newbie

[Guest guest]

Hi,

I was given your web-site from a person on the other club foot group.

My son, , is 15 months old and has club feet. He also has

numerous other anomolies. When he was born he was transferred to

Cardinal Glennon in St. Louis. We were told he has moderate

bilateral club feet. He was casted for the first couple of months.

They were soft casts that went to his thighs. In the cast the feet

were manipulated and put into the correct position. Then we were

told he needed a small release. The heel cord and another tendon

was released. After surgery he kicked out of a cast daily. The

doctor had never seen this before so we went directly to AFOs.

was able to slip out of the AFOs as well. So we tried DAFOs

then clam shell braces...these still didn't work. Finally, 6 months

after surgery we found the open toed shoes that you can attach the

bar to. This fit him and stayed on. However, after using nothing

for 6 months his right foot became tight and you cannot put it into

neutral position. So the doctor wants to schedule him for another

surgery to release the heel cord again and a few more tendons.

I was told about the Ponseti method by members on the other club

foot group. I called Chilren's Hospital in St. Louis and left a

message for Dr. Dobbs who specializes in this. I'm hoping & praying

that will be a candidate for this. I don't know if it's too

late though.

Does anybody have a smiliar story?

Thank you,

Proud Mom to -15 months old, microcephaly, bilateral ptosis

(repaired 1/04), GERD (and associated eating challenges), bilateral

club feet, left kidney: hydronephrosis due to Grade V reflux, right

kidney: low functioning due to cysts on upper 20%, undescended

testes (corrected 9/04), low muscle tone, global delays, undiagnosed

syndrome...