Guest guest Posted November 22, 2002 Report Share Posted November 22, 2002 Hi I am in Auckland also and have contact with - I went to the pediatrician yesterday to talk drugs because my guy is on .2ml of risperadol once per day - even though very very low dose I want to trial something else because of the possible severe side effects. I went in ready to push hard for the Elavil and he was most unkeen he called it a " dirty " drug - meaning it has many side effects and was very concerned about these - he was really keen for us to try a low dose of Busperone so we came away with that for now. I know I could probably beg/push him to hand it over but he is really really good and knowledgeable about drugs - thats his big thing so if he is that concerned I am worried too. The drug sounds like it would be perfect for my guy as it covers pain, and anti histamine and anxiety - I just know this would work, Also with the tiny dose of Risperadol Mitch wets his pants that is a side effect and its really not good - I have to go so low that it doesn't really cover the anxiety as it should - the Dr also pointed out this since he is responding to Risperadol like this he would more that likely do that with the Elavil because it had the same something something something in it. Just wondering what your thoughts are on these comments he made and did your family experience any side effects on it. Many thanks Regards Terri NZ Re: to from henderson Sorry, ...I just got behind. Your questions are always appropriate, LOL. And I will copy this to you email too. Elavil is not the same as busperone. I am not sure what busperone is for. Elavil is also one of the tricyclic anti-depressants and I don't think busperone is. Also, in that last round of discussion on histamine I found out that Elavil has anti-histamine properties. I take 35 mg each night (it helps with sleep and promotes drowsiness so you usually take it at bedtime). I have tried as high as 125 mg, but that just made me all loopy and actually disrupted sleep. That is up into the negative side-effect area. The boys take 30 mg each night. A lot of people just take 10 to 30 mg as a 'standard' dose. A friend of ours had her leg amputated (cancer) some time ago and was given Elavil for the 'phantom pain' until she recovered. For us, it greatly reduced pain, improved sleep, and did away with a great deal of the sensory issues. So there was also a decrease in anxiety, better attention, and all those other things that go along with being well rested and not in pain. Without the Elavil I feel there is this hot pressure totally around my head. Like my brain is soaking in acid....this constant sensation of really hot and stinging. Like when you put anti-septic on a open wound. The Elavil took that away. I was told it was one of the main meds for head pain or migraine and although the newer SSRIs are better for depression they do not have any pain control properties. We also take a low dose of Zoloft which is an SSRI. I can tell there is a difference in what the two meds do. I can also tell the difference in how the Peptizyde helped that is different than the meds. So it is a total program we had to work out. I have tried to reduce either the meds or the enzymes over the past year, but can't. So they are working on different things. I would suggest bringing up the Elavil with your doctor as a possibility especially if he has disturbed sleep or complains of headaches frequently. We saw the difference by the end of the first week. My younger son benefited from the Elavil a bit, but he didn't seem to get quite the 'kick' from it that my older son and I did. Remember that he is also the only one who had the bowel/bacteria overgrowth problems which we needed to deal with separately. . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2002 Report Share Posted November 22, 2002 Thanks - I just feel it would be really right for my guy as well - pain, anxiety, sleep and the anti histamine would be a perfect combination for him- so if busperone is not the one I will push for it - and then if side effects show up we can stop it. Regards Terri Re: to from henderson I can only give you my non-medical opinion because I don't know all about meds, just our experience. On one hand, I agree that you should listen to what your doctor has to say about these things because it may not be right for you. I believe he is sort of right in calling it a 'dirty' drug because it appears to have a variety of things it works on: pain, sleep, anxiety, histamine, depression. Nany of the newer medications are more refined for particular areas. Example is that SSRIs are better for depression. Morphine may be better for outright pain, but then you would be taking 3-4 things to treat each of these. But I did try Prozac and Wellbutrin before besides the Zoloft and none helped as much. The doctors also argued with me saying I was just depression, that is wasn't real pain. We took my older son to a childrens clinic for TWO years and got no where because they were determined to put him on Ritalin when he got to be school age - for his 'inattention' and anxiety and compulsive repetitive behaviors. I said I didn't think that was the problem but that is all they would focus on. Eventually we tried Ritalin for 2 days. My son went absolutely histerical - worse than ever. It was really bad. At the end of the second day, I decided I had had enough of this and we found a new doctor. Even then the first doctor argued that the second doctor didn't know what they were doing. But the second doctor was the neurologist that helped us so much and even advised I look into alternative measures besides the meds. So I know doctors can be closed minded or uninformed...or outright WRONG too. We did not experience any side effects from the Elavil except for being a little extra thirsty the first few days. It was just seemed to be the right mix for us. I had worse adjustment to the Zoloft. . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2002 Report Share Posted November 22, 2002 , thanks for this, but we live 20 minutes out of Auckland, and have a water filter, and use unflorated toothpaste and don't eat sugar and eat and even grow some of our own veges, plus buy organic veges. Most people in New Zealand and Australia are far ahead of the eight ball when it comes to organics and to unprocessed and real foods, don't mean to be rude but I think Americans invented most processed and dead foods as evidenced in the size of 50% of the adult population!!!!!!!!!! Most people I know have a water filter and drink bottled water and are very aware of such issues!!!!!!!!!!!!! Sorry you got me on a bad day - seems to me healthy living habits are the obvious Step one of any healthy diet for any person - but some who have all of this right still could benefit from the added benefits of drugs to treat issues that are not being solved by diet alone!!!!! Cheers H Re: to from henderson > you won't get anywhere while you are still drinking aucklands > fluoridated water > > fluoride is a potent enzyme inhibitor > > you have to cut out toothpaste to > and sugar > you, your child and the paed are already on dirty drugs > > the chlorine and fluorine in aucklands water > > people overseas drink bottled water > > nz and australians just don't realise... > > sorry to say fluoride takes a long long time to leave the system.... > risperdal is a fluorinated drug > > it works by jimmying fluorine into brain chemstry where it poisons > one function to increase another > > guess what? > you can't keep the poisoning on one function only. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2002 Report Share Posted November 23, 2002 , boy would I agree with your assessment of the rampant obesity of the American people--way too many adults (and kids) way too overweight. All of those supersized fast food servings have resulted in a supersized population. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2002 Report Share Posted November 23, 2002 thanks for your reply if ever back here again would love to show you more of our beautiful country - and I agree drugs aren't ideal - and I agree pain is somewhat different - my child is very clear that he has headaches and as far as I can see with him the so called syptoms of autism have always been very painful, as he has gotten rid of more and more of them more and more skills have been able to develop - I always see these things as symptoms that are blocking him from participating, they are certainly not a condition that is unchangeable and from what I can see he is never happy with these symptoms - he has only been happy for the last couple of years as he has come out of the fog, but still we battle with headaches and with them comes coping stimms and what we call shutdown days - without the pain he will be almost happy all of the time and that is surely a much better world to live in Cheers H Re: to from henderson > > > > you won't get anywhere while you are still drinking aucklands > > fluoridated water > > > > fluoride is a potent enzyme inhibitor > > > > you have to cut out toothpaste to > > and sugar > > you, your child and the paed are already on dirty drugs > > > > the chlorine and fluorine in aucklands water > > > > people overseas drink bottled water > > > > nz and australians just don't realise... > > > > sorry to say fluoride takes a long long time to leave the system.... > > risperdal is a fluorinated drug > > > > it works by jimmying fluorine into brain chemstry where it poisons > > one function to increase another > > > > guess what? > > you can't keep the poisoning on one function only. > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2002 Report Share Posted November 23, 2002 thanks , we take an organic selenium product and use no phenol and have drastically reduced the intake of all phenol foods, its got me beat as to why these headaches keep occuring - we also chelate and use magnisium glycinate and molybdeum - our childs gut flora is normal and he doesn't suffer with yeast overgrowth anymore - he does keep improving which is great but unfortunately the headaches are still there, I also think its to do with heightened sensory issues which are much better but are still an issue, maybe they are the beginning of headaches - good news is he now only has them for shortened periods of time - in the past it was enough to send him crying to bed, now it happens for maybe an hour at a time - any input is most welcomed - I know it happens more when we are chelating - however it also happens a few times a week etc. - what am I missing? Cheers H Re: to from henderson > in my own experience phenols migraine/headaches relate strongly to > phenol processing. > > the gut doesn't efficently cleave phenols and they somehow upset the > system causing migrianes. > > unfortunateley over about 10 years i eliminated the foods that caused > me migriane and these are the very foods neede for braan compounds > and sulphur/metals transport. what a trap! > > no fenol from houstonni is a big help for this, esp taking with > highly phenolic food like pineapple and cocnut cream > > also .65mcg/lb of selenomethione as it seems to greatly increase > robustness of resposne to migraine. like it doesn't knock me flat for > a long like it used to. > > theres a whole clutch of things like impaired metals transport, low > digestive efficency. flora yeast overgrowth... > > high sensitivity to pain i observe in mercury toxic asd adults, i > really strongly recommend selenomethionine(organic selenium) esp in > low selenium countries like nz. selenomethione improves metals > transport. > > its hard to buy adequate formulas, i don't like tablets because they > use an inorganic calcium as a filler and this can inhibit selenium > absorbtion > > kal/solaray are a good american brand...www.betterlife.com has good > prices and cheap freight. > > i would encourage you to think that with more understanding of these > issues that much better sustainable results will come, unfortunately > the medical profession are counter productive and you have to work > through this yourself. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2002 Report Share Posted November 23, 2002 Hi yes I did get it - I was just going to let it go - I think we have had this conversation before when I have mentioned Risperadol. Its ok I know very well that drugs won't cure him - however we are well down the track of chelating, enzymes and all kinds of intervention - but the use of very low dose psych drug has been a very important part of the process - it has really helped with many areas mostly in his attendance at school, all round communication, cognitive skills, compliance, basically it kicks some rotten habits that hopefully won't come back once we are off it. Also he is a happy boy that can function and learn without constantly being anxious and manic. We don't intend to be on it forever just need to keep him sane whilst I attend to the underlying problems. Regards Terri NZ PS: Yes the beaches are lovely here NZ is a very special place but if anyone has seen our Summer please forward it to us! Its nearly December and we still have to put the heater on at night. We went for a walk on the beach today and got completely blown to bits and rained on - most strange for this time of year. But the boys loved it. Re: to from henderson sorry i should have made it clearer that was to terri nz. i lived near newmarket for a while.... my entire experience is that drugs don't work for neurological issues... i do exclude pain pain management as a slightly different issue... still pine for karekare whatipu occasionally black sand beaches......... cliffs and sun the sea sniff... dunes marram grass nowhere else//// the medical profession is shockingly incompedent when it comes anywhere near neurological issues you can't drug a starving brain and get survival. > , thanks for this, but we live 20 minutes out of Auckland, and have a > water filter, and use unflorated toothpaste and don't eat sugar and eat and > even grow some of our own veges, plus buy organic veges. Most people in New > Zealand and Australia are far ahead of the eight ball when it comes to > organics and to unprocessed and real foods, don't mean to be rude but I > think Americans invented most processed and dead foods as evidenced in the > size of 50% of the adult population!!!!!!!!!! Most people I know have a > water filter and drink bottled water and are very aware of such > issues!!!!!!!!!!!!! Sorry you got me on a bad day - seems to me healthy > living habits are the obvious Step one of any healthy diet for any person - > but some who have all of this right still could benefit from the added > benefits of drugs to treat issues that are not being solved by diet > alone!!!!! > Cheers H > Re: to from henderson > > > > you won't get anywhere while you are still drinking aucklands > > fluoridated water > > > > fluoride is a potent enzyme inhibitor > > > > you have to cut out toothpaste to > > and sugar > > you, your child and the paed are already on dirty drugs > > > > the chlorine and fluorine in aucklands water > > > > people overseas drink bottled water > > > > nz and australians just don't realise... > > > > sorry to say fluoride takes a long long time to leave the system.... > > risperdal is a fluorinated drug > > > > it works by jimmying fluorine into brain chemstry where it poisons > > one function to increase another > > > > guess what? > > you can't keep the poisoning on one function only. > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2002 Report Share Posted November 24, 2002 thanks , please send me to a site where I can read about the different types of selenium - we take one no phenol each day, however what I have tried to do is to reduce the know foods with high phenols, i.e. strawberries, peppers and a lot of coloured foods, our child is a lot more calm this way than eating phenols and taking no phenol at each meal and snack, we did that for about 3 months, but he was more excitable so I swapped it around and he is definitely calmer and using his language more - seems when he is too hyper his language closes down which makes sense - any other information is much appreciated Cheers H Re: to from henderson > that shortened time for headaches is the selenium i think, i noticed > the same thing, a day and a half usually for a migraine, now is half > a day or less and functioning around it... which i usually couldn't > > hwo much r u giving him? > > chelating would give me migraine i know even though i haven't tried > it, just the instabilty of it > > basically i don't quite agree with chelating though i can see there > are mercury toxic people who might benefit but my experience with > mercury toxic adults is that its better not to overtly chelate but > sort of creep up on the problem by improving the metals transport in > a more general way with selenomethione, msm maybe tmg.. sort of a > steady as she goes thing and no overt chelation periods. maybe some > zinc occasionally to... maybe boron as well but still thinking about > that... alliothionine looks quite promising to though i haven't tried > it...no fenol and enzymes are an important part of this as they make > sulphur compounds more avaliable... > > you can never get rid of head aches entirely, i think its a help to > understand that... > > and i would be careful about phenol food exculsions, bascially no > fenol is a unique product and you can't get away from the need for > it, i have tried.... > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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