Wonders Never Cease(long) .

December 3, 2004

I just wanted to share some good news. My dh took Ava to see Dr.

Ponseti and called me after the appt. She did NOT need the second

tenotomy. Hooray!! When we were there in Sept. he felt she definitly

would need another but it was to soon then. He said come back in Dec.

and we'll do it then. Todays visit was great. He turned her feet in

to R 60, L 50 they were 70-60. She has only been in the s for

6wks 23/7, he said we could go down to 21/7 but wants her to stand

flat on them. She is only 6mnths. Thank God for the saucer. That is

about the only thing that she can stand in. He said her heels are

coming down and she is about 90% corrected but the key is to have her

bearing weight in and out of shoes and keeping the shoes as tight as

we have. She does get pressure sores across the top of her feet and

they don't go away when the shoes are off for the hour but Dr. P said

it was o.k. as long as the skin doesn't break. It hasn't. He also had

Dr. Mercuendo (sp?) examin her as well an they agreed she is an

exceptional case of Atypical CF. Her R is still very tight but he

feels she will do good with the weight bearing. We go back in 3mnths.

I have to tell you all I was expecting the worse. If anyone has any

ideas about standing her up in the shoes other then when on my lap

Please..Please...let me know of them. I am sure there is more from

the visit but I can't think of it right now. Thanks for sharing:)

KK

Livi 01/22/03

Ava 05/27/04 Bilat Atypical CF s 21/7

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