Guest guest Posted October 14, 2004 Report Share Posted October 14, 2004 Thank you, Gillian. I will look at those sites very carefully before I go to the endo again in November. My TSH and FT4 and FT3 have always been in the " normal " range so far. I will look at them more carefully in this next draw, and compare them with the past results. My antibodies have been quite elevated for years, but it was felt that nothing should be done until the TSH etc moved in the wrong direction. Did you start on hormone replacement therapy while your levels were still in the " normal " range? I do have several nodules that are being " followed " , and a needle biopsy concluded that they were not cancerous several years ago. The biggest one is now 1.7 cm large, and the diameter grew about 9% in the past year. (This is a more significant increase in volume, of course, because the relationship of diameter to volume in a sphere is not linear. I will calculate it out later - that thought just came to me) Am I right in concluding that nodules are usually NOT found with Hashimotos? In my cursory reading I did not see nodules listed in a description of a Hashimoto thyroid. For the nodules a previous endo did give me a choice to try thyroxin, to try to " shut down " my thyroid, and thereby keep the nodules from growing. He did NOT mention any benefit in the area of having the hormones at a more consistent rate. At the time I did not understand enough, and decided to wait and see. I am very leary of taking meds that I don't have to. But now, with further consideration, I am wondering if I should not investigate that. So, I am very interested in your opinion and experience, about taking thyroxin to try to get more even hormone levels, even while the blood TSH and F4 are still normal. I do believe that intermittent secretions of the thyroid gland can produce normal blood results, since the half life of thyroxin is so long. And Dr. Cohen mentioned one patient who had severe problems - I can't even remember exactly, maybe the whole mito thing was due to this patients " spurting " thyroid hormones intermittently. It impressed me at the time. It is in one of Dr. Cohen's articles about adult mitochondrial disorders. Anyway, I would appreciate thoughts on this issue, from anyone who has experience with it. As always, regards and affection to all Sunny Anyone who > > Hi Sunny, > > Pleased you like some of my posts..I only understand basics because > I have had Hashi's for 30 years now and until his death was under a > fantastic Consultant who specialised in researching thyroid > illness..which really should be classified as a stand alone > endocrine illness in hospitals etc but is usually lumped under a > general endo whose speciality is diabetes. > > Therefore to help myself I use what I have learnt as a > patient...Hashi's is autoimmune as you say...the problem with it and > why it is so damned hard to control is that the antibodies are a law > unto themselves..the antibodies 'knock out' hormone secretion by > attacking parts of the thyroid tissue, the function of the thyroid > therefore becomes rather unbalanced..parts of the gland are 'dead' > other glandular tissues then try to compensate by throwing out more > hormone saying 'HELP' 'ALERT' 'ATTACK' as the antibodies decide to > go for them....so are poor bodies don't know what the heck has hit > them...and that is where it is really, really bad for our > mitochondrial function which need a 'steady' supply of hormones as > they are involved in the respiratory chain. Eventually due to this > attack many peoples thyroids pack up..lethal if replacement hormones > not given. > > The only way to check is by TSH/FT3/FT4...but never let a Doc. tell > you results are 'normal' 'in range' and all that rubbish..you have > to educate yourself on that score...Go by how you feel..Once you are > on thyroxine the TSH test is no good..you have to ensure that the > FT4 is in the upper quartile if the range and the FT3 in the mid- > upper quartile..the once a year bloods for hash'is are better done > more often and never take your meds in the morning before the blood > is drawn..that gives a false elevation as the hormones begin to work > within a few hours on a daily basis. Other tests can be done to see > if you have a 'hot' spot > > http://www.muhealth.org/~daveg/thyroid/thy_test.html > > http://www.merck.com/mrkshared/mmanual/section2/chapter8/8a.jsp > > > Gillian > > > > > > > > > > > Hi, I don't think too many of you know me. I'm one of the 'old > > > > timers' on the list but I only pop in occasionally. When I > popped > > > in > > > > today I happened on a discussion of thyroid, etc. I was just > > > tested > > > > last week for cortisol AM and PM and thyroid tests plus > others. I > > > am > > > > so miserable today that I called the lab and asked them to > fax the > > > > results to me. I was hoping for a clue about the pain I'm > having. > > > > Well, I can see that some things are out of whack but I don't > know > > > > what they mean. I'm hoping someone here can help. My cortisol > AM > > > was > > > > 17, PM was 24.5. The PM is supposed to be about one half of > the > > > AM. > > > > TSH 2.72, my TSH varies with each test I've had. All the way > from > > > 2.0 > > > > to 5.0, is this usual? I'm not taking thyroid. T3 144, T4 8.7. > > > Also, > > > > my sodium and carbon dioxide have been just below the usual > level > > > for > > > > the past several years. My neurologis ordered the testing and > I > > > had > > > > the results faxed to him but I don't think he had a chance to > look > > > at > > > > them. Has any one else had results like this and if so, doe > you > > > think > > > > they stem from Mito? Thanks all > > > > Pat K > > > > > > > > > > > > > > > > > > Medical advice, information, opinions, data and statements > contained > > > herein are not necessarily those of the list moderators. The > author of > > > this e mail is entirely responsible for its content. List > members are > > > reminded of their responsibility to evaluate the content of the > > > postings and consult with their physicians regarding changes in > their > > > own treatment. > > > > > > Personal attacks are not permitted on the list and anyone who > sends > > > one is automatically moderated or removed depending on the > severity of > > > the attack. > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2004 Report Share Posted October 14, 2004 Sunny I have Hashmotos and my gland was somewhat enlarged. I started on medication at a level that shut my gland down and it gradually shrank away. I have been on thyroid medication for 43 years without problems. laurie > From: z39z@... > Reply-To: > Date: Thu, 14 Oct 2004 09:02:39 -0400 > To: > Subject: Re: Hashimoto's - general question, and Gillian > > > > > Thank you, Gillian. I will look at those sites very carefully before I > go to the endo again in November. My TSH and FT4 and FT3 have always > been in the " normal " range so far. I will look at them more carefully > in this next draw, and compare them with the past results. My > antibodies have been quite elevated for years, but it was felt that > nothing should be done until the TSH etc moved in the wrong direction. > Did you start on hormone replacement therapy while your levels were > still in the " normal " range? > > I do have several nodules that are being " followed " , and a needle > biopsy concluded that they were not cancerous several years ago. The > biggest one is now 1.7 cm large, and the diameter grew about 9% in the > past year. (This is a more significant increase in volume, of course, > because the relationship of diameter to volume in a sphere is not > linear. I will calculate it out later - that thought just came to me) > Am I right in concluding that nodules are usually NOT found with > Hashimotos? In my cursory reading I did not see nodules listed in a > description of a Hashimoto thyroid. > > For the nodules a previous endo did give me a choice to try thyroxin, > to try to " shut down " my thyroid, and thereby keep the nodules from > growing. He did NOT mention any benefit in the area of having the > hormones at a more consistent rate. At the time I did not understand > enough, and decided to wait and see. I am very leary of taking meds > that I don't have to. But now, with further consideration, I am > wondering if I should not investigate that. So, I am very interested > in your opinion and experience, about taking thyroxin to try to get > more even hormone levels, even while the blood TSH and F4 are still > normal. I do believe that intermittent secretions of the thyroid gland > can produce normal blood results, since the half life of thyroxin is so > long. And Dr. Cohen mentioned one patient who had severe problems - I > can't even remember exactly, maybe the whole mito thing was due to this > patients " spurting " thyroid hormones intermittently. It impressed me at > the time. It is in one of Dr. Cohen's articles about adult > mitochondrial disorders. > > Anyway, I would appreciate thoughts on this issue, from anyone who has > experience with it. > > As always, regards and affection to all > > Sunny > > Anyone who > > >> >> Hi Sunny, >> >> Pleased you like some of my posts..I only understand basics because >> I have had Hashi's for 30 years now and until his death was under a >> fantastic Consultant who specialised in researching thyroid >> illness..which really should be classified as a stand alone >> endocrine illness in hospitals etc but is usually lumped under a >> general endo whose speciality is diabetes. >> >> Therefore to help myself I use what I have learnt as a >> patient...Hashi's is autoimmune as you say...the problem with it and >> why it is so damned hard to control is that the antibodies are a law >> unto themselves..the antibodies 'knock out' hormone secretion by >> attacking parts of the thyroid tissue, the function of the thyroid >> therefore becomes rather unbalanced..parts of the gland are 'dead' >> other glandular tissues then try to compensate by throwing out more >> hormone saying 'HELP' 'ALERT' 'ATTACK' as the antibodies decide to >> go for them....so are poor bodies don't know what the heck has hit >> them...and that is where it is really, really bad for our >> mitochondrial function which need a 'steady' supply of hormones as >> they are involved in the respiratory chain. Eventually due to this >> attack many peoples thyroids pack up..lethal if replacement hormones >> not given. >> >> The only way to check is by TSH/FT3/FT4...but never let a Doc. tell >> you results are 'normal' 'in range' and all that rubbish..you have >> to educate yourself on that score...Go by how you feel..Once you are >> on thyroxine the TSH test is no good..you have to ensure that the >> FT4 is in the upper quartile if the range and the FT3 in the mid- >> upper quartile..the once a year bloods for hash'is are better done >> more often and never take your meds in the morning before the blood >> is drawn..that gives a false elevation as the hormones begin to work >> within a few hours on a daily basis. Other tests can be done to see >> if you have a 'hot' spot >> >> http://www.muhealth.org/~daveg/thyroid/thy_test.html >> >> http://www.merck.com/mrkshared/mmanual/section2/chapter8/8a.jsp >> >> >> Gillian >> >> >> >>>> > >>>> > Hi, I don't think too many of you know me. I'm one of the 'old >>>> > timers' on the list but I only pop in occasionally. When I >> popped >>>> in >>>> > today I happened on a discussion of thyroid, etc. I was just >>>> tested >>>> > last week for cortisol AM and PM and thyroid tests plus >> others. I >>>> am >>>> > so miserable today that I called the lab and asked them to >> fax the >>>> > results to me. I was hoping for a clue about the pain I'm >> having. >>>> > Well, I can see that some things are out of whack but I don't >> know >>>> > what they mean. I'm hoping someone here can help. My cortisol >> AM >>>> was >>>> > 17, PM was 24.5. The PM is supposed to be about one half of >> the >>>> AM. >>>> > TSH 2.72, my TSH varies with each test I've had. All the way >> from >>>> 2.0 >>>> > to 5.0, is this usual? I'm not taking thyroid. T3 144, T4 8.7. >>>> Also, >>>> > my sodium and carbon dioxide have been just below the usual >> level >>>> for >>>> > the past several years. My neurologis ordered the testing and >> I >>>> had >>>> > the results faxed to him but I don't think he had a chance to >> look >>>> at >>>> > them. Has any one else had results like this and if so, doe >> you >>>> think >>>> > they stem from Mito? Thanks all >>>> > Pat K >>>> >>>> >>>> >>>> >>>> >>>> Medical advice, information, opinions, data and statements >> contained >>>> herein are not necessarily those of the list moderators. The >> author of >>>> this e mail is entirely responsible for its content. List >> members are >>>> reminded of their responsibility to evaluate the content of the >>>> postings and consult with their physicians regarding changes in >> their >>>> own treatment. >>>> >>>> Personal attacks are not permitted on the list and anyone who >> sends >>>> one is automatically moderated or removed depending on the >> severity of >>>> the attack. >>>> >>>> >>>> >>>> >>>> >>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2004 Report Share Posted October 14, 2004 Thank You, ! > Sunny > > I have Hashmotos and my gland was somewhat enlarged. I started on > medication > at a level that shut my gland down and it gradually shrank away. I > have been > on thyroid medication for 43 years without problems. > > laurie > > > From: z39z@... > > Reply-To: > > Date: Thu, 14 Oct 2004 09:02:39 -0400 > > To: > > Subject: Re: Hashimoto's - general question, and Gillian > > > > > > > > > > Thank you, Gillian. I will look at those sites very carefully > before I > > go to the endo again in November. My TSH and FT4 and FT3 have > always > > been in the " normal " range so far. I will look at them more > carefully > > in this next draw, and compare them with the past results. My > > antibodies have been quite elevated for years, but it was felt that > > nothing should be done until the TSH etc moved in the wrong > direction. > > Did you start on hormone replacement therapy while your levels were > > still in the " normal " range? > > > > I do have several nodules that are being " followed " , and a needle > > biopsy concluded that they were not cancerous several years ago. > The > > biggest one is now 1.7 cm large, and the diameter grew about 9% in > the > > past year. (This is a more significant increase in volume, of > course, > > because the relationship of diameter to volume in a sphere is not > > linear. I will calculate it out later - that thought just came to > me) > > Am I right in concluding that nodules are usually NOT found with > > Hashimotos? In my cursory reading I did not see nodules listed in a > > description of a Hashimoto thyroid. > > > > For the nodules a previous endo did give me a choice to try > thyroxin, > > to try to " shut down " my thyroid, and thereby keep the nodules from > > growing. He did NOT mention any benefit in the area of having the > > hormones at a more consistent rate. At the time I did not understand > > enough, and decided to wait and see. I am very leary of taking meds > > that I don't have to. But now, with further consideration, I am > > wondering if I should not investigate that. So, I am very > interested > > in your opinion and experience, about taking thyroxin to try to get > > more even hormone levels, even while the blood TSH and F4 are still > > normal. I do believe that intermittent secretions of the thyroid > gland > > can produce normal blood results, since the half life of thyroxin > is so > > long. And Dr. Cohen mentioned one patient who had severe problems > - I > > can't even remember exactly, maybe the whole mito thing was due to > this > > patients " spurting " thyroid hormones intermittently. It impressed > me at > > the time. It is in one of Dr. Cohen's articles about adult > > mitochondrial disorders. > > > > Anyway, I would appreciate thoughts on this issue, from anyone who > has > > experience with it. > > > > As always, regards and affection to all > > > > Sunny > > > > Anyone who > > > > > >> > >> Hi Sunny, > >> > >> Pleased you like some of my posts..I only understand basics because > >> I have had Hashi's for 30 years now and until his death was under a > >> fantastic Consultant who specialised in researching thyroid > >> illness..which really should be classified as a stand alone > >> endocrine illness in hospitals etc but is usually lumped under a > >> general endo whose speciality is diabetes. > >> > >> Therefore to help myself I use what I have learnt as a > >> patient...Hashi's is autoimmune as you say...the problem with it > and > >> why it is so damned hard to control is that the antibodies are a > law > >> unto themselves..the antibodies 'knock out' hormone secretion by > >> attacking parts of the thyroid tissue, the function of the thyroid > >> therefore becomes rather unbalanced..parts of the gland are 'dead' > >> other glandular tissues then try to compensate by throwing out more > >> hormone saying 'HELP' 'ALERT' 'ATTACK' as the antibodies decide to > >> go for them....so are poor bodies don't know what the heck has hit > >> them...and that is where it is really, really bad for our > >> mitochondrial function which need a 'steady' supply of hormones as > >> they are involved in the respiratory chain. Eventually due to this > >> attack many peoples thyroids pack up..lethal if replacement > hormones > >> not given. > >> > >> The only way to check is by TSH/FT3/FT4...but never let a Doc. tell > >> you results are 'normal' 'in range' and all that rubbish..you have > >> to educate yourself on that score...Go by how you feel..Once you > are > >> on thyroxine the TSH test is no good..you have to ensure that the > >> FT4 is in the upper quartile if the range and the FT3 in the mid- > >> upper quartile..the once a year bloods for hash'is are better done > >> more often and never take your meds in the morning before the blood > >> is drawn..that gives a false elevation as the hormones begin to > work > >> within a few hours on a daily basis. Other tests can be done to see > >> if you have a 'hot' spot > >> > >> http://www.muhealth.org/~daveg/thyroid/thy_test.html > >> > >> http://www.merck.com/mrkshared/mmanual/section2/chapter8/8a.jsp > >> > >> > >> Gillian > >> > >> > >> > >>>> > > >>>> > Hi, I don't think too many of you know me. I'm one of the > 'old > >>>> > timers' on the list but I only pop in occasionally. When I > >> popped > >>>> in > >>>> > today I happened on a discussion of thyroid, etc. I was just > >>>> tested > >>>> > last week for cortisol AM and PM and thyroid tests plus > >> others. I > >>>> am > >>>> > so miserable today that I called the lab and asked them to > >> fax the > >>>> > results to me. I was hoping for a clue about the pain I'm > >> having. > >>>> > Well, I can see that some things are out of whack but I don't > >> know > >>>> > what they mean. I'm hoping someone here can help. My cortisol > >> AM > >>>> was > >>>> > 17, PM was 24.5. The PM is supposed to be about one half of > >> the > >>>> AM. > >>>> > TSH 2.72, my TSH varies with each test I've had. All the way > >> from > >>>> 2.0 > >>>> > to 5.0, is this usual? I'm not taking thyroid. T3 144, T4 > 8.7. > >>>> Also, > >>>> > my sodium and carbon dioxide have been just below the usual > >> level > >>>> for > >>>> > the past several years. My neurologis ordered the testing and > >> I > >>>> had > >>>> > the results faxed to him but I don't think he had a chance to > >> look > >>>> at > >>>> > them. Has any one else had results like this and if so, doe > >> you > >>>> think > >>>> > they stem from Mito? Thanks all > >>>> > Pat K > >>>> > >>>> > >>>> > >>>> > >>>> > >>>> Medical advice, information, opinions, data and statements > >> contained > >>>> herein are not necessarily those of the list moderators. The > >> author of > >>>> this e mail is entirely responsible for its content. List > >> members are > >>>> reminded of their responsibility to evaluate the content of the > >>>> postings and consult with their physicians regarding changes in > >> their > >>>> own treatment. > >>>> > >>>> Personal attacks are not permitted on the list and anyone who > >> sends > >>>> one is automatically moderated or removed depending on the > >> severity of > >>>> the attack. > >>>> > >>>> > >>>> > >>>> > >>>> > >>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2004 Report Share Posted October 14, 2004 - Pleased to be able to help Sunny,I was dignosed in the 'old days' when they didn't have all these modern blood tests as freely available...signs/symptoms/clinical experience of the Doc. The blood tests when I did have them done after a couple of years bio-chemically proved the doc right and my neck swelling shrank !! If you have Hashi's the rule of thumb is you need thyroxine..go with your Endo. Gillian -- In , z39z@a... wrote: > > > Thank you, Gillian. I will look at those sites very carefully before I > go to the endo again in November. My TSH and FT4 and FT3 have always > been in the " normal " range so far. I will look at them more carefully > in this next draw, and compare them with the past results. My > antibodies have been quite elevated for years, but it was felt that > nothing should be done until the TSH etc moved in the wrong direction. > Did you start on hormone replacement therapy while your levels were > still in the " normal " range? > > I do have several nodules that are being " followed " , and a needle > biopsy concluded that they were not cancerous several years ago. The > biggest one is now 1.7 cm large, and the diameter grew about 9% in the > past year. (This is a more significant increase in volume, of course, > because the relationship of diameter to volume in a sphere is not > linear. I will calculate it out later - that thought just came to me) > Am I right in concluding that nodules are usually NOT found with > Hashimotos? In my cursory reading I did not see nodules listed in a > description of a Hashimoto thyroid. > > For the nodules a previous endo did give me a choice to try thyroxin, > to try to " shut down " my thyroid, and thereby keep the nodules from > growing. He did NOT mention any benefit in the area of having the > hormones at a more consistent rate. At the time I did not understand > enough, and decided to wait and see. I am very leary of taking meds > that I don't have to. But now, with further consideration, I am > wondering if I should not investigate that. So, I am very interested > in your opinion and experience, about taking thyroxin to try to get > more even hormone levels, even while the blood TSH and F4 are still > normal. I do believe that intermittent secretions of the thyroid gland > can produce normal blood results, since the half life of thyroxin is so > long. And Dr. Cohen mentioned one patient who had severe problems - I > can't even remember exactly, maybe the whole mito thing was due to this > patients " spurting " thyroid hormones intermittently. It impressed me at > the time. It is in one of Dr. Cohen's articles about adult > mitochondrial disorders. > > Anyway, I would appreciate thoughts on this issue, from anyone who has > experience with it. > > As always, regards and affection to all > > Sunny > > Anyone who > > > > > > Hi Sunny, > > > > Pleased you like some of my posts..I only understand basics because > > I have had Hashi's for 30 years now and until his death was under a > > fantastic Consultant who specialised in researching thyroid > > illness..which really should be classified as a stand alone > > endocrine illness in hospitals etc but is usually lumped under a > > general endo whose speciality is diabetes. > > > > Therefore to help myself I use what I have learnt as a > > patient...Hashi's is autoimmune as you say...the problem with it and > > why it is so damned hard to control is that the antibodies are a law > > unto themselves..the antibodies 'knock out' hormone secretion by > > attacking parts of the thyroid tissue, the function of the thyroid > > therefore becomes rather unbalanced..parts of the gland are 'dead' > > other glandular tissues then try to compensate by throwing out more > > hormone saying 'HELP' 'ALERT' 'ATTACK' as the antibodies decide to > > go for them....so are poor bodies don't know what the heck has hit > > them...and that is where it is really, really bad for our > > mitochondrial function which need a 'steady' supply of hormones as > > they are involved in the respiratory chain. Eventually due to this > > attack many peoples thyroids pack up..lethal if replacement hormones > > not given. > > > > The only way to check is by TSH/FT3/FT4...but never let a Doc. tell > > you results are 'normal' 'in range' and all that rubbish..you have > > to educate yourself on that score...Go by how you feel..Once you are > > on thyroxine the TSH test is no good..you have to ensure that the > > FT4 is in the upper quartile if the range and the FT3 in the mid- > > upper quartile..the once a year bloods for hash'is are better done > > more often and never take your meds in the morning before the blood > > is drawn..that gives a false elevation as the hormones begin to work > > within a few hours on a daily basis. Other tests can be done to see > > if you have a 'hot' spot > > > > http://www.muhealth.org/~daveg/thyroid/thy_test.html > > > > http://www.merck.com/mrkshared/mmanual/section2/chapter8/8a.jsp > > > > > > Gillian > > > > > > > > > > > > > > > > Hi, I don't think too many of you know me. I'm one of the 'old > > > > > timers' on the list but I only pop in occasionally. When I > > popped > > > > in > > > > > today I happened on a discussion of thyroid, etc. I was just > > > > tested > > > > > last week for cortisol AM and PM and thyroid tests plus > > others. I > > > > am > > > > > so miserable today that I called the lab and asked them to > > fax the > > > > > results to me. I was hoping for a clue about the pain I'm > > having. > > > > > Well, I can see that some things are out of whack but I don't > > know > > > > > what they mean. I'm hoping someone here can help. My cortisol > > AM > > > > was > > > > > 17, PM was 24.5. The PM is supposed to be about one half of > > the > > > > AM. > > > > > TSH 2.72, my TSH varies with each test I've had. All the way > > from > > > > 2.0 > > > > > to 5.0, is this usual? I'm not taking thyroid. T3 144, T4 8.7. > > > > Also, > > > > > my sodium and carbon dioxide have been just below the usual > > level > > > > for > > > > > the past several years. My neurologis ordered the testing and > > I > > > > had > > > > > the results faxed to him but I don't think he had a chance to > > look > > > > at > > > > > them. Has any one else had results like this and if so, doe > > you > > > > think > > > > > they stem from Mito? Thanks all > > > > > Pat K > > > > > > > > > > > > > > > > > > > > > > > > Medical advice, information, opinions, data and statements > > contained > > > > herein are not necessarily those of the list moderators. The > > author of > > > > this e mail is entirely responsible for its content. List > > members are > > > > reminded of their responsibility to evaluate the content of the > > > > postings and consult with their physicians regarding changes in > > their > > > > own treatment. > > > > > > > > Personal attacks are not permitted on the list and anyone who > > sends > > > > one is automatically moderated or removed depending on the > > severity of > > > > the attack. > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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