss her every day.) > Or I would resort to taking enough Valium to calm a horse. The rat >and I would then have a nice nap together. >I admire your missionary experiences. > >Good luck, . >Sincerely, > S. > > > > >Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. > >Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2004 Report Share Posted October 20, 2004 laurie, Well, it will be over soon. At least I don't have to wait and think about it for 2 weeks. I was so suprised that they could get me in so quick! Smiles, MRI Sedation, et al...... > > > > > >> > >> Dear , > >> If I were you, I would notify the MRI tech and radiologist (and probably > >> your own doctor) ahead of time that you have claustrophobia, and arrange > >> to get the mild sedation they offer. I know from talking to MRI techs > >> about this, that yours is a very common problem. > >> > >> Now regarding your ability in the past to being able to share your > >> mattress with a rat, I would have done one of two things: > >> > >> A) Resort to a's advice about the frying pan. (a, is this > >> an old Midwestern folk remedy? Haha) (NMR: We have an old family story > >> about a black skillet and my husband. When he was about 8-9 months old, > >> his Aunt Lois, about 24 at the time, was asked to babysit. It was a very > >> hot summer day at the family's summer house. His room was on the third > >> floor, really the attic. He started to squall and cry, and Aunt Lois > >> could not get him to stop. She went down to the kitchen and got a black > >> skillet and a wooden spoon. She was very musical, so I guess she was > >> going to bang out a tune for him. Well, she gave that frying pan one big > >> whack, and he stopped crying, and was very startled, and made not a peep > >> for the rest of the time. Well, Lois told his mother what she had done, > >> and I suspect his mother was not pleased ! Lois was never again asked to > >> babysit....Lois, BTW, ended up being my best friend. What a wonderful > >> person she was, and I miss her every day.) > >> Or I would resort to taking enough Valium to calm a horse. The rat > >> and I would then have a nice nap together. > >> I admire your missionary experiences. > >> > >> Good luck, . > >> Sincerely, > >> S. > >> > >> > >> > >> > >> Medical advice, information, opinions, data and statements contained > > herein are not necessarily those of the list moderators. The author of this > > e mail is entirely responsible for its content. List members are reminded of > > their responsibility to evaluate the content of the postings and consult > > with their physicians regarding changes in their own treatment. > >> > >> Personal attacks are not permitted on the list and anyone who sends one is > > automatically moderated or removed depending on the severity of the attack. > >> > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2004 Report Share Posted October 20, 2004 > But I will have > to take all that just to withstand laying on a hard table flat for > that long. The pain will be tremendous from it... I'm a bit confused. Yes, you are on a hard table, but all of the places I've been to have things like pillows, head rests, foot rests, warmed blankets, and other things to really help someone be comfortable. Each scan itself is 30 seconds to a few minutes, so you can move sometimes (ask the tech when it's okay to move). I have to say having a MR SPECT (which actually showed some problems for me, lactate buildup in the brain, whereas the brain MRIs were all normal for me) was a pleasant experience, no noise at all and the machine was relatively open. Take care, RH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2004 Report Share Posted October 20, 2004 Well when I had my last MRI (which was an open one) they offered me none of that. Perhaps there was a pillow, but I don't remember it if it was. When I have CT scans I go through the same problems. I am also not albe to get up off the table by myself either which is not a good feeling and I am not able to turn or adjust myself once I have put the muscles into a stress situation. Remember I have McArdle's disease too which the process in a stressed muscle turns into the same process as rigormortis with the exception that you do eventually get the stiffness out But it is the same bio-chemical process. So, to lay flat like that on something hard for me is real tough. Not all McArdle's patients are as bad as I am, I am just one of the lucky ones! Having Mito too, just compounds it all. Doing a bone scan puts me in the same problem, and that table as I recall is a lot better, especially with the thing under your legs. But I can't get up off that without help either. And it causes horrible bring you to tears pain. Most of my other McArdle friends face the same thing during these test. Some absoulutely refuse them, preferring to tke the consequences. Even riding in a car/plane can cause the same thing. I have to dope myself up fully to take any trip and still cry for most of it the pain is so bad. But I am sure all of you can relate to severe pain! Soooooo thats my story! Hope I clarified it a little better for you. Smiles, Re: MRI Sedation, et al...... > > > > But I will have > > to take all that just to withstand laying on a hard table flat for > > that long. The pain will be tremendous from it... > > I'm a bit confused. Yes, you are on a hard table, but all of the > places I've been to have things like pillows, head rests, foot rests, > warmed blankets, and other things to really help someone be > comfortable. Each scan itself is 30 seconds to a few minutes, so you > can move sometimes (ask the tech when it's okay to move). > > I have to say having a MR SPECT (which actually showed some problems > for me, lactate buildup in the brain, whereas the brain MRIs were all > normal for me) was a pleasant experience, no noise at all and the > machine was relatively open. > > Take care, > RH > > > > > > > > Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. > > Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2004 Report Share Posted October 20, 2004 Well when I had my last MRI (which was an open one) they offered me none of that. Perhaps there was a pillow, but I don't remember it if it was. When I have CT scans I go through the same problems. I am also not albe to get up off the table by myself either which is not a good feeling and I am not able to turn or adjust myself once I have put the muscles into a stress situation. Remember I have McArdle's disease too which the process in a stressed muscle turns into the same process as rigormortis with the exception that you do eventually get the stiffness out But it is the same bio-chemical process. So, to lay flat like that on something hard for me is real tough. Not all McArdle's patients are as bad as I am, I am just one of the lucky ones! Having Mito too, just compounds it all. Doing a bone scan puts me in the same problem, and that table as I recall is a lot better, especially with the thing under your legs. But I can't get up off that without help either. And it causes horrible bring you to tears pain. Most of my other McArdle friends face the same thing during these test. Some absoulutely refuse them, preferring to tke the consequences. Even riding in a car/plane can cause the same thing. I have to dope myself up fully to take any trip and still cry for most of it the pain is so bad. But I am sure all of you can relate to severe pain! Soooooo thats my story! Hope I clarified it a little better for you. Smiles, Re: MRI Sedation, et al...... > > > > But I will have > > to take all that just to withstand laying on a hard table flat for > > that long. The pain will be tremendous from it... > > I'm a bit confused. Yes, you are on a hard table, but all of the > places I've been to have things like pillows, head rests, foot rests, > warmed blankets, and other things to really help someone be > comfortable. Each scan itself is 30 seconds to a few minutes, so you > can move sometimes (ask the tech when it's okay to move). > > I have to say having a MR SPECT (which actually showed some problems > for me, lactate buildup in the brain, whereas the brain MRIs were all > normal for me) was a pleasant experience, no noise at all and the > machine was relatively open. > > Take care, > RH > > > > > > > > Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. > > Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2004 Report Share Posted October 21, 2004 Hi , I am so sorry that you are in so much pain. I too have severe pain that is 24/7. I also take meds to help with the pain, it doesn't take it all away, but it does help some. When I have my MRIs done they always offer me a blanket, and a pillow for under my knees. They have always helped me up onto the table and off of the table. They have always been really nice to me, even when they have to inject the contrast. I don't like that they aren't caring for you properly when you go in for your MRIs. Like someone suggested, maybe you should consider changing the location that you have your MRIs done. I am sure that not all places are the same. Do you ever tell them what is wrong with you? you know your diagnosis and what it does to your body? Maybe they look at you and think that nothing is seriously wrong with you, I know it isn't right for people to assume that you are fine, but especially with Mito, everybody says " Well, you look fine " The understatement of the year!! Good Luck with the scan, and I am so happy to hear that you will have your good friend with you. Hugs, Ann-Marie Re: MRI Sedation, et al...... > > > > But I will have > > to take all that just to withstand laying on a hard table flat for > > that long. The pain will be tremendous from it... > > I'm a bit confused. Yes, you are on a hard table, but all of the > places I've been to have things like pillows, head rests, foot rests, > warmed blankets, and other things to really help someone be > comfortable. Each scan itself is 30 seconds to a few minutes, so you > can move sometimes (ask the tech when it's okay to move). > > I have to say having a MR SPECT (which actually showed some problems > for me, lactate buildup in the brain, whereas the brain MRIs were all > normal for me) was a pleasant experience, no noise at all and the > machine was relatively open. > > Take care, > RH > > > > > > > > Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. > > Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2004 Report Share Posted October 21, 2004 Hi , I am so sorry that you are in so much pain. I too have severe pain that is 24/7. I also take meds to help with the pain, it doesn't take it all away, but it does help some. When I have my MRIs done they always offer me a blanket, and a pillow for under my knees. They have always helped me up onto the table and off of the table. They have always been really nice to me, even when they have to inject the contrast. I don't like that they aren't caring for you properly when you go in for your MRIs. Like someone suggested, maybe you should consider changing the location that you have your MRIs done. I am sure that not all places are the same. Do you ever tell them what is wrong with you? you know your diagnosis and what it does to your body? Maybe they look at you and think that nothing is seriously wrong with you, I know it isn't right for people to assume that you are fine, but especially with Mito, everybody says " Well, you look fine " The understatement of the year!! Good Luck with the scan, and I am so happy to hear that you will have your good friend with you. Hugs, Ann-Marie Re: MRI Sedation, et al...... > > > > But I will have > > to take all that just to withstand laying on a hard table flat for > > that long. The pain will be tremendous from it... > > I'm a bit confused. Yes, you are on a hard table, but all of the > places I've been to have things like pillows, head rests, foot rests, > warmed blankets, and other things to really help someone be > comfortable. Each scan itself is 30 seconds to a few minutes, so you > can move sometimes (ask the tech when it's okay to move). > > I have to say having a MR SPECT (which actually showed some problems > for me, lactate buildup in the brain, whereas the brain MRIs were all > normal for me) was a pleasant experience, no noise at all and the > machine was relatively open. > > Take care, > RH > > > > > > > > Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. > > Personal attacks are not permitted on the list and anyone who sends one is automatically moderated or removed depending on the severity of the attack. > > Quote Link to comment Share on other sites More sharing options...
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