Guest guest Posted October 20, 2004 Report Share Posted October 20, 2004 Hi, I forgot to mention that I have been told that my son has very short feet and they are wide/fat. I have read in some of the info on the Ponseti method that typically children with short, plump feet cannot use this method. My son is 15 months old and his shoe size in the Markell shoes is 1 1/2. So does this mean that we have a good chance of not being a good candidate for this method? Thanks again, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2004 Report Share Posted October 21, 2004 I'm not sure where you got that information about short fat feet being less successful in treatment. I won't lie and say I know it all here, I don't - but by the same token I haven't heard of that being a predictor of success, either. Lots of clubbed feet are typically " boxy " shaped and smaller than typical. look in our files photos and you'll see lots of short fat tootsies! Something you can do is photograph the feet and email the photos directly to Dr. Ponseti for evaluation. I'd photograph them in a relaxed position, maybe sitting in a chair feet hanging loose, sitting on the floor relaxed and then standing (bearing weight) both front and back views. Have your baby in only a diaper so the legs show for a really good over all assessment. s. newbie part II Hi, I forgot to mention that I have been told that my son has very short feet and they are wide/fat. I have read in some of the info on the Ponseti method that typically children with short, plump feet cannot use this method. My son is 15 months old and his shoe size in the Markell shoes is 1 1/2. So does this mean that we have a good chance of not being a good candidate for this method? Thanks again, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2004 Report Share Posted October 21, 2004 If your son does have atypical clubfoot, Dr. Dobbs has been successful at treating this utilizing the Ponseti method. I would definitely get a second opinion from him before scheduling surgery. Pam and (8-12-01) > > > Hi, > I forgot to mention that I have been told that my son has very short > feet and they are wide/fat. I have read in some of the info on the > Ponseti method that typically children with short, plump feet cannot > use this method. My son is 15 months old and his shoe size in the > Markell shoes is 1 1/2. So does this mean that we have a good > chance of not being a good candidate for this method? > Thanks again, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2004 Report Share Posted October 21, 2004 If your son does have atypical clubfoot, Dr. Dobbs has been successful at treating this utilizing the Ponseti method. I would definitely get a second opinion from him before scheduling surgery. Pam and (8-12-01) > > > Hi, > I forgot to mention that I have been told that my son has very short > feet and they are wide/fat. I have read in some of the info on the > Ponseti method that typically children with short, plump feet cannot > use this method. My son is 15 months old and his shoe size in the > Markell shoes is 1 1/2. So does this mean that we have a good > chance of not being a good candidate for this method? > Thanks again, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2004 Report Share Posted October 21, 2004 Thank you. I did make an apt. to see Dr. Dobbs the first week of November. I'm praying that he'll be able to help and won't turn us away. Thanks, laura > > > > > > Hi, > > I forgot to mention that I have been told that my son has very > short > > feet and they are wide/fat. I have read in some of the info on the > > Ponseti method that typically children with short, plump feet > cannot > > use this method. My son is 15 months old and his shoe size in the > > Markell shoes is 1 1/2. So does this mean that we have a good > > chance of not being a good candidate for this method? > > Thanks again, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2004 Report Share Posted October 22, 2004 Hi , First, I should mention that I am new to the group. However, although this is my first time sending a message, I have been reading messages for a while. My son Carson has the atypcial clubfeet, which are short, stubby, fat and stiff. We initially were seeing a Ponseti-trained physician in our home area, but Carson had trouble with slipping casts, and then trouble with keeping the Dennis Brown bar on (after his tenotomies). Our physician was then recommending that we consider taking a break and, in a few months, he felt that we should do the Z- lengthening procedure to lengthen his Achilles Tendon. I got in touch with Dr. Ponseti, and he asked us to come see him as soon as possible. We are currently in Iowa City, and Carson just had his first casts removed by Dr. P. The casts did not slip - Dr. P is so precise about how he does the casts - and he is now in his second set. He will have a tenotomy in his left foot next Wed (possibly both feet, depending how the right looks). Dr. P is very optomistic that Carson will then wear the sandals and bar and be just fine after that. We are so pleased that we have made the trip to see him. So, I guess I want you to know that even with his short, plump feet, the right Dr. can make the Ponseti method work very well. Dr. P sees no reason that we will run into any trouble after this, and he was really pleased with how quickly Carson's feet responded to his casts. Good luck to you. Also, thank you to all of you who helped me see that even Dr.'s trained inthe Ponseti method are not always as successful as Dr. P himself. I'm so glad that we are avoiding unnecessary surgical procedures. I am grateful to have found this message board. Kara > > > Hi, > I forgot to mention that I have been told that my son has very short > feet and they are wide/fat. I have read in some of the info on the > Ponseti method that typically children with short, plump feet cannot > use this method. My son is 15 months old and his shoe size in the > Markell shoes is 1 1/2. So does this mean that we have a good > chance of not being a good candidate for this method? > Thanks again, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2004 Report Share Posted October 22, 2004 Hi , First, I should mention that I am new to the group. However, although this is my first time sending a message, I have been reading messages for a while. My son Carson has the atypcial clubfeet, which are short, stubby, fat and stiff. We initially were seeing a Ponseti-trained physician in our home area, but Carson had trouble with slipping casts, and then trouble with keeping the Dennis Brown bar on (after his tenotomies). Our physician was then recommending that we consider taking a break and, in a few months, he felt that we should do the Z- lengthening procedure to lengthen his Achilles Tendon. I got in touch with Dr. Ponseti, and he asked us to come see him as soon as possible. We are currently in Iowa City, and Carson just had his first casts removed by Dr. P. The casts did not slip - Dr. P is so precise about how he does the casts - and he is now in his second set. He will have a tenotomy in his left foot next Wed (possibly both feet, depending how the right looks). Dr. P is very optomistic that Carson will then wear the sandals and bar and be just fine after that. We are so pleased that we have made the trip to see him. So, I guess I want you to know that even with his short, plump feet, the right Dr. can make the Ponseti method work very well. Dr. P sees no reason that we will run into any trouble after this, and he was really pleased with how quickly Carson's feet responded to his casts. Good luck to you. Also, thank you to all of you who helped me see that even Dr.'s trained inthe Ponseti method are not always as successful as Dr. P himself. I'm so glad that we are avoiding unnecessary surgical procedures. I am grateful to have found this message board. Kara > > > Hi, > I forgot to mention that I have been told that my son has very short > feet and they are wide/fat. I have read in some of the info on the > Ponseti method that typically children with short, plump feet cannot > use this method. My son is 15 months old and his shoe size in the > Markell shoes is 1 1/2. So does this mean that we have a good > chance of not being a good candidate for this method? > Thanks again, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2004 Report Share Posted October 22, 2004 The more I read about it the more I start to believe my 1st son had the Atypical clubfeet. s. Re: newbie part II Hi , First, I should mention that I am new to the group. However, although this is my first time sending a message, I have been reading messages for a while. My son Carson has the atypcial clubfeet, which are short, stubby, fat and stiff. We initially were seeing a Ponseti-trained physician in our home area, but Carson had trouble with slipping casts, and then trouble with keeping the Dennis Brown bar on (after his tenotomies). Our physician was then recommending that we consider taking a break and, in a few months, he felt that we should do the Z- lengthening procedure to lengthen his Achilles Tendon. I got in touch with Dr. Ponseti, and he asked us to come see him as soon as possible. We are currently in Iowa City, and Carson just had his first casts removed by Dr. P. The casts did not slip - Dr. P is so precise about how he does the casts - and he is now in his second set. He will have a tenotomy in his left foot next Wed (possibly both feet, depending how the right looks). Dr. P is very optomistic that Carson will then wear the sandals and bar and be just fine after that. We are so pleased that we have made the trip to see him. So, I guess I want you to know that even with his short, plump feet, the right Dr. can make the Ponseti method work very well. Dr. P sees no reason that we will run into any trouble after this, and he was really pleased with how quickly Carson's feet responded to his casts. Good luck to you. Also, thank you to all of you who helped me see that even Dr.'s trained inthe Ponseti method are not always as successful as Dr. P himself. I'm so glad that we are avoiding unnecessary surgical procedures. I am grateful to have found this message board. Kara > > > Hi, > I forgot to mention that I have been told that my son has very short > feet and they are wide/fat. I have read in some of the info on the > Ponseti method that typically children with short, plump feet cannot > use this method. My son is 15 months old and his shoe size in the > Markell shoes is 1 1/2. So does this mean that we have a good > chance of not being a good candidate for this method? > Thanks again, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2004 Report Share Posted October 22, 2004 The more I read about it the more I start to believe my 1st son had the Atypical clubfeet. s. Re: newbie part II Hi , First, I should mention that I am new to the group. However, although this is my first time sending a message, I have been reading messages for a while. My son Carson has the atypcial clubfeet, which are short, stubby, fat and stiff. We initially were seeing a Ponseti-trained physician in our home area, but Carson had trouble with slipping casts, and then trouble with keeping the Dennis Brown bar on (after his tenotomies). Our physician was then recommending that we consider taking a break and, in a few months, he felt that we should do the Z- lengthening procedure to lengthen his Achilles Tendon. I got in touch with Dr. Ponseti, and he asked us to come see him as soon as possible. We are currently in Iowa City, and Carson just had his first casts removed by Dr. P. The casts did not slip - Dr. P is so precise about how he does the casts - and he is now in his second set. He will have a tenotomy in his left foot next Wed (possibly both feet, depending how the right looks). Dr. P is very optomistic that Carson will then wear the sandals and bar and be just fine after that. We are so pleased that we have made the trip to see him. So, I guess I want you to know that even with his short, plump feet, the right Dr. can make the Ponseti method work very well. Dr. P sees no reason that we will run into any trouble after this, and he was really pleased with how quickly Carson's feet responded to his casts. Good luck to you. Also, thank you to all of you who helped me see that even Dr.'s trained inthe Ponseti method are not always as successful as Dr. P himself. I'm so glad that we are avoiding unnecessary surgical procedures. I am grateful to have found this message board. Kara > > > Hi, > I forgot to mention that I have been told that my son has very short > feet and they are wide/fat. I have read in some of the info on the > Ponseti method that typically children with short, plump feet cannot > use this method. My son is 15 months old and his shoe size in the > Markell shoes is 1 1/2. So does this mean that we have a good > chance of not being a good candidate for this method? > Thanks again, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2004 Report Share Posted October 22, 2004 Hi there, welcome to the group. Are you seeing Dr.Dobbs at shriners or childrens hospital? We see him at shriners and will be there November 4th at 1:30. Let me know if that is where you go and maybe we can meet. You will really like Dr.Dobbs and he will take care of your little boy don't worry. He is fantastic. Mom to Isabella 10-12-02 bilateral cf > > > > > > > > > Hi, > > > I forgot to mention that I have been told that my son has very > > short > > > feet and they are wide/fat. I have read in some of the info on > the > > > Ponseti method that typically children with short, plump feet > > cannot > > > use this method. My son is 15 months old and his shoe size in > the > > > Markell shoes is 1 1/2. So does this mean that we have a good > > > chance of not being a good candidate for this method? > > > Thanks again, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2004 Report Share Posted October 22, 2004 Hi ! We are going to see Dr. Dobbs on Nov. 2nd at Children's. I applied for Shriners but we were turned down because of all of 's medical issues (mainly the heart/kidney issues). I didn't really agree with it but there's nothing I can do. I wish we would have been accepted. sees approx. 12 specialists and 2 therapists (soon to be 4) and every little bit of savings helps. I'm glad to hear that Dr. Dobbs is so great. I'm already impressed since he squeezed me in so that he could see ASAP. I'm wondering if no matter what he can help . Even if he isn't a good candidate for the Ponsetti method, I would think that he could still treat 's club feet??? I'm hoping anyhow. I think our current Ortho messed things up. was casted the first 3 months and we were seeing good correction. We were told that a small tendon release (heel cord) would be needed and nothing else should be needed. Then was hospitalized a month before the surgery because he refused to eat (due to GERD). The Ortho saw him and felt bad for him and said we didn't need to cast him and he could wait until surgery. I asked if this would affect his treatment/outcome and she said it shouldn't. I, unfortunatley, believed her. After the surgery, kept kicking his casts off daily. Then he slipped out of numerous braces so the Ortho said we just won't do anything. So, after the tendon release, was essentially without treatment for almost 10 months before we found the Markell shoes. We did some stretches at home but the doctor never told us what type of stretching to do or even if we needed to stretch. 's physical therapist helped with this. Well, that's our story. I can't wait to meet Dr. Dobbs. Thanks! > > > > > > > > > > > > Hi, > > > > I forgot to mention that I have been told that my son has very > > > short > > > > feet and they are wide/fat. I have read in some of the info > on > > the > > > > Ponseti method that typically children with short, plump feet > > > cannot > > > > use this method. My son is 15 months old and his shoe size in > > the > > > > Markell shoes is 1 1/2. So does this mean that we have a good > > > > chance of not being a good candidate for this method? > > > > Thanks again, > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2004 Report Share Posted October 23, 2004 , When you see Dr.Dobbs on the 2nd I would talk to him about being seen at shriners because of medical costs. I know every little bit helps and Dr.Dobbs is such a wonderful man I bet he will talk to Shriners and see if they can make an exception or he will do something at childrens for you. I really thought shriners would take any child that has special needs. I know he has other medical issues but they are doctors and should take him no matter what since he does have other problems they treat. Doesn't make since to me. Can I ask you a question? Your other ortho you said was ponseti trained, was she on the ponseti preferred doctors list on Dr.Ponseti's website? I know that is how I found my first doctor. I emailed Dr.Ponseti directly and he referred me to Dr.Bonar in Kansas city because I lived closer to there at the time. She did her residency with Dr.Ponseti so I knew Isabella was in good hands. Dr.Dobbs was the same way he did his residency with Dr.Ponseti. I feel you have to get someone on the list. Some doctors say they do the ponseti method but they really don't know until they have actually studied with him. Isabella was casted at a week old and had a total of 6 castings. Then went into the DBB 24 hours a day when she was 1 1/2 months old. She wore that for 24 hours for 3 months then went down to 16 hours then when she was a year went to 14 hours. She is still at 14 hours but Dr.Dobbs said she could go to 12 if need to. I think you will like Dr.Dobbs. He helped heather with her sons atypical clubbed feet. I am so glad she took our advice to see Dr.Dobbs. She is very happy with him. Please let me know how it goes. If you need anything please email me at mikeleslie3032@... Best wishes > > > > > > > > > > > > > > > Hi, > > > > > I forgot to mention that I have been told that my son has > very > > > > short > > > > > feet and they are wide/fat. I have read in some of the info > > on > > > the > > > > > Ponseti method that typically children with short, plump > feet > > > > cannot > > > > > use this method. My son is 15 months old and his shoe size > in > > > the > > > > > Markell shoes is 1 1/2. So does this mean that we have a > good > > > > > chance of not being a good candidate for this method? > > > > > Thanks again, > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2004 Report Share Posted October 23, 2004 Hi , 's Orthopedist does not use the Ponseti method. I don't believe she's trained in it. She certainly doesn't do anything that resembles it. I hadn't heard of the Ponseti method. To be honest, my son had so many problems when he was born that I didn't do near enough research with the club foot because I was researching everything else (mainly the kidney problem and microcephaly-small head due to small brain). I did do some research regarding the club feet and had just read that casting is typically used and sometimes surgery. I wish I would have done some more research but I can't dwell on that. At least we found out about this method now. Shriner's denied because if he needed surgery and when he was under had a kidney or heart problem, the hospital wouldn't have the necessary doctors on hand to help him. I think all of 's issues just made them nervous. It would be a 1 in a billion chance that something would happen but if it did there would be a problem. I guess better safe than sorry is a good saying to use in this case. I was a little upset when we were turned down because the Shriner's are there to help children with special needs and my sweet does have quite a few. But then again I thought about it from there side and understood (somewhat Thanks again! > > > > > > > > > > > > > > > > > > Hi, > > > > > > I forgot to mention that I have been told that my son has > > very > > > > > short > > > > > > feet and they are wide/fat. I have read in some of the > info > > > on > > > > the > > > > > > Ponseti method that typically children with short, plump > > feet > > > > > cannot > > > > > > use this method. My son is 15 months old and his shoe > size > > in > > > > the > > > > > > Markell shoes is 1 1/2. So does this mean that we have a > > good > > > > > > chance of not being a good candidate for this method? > > > > > > Thanks again, > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2004 Report Share Posted October 23, 2004 Hi , Don't blame yourself for not looking into the clubfoot procedures. Like you said he had alot of problems so you were just looking into the other problems you mentioned. I would of done the same thing. I am sorry Shriners said no I would of been upset to. Like you said they say their there for kids with special needs. Now you found the right doctor and he will fix jacobs feet in no time. He will most likely get the new brace that Dr.Dobbs developed himself not the standard DBB that I have. This one sounds like it will be good especially for kids who love to kick their legs. It isn't to late to have jacobs feet done. So don't worry about that. I have heard of Dr.P handling kids that were 18 months of age or older. Please keep me posted on what happens and let me know how your appointment goes. Best wishes > > > > > > > > > > > > > > > > > > > > > Hi, > > > > > > > I forgot to mention that I have been told that my son > has > > > very > > > > > > short > > > > > > > feet and they are wide/fat. I have read in some of the > > info > > > > on > > > > > the > > > > > > > Ponseti method that typically children with short, plump > > > feet > > > > > > cannot > > > > > > > use this method. My son is 15 months old and his shoe > > size > > > in > > > > > the > > > > > > > Markell shoes is 1 1/2. So does this mean that we have > a > > > good > > > > > > > chance of not being a good candidate for this method? > > > > > > > Thanks again, > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2004 Report Share Posted October 23, 2004 Hi , Don't blame yourself for not looking into the clubfoot procedures. Like you said he had alot of problems so you were just looking into the other problems you mentioned. I would of done the same thing. I am sorry Shriners said no I would of been upset to. Like you said they say their there for kids with special needs. Now you found the right doctor and he will fix jacobs feet in no time. He will most likely get the new brace that Dr.Dobbs developed himself not the standard DBB that I have. This one sounds like it will be good especially for kids who love to kick their legs. It isn't to late to have jacobs feet done. So don't worry about that. I have heard of Dr.P handling kids that were 18 months of age or older. Please keep me posted on what happens and let me know how your appointment goes. Best wishes > > > > > > > > > > > > > > > > > > > > > Hi, > > > > > > > I forgot to mention that I have been told that my son > has > > > very > > > > > > short > > > > > > > feet and they are wide/fat. I have read in some of the > > info > > > > on > > > > > the > > > > > > > Ponseti method that typically children with short, plump > > > feet > > > > > > cannot > > > > > > > use this method. My son is 15 months old and his shoe > > size > > > in > > > > > the > > > > > > > Markell shoes is 1 1/2. So does this mean that we have > a > > > good > > > > > > > chance of not being a good candidate for this method? > > > > > > > Thanks again, > > > > > > > Quote Link to comment Share on other sites More sharing options...
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