Re: story and update

October 13, 2004

, that was funny! LOL! I remember being at Walmart with Owen

and Rhys (then, 2 yrs). Owen was in the stroller wearing his brace

and we were in the line-up at the check out. There was a little boy

with his mother ahead of us and the boy kept turning around and

staring at Owen's brace. Next we overheard him asking his

mother " why is that baby wearing those funny shoes " . His mother

turned and looked and then quickly turned back and we heard her

say, " I don't know. " Next thing you know, Rhys walks up to the

little boy and she matter-of-factly says " that's my baby brother Owen

and those are just his boots with the bar " ...as if EVERYONE must

surely know that! LOL!

Daiga and Owen, 02/04/03

Unilateral LCF, FAB 14/24

>

> It was funny this weekend it was really nice out so we decided to

go

> to the Pumpkin Patch and get our pumpkins. We were ridding on a

> wagon out to the field and I had Tori in a stroller. One guy asked

> what was wrong with her feet, I got worried and was looking all

over

> for her foot to have slipped out of the brace or something. It

> looked ok to me so I said " nothing it's ok " then I realized he was

> talking about the brace. Duhh It has become so normal to me that

I

> don't even notice it anymore. I remember being so conscious of the

> cast in the beginning. How time changes things.

> I also wanted to give some reassurance to those starting this

> journey. My daughter is 8 months old and rolls both ways, stands

in

> her bar holding on to things and crawls on her hands and knees all

> over. She is way far a head of where my son (non cf) was at this

> age. We had problems with doctors, casts, and braces and I know we

> have a ways to go yet but what a joy my daughter is to me. I

> wouldn't change a thing.

>

> Tori 1/30/04 bilateral atypical cf brace 18hrs

> 12/7/01 non cf

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