Re: sores w/ DBB // allison

[Guest guest]

We too are in healing casts. The first time in the shoes within two days Aidan

had a blister on the inside of one foot and a blister on the back of the other.

This Friday 12/17 we are going to try the shoes again. I'm dreading it and I

wish their were another way. Does he actually have a couple of kids wearing

these new shoes now?

jagrindon jagrindon@...> wrote:

Kori,

Thanks for your response, and to the others who answered me. We went

to see the orthotics guy today, he had already spoken to Dr. Dobbs

and they've decided to put a healing cast on tomorrow. The sores

were much worse today when I changed the bandaids. They told me it

would be okay to leave the shoes off overnight tonight as long as we

keep exercising his foot for the rest of the day and tomorrow a.m.

before we see Dr. Dobbs again. I hate to take him out of the brace

for fear of losing correction but I know Dr. Dobbs knows what he is

doing, the sores are really bad, I think it must hurt him

tremendously even if we are getting the heel down now. Do you think

this is the wrong thing to do? (leaving the shoes off for nearly 1

full day???)

Next question -- has anyone ever heard of using a shoe similar to a

AFO, that is mounted on the DBB? This is what Dr. Dobbs is piloting

with the othotic company. They take a plaster mold of the baby's

foot and make a rubber " bootie " that slips over his foot and is then

strapped into a hard plastic shell, looks like some AFO's I've seen

pictures of which is then mounted on the DBB just like the shoes.

They have done a few of them already and ***no*** problems with sores

or blisters at all. Just wondering what you all think...

Thanks again!

>

>

> >Can anyone give me some input on dealing with sores with the DBB?

My

> >son Sammy just started with the brace on Thursday and by Friday

> >afternoon had some serious dark purple bruises on his heels. I

have

> >done everything I can think of aside from cutting out the backs of

> >the shoes -- I feel confident the heels are down in the shoes but

the

> >sores seem to be getting worse, I don't see him slipping in them

> >either. We are using blister block bandaids which Dr. Dobbs

> >recommended -- they are a lightly cushioned pad which seals out

> >moisture and is supposed to protect the skin from further

> >irritation. However, the sores are not improving, at first they

were

> >just dark bruises, now there are places where the skin is broken

(no

> >bleeding). The most amazing part is how well Sammy is doing

through

> >all of this. He cries when I put the brace on and off but he seems

> >to be doing very well, doesn't really complain as if he is in pain.

> >His biggest obstacle seems to be gas pains which has had since he

was

> >born but now he can't move his legs like he wants to make it feel

> >better. Anyway, we are going to see the orthotic guy today but I

was

> >just wondering if anyone had any suggestions on what may be going

on

> >with the DBB/shoes and what I can do. Also, how long does it take

> >for these types of sores to heal? Is there a point at which the

Dr.

> >says yes, you need a healing cast, or how do they decide when the

> >sores are severe enough to warrant another cast? If the baby is

not

> >complaining doesn't this indicate that the shoes are on right and

> >then shouldn't that mean they will get better?

> >

> >thanks for any input!

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

,

I'm so sorry to hear about your problems with sores after using the

Markell shoes. I received an email reply from Dr Ponseti yesterday, he

mentioned that he uses the shoes almost exclusively now

'because they are more comfortable' and the babies don't get any sores.

I'm holding thumbs that gets funding, or whatever he needs

to start making his brace in larger volumes so they can be exported and

supplied to more people outside those treated in Iowa.

It doesn't affect us because is almost 2 and tolerates his Markells

well, but if I'd had the choice back then (April 2003) I'd have gone for

the 's!

We are very happy that Dr Ponseti has just put onto night time only

wear (10-12 hours), with a reduced rotation angle of 50 degrees -

because still walks like he's over-corrected (a little

duck-footed). We emailed a short video of walking and climbing for

Dr Ponseti to see (we live in South Africa).

It feels like we've reached another milestone in this journey. I guess

that in the 'old' days they'd have taken him out of shoes around now

because of this, but Dr Ponseti revised it after they had some relapses

from too early release. He says must wear them at this reduced

angle and for shorter hours until he's 3 to avoid any chance of relapse.

I can understand your concern about the shoes, if you still have

problems, maybe you should discuss your concerns with your doctor and

see if you can order the s instead. It seems like they are

tried and proven to work already.

and

24 Jan 2003, bilateral cf

Treated by Dr Ponseti April 2003

www.clubfoot.co.za

Re: Re: sores w/ DBB // allison

We too are in healing casts. The first time in the shoes within two

days Aidan had a blister on the inside of one foot and a blister on the

back of the other. This Friday 12/17 we are going to try the shoes

again. I'm dreading it and I wish their were another way. Does he

actually have a couple of kids wearing these new shoes now?

[Guest guest]

We'd love to get the shoes but $380 dollars a pop is alot of money. I

understand insurance doesn't cover any of the cost for these shoes? If we have

more problems the second time around we may not have a choice. Aidan is a

preemie and I've heard that they usually have better success in the s

because they're foot is just smaller.

Moss karen@...> wrote:,

I'm so sorry to hear about your problems with sores after using the

Markell shoes. I received an email reply from Dr Ponseti yesterday, he

mentioned that he uses the shoes almost exclusively now

'because they are more comfortable' and the babies don't get any sores.

I'm holding thumbs that gets funding, or whatever he needs

to start making his brace in larger volumes so they can be exported and

supplied to more people outside those treated in Iowa.

It doesn't affect us because is almost 2 and tolerates his Markells

well, but if I'd had the choice back then (April 2003) I'd have gone for

the 's!

We are very happy that Dr Ponseti has just put onto night time only

wear (10-12 hours), with a reduced rotation angle of 50 degrees -

because still walks like he's over-corrected (a little

duck-footed). We emailed a short video of walking and climbing for

Dr Ponseti to see (we live in South Africa).

It feels like we've reached another milestone in this journey. I guess

that in the 'old' days they'd have taken him out of shoes around now

because of this, but Dr Ponseti revised it after they had some relapses

from too early release. He says must wear them at this reduced

angle and for shorter hours until he's 3 to avoid any chance of relapse.

I can understand your concern about the shoes, if you still have

problems, maybe you should discuss your concerns with your doctor and

see if you can order the s instead. It seems like they are

tried and proven to work already.

and

24 Jan 2003, bilateral cf

Treated by Dr Ponseti April 2003

www.clubfoot.co.za

Re: Re: sores w/ DBB // allison

We too are in healing casts. The first time in the shoes within two

days Aidan had a blister on the inside of one foot and a blister on the

back of the other. This Friday 12/17 we are going to try the shoes

again. I'm dreading it and I wish their were another way. Does he

actually have a couple of kids wearing these new shoes now?

[Guest guest]

That's very expensive! I just hope he can start mass-producing them

cheaper sometime soon. One thing that we were told in Iowa was to put

on two pairs of thin socks for the first 2-3 days of wear until their

skin gets used to wearing shoes. But maybe you tried this already the

first time? Best of luck, I hope that it goes well on Friday

Re: Re: sores w/ DBB // allison

We too are in healing casts. The first time in the shoes within two

days Aidan had a blister on the inside of one foot and a blister on the

back of the other. This Friday 12/17 we are going to try the shoes

again. I'm dreading it and I wish their were another way. Does he

actually have a couple of kids wearing these new shoes now?

[Guest guest]

I didn't do that but will probably try it this second time around. I think I'll

also put blister blockers on his feet where the last blisters were. They said

he should just form coulises (sp) on his feet to toughen those spots up. Is it

me, but I don't want coulises on his feet!! :-) Thanks I appreciate it.

I know it was awhile back but do you remember how handle his shoes in

the beginning? Was he fussy? Did he cry?

Moss karen@...> wrote:

That's very expensive! I just hope he can start mass-producing them

cheaper sometime soon. One thing that we were told in Iowa was to put

on two pairs of thin socks for the first 2-3 days of wear until their

skin gets used to wearing shoes. But maybe you tried this already the

first time? Best of luck, I hope that it goes well on Friday

Re: Re: sores w/ DBB // allison

We too are in healing casts. The first time in the shoes within two

days Aidan had a blister on the inside of one foot and a blister on the

back of the other. This Friday 12/17 we are going to try the shoes

again. I'm dreading it and I wish their were another way. Does he

actually have a couple of kids wearing these new shoes now?

[Guest guest]

,

I agree, the blister blockers sound like a good thing to try.

Yes, did get frustrated quite a bit, he would sleep for a couple of

hours at night out of sheer exhaustion, then wake up, find his feet

still 'tied together' and howl again. Dr Ponseti did say that he has

quite a temper!

I remember that for the first two nights, would fall asleep as

usual, then wake up a couple of hours later crying in a rage. The only

way I could get him comfortable was to sleep on me, tummy to tummy. I'd

prop myself up a little on pillows and needless to say I didn't get much

sleep at all. By the third night though, he seemed to have adjusted and

didn't wake up crying, he slept through.

During the day I would play with the bar a lot while it was on him,

showing him how to move his legs at the same time, bending his knees,

etc. This was suggested by the Iowa staff, I don't know if it that's

why he settled after two days, but it made me feel more useful!

Because I recognised it as an 'angry, frustrated' cry, not a 'pain' cry,

so I didn't take the shoes off, but just persevered. I also don't think

there's anything wrong with a little Tylenol those first couple of

nights, just to help with the feet which must be a little sensitive

after the plasters.

and

www.clubfoot.co.za

Re: Re: sores w/ DBB // allison

We too are in healing casts. The first time in the shoes within two

days Aidan had a blister on the inside of one foot and a blister on the

back of the other. This Friday 12/17 we are going to try the shoes

again. I'm dreading it and I wish their were another way. Does he

actually have a couple of kids wearing these new shoes now?

[Guest guest]

,

I agree, the blister blockers sound like a good thing to try.

Yes, did get frustrated quite a bit, he would sleep for a couple of

hours at night out of sheer exhaustion, then wake up, find his feet

still 'tied together' and howl again. Dr Ponseti did say that he has

quite a temper!

I remember that for the first two nights, would fall asleep as

usual, then wake up a couple of hours later crying in a rage. The only

way I could get him comfortable was to sleep on me, tummy to tummy. I'd

prop myself up a little on pillows and needless to say I didn't get much

sleep at all. By the third night though, he seemed to have adjusted and

didn't wake up crying, he slept through.

During the day I would play with the bar a lot while it was on him,

showing him how to move his legs at the same time, bending his knees,

etc. This was suggested by the Iowa staff, I don't know if it that's

why he settled after two days, but it made me feel more useful!

Because I recognised it as an 'angry, frustrated' cry, not a 'pain' cry,

so I didn't take the shoes off, but just persevered. I also don't think

there's anything wrong with a little Tylenol those first couple of

nights, just to help with the feet which must be a little sensitive

after the plasters.

and

www.clubfoot.co.za

Re: Re: sores w/ DBB // allison

We too are in healing casts. The first time in the shoes within two

days Aidan had a blister on the inside of one foot and a blister on the

back of the other. This Friday 12/17 we are going to try the shoes

again. I'm dreading it and I wish their were another way. Does he

actually have a couple of kids wearing these new shoes now?

[Guest guest]

,

I know what you mean about not wanting your baby to have calouses on his feet.

For crying out loud, he's not even close to walking yet--what would he NEED

calouses for? Our pediatrician thought it was sort of sad--and also a little

funny--when we brought Jonah in with what we were pretty sure was athlete's

foot. And it was and the ped said he had never seen it before in a baby.

Cleared right up, by the way.

I do think their feet need a little time to toughen up when they first go in the

shoes. We were advised to use 2 pair of socks for the first few days. Also, we

spent some time distressing and softening the shoes while he had them off. We'd

just pull at the leather and squish the soes in our hands. You know how a new

pair of shoes can feel sort of stiff until you've broken them in.

You were asking about cutting holes in the shoes in a different post. While

we've never done this, I think most people cut through in the heel area with an

exacto knife a little window so they can see where the heel is at. I've read of

people making it just large enough to fit a fingertip(then you cn check by

sticking your finger in where the heel is). This does not compromise the

integrity of the shoes in any way. However, your orthotist may balk at doing it

because it would void any kind of warranty.

I'd also advise you to cover any of the stitching that was causing the sore on

the inside of the foot with moleskin. And then make sure the moleskin is

staying in place and not bunching up and causing more friction. (The moleskin

is adhesive on one side, the orthotist should have some on hand if you ask)

It's sort of a pain in the butt, but you may want to take the shoes off every

couple of hours for the first few days to check his feet over. That way you get

lots of practice putting them back on too... Do you have an adjustable or a

non-adjustable bar?

Hope all goes well for you and Aidan. I'm sure you'll let us know.

Naomi

The Family

Naomi Hannah(02/21/01) Jonah(06/20/03, bilateral clubfoot, FAB 14/7)

Hundley jenhundley@...> wrote:

I didn't do that but will probably try it this second time around. I think I'll

also put blister blockers on his feet where the last blisters were. They said he

should just form coulises (sp) on his feet to toughen those spots up. Is it me,

but I don't want coulises on his feet!! :-) Thanks I appreciate it.

I know it was awhile back but do you remember how handle his shoes in

the beginning? Was he fussy? Did he cry?

Moss wrote:

That's very expensive! I just hope he can start mass-producing them

cheaper sometime soon. One thing that we were told in Iowa was to put

on two pairs of thin socks for the first 2-3 days of wear until their

skin gets used to wearing shoes. But maybe you tried this already the

first time? Best of luck, I hope that it goes well on Friday

Re: Re: sores w/ DBB // allison

We too are in healing casts. The first time in the shoes within two

days Aidan had a blister on the inside of one foot and a blister on the

back of the other. This Friday 12/17 we are going to try the shoes

again. I'm dreading it and I wish their were another way. Does he

actually have a couple of kids wearing these new shoes now?

[Guest guest]

,

I know what you mean about not wanting your baby to have calouses on his feet.

For crying out loud, he's not even close to walking yet--what would he NEED

calouses for? Our pediatrician thought it was sort of sad--and also a little

funny--when we brought Jonah in with what we were pretty sure was athlete's

foot. And it was and the ped said he had never seen it before in a baby.

Cleared right up, by the way.

I do think their feet need a little time to toughen up when they first go in the

shoes. We were advised to use 2 pair of socks for the first few days. Also, we

spent some time distressing and softening the shoes while he had them off. We'd

just pull at the leather and squish the soes in our hands. You know how a new

pair of shoes can feel sort of stiff until you've broken them in.

You were asking about cutting holes in the shoes in a different post. While

we've never done this, I think most people cut through in the heel area with an

exacto knife a little window so they can see where the heel is at. I've read of

people making it just large enough to fit a fingertip(then you cn check by

sticking your finger in where the heel is). This does not compromise the

integrity of the shoes in any way. However, your orthotist may balk at doing it

because it would void any kind of warranty.

I'd also advise you to cover any of the stitching that was causing the sore on

the inside of the foot with moleskin. And then make sure the moleskin is

staying in place and not bunching up and causing more friction. (The moleskin

is adhesive on one side, the orthotist should have some on hand if you ask)

It's sort of a pain in the butt, but you may want to take the shoes off every

couple of hours for the first few days to check his feet over. That way you get

lots of practice putting them back on too... Do you have an adjustable or a

non-adjustable bar?

Hope all goes well for you and Aidan. I'm sure you'll let us know.

Naomi

The Family

Naomi Hannah(02/21/01) Jonah(06/20/03, bilateral clubfoot, FAB 14/7)

Hundley jenhundley@...> wrote:

I didn't do that but will probably try it this second time around. I think I'll

also put blister blockers on his feet where the last blisters were. They said he

should just form coulises (sp) on his feet to toughen those spots up. Is it me,

but I don't want coulises on his feet!! :-) Thanks I appreciate it.

I know it was awhile back but do you remember how handle his shoes in

the beginning? Was he fussy? Did he cry?

Moss wrote:

That's very expensive! I just hope he can start mass-producing them

cheaper sometime soon. One thing that we were told in Iowa was to put

on two pairs of thin socks for the first 2-3 days of wear until their

skin gets used to wearing shoes. But maybe you tried this already the

first time? Best of luck, I hope that it goes well on Friday

Re: Re: sores w/ DBB // allison

We too are in healing casts. The first time in the shoes within two

days Aidan had a blister on the inside of one foot and a blister on the

back of the other. This Friday 12/17 we are going to try the shoes

again. I'm dreading it and I wish their were another way. Does he

actually have a couple of kids wearing these new shoes now?

[Guest guest]

Thanks for the info. Aidan, was pretty much inconsolable the first day.

I'm glad to know this seems pretty common for all babies and it's just not my

child.

Moss karen@...> wrote:,

I agree, the blister blockers sound like a good thing to try.

Yes, did get frustrated quite a bit, he would sleep for a couple of

hours at night out of sheer exhaustion, then wake up, find his feet

still 'tied together' and howl again. Dr Ponseti did say that he has

quite a temper!

I remember that for the first two nights, would fall asleep as

usual, then wake up a couple of hours later crying in a rage. The only

way I could get him comfortable was to sleep on me, tummy to tummy. I'd

prop myself up a little on pillows and needless to say I didn't get much

sleep at all. By the third night though, he seemed to have adjusted and

didn't wake up crying, he slept through.

During the day I would play with the bar a lot while it was on him,

showing him how to move his legs at the same time, bending his knees,

etc. This was suggested by the Iowa staff, I don't know if it that's

why he settled after two days, but it made me feel more useful!

Because I recognised it as an 'angry, frustrated' cry, not a 'pain' cry,

so I didn't take the shoes off, but just persevered. I also don't think

there's anything wrong with a little Tylenol those first couple of

nights, just to help with the feet which must be a little sensitive

after the plasters.

and

www.clubfoot.co.za

Re: Re: sores w/ DBB // allison

We too are in healing casts. The first time in the shoes within two

days Aidan had a blister on the inside of one foot and a blister on the

back of the other. This Friday 12/17 we are going to try the shoes

again. I'm dreading it and I wish their were another way. Does he

actually have a couple of kids wearing these new shoes now?

[Guest guest]

We have the non-adjustable bar. I bought the socks from Old Navy. I've also

gotten socks for him at baby showers'. Should I double up on the Old Navy socks

or put a thinner pair on then the Old Navy pair?

Naomi powellbugs@...> wrote:

,

I know what you mean about not wanting your baby to have calouses on his feet.

For crying out loud, he's not even close to walking yet--what would he NEED

calouses for? Our pediatrician thought it was sort of sad--and also a little

funny--when we brought Jonah in with what we were pretty sure was athlete's

foot. And it was and the ped said he had never seen it before in a baby. Cleared

right up, by the way.

I do think their feet need a little time to toughen up when they first go in the

shoes. We were advised to use 2 pair of socks for the first few days. Also, we

spent some time distressing and softening the shoes while he had them off. We'd

just pull at the leather and squish the soes in our hands. You know how a new

pair of shoes can feel sort of stiff until you've broken them in.

You were asking about cutting holes in the shoes in a different post. While

we've never done this, I think most people cut through in the heel area with an

exacto knife a little window so they can see where the heel is at. I've read of

people making it just large enough to fit a fingertip(then you cn check by

sticking your finger in where the heel is). This does not compromise the

integrity of the shoes in any way. However, your orthotist may balk at doing it

because it would void any kind of warranty.

I'd also advise you to cover any of the stitching that was causing the sore on

the inside of the foot with moleskin. And then make sure the moleskin is staying

in place and not bunching up and causing more friction. (The moleskin is

adhesive on one side, the orthotist should have some on hand if you ask)

It's sort of a pain in the butt, but you may want to take the shoes off every

couple of hours for the first few days to check his feet over. That way you get

lots of practice putting them back on too... Do you have an adjustable or a

non-adjustable bar?

Hope all goes well for you and Aidan. I'm sure you'll let us know.

Naomi

The Family

Naomi Hannah(02/21/01) Jonah(06/20/03, bilateral clubfoot, FAB 14/7)

Hundley wrote:

I didn't do that but will probably try it this second time around. I think I'll

also put blister blockers on his feet where the last blisters were. They said he

should just form coulises (sp) on his feet to toughen those spots up. Is it me,

but I don't want coulises on his feet!! :-) Thanks I appreciate it.

I know it was awhile back but do you remember how handle his shoes in

the beginning? Was he fussy? Did he cry?

Moss wrote:

That's very expensive! I just hope he can start mass-producing them

cheaper sometime soon. One thing that we were told in Iowa was to put

on two pairs of thin socks for the first 2-3 days of wear until their

skin gets used to wearing shoes. But maybe you tried this already the

first time? Best of luck, I hope that it goes well on Friday

Re: Re: sores w/ DBB // allison

We too are in healing casts. The first time in the shoes within two

days Aidan had a blister on the inside of one foot and a blister on the

back of the other. This Friday 12/17 we are going to try the shoes

again. I'm dreading it and I wish their were another way. Does he

actually have a couple of kids wearing these new shoes now?

[Guest guest]

We have the non-adjustable bar. I bought the socks from Old Navy. I've also

gotten socks for him at baby showers'. Should I double up on the Old Navy socks

or put a thinner pair on then the Old Navy pair?

Naomi powellbugs@...> wrote:

,

I know what you mean about not wanting your baby to have calouses on his feet.

For crying out loud, he's not even close to walking yet--what would he NEED

calouses for? Our pediatrician thought it was sort of sad--and also a little

funny--when we brought Jonah in with what we were pretty sure was athlete's

foot. And it was and the ped said he had never seen it before in a baby. Cleared

right up, by the way.

I do think their feet need a little time to toughen up when they first go in the

shoes. We were advised to use 2 pair of socks for the first few days. Also, we

spent some time distressing and softening the shoes while he had them off. We'd

just pull at the leather and squish the soes in our hands. You know how a new

pair of shoes can feel sort of stiff until you've broken them in.

You were asking about cutting holes in the shoes in a different post. While

we've never done this, I think most people cut through in the heel area with an

exacto knife a little window so they can see where the heel is at. I've read of

people making it just large enough to fit a fingertip(then you cn check by

sticking your finger in where the heel is). This does not compromise the

integrity of the shoes in any way. However, your orthotist may balk at doing it

because it would void any kind of warranty.

I'd also advise you to cover any of the stitching that was causing the sore on

the inside of the foot with moleskin. And then make sure the moleskin is staying

in place and not bunching up and causing more friction. (The moleskin is

adhesive on one side, the orthotist should have some on hand if you ask)

It's sort of a pain in the butt, but you may want to take the shoes off every

couple of hours for the first few days to check his feet over. That way you get

lots of practice putting them back on too... Do you have an adjustable or a

non-adjustable bar?

Hope all goes well for you and Aidan. I'm sure you'll let us know.

Naomi

The Family

Naomi Hannah(02/21/01) Jonah(06/20/03, bilateral clubfoot, FAB 14/7)

Hundley wrote:

I didn't do that but will probably try it this second time around. I think I'll

also put blister blockers on his feet where the last blisters were. They said he

should just form coulises (sp) on his feet to toughen those spots up. Is it me,

but I don't want coulises on his feet!! :-) Thanks I appreciate it.

I know it was awhile back but do you remember how handle his shoes in

the beginning? Was he fussy? Did he cry?

Moss wrote:

That's very expensive! I just hope he can start mass-producing them

cheaper sometime soon. One thing that we were told in Iowa was to put

on two pairs of thin socks for the first 2-3 days of wear until their

skin gets used to wearing shoes. But maybe you tried this already the

first time? Best of luck, I hope that it goes well on Friday

Re: Re: sores w/ DBB // allison

We too are in healing casts. The first time in the shoes within two

days Aidan had a blister on the inside of one foot and a blister on the

back of the other. This Friday 12/17 we are going to try the shoes

again. I'm dreading it and I wish their were another way. Does he

actually have a couple of kids wearing these new shoes now?

[Guest guest]

Hi !! Just wanted to chime in on the s subject...I

know that $380 is A LOT OF MONEY...trust me, I had to borrow it. I am

a SAHM and that really is a chunk of change. The bar is adjustable so

when Aidan outgrows the shoes you just need to order new shoes which

is $130 a shot...still not cheap but more manageable! And honestly,

after all Ethans issues with the Markells, I would pay the $380 every

single time if I had to. He is a completely different baby now...so

happy!! And he has been in the same pair of s since July and

they should last another month or so.

Sorry to go on and on...I just love the sandals and wouldn't

want the price to stop anyone from getting them!!

Tina

Dylan 3-21-00

Ethan 3-06-04 bcf Happy baby 15/7

#3 EDD 5-25-05

,

>

> I'm so sorry to hear about your problems with sores after using the

> Markell shoes. I received an email reply from Dr Ponseti yesterday, he

> mentioned that he uses the shoes almost exclusively now

> 'because they are more comfortable' and the babies don't get any sores.

>

>

> I'm holding thumbs that gets funding, or whatever he needs

> to start making his brace in larger volumes so they can be exported and

> supplied to more people outside those treated in Iowa.

>

> It doesn't affect us because is almost 2 and tolerates his Markells

> well, but if I'd had the choice back then (April 2003) I'd have gone for

> the 's!

>

> We are very happy that Dr Ponseti has just put onto night time only

> wear (10-12 hours), with a reduced rotation angle of 50 degrees -

> because still walks like he's over-corrected (a little

> duck-footed). We emailed a short video of walking and climbing for

> Dr Ponseti to see (we live in South Africa).

>

> It feels like we've reached another milestone in this journey. I guess

> that in the 'old' days they'd have taken him out of shoes around now

> because of this, but Dr Ponseti revised it after they had some relapses

> from too early release. He says must wear them at this reduced

> angle and for shorter hours until he's 3 to avoid any chance of relapse.

>

>

> I can understand your concern about the shoes, if you still have

> problems, maybe you should discuss your concerns with your doctor and

> see if you can order the s instead. It seems like they are

> tried and proven to work already.

>

> and

> 24 Jan 2003, bilateral cf

> Treated by Dr Ponseti April 2003

>

> www.clubfoot.co.za

>

>

> Re: Re: sores w/ DBB // allison

>

>

> We too are in healing casts. The first time in the shoes within two

> days Aidan had a blister on the inside of one foot and a blister on the

> back of the other. This Friday 12/17 we are going to try the shoes

> again. I'm dreading it and I wish their were another way. Does he

> actually have a couple of kids wearing these new shoes now?

>

>

>

>

>

>

>

[Guest guest]

Logan will be ready for his shoes some time in late January. I have a flex plan

at work and can get reimbursed for the whole amount of the shoes. i am so glad

i signed up for this benefit. Question: if i want s and don't mind the

cost how do i get the doctor to order that certain kind? Is there someone i can

call when i get the prescription? I am kinda worry about this. Logan is a very

high tempered little boy and with DH gone for a while i need everything to run

as smoothly as possible. Any advice would be great.

a. mom to Logan (07/12/04, bicf, serial casting)

(03/2/1994) non cf

(08/06/1990) non cf

dylansmommy2000 dylansmommy2000@...> wrote:

Hi !! Just wanted to chime in on the s subject...I

know that $380 is A LOT OF MONEY...trust me, I had to borrow it. I am

a SAHM and that really is a chunk of change. The bar is adjustable so

when Aidan outgrows the shoes you just need to order new shoes which

is $130 a shot...still not cheap but more manageable! And honestly,

after all Ethans issues with the Markells, I would pay the $380 every

single time if I had to. He is a completely different baby now...so

happy!! And he has been in the same pair of s since July and

they should last another month or so.

Sorry to go on and on...I just love the sandals and wouldn't

want the price to stop anyone from getting them!!

Tina

Dylan 3-21-00

Ethan 3-06-04 bcf Happy baby 15/7

#3 EDD 5-25-05

,

>

> I'm so sorry to hear about your problems with sores after using the

> Markell shoes. I received an email reply from Dr Ponseti yesterday, he

> mentioned that he uses the shoes almost exclusively now

> 'because they are more comfortable' and the babies don't get any sores.

>

>

> I'm holding thumbs that gets funding, or whatever he needs

> to start making his brace in larger volumes so they can be exported and

> supplied to more people outside those treated in Iowa.

>

> It doesn't affect us because is almost 2 and tolerates his Markells

> well, but if I'd had the choice back then (April 2003) I'd have gone for

> the 's!

>

> We are very happy that Dr Ponseti has just put onto night time only

> wear (10-12 hours), with a reduced rotation angle of 50 degrees -

> because still walks like he's over-corrected (a little

> duck-footed). We emailed a short video of walking and climbing for

> Dr Ponseti to see (we live in South Africa).

>

> It feels like we've reached another milestone in this journey. I guess

> that in the 'old' days they'd have taken him out of shoes around now

> because of this, but Dr Ponseti revised it after they had some relapses

> from too early release. He says must wear them at this reduced

> angle and for shorter hours until he's 3 to avoid any chance of relapse.

>

>

> I can understand your concern about the shoes, if you still have

> problems, maybe you should discuss your concerns with your doctor and

> see if you can order the s instead. It seems like they are

> tried and proven to work already.

>

> and

> 24 Jan 2003, bilateral cf

> Treated by Dr Ponseti April 2003

>

> www.clubfoot.co.za

>

>

> Re: Re: sores w/ DBB // allison

>

>

> We too are in healing casts. The first time in the shoes within two

> days Aidan had a blister on the inside of one foot and a blister on the

> back of the other. This Friday 12/17 we are going to try the shoes

> again. I'm dreading it and I wish their were another way. Does he

> actually have a couple of kids wearing these new shoes now?

>

>

>

>

>

>

>

[Guest guest]

Logan will be ready for his shoes some time in late January. I have a flex plan

at work and can get reimbursed for the whole amount of the shoes. i am so glad

i signed up for this benefit. Question: if i want s and don't mind the

cost how do i get the doctor to order that certain kind? Is there someone i can

call when i get the prescription? I am kinda worry about this. Logan is a very

high tempered little boy and with DH gone for a while i need everything to run

as smoothly as possible. Any advice would be great.

a. mom to Logan (07/12/04, bicf, serial casting)

(03/2/1994) non cf

(08/06/1990) non cf

dylansmommy2000 dylansmommy2000@...> wrote:

Hi !! Just wanted to chime in on the s subject...I

know that $380 is A LOT OF MONEY...trust me, I had to borrow it. I am

a SAHM and that really is a chunk of change. The bar is adjustable so

when Aidan outgrows the shoes you just need to order new shoes which

is $130 a shot...still not cheap but more manageable! And honestly,

after all Ethans issues with the Markells, I would pay the $380 every

single time if I had to. He is a completely different baby now...so

happy!! And he has been in the same pair of s since July and

they should last another month or so.

Sorry to go on and on...I just love the sandals and wouldn't

want the price to stop anyone from getting them!!

Tina

Dylan 3-21-00

Ethan 3-06-04 bcf Happy baby 15/7

#3 EDD 5-25-05

,

>

> I'm so sorry to hear about your problems with sores after using the

> Markell shoes. I received an email reply from Dr Ponseti yesterday, he

> mentioned that he uses the shoes almost exclusively now

> 'because they are more comfortable' and the babies don't get any sores.

>

>

> I'm holding thumbs that gets funding, or whatever he needs

> to start making his brace in larger volumes so they can be exported and

> supplied to more people outside those treated in Iowa.

>

> It doesn't affect us because is almost 2 and tolerates his Markells

> well, but if I'd had the choice back then (April 2003) I'd have gone for

> the 's!

>

> We are very happy that Dr Ponseti has just put onto night time only

> wear (10-12 hours), with a reduced rotation angle of 50 degrees -

> because still walks like he's over-corrected (a little

> duck-footed). We emailed a short video of walking and climbing for

> Dr Ponseti to see (we live in South Africa).

>

> It feels like we've reached another milestone in this journey. I guess

> that in the 'old' days they'd have taken him out of shoes around now

> because of this, but Dr Ponseti revised it after they had some relapses

> from too early release. He says must wear them at this reduced

> angle and for shorter hours until he's 3 to avoid any chance of relapse.

>

>

> I can understand your concern about the shoes, if you still have

> problems, maybe you should discuss your concerns with your doctor and

> see if you can order the s instead. It seems like they are

> tried and proven to work already.

>

> and

> 24 Jan 2003, bilateral cf

> Treated by Dr Ponseti April 2003

>

> www.clubfoot.co.za

>

>

> Re: Re: sores w/ DBB // allison

>

>

> We too are in healing casts. The first time in the shoes within two

> days Aidan had a blister on the inside of one foot and a blister on the

> back of the other. This Friday 12/17 we are going to try the shoes

> again. I'm dreading it and I wish their were another way. Does he

> actually have a couple of kids wearing these new shoes now?

>

>

>

>

>

>

>

[Guest guest]

I think you could measure your child's foot right before they apply the last

cast, then send those measurments to and he can have the shoes

built before the cast comes off so there will be no delay.

s.

Re: Re: sores w/ DBB // allison

>

>

> We too are in healing casts. The first time in the shoes within two

> days Aidan had a blister on the inside of one foot and a blister on the

> back of the other. This Friday 12/17 we are going to try the shoes

> again. I'm dreading it and I wish their were another way. Does he

> actually have a couple of kids wearing these new shoes now?

>

>

>

>

>

>

>