Re: Are all CF kids poor sleepers?

[Guest guest]

Thank you for your insight!

_____

From: Lori

Sent: Saturday, November 06, 2004 10:52 AM

To: nosurgery4clubfoot

Subject: Re: Are all CF kids poor sleepers?

I have to admit that I cave into Elijah more than I did w/ the

others. It could be partially due to CF.... the other part due to him

being my last baby. I agree w/ Kori, follow your gut on this one and

if you think he needs to be held, do it.

I let Elijah cry it out after all the holding, rocking, singing,

dancing, swinging etc etc etc didnt work and I was about to lose my @)

*##@( mind.

Speaking of 'professionals' getting in your business as a mother... I

had a lady at WIC tell me this week " SHAME ON YOU " b/c I still put a

little cereal in a bottle for Elijah before lying him down to sleep.

I was LIVID!!!

Do what you can to tune these people out or learn to enjoy going off

on them like I have, LOL~~~

[Guest guest]

Thank you for your insight!

_____

From: Lori

Sent: Saturday, November 06, 2004 10:52 AM

To: nosurgery4clubfoot

Subject: Re: Are all CF kids poor sleepers?

I have to admit that I cave into Elijah more than I did w/ the

others. It could be partially due to CF.... the other part due to him

being my last baby. I agree w/ Kori, follow your gut on this one and

if you think he needs to be held, do it.

I let Elijah cry it out after all the holding, rocking, singing,

dancing, swinging etc etc etc didnt work and I was about to lose my @)

*##@( mind.

Speaking of 'professionals' getting in your business as a mother... I

had a lady at WIC tell me this week " SHAME ON YOU " b/c I still put a

little cereal in a bottle for Elijah before lying him down to sleep.

I was LIVID!!!

Do what you can to tune these people out or learn to enjoy going off

on them like I have, LOL~~~

[Guest guest]

OH and we live in Seattle. Weston is receiving treatment at Children's with

Schmale.

_____

From: Daiga Grady

Sent: Saturday, November 06, 2004 6:28 AM

To: nosurgery4clubfoot

Subject: Re: Are all CF kids poor sleepers?

Lori, welcome to the group! Is Weston receiving the Ponseti Method

of treatment? Where are you located and what doctor are you seeing?

I think that it's safe to say that not all babies have problems or

discomfort with the casting treatment. Most of those that have

experienced difficulty have reported that the problems started after

the FAB was introduced. We have found that to be somewhat normal as

there is usually an 'adjustment' period with transitioning from casts

to brace.

Did Weston need to have a tenotomy? Usually, with the Ponseti

method, the final cast is applied after the tenotomy procedure and is

kept on for a period of 3 weeks. I'm not sure how long the final

cast is usually kept on if there was no tenotomy required.

Has Weston seemed uncomfortable with all of his casts or just this

one in particular?

Daiga and Owen, 02/04/03

Unilateral LCF, FAB 14/24

>

>

> Hi there,

> We are new to the group. My son Weston is 7 weeks old and just

> received his 5th and final cast this week. He is due to get his

DBB

> this Thursday. My question is... Are all infants going through

this

> as poor a sleeper as Weston? He has to be rocked to sleep for

about

> an hour every time he goes down and seems to fight sleep. He is a

> very light sleeper and can be up for 6 hours at a time. Are any of

> you parents going through this? Our orthopedic doctor told me

> Weston has me " trained " and I need to let him cry it out. I just

> can't do it.. especially since I believe his foot (unilateral) is

> uncomfortable. Any insight would be helpful. Thank you!

[Guest guest]

OH and we live in Seattle. Weston is receiving treatment at Children's with

Schmale.

_____

From: Daiga Grady

Sent: Saturday, November 06, 2004 6:28 AM

To: nosurgery4clubfoot

Subject: Re: Are all CF kids poor sleepers?

Lori, welcome to the group! Is Weston receiving the Ponseti Method

of treatment? Where are you located and what doctor are you seeing?

I think that it's safe to say that not all babies have problems or

discomfort with the casting treatment. Most of those that have

experienced difficulty have reported that the problems started after

the FAB was introduced. We have found that to be somewhat normal as

there is usually an 'adjustment' period with transitioning from casts

to brace.

Did Weston need to have a tenotomy? Usually, with the Ponseti

method, the final cast is applied after the tenotomy procedure and is

kept on for a period of 3 weeks. I'm not sure how long the final

cast is usually kept on if there was no tenotomy required.

Has Weston seemed uncomfortable with all of his casts or just this

one in particular?

Daiga and Owen, 02/04/03

Unilateral LCF, FAB 14/24

>

>

> Hi there,

> We are new to the group. My son Weston is 7 weeks old and just

> received his 5th and final cast this week. He is due to get his

DBB

> this Thursday. My question is... Are all infants going through

this

> as poor a sleeper as Weston? He has to be rocked to sleep for

about

> an hour every time he goes down and seems to fight sleep. He is a

> very light sleeper and can be up for 6 hours at a time. Are any of

> you parents going through this? Our orthopedic doctor told me

> Weston has me " trained " and I need to let him cry it out. I just

> can't do it.. especially since I believe his foot (unilateral) is

> uncomfortable. Any insight would be helpful. Thank you!

[Guest guest]

Lori, having had 4 kids, I can honestly tell you that each and every

one of them is absolutely unique in their habits.

My first was the proverbial 'angel'...she slept 5-6 hours through the

night from day 1 and was sleeping 12 hours at 11 weeks. By that

time, I could nurse her, change her diaper and then lay her down

awake in her crib, say goodnight and walk away. She was a dream! My

second, however, was totally opposite. She nursed non-stop, napped

in 20 minute spurts, and at night I wasn't able to put her down

awake. She had to be nursed to sleep and then very carefully laid

down into her crib. At times, the moment I'd let go of her after

ever so carefully having lowered her down into the crib, she would

immediately wake and begin screaming until I picked her back up.

Although it wasn't planned, we ended up co-sleeping out of sheer

exhaustion. My last two were somewhere in between.

I would have to think that Weston's sleeping habits are completely

normal for his age!

Daiga

> Thanks for your reply.. Yes, I have also read that 6 months is the

minimum

> age of letting a child cry it out. He doesn't scream at night. He

is just

> unable to be put down unless he is completely asleep. He will wake

up and

> cry if I try any sooner. Maybe this is normal?? This is my first

so am

> learning a lot. I thought it could be due to the casts but maybe

not.

>

>

>

> _____

>

> From: Gerace [mailto:cgerace@v...]

> Sent: Saturday, November 06, 2004 4:47 AM

> To: nosurgery4clubfoot

> Subject: RE: Are all CF kids poor sleepers?

>

>

>

> My son was a poor sleeper in the beginning but he also suffered

from Acid

> Reflux. I don't think your son has you " trained " yet because I

have read in

> several articles that babies cannot be spoiled until they are at

least 6

> months of age. When we got the reflux under control I felt more

comfortable

> letting him cry a little at night before bed (not hysterical... just

> whinny). Is there any other reason why Weston would be

uncomfortable such

> as tummy ache, etc.?

>

>

>

>

>

> Mommy to (12-17-98) and

>

> Christian (1-30-04) LCF - DBB 23/7

>

> _____

>

> From: wbb_lr [mailto:lori.webb@c...]

> Sent: Friday, November 05, 2004 9:00 PM

> To: nosurgery4clubfoot

> Subject: Are all CF kids poor sleepers?

>

>

>

>

>

> Hi there,

> We are new to the group. My son Weston is 7 weeks old and just

> received his 5th and final cast this week. He is due to get his

DBB

> this Thursday. My question is... Are all infants going through

this

> as poor a sleeper as Weston? He has to be rocked to sleep for

about

> an hour every time he goes down and seems to fight sleep. He is a

> very light sleeper and can be up for 6 hours at a time. Are any of

> you parents going through this? Our orthopedic doctor told me

> Weston has me " trained " and I need to let him cry it out. I just

> can't do it.. especially since I believe his foot (unilateral) is

> uncomfortable. Any insight would be helpful. Thank you!

>

>

>

>

>

>

>

>

>

[Guest guest]

Lori, having had 4 kids, I can honestly tell you that each and every

one of them is absolutely unique in their habits.

My first was the proverbial 'angel'...she slept 5-6 hours through the

night from day 1 and was sleeping 12 hours at 11 weeks. By that

time, I could nurse her, change her diaper and then lay her down

awake in her crib, say goodnight and walk away. She was a dream! My

second, however, was totally opposite. She nursed non-stop, napped

in 20 minute spurts, and at night I wasn't able to put her down

awake. She had to be nursed to sleep and then very carefully laid

down into her crib. At times, the moment I'd let go of her after

ever so carefully having lowered her down into the crib, she would

immediately wake and begin screaming until I picked her back up.

Although it wasn't planned, we ended up co-sleeping out of sheer

exhaustion. My last two were somewhere in between.

I would have to think that Weston's sleeping habits are completely

normal for his age!

Daiga

> Thanks for your reply.. Yes, I have also read that 6 months is the

minimum

> age of letting a child cry it out. He doesn't scream at night. He

is just

> unable to be put down unless he is completely asleep. He will wake

up and

> cry if I try any sooner. Maybe this is normal?? This is my first

so am

> learning a lot. I thought it could be due to the casts but maybe

not.

>

>

>

> _____

>

> From: Gerace [mailto:cgerace@v...]

> Sent: Saturday, November 06, 2004 4:47 AM

> To: nosurgery4clubfoot

> Subject: RE: Are all CF kids poor sleepers?

>

>

>

> My son was a poor sleeper in the beginning but he also suffered

from Acid

> Reflux. I don't think your son has you " trained " yet because I

have read in

> several articles that babies cannot be spoiled until they are at

least 6

> months of age. When we got the reflux under control I felt more

comfortable

> letting him cry a little at night before bed (not hysterical... just

> whinny). Is there any other reason why Weston would be

uncomfortable such

> as tummy ache, etc.?

>

>

>

>

>

> Mommy to (12-17-98) and

>

> Christian (1-30-04) LCF - DBB 23/7

>

> _____

>

> From: wbb_lr [mailto:lori.webb@c...]

> Sent: Friday, November 05, 2004 9:00 PM

> To: nosurgery4clubfoot

> Subject: Are all CF kids poor sleepers?

>

>

>

>

>

> Hi there,

> We are new to the group. My son Weston is 7 weeks old and just

> received his 5th and final cast this week. He is due to get his

DBB

> this Thursday. My question is... Are all infants going through

this

> as poor a sleeper as Weston? He has to be rocked to sleep for

about

> an hour every time he goes down and seems to fight sleep. He is a

> very light sleeper and can be up for 6 hours at a time. Are any of

> you parents going through this? Our orthopedic doctor told me

> Weston has me " trained " and I need to let him cry it out. I just

> can't do it.. especially since I believe his foot (unilateral) is

> uncomfortable. Any insight would be helpful. Thank you!

>

>

>

>

>

>

>

>

>

[Guest guest]

Lori, the last cast does look rather odd in that the foot is

outwardly rotated to 70 degrees. When he gets his FAB, the shoe on

the affected foot will also be rotated out at 70 degrees in order to

prevent a relapse.

It is important that the FAB be worn full time (23 hours)for the

first 3 months. For most of us, the transition was uneventful. For

others, baby became comfortable in the brace after a couple of days.

If you look in the messages posted over the last couple of days,

you'll see that Kori has posted " FAB/DBB Tips & Tricks - For

Parents " . Here is a link to that post...if it doesn't work, it is

message #22612.

http://health.groups.yahoo.com/group/nosurgery4clubfoot/message/26612

Hope this helps!

Daiga

> >

> >

> > Hi there,

> > We are new to the group. My son Weston is 7 weeks old and just

> > received his 5th and final cast this week. He is due to get his

> DBB

> > this Thursday. My question is... Are all infants going through

> this

> > as poor a sleeper as Weston? He has to be rocked to sleep for

> about

> > an hour every time he goes down and seems to fight sleep. He is

a

> > very light sleeper and can be up for 6 hours at a time. Are any

of

> > you parents going through this? Our orthopedic doctor told me

> > Weston has me " trained " and I need to let him cry it out. I just

> > can't do it.. especially since I believe his foot (unilateral) is

> > uncomfortable. Any insight would be helpful. Thank you!

>

>

>

>

>

>

[Guest guest]

Lori, the last cast does look rather odd in that the foot is

outwardly rotated to 70 degrees. When he gets his FAB, the shoe on

the affected foot will also be rotated out at 70 degrees in order to

prevent a relapse.

It is important that the FAB be worn full time (23 hours)for the

first 3 months. For most of us, the transition was uneventful. For

others, baby became comfortable in the brace after a couple of days.

If you look in the messages posted over the last couple of days,

you'll see that Kori has posted " FAB/DBB Tips & Tricks - For

Parents " . Here is a link to that post...if it doesn't work, it is

message #22612.

http://health.groups.yahoo.com/group/nosurgery4clubfoot/message/26612

Hope this helps!

Daiga

> >

> >

> > Hi there,

> > We are new to the group. My son Weston is 7 weeks old and just

> > received his 5th and final cast this week. He is due to get his

> DBB

> > this Thursday. My question is... Are all infants going through

> this

> > as poor a sleeper as Weston? He has to be rocked to sleep for

> about

> > an hour every time he goes down and seems to fight sleep. He is

a

> > very light sleeper and can be up for 6 hours at a time. Are any

of

> > you parents going through this? Our orthopedic doctor told me

> > Weston has me " trained " and I need to let him cry it out. I just

> > can't do it.. especially since I believe his foot (unilateral) is

> > uncomfortable. Any insight would be helpful. Thank you!

>

>

>

>

>

>

[Guest guest]

Hi Lori!

We see Dr. Schmale as well - nice to finally hear from someone else

who has the same doc. Keep sharing your experiences with him- I'm

interested to hear how Weston's treatment goes. Good luck with the

sleeping!!!

Darby

Livi 3/15/04

EDD #2 5/12/05

> >

> >

> > Hi there,

> > We are new to the group. My son Weston is 7 weeks old and just

> > received his 5th and final cast this week. He is due to get his

> DBB

> > this Thursday. My question is... Are all infants going through

> this

> > as poor a sleeper as Weston? He has to be rocked to sleep for

> about

> > an hour every time he goes down and seems to fight sleep. He is

a

> > very light sleeper and can be up for 6 hours at a time. Are any

of

> > you parents going through this? Our orthopedic doctor told me

> > Weston has me " trained " and I need to let him cry it out. I just

> > can't do it.. especially since I believe his foot (unilateral) is

> > uncomfortable. Any insight would be helpful. Thank you!

>

>

>

>

>

>

[Guest guest]

Hi Lori!

We see Dr. Schmale as well - nice to finally hear from someone else

who has the same doc. Keep sharing your experiences with him- I'm

interested to hear how Weston's treatment goes. Good luck with the

sleeping!!!

Darby

Livi 3/15/04

EDD #2 5/12/05

> >

> >

> > Hi there,

> > We are new to the group. My son Weston is 7 weeks old and just

> > received his 5th and final cast this week. He is due to get his

> DBB

> > this Thursday. My question is... Are all infants going through

> this

> > as poor a sleeper as Weston? He has to be rocked to sleep for

> about

> > an hour every time he goes down and seems to fight sleep. He is

a

> > very light sleeper and can be up for 6 hours at a time. Are any

of

> > you parents going through this? Our orthopedic doctor told me

> > Weston has me " trained " and I need to let him cry it out. I just

> > can't do it.. especially since I believe his foot (unilateral) is

> > uncomfortable. Any insight would be helpful. Thank you!

>

>

>

>

>

>

[Guest guest]

Lori,

I don't know, sometimes these doctors overstep their expertise and give you

their personal opinions...and sometimes they think they're doing you some

sort of favor by saying what they THINK you want to hear.

I'll advise what it seems everyone else did: trust your instincts. He's your

little

boy and you are getting to know one another---don't do that by anyone's plan

but your own!

In our case, Devlin always needed to be coaxed into sleep. However, once

she was down she would usually sleep through the night---at only a few

weeks old! Unfortunately, we're still doing it (10 months old now). It's

always

something---casts, DBB, weaning, etc. So, I'm sure may " experts " would say

that we're not doing the " right: " thing, but Devlin is a happy baby who sleeps

through the night, wakes in her crib in the morning and plays with her toys

until we come get her ...who's to say what the " right " thing to do is?

Devlin DID seem uncomfortable in some of her casts---especially the early

ones. Sometimes propping them up with a towel would help. Each set

seemed to have its own quirks. The WORST was once the DBB started. But,

we were given the wrong size shoes, the wrong rotation, and her feet weren't

corrected yet when they put her in the DBB. So, I'm sure you'll have a better

time with that. These babies are so adaptable!

BTW, I don't think you'll find any true expert that would say a 7-week old can

" train " anyone!

Welcome to the group and enjoy taking care of that little baby!

>

>

> Hi there,

> We are new to the group. My son Weston is 7 weeks old and just

> received his 5th and final cast this week. He is due to get his DBB

> this Thursday. My question is... Are all infants going through this

> as poor a sleeper as Weston? He has to be rocked to sleep for about

> an hour every time he goes down and seems to fight sleep. He is a

> very light sleeper and can be up for 6 hours at a time. Are any of

> you parents going through this? Our orthopedic doctor told me

> Weston has me " trained " and I need to let him cry it out. I just

> can't do it.. especially since I believe his foot (unilateral) is

> uncomfortable. Any insight would be helpful. Thank you!

[Guest guest]

Our first attempt at the DBB was horrible.. but thats only b/c

Elijah's first tenotomy didnt heal properly due to his foot being

atypical.

Our second attempt, just over a month ago was a breeze. Getting them

on isnt the easiest of tasks. At times, I swore it would be easier to

wrestle a greasy pig into an evening gown than to get Elijah into his

shoes.. but it gets better.

Make sure you have plenty of thin socks on hand. The ones w/ the

grippy stuff on the bottom work best for us. I got the best results

when Elijah was fed, happy and entertained.

Best of luck,

Lori

mom to 3 + Elijah 7 months atypical RCF DBB 23/7

[Guest guest]

Our first attempt at the DBB was horrible.. but thats only b/c

Elijah's first tenotomy didnt heal properly due to his foot being

atypical.

Our second attempt, just over a month ago was a breeze. Getting them

on isnt the easiest of tasks. At times, I swore it would be easier to

wrestle a greasy pig into an evening gown than to get Elijah into his

shoes.. but it gets better.

Make sure you have plenty of thin socks on hand. The ones w/ the

grippy stuff on the bottom work best for us. I got the best results

when Elijah was fed, happy and entertained.

Best of luck,

Lori

mom to 3 + Elijah 7 months atypical RCF DBB 23/7

[Guest guest]

Congratulations in the birth of your little boy!

My little girl also needs to be nursed or rocked to sleep, when they

are so young, this is totally normal! I have found that she is

already going down a lot quicker now that she is a bit older (3.5 mo)

and is actually tiring " herself " out more )

Also as to your query re: adjusting to the brace...it will probably

take a couple of days for Weston to adjust, they do get used to it

suprisingly quickly and it (quoting on of the other mom's on the

board) becomes " their normal " . It is great that you are going with

the Ponseti method! Just make sure that little Westons heels are

fully down into the back of the shoes and that you do them up really

tight to prevent blisters. We have not had any problems with them

(thank goodness) but lot's of kids have had them, the big thing is

prevention!!

You are going to really appreciate this site!!! There are some great

tips and tricks to putting on and wearing the DBB's, give them a read.

Good luck and keep us posted on Westons progress!

-

Mommy to Grace 07-21-04

Unilateral RCF DBB's 23/7

> Thanks for your reply.. Yes, I have also read that 6 months is the

minimum

> age of letting a child cry it out. He doesn't scream at night. He

is just

> unable to be put down unless he is completely asleep. He will wake

up and

> cry if I try any sooner. Maybe this is normal?? This is my first

so am

> learning a lot. I thought it could be due to the casts but maybe

not.

>

>

>

> _____

>

> From: Gerace [mailto:cgerace@v...]

> Sent: Saturday, November 06, 2004 4:47 AM

> To: nosurgery4clubfoot

> Subject: RE: Are all CF kids poor sleepers?

>

>

>

> My son was a poor sleeper in the beginning but he also suffered

from Acid

> Reflux. I don't think your son has you " trained " yet because I

have read in

> several articles that babies cannot be spoiled until they are at

least 6

> months of age. When we got the reflux under control I felt more

comfortable

> letting him cry a little at night before bed (not hysterical... just

> whinny). Is there any other reason why Weston would be

uncomfortable such

> as tummy ache, etc.?

>

>

>

>

>

> Mommy to (12-17-98) and

>

> Christian (1-30-04) LCF - DBB 23/7

>

> _____

>

> From: wbb_lr [mailto:lori.webb@c...]

> Sent: Friday, November 05, 2004 9:00 PM

> To: nosurgery4clubfoot

> Subject: Are all CF kids poor sleepers?

>

>

>

>

>

> Hi there,

> We are new to the group. My son Weston is 7 weeks old and just

> received his 5th and final cast this week. He is due to get his

DBB

> this Thursday. My question is... Are all infants going through

this

> as poor a sleeper as Weston? He has to be rocked to sleep for

about

> an hour every time he goes down and seems to fight sleep. He is a

> very light sleeper and can be up for 6 hours at a time. Are any of

> you parents going through this? Our orthopedic doctor told me

> Weston has me " trained " and I need to let him cry it out. I just

> can't do it.. especially since I believe his foot (unilateral) is

> uncomfortable. Any insight would be helpful. Thank you!

>

>

>

>

>

>

>

>

>

[Guest guest]

Congratulations in the birth of your little boy!

My little girl also needs to be nursed or rocked to sleep, when they

are so young, this is totally normal! I have found that she is

already going down a lot quicker now that she is a bit older (3.5 mo)

and is actually tiring " herself " out more )

Also as to your query re: adjusting to the brace...it will probably

take a couple of days for Weston to adjust, they do get used to it

suprisingly quickly and it (quoting on of the other mom's on the

board) becomes " their normal " . It is great that you are going with

the Ponseti method! Just make sure that little Westons heels are

fully down into the back of the shoes and that you do them up really

tight to prevent blisters. We have not had any problems with them

(thank goodness) but lot's of kids have had them, the big thing is

prevention!!

You are going to really appreciate this site!!! There are some great

tips and tricks to putting on and wearing the DBB's, give them a read.

Good luck and keep us posted on Westons progress!

-

Mommy to Grace 07-21-04

Unilateral RCF DBB's 23/7

> Thanks for your reply.. Yes, I have also read that 6 months is the

minimum

> age of letting a child cry it out. He doesn't scream at night. He

is just

> unable to be put down unless he is completely asleep. He will wake

up and

> cry if I try any sooner. Maybe this is normal?? This is my first

so am

> learning a lot. I thought it could be due to the casts but maybe

not.

>

>

>

> _____

>

> From: Gerace [mailto:cgerace@v...]

> Sent: Saturday, November 06, 2004 4:47 AM

> To: nosurgery4clubfoot

> Subject: RE: Are all CF kids poor sleepers?

>

>

>

> My son was a poor sleeper in the beginning but he also suffered

from Acid

> Reflux. I don't think your son has you " trained " yet because I

have read in

> several articles that babies cannot be spoiled until they are at

least 6

> months of age. When we got the reflux under control I felt more

comfortable

> letting him cry a little at night before bed (not hysterical... just

> whinny). Is there any other reason why Weston would be

uncomfortable such

> as tummy ache, etc.?

>

>

>

>

>

> Mommy to (12-17-98) and

>

> Christian (1-30-04) LCF - DBB 23/7

>

> _____

>

> From: wbb_lr [mailto:lori.webb@c...]

> Sent: Friday, November 05, 2004 9:00 PM

> To: nosurgery4clubfoot

> Subject: Are all CF kids poor sleepers?

>

>

>

>

>

> Hi there,

> We are new to the group. My son Weston is 7 weeks old and just

> received his 5th and final cast this week. He is due to get his

DBB

> this Thursday. My question is... Are all infants going through

this

> as poor a sleeper as Weston? He has to be rocked to sleep for

about

> an hour every time he goes down and seems to fight sleep. He is a

> very light sleeper and can be up for 6 hours at a time. Are any of

> you parents going through this? Our orthopedic doctor told me

> Weston has me " trained " and I need to let him cry it out. I just

> can't do it.. especially since I believe his foot (unilateral) is

> uncomfortable. Any insight would be helpful. Thank you!

>

>

>

>

>

>

>

>

>

[Guest guest]

LOL, Nazi... hehe! I think expecting *anything* from an infant is going

to cause trouble. I have three children. I have parented them all exactly

the same from birth. I nurse them to sleep, co-sleep and hold them a

lot. My first night weaned at 16mo when I was pg with his brother. He

only then slept through the night. He also went to bed late, sometimes

midnight even. Then his brother came who seemed to want to go down at 8pm

and it was nice because then big brother started going down then too. So

now we had an 8pm bedtime which was nice - and big brother starting into

preschool in the mornings helped a lot too. But Merek (#2) didn't night

wean till he was nearly 2yo, maybe longer. I can't remember. Neither of

them ever slept through the night till they were night weaned. Then, when

Merek was 3 I had Darbi. Who, as I mentioned I parented the same as the

other two. Now this baby was the only one who ever slept through, and she

did it at 2w old off and on till she was over 5 months old. She was down

at 8pm (except in the summer, due to daylight saving's time) and would

sleep till 4 or 5am, nurse and go back to sleep till 7 or 8am. I was truly

weirded out about this, I expected all babies to night wake. Then she

stopped sleeping through and is voracious still in the middle of the night

for nursing still. She's hungry, and I don't mind nursing her. Merek was

hungry too. It's just the way it is. So even though I expected her to be

one way, nothing I did made her act like her brothers when she was

little. She was just going to be the kind that slept through. And then it

changed when she started being mobile and needed more calories (she crawled

at 6mo).

I think it's much easier if you just take it as you go and trust your

instincts. Trying to make a baby act a certain way can make you crazy, and

some of us get one kind, some get the other kind... and some of us get all

kinds no matter what we do.

As far as the DBB, it can be a breeze, or it can be more difficult. Did

you get a chance to peruse the DB/FAB tips I sent to the list about 3 days

ago? Check that out, and has also sent her tips within the past few

weeks. There's lots of good info in there, preventative info and tips to

make life easier. Also there's the tips info in the files section on the

lists. With all that you should be fine. And if not, just come back here

because we can absolutely help.

Good luck, and congrats on graduating to the FAB!

Kori & Darbi

At 03:20 PM 11/6/2004, you wrote:

>THANK YOU! I am still burning about what this doctor said to me. I was so

>upset about it. My thoughts exactly.. he needs to be held and I am his

>mother.. this is my job to comfort him regardless. I called our regular

>pediatrician who is wonderful.. he said our orthopedic doctor was a nazi and

>said to disregard all the crazy advice. I am also nursing Weston to sleep

>which really seems to comfort him.

>

>

>

>Weston is due for the DBB this Thursday. What should we expect? Is it

>terrible???

>

>

>

> _____

>

>From: frogabog

>Sent: Saturday, November 06, 2004 9:32 AM

>To: nosurgery4clubfoot

>Subject: Re: Are all CF kids poor sleepers?

>

>

>

>OMG - an orthopaedic doctor presumes to tell you how to parent your

>child? I would have told this guy off big time. A 7w old child that needs

>to be rocked or held to sleep? Good Lord, I still nurse my 19 month old to

>sleep. Forget what this idiot told you, he's not a sleep or pediatric

>expert. Heck, he's not even a parenting expert. He deals in bones for

>chrissakes...

>

>Hold that child as much as you want, he needs you. He is not manipulating

>you, he's too freaking young to even THINK about doing that. EVERY one of

>my children, CF and non CF woke many times a night till they were over a

>year old or older (near 2). Granted, I nurse them at night and don't mind

>a bit (we co-sleep, which makes night nursing a breeze) but at 7w... he

>needs you and does not need to be left alone to cry it out. Don't do that

>to him, it'll hurt both of you. Poor little guy has casts on his legs and

>is going to NEED your comfort when he gets the DBB. Not to be left alone

>to CIO.

>

>OK - sorry, I'm in a mood this morning but this comment from this Dr.

>really ticked me off because it makes you think your child is a poor

>sleeper when he's totally normal. Go hold your baby and enjoy it all you

>want.

>

>Kori & Darbi

>

>

>

>

>At 05:59 PM 11/5/2004, you wrote:

>

>

>

> >Hi there,

> >We are new to the group. My son Weston is 7 weeks old and just

> >received his 5th and final cast this week. He is due to get his DBB

> >this Thursday. My question is... Are all infants going through this

> >as poor a sleeper as Weston? He has to be rocked to sleep for about

> >an hour every time he goes down and seems to fight sleep. He is a

> >very light sleeper and can be up for 6 hours at a time. Are any of

> >you parents going through this? Our orthopedic doctor told me

> >Weston has me " trained " and I need to let him cry it out. I just

> >can't do it.. especially since I believe his foot (unilateral) is

> >uncomfortable. Any insight would be helpful. Thank you!

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Thanks! I will look into the tips. Lori

_____

From: frogabog

Sent: Sunday, November 07, 2004 9:18 AM

To: nosurgery4clubfoot

Subject: RE: Are all CF kids poor sleepers?

LOL, Nazi... hehe! I think expecting *anything* from an infant is going

to cause trouble. I have three children. I have parented them all exactly

the same from birth. I nurse them to sleep, co-sleep and hold them a

lot. My first night weaned at 16mo when I was pg with his brother. He

only then slept through the night. He also went to bed late, sometimes

midnight even. Then his brother came who seemed to want to go down at 8pm

and it was nice because then big brother started going down then too. So

now we had an 8pm bedtime which was nice - and big brother starting into

preschool in the mornings helped a lot too. But Merek (#2) didn't night

wean till he was nearly 2yo, maybe longer. I can't remember. Neither of

them ever slept through the night till they were night weaned. Then, when

Merek was 3 I had Darbi. Who, as I mentioned I parented the same as the

other two. Now this baby was the only one who ever slept through, and she

did it at 2w old off and on till she was over 5 months old. She was down

at 8pm (except in the summer, due to daylight saving's time) and would

sleep till 4 or 5am, nurse and go back to sleep till 7 or 8am. I was truly

weirded out about this, I expected all babies to night wake. Then she

stopped sleeping through and is voracious still in the middle of the night

for nursing still. She's hungry, and I don't mind nursing her. Merek was

hungry too. It's just the way it is. So even though I expected her to be

one way, nothing I did made her act like her brothers when she was

little. She was just going to be the kind that slept through. And then it

changed when she started being mobile and needed more calories (she crawled

at 6mo).

I think it's much easier if you just take it as you go and trust your

instincts. Trying to make a baby act a certain way can make you crazy, and

some of us get one kind, some get the other kind... and some of us get all

kinds no matter what we do.

As far as the DBB, it can be a breeze, or it can be more difficult. Did

you get a chance to peruse the DB/FAB tips I sent to the list about 3 days

ago? Check that out, and has also sent her tips within the past few

weeks. There's lots of good info in there, preventative info and tips to

make life easier. Also there's the tips info in the files section on the

lists. With all that you should be fine. And if not, just come back here

because we can absolutely help.

Good luck, and congrats on graduating to the FAB!

Kori & Darbi

At 03:20 PM 11/6/2004, you wrote:

>THANK YOU! I am still burning about what this doctor said to me. I was so

>upset about it. My thoughts exactly.. he needs to be held and I am his

>mother.. this is my job to comfort him regardless. I called our regular

>pediatrician who is wonderful.. he said our orthopedic doctor was a nazi

and

>said to disregard all the crazy advice. I am also nursing Weston to sleep

>which really seems to comfort him.

>

>

>

>Weston is due for the DBB this Thursday. What should we expect? Is it

>terrible???

>

>

>

> _____

>

>From: frogabog

>Sent: Saturday, November 06, 2004 9:32 AM

>To: nosurgery4clubfoot

>Subject: Re: Are all CF kids poor sleepers?

>

>

>

>OMG - an orthopaedic doctor presumes to tell you how to parent your

>child? I would have told this guy off big time. A 7w old child that needs

>to be rocked or held to sleep? Good Lord, I still nurse my 19 month old to

>sleep. Forget what this idiot told you, he's not a sleep or pediatric

>expert. Heck, he's not even a parenting expert. He deals in bones for

>chrissakes...

>

>Hold that child as much as you want, he needs you. He is not manipulating

>you, he's too freaking young to even THINK about doing that. EVERY one of

>my children, CF and non CF woke many times a night till they were over a

>year old or older (near 2). Granted, I nurse them at night and don't mind

>a bit (we co-sleep, which makes night nursing a breeze) but at 7w... he

>needs you and does not need to be left alone to cry it out. Don't do that

>to him, it'll hurt both of you. Poor little guy has casts on his legs and

>is going to NEED your comfort when he gets the DBB. Not to be left alone

>to CIO.

>

>OK - sorry, I'm in a mood this morning but this comment from this Dr.

>really ticked me off because it makes you think your child is a poor

>sleeper when he's totally normal. Go hold your baby and enjoy it all you

>want.

>

>Kori & Darbi

>

>

>

>

>At 05:59 PM 11/5/2004, you wrote:

>

>

>

> >Hi there,

> >We are new to the group. My son Weston is 7 weeks old and just

> >received his 5th and final cast this week. He is due to get his DBB

> >this Thursday. My question is... Are all infants going through this

> >as poor a sleeper as Weston? He has to be rocked to sleep for about

> >an hour every time he goes down and seems to fight sleep. He is a

> >very light sleeper and can be up for 6 hours at a time. Are any of

> >you parents going through this? Our orthopedic doctor told me

> >Weston has me " trained " and I need to let him cry it out. I just

> >can't do it.. especially since I believe his foot (unilateral) is

> >uncomfortable. Any insight would be helpful. Thank you!

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Thank you for your insight! We will make sure to use these tips come

Thursday! Lori

_____

From: gracesmommy04

Sent: Sunday, November 07, 2004 3:00 AM

To: nosurgery4clubfoot

Subject: Re: Are all CF kids poor sleepers?

Congratulations in the birth of your little boy!

My little girl also needs to be nursed or rocked to sleep, when they

are so young, this is totally normal! I have found that she is

already going down a lot quicker now that she is a bit older (3.5 mo)

and is actually tiring " herself " out more )

Also as to your query re: adjusting to the brace...it will probably

take a couple of days for Weston to adjust, they do get used to it

suprisingly quickly and it (quoting on of the other mom's on the

board) becomes " their normal " . It is great that you are going with

the Ponseti method! Just make sure that little Westons heels are

fully down into the back of the shoes and that you do them up really

tight to prevent blisters. We have not had any problems with them

(thank goodness) but lot's of kids have had them, the big thing is

prevention!!

You are going to really appreciate this site!!! There are some great

tips and tricks to putting on and wearing the DBB's, give them a read.

Good luck and keep us posted on Westons progress!

-

Mommy to Grace 07-21-04

Unilateral RCF DBB's 23/7

> Thanks for your reply.. Yes, I have also read that 6 months is the

minimum

> age of letting a child cry it out. He doesn't scream at night. He

is just

> unable to be put down unless he is completely asleep. He will wake

up and

> cry if I try any sooner. Maybe this is normal?? This is my first

so am

> learning a lot. I thought it could be due to the casts but maybe

not.

>

>

>

> _____

>

> From: Gerace [mailto:cgerace@v...]

> Sent: Saturday, November 06, 2004 4:47 AM

> To: nosurgery4clubfoot

> Subject: RE: Are all CF kids poor sleepers?

>

>

>

> My son was a poor sleeper in the beginning but he also suffered

from Acid

> Reflux. I don't think your son has you " trained " yet because I

have read in

> several articles that babies cannot be spoiled until they are at

least 6

> months of age. When we got the reflux under control I felt more

comfortable

> letting him cry a little at night before bed (not hysterical... just

> whinny). Is there any other reason why Weston would be

uncomfortable such

> as tummy ache, etc.?

>

>

>

>

>

> Mommy to (12-17-98) and

>

> Christian (1-30-04) LCF - DBB 23/7

>

> _____

>

> From: wbb_lr [mailto:lori.webb@c...]

> Sent: Friday, November 05, 2004 9:00 PM

> To: nosurgery4clubfoot

> Subject: Are all CF kids poor sleepers?

>

>

>

>

>

> Hi there,

> We are new to the group. My son Weston is 7 weeks old and just

> received his 5th and final cast this week. He is due to get his

DBB

> this Thursday. My question is... Are all infants going through

this

> as poor a sleeper as Weston? He has to be rocked to sleep for

about

> an hour every time he goes down and seems to fight sleep. He is a

> very light sleeper and can be up for 6 hours at a time. Are any of

> you parents going through this? Our orthopedic doctor told me

> Weston has me " trained " and I need to let him cry it out. I just

> can't do it.. especially since I believe his foot (unilateral) is

> uncomfortable. Any insight would be helpful. Thank you!

>

>

>

>

>

>

>

>

>

[Guest guest]

I am going to stock up on those socks! Thank you! Lori

_____

From: Lori

Sent: Saturday, November 06, 2004 6:28 PM

To: nosurgery4clubfoot

Subject: Re: Are all CF kids poor sleepers?

Our first attempt at the DBB was horrible.. but thats only b/c

Elijah's first tenotomy didnt heal properly due to his foot being

atypical.

Our second attempt, just over a month ago was a breeze. Getting them

on isnt the easiest of tasks. At times, I swore it would be easier to

wrestle a greasy pig into an evening gown than to get Elijah into his

shoes.. but it gets better.

Make sure you have plenty of thin socks on hand. The ones w/ the

grippy stuff on the bottom work best for us. I got the best results

when Elijah was fed, happy and entertained.

Best of luck,

Lori

mom to 3 + Elijah 7 months atypical RCF DBB 23/7

[Guest guest]

Dr. Schmale seems very knowledgeable and has been nice to work with overall.

Lori

_____

From: Darby

Sent: Saturday, November 06, 2004 5:34 PM

To: nosurgery4clubfoot

Subject: Re: Are all CF kids poor sleepers?

Hi Lori!

We see Dr. Schmale as well - nice to finally hear from someone else

who has the same doc. Keep sharing your experiences with him- I'm

interested to hear how Weston's treatment goes. Good luck with the

sleeping!!!

Darby

Livi 3/15/04

EDD #2 5/12/05

> >

> >

> > Hi there,

> > We are new to the group. My son Weston is 7 weeks old and just

> > received his 5th and final cast this week. He is due to get his

> DBB

> > this Thursday. My question is... Are all infants going through

> this

> > as poor a sleeper as Weston? He has to be rocked to sleep for

> about

> > an hour every time he goes down and seems to fight sleep. He is

a

> > very light sleeper and can be up for 6 hours at a time. Are any

of

> > you parents going through this? Our orthopedic doctor told me

> > Weston has me " trained " and I need to let him cry it out. I just

> > can't do it.. especially since I believe his foot (unilateral) is

> > uncomfortable. Any insight would be helpful. Thank you!

>

>

>

>

>

>

[Guest guest]

Thank you! Very helpful info. Lori

_____

From: Daiga Grady

Sent: Saturday, November 06, 2004 4:10 PM

To: nosurgery4clubfoot

Subject: Re: Are all CF kids poor sleepers?

Lori, the last cast does look rather odd in that the foot is

outwardly rotated to 70 degrees. When he gets his FAB, the shoe on

the affected foot will also be rotated out at 70 degrees in order to

prevent a relapse.

It is important that the FAB be worn full time (23 hours)for the

first 3 months. For most of us, the transition was uneventful. For

others, baby became comfortable in the brace after a couple of days.

If you look in the messages posted over the last couple of days,

you'll see that Kori has posted " FAB/DBB Tips & Tricks - For

Parents " . Here is a link to that post...if it doesn't work, it is

message #22612.

http://health.groups.yahoo.com/group/nosurgery4clubfoot/message/26612

Hope this helps!

Daiga

> >

> >

> > Hi there,

> > We are new to the group. My son Weston is 7 weeks old and just

> > received his 5th and final cast this week. He is due to get his

> DBB

> > this Thursday. My question is... Are all infants going through

> this

> > as poor a sleeper as Weston? He has to be rocked to sleep for

> about

> > an hour every time he goes down and seems to fight sleep. He is

a

> > very light sleeper and can be up for 6 hours at a time. Are any

of

> > you parents going through this? Our orthopedic doctor told me

> > Weston has me " trained " and I need to let him cry it out. I just

> > can't do it.. especially since I believe his foot (unilateral) is

> > uncomfortable. Any insight would be helpful. Thank you!

>

>

>

>

>

>

[Guest guest]

> Weston is due for the DBB this Thursday. What should we expect?

Is it

> terrible???

The DBB isn't bad and most kids take to it pretty easily. It usually

takes a couple of days for them to become accustom to kicking their

feet at the same time. I think it takes longer for the parents to

adjust then the baby. It takes a little practice to get used to

putting it on. There is a tips and tricks message if you search back

that you might want to read though for some tips on getting it on

easier and right. If you have questions feel free to post away.

Tori 1/30/04 bilateral atypical cf