Guest guest Posted October 14, 1999 Report Share Posted October 14, 1999 If any of you have taken metho, how long have you been on it? I also am wondering how long it takes until you begin to feel a difference. I am a school teacher, and the arthrits is beginning to take its toll on me.. Thanks for listening.. >> Hi, , I'm glad that you have found us, but sorry that you had the need to find us. I'm fairly newly diagnosed too, in April of this year to be exact. I'm currently taking methotrexate (12.5 mg/wk) and Lodine (NSAID). I figure I'm going to be on methotrexate for as long as it continues to work :-). We are still working on getting to the " right " dose. After the third dose, I really started feeling better for several weeks, then the relief started tapering off toward the end of the week. At that point, the doctor raised the dosage, I started feeling better again a week or so later; the relief again tapered off toward the end of the week and the doc raised the dosage again. You obviously may have different results, as some people feel better quickly, some slowly. I hope you're feeling better soon. While we're sharing ages, I'm 34. :-) Patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 1999 Report Share Posted October 15, 1999 Hi Patty, I was diagnosed in August. You said that you will take the mtx. as long as it works. Is your doctor's goal to put you in remission and then take you off of it? That's what my dr. said. I hope to go off as soon as remission sets in--maybe wishful thinking. I take 15 mg. I don't like putting this stuff in my body. Sometimes i wonder if i should just live with the pain and discomfort. The only thing i do worry about is the bone erosion since i already lost my wrist bone, and soon to be losing my thumb knuckle bone. I guess im still new and confused. I have a lot to learn. I need to do more research. Im hoping they find a new med. that doesnt give such side effects. Have you lost any hair yet? --- PHDRWD@... wrote: > If any of you have taken metho, how long have you > been on it? I also am > wondering how long it takes until you begin to feel > a difference. I am a > school teacher, and the arthrits is beginning to > take its toll on me.. Thanks > for listening.. >> > > Hi, , I'm glad that you have found us, but > sorry that you had the need > to find us. I'm fairly newly diagnosed too, in > April of this year to be > exact. I'm currently taking methotrexate (12.5 > mg/wk) and Lodine (NSAID). I > figure I'm going to be on methotrexate for as long > as it continues to work > :-). We are still working on getting to the " right " > dose. After the third > dose, I really started feeling better for several > weeks, then the relief > started tapering off toward the end of the week. At > that point, the doctor > raised the dosage, I started feeling better again a > week or so later; the > relief again tapered off toward the end of the week > and the doc raised the > dosage again. You obviously may have different > results, as some people feel > better quickly, some slowly. I hope you're feeling > better soon. > > While we're sharing ages, I'm 34. :-) > Patty > > ------------------------------------------------------------------------ > Please visit our new web page at: > http://www.wpunj.edu/icip/pa > <HR> <html> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 1999 Report Share Posted October 16, 1999 , There are days that I feel like a toxic waste dump! Then there are the days when I'm feeling better and I realize that my " cocktail " is working. I know it's hard to deal with all of this stuff. My mom is always saying things like, " You need to go to a spa for a year and get all of that stuff out of your system. Get yourself healthy. " I try so hard not to come unglued! I don't think people realize how insensitive they are. Like I want to take all of this stuff! No, I just want to have some sort of quality of life. Amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 1999 Report Share Posted October 17, 1999 Amy, Glad to hear that you feel like a toxic waste dump as well. I told my husband this morning that i have to get something to put my meds. in. I am beginning to forget what to take when--there are so many. I hate filling my body with drugs!!!! Does mtx. affect the memory in any way, because i used to be so on the ball--now----I forget things easily. Im feeling better knowing theres others out there that feel as I do. I'm not alone --- AmyDeel@... wrote: > , > > There are days that I feel like a toxic waste dump! > Then there are the days > when I'm feeling better and I realize that my > " cocktail " is working. I know > it's hard to deal with all of this stuff. My mom is > always saying things > like, " You need to go to a spa for a year and get > all of that stuff out of > your system. Get yourself healthy. " I try so hard > not to come unglued! I > don't think people realize how insensitive they are. > Like I want to take all > of this stuff! No, I just want to have some sort of > quality of life. > > Amy > > ------------------------------------------------------------------------ > Please visit our new web page at: > http://www.wpunj.edu/icip/pa > <HR> <html> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 1999 Report Share Posted November 23, 1999 I want to respond to the issue of what to do when OCD is no longer " running the show " , but is clearly still impacting day to day life. As a psychologist, I understand Dr. March's point of view that shifting out of OCD detective mode is good for everyone as a child is making progress. The parent in me says, however, even " regular " non- OCD kids can have difficulties in school for which it would help to work out a plan... So good for you for pursuing this! I do wonder, however, given the amount of issues you named, and the types of symptoms...obsessions, mental rituals, whether these were addressed in her treatment. Sometimes the more invisible OCD symptoms do not get addressed because unless the child is telling you about it, you may not know it was there. Perhaps a booster session to handle the counting and other mental rituals would make sense. Particularly if your daughter is doing better now, i.e., less bothered by other OCD symptoms, she may be receptive to some new ideas about controlling mental rituals. Best of luck. Tamar Chansky, Ph.D. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 1999 Report Share Posted November 24, 1999 To those requesting information on the presentation I worked up for the insurance company - I just looked at the materials I have on the computer. I have the titles of the abstracts only so I will have to look up the sources. In addition I have an outline, bibliography, etc. It is lengthy enough that I think I should send it as an attachment so that only those who want it will have to download the information. It may take me over the weekend to get it all in shape to send, so I hope you all don't mind waiting a few days for it. I only used abstracts from articles from 1990 on, but at this point they may be a bit dated. Still it will give a general idea of what kind of materials I included. Hope it helps. Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2000 Report Share Posted February 20, 2000 Rhonda, Thanks for sharing your experiences. It was not too long and you included a lot of information. I think there are many like me who read the messages and learn from them. We are gathering information. Thanks again " Butterfly " ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2000 Report Share Posted February 20, 2000 Rhonda, Thanks for sharing your experiences. It was not too long and you included a lot of information. I think there are many like me who read the messages and learn from them. We are gathering information. Thanks again " Butterfly " ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2000 Report Share Posted April 14, 2000 > Hello Everyone, This is my first posting to this discussion. I will write my story another time. I just want to know what minerals you are using, Art? Geraldine > > > Message: 18 > Date: Thu, 13 Apr 2000 01:32:26 EDT > From: jab44419@... > Subject: Re: to > > Art, > I think is right on, but his minerals are not testing for me as very > good minerals. I tried them and sent them back. He is a little too > commercial for me right now. > I wish I did not feel this way, because I liked him and feel he works hard. > ja > > ________________________________________________________________________ > ________________________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2000 Report Share Posted August 3, 2000 In a message dated 8/3/00 12:11:18 AM Eastern Daylight Time, egroups writes: << Subject: Epilepsy and mercury - thoughts and request for discussion >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2000 Report Share Posted August 3, 2000 In a message dated 8/3/00 12:11:18 AM Eastern Daylight Time, egroups writes: << Subject: Epilepsy and mercury - thoughts and request for discussion >> I would also be very interested in this as my now 6 year old niece began having seizures at age 3 months (after the DPT). She has already been on numerous medications, been life flighted, and in the ER quite afew times. She is not walking or talking, not potty trained. My sister has taken her to an allergist who put her on a rotation type of diet. They have seen a great improvement in her eating, but nothing else to note yet. She was a healthy baby at birth!!! Robbin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2001 Report Share Posted August 6, 2001 you can add me to the PA list...... kim, pittsburgh...matthew 3.5 years, severely apraxic. also have adam, steven, twins 14 and jessica 8 .....THANKS to this grouplist....... it's the best!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2001 Report Share Posted August 6, 2001 : I've never heard of SuperEPA. I have heard of Super-Nu-Thera, which is simply a multidose vitamin supplement. I don't think it has EFAs in it. - SB Sallie Bernard Executive Director Safe Minds 14 Commerce Drive, 3rd Floor Cranford, NJ 07016 908 276-8032 f - 908 276-1301 www.safeminds.org > >Hi ! > >I agree with , do tell, do tell! > >ProEFA, SuperEPA, Sounds like we are talking about comic book heroes >(hey, in a way they are heroes!) > >Could you maybe give us the amounts of Omega 3 -DHA and EPA in >SuperEPA, and let us know if there is any Omega 6 -GLA. What is the >cost, and the dosage, and how many capsules per bottle? Also, which >company makes it? (I'm a nosey little bugger, aren't I!) > >I want to run it all by Dr. Katz. I know he says that " good quality >products are undergoing a process called molecular distillation that >removes all solids still left in fish oil. All EFA products >containing fish oils that have been subjected to molecular >distillation have no mercury. It is important to use high-quality >products, which are independently quality-controlled. " > >I'm curious about the amount of children who have used SuperEPA. The >reason ProEFA is talked about so much, on a number of grouplists, not >just this one, is that " Overall " it has been successful, many times >dramatically, for children with a variety of symptoms. > >Is there a grouplist that talks about SuperEPA where we could go and >search the archives to learn more about it? Sallie, do you know >about this formula? > >If all looks good to Dr. Katz with this new fish oil formula, I might >try it with Tanner-but it would really take lots for me to switch him >from ProEFA. Kaufman is one of the SLPs that doesn't even see >Tanner as apraxic now!! How cool is that?!! What's easy is that >either way, works, doesn't work, I (and the professionals that work >with Tanner) will know for him typically within a week (like any of >you that has your child on the right formula and then switches or >stops) > >Thanks for Sharing! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2001 Report Share Posted September 19, 2001 Greetings. CA's Office of Criminal Justice Planning (OCJP) currently sponsors a small statewide working group which is looking at domestic violence and child abuse issues in the migrant and seasonal farmworker population. This activity is part of a larger federal grant they have from the Rural Domestic Violence Child Victimization program. As an independent consultant hired to facilitate about six meetings of this group, I'm seeking information about about or contact with individuals and/or groups who have studied family violence among MSFW's or have worked with victims who are MSFW. As you are aware, domestic violence is a serious health issue, among the many and complex health issues that affect farmworkers. Our group hopes to use the limited time available to us to construct a plan or recommendations that will improve the safety of migrant/seasonal farmworkers who are family violence victims. Thank you in advance for any help you can give me in terms of contacts or information. Frascella 2030 State Street, #22 Santa Barbara CA 93105 805 682 0112 805 682 9642 fax Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2001 Report Share Posted October 3, 2001 > > Just to avoid confusing these furthers, trishh28 is my wife's addy, > she forgets to sign out sometimes (but I never forget to put the > toilet seat down!!) > > Devin > Devin, So you're not just wonderful to us, but a perfect husband as well! Don't you have any vices?? (LOL) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2001 Report Share Posted October 3, 2001 Many, my wife could relate them to you, but it would take up too much server space. My wife is a much, much better person than I am; just ask any one in my family! Devin > > > > Just to avoid confusing these furthers, trishh28 is my wife's addy, > > she forgets to sign out sometimes (but I never forget to put the > > toilet seat down!!) > > > > Devin > > > Devin, > > So you're not just wonderful to us, but a perfect husband as well! Don't you > have any vices?? (LOL) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2003 Report Share Posted April 10, 2003 Hiya, ! So glad you are doing well and recovering from your surgery. Can't wait to " hear " how your " turn-on " goes. Remember to expect the least and be pleasantly surprised with what you get! Ninety-Nine point nine percent, you WILL hear! ) In the meantime, let people pamper you and relax! ) Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2003 Report Share Posted April 10, 2003 Hi, , What an excellent reference piece you've provided for nely processing CIers! Thanks for sharing that. I continue to keep a file on any and all correspondance of anything or anyone concerning " business " to do with my CI. A funny aside: when I get calls I can't hear/understand well, I explain my hearing problem and say, " Are one of my children in the hospital> Is my husband? Is this about any of my family? " " No? " " OK, thanks, I'm not interested, bye! " and I hang up! LOL So good to hear from you and know you are doing well!! ) Jackie Quote Link to comment Share on other sites More sharing options...
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