Guest guest Posted October 15, 2004 Report Share Posted October 15, 2004 These are excellent sites, Gillian. Thank you for sending them. Alice > > -http://www.climb.org.uk/ > > http://www.niacmd.net/ > > > This is an organisation in the UK that supports us folks with Mito. > and lots of other metabolic diseases and works with the Doctors. > They have Medical advisors to guide them. They are in the middle of > changing the constitution to add the words Adults. > > I notice they also mention the states on their site. > > Why do I give this link ...simply put when I was diagnosed they > helped my WHOLE family,..listened, wiped tears,helped with benefit > claims, equipment etc. and had the knowledge and experience to work > with my GP to ensure I was reffered to the best medics for my > condition. > > Reading some of your posts lately I wonder if they may be of help to > you.....they deal with the whole issue not the pill popping..our > life and the knock on effect of this illness..work, family, home, > our marriages, and my advisor says they do work with some Americans > as well as the UK and Europe. Quality of life issues are paramount. > > Gillian Quote Link to comment Share on other sites More sharing options...
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