Re: Re: Jolly Jumper - good or bad for CF - Holly's baby

[Guest guest]

Hi Holly

Just saw that you are having another baby and it has straight feet. You must be

soooo relieved. I am happy to have read your encouraging news. It gives me hope

to have a 3rd baby after 2nd has R CF.

Sharon

Holly hollywasilewski@...> wrote:

I've heard negative comments about the jolly jumper for all

children. I've heard it can cause anything from toe walking to

scoliosis. As with anything - I'm sure moderation is key.

Holly

Zachary 7/27/02

Right c/f

Treated by Dr. Ponseti

DBB Nights Only

Due: 1/8/05 - Straight Tootsies!!!!!!!!!!!

> > >

> > > Just wondering if the jolly jumper does more harm than good?

I

> > know

> > > it can encourage the baby/child to stand on their tippy toes.

> >

> > > has only been on it 3 times and he loves it. But I am

concerned

> it

> > > might not be good for his CF.

> > >

> > > any comments would be welcome.

[Guest guest]

I'm wavering between wanting and fearing, I'm batting 2 out of 2 here, both bcf.

s.

Hi Holly

Just saw that you are having another baby and it has straight feet. You must be

soooo relieved. I am happy to have read your encouraging news. It gives me hope

to have a 3rd baby after 2nd has R CF.

Sharon

Holly hollywasilewski@...> wrote:

[Guest guest]

There is a poll on the group homepage of birthday months of clubfoot babies.

Freeman

[Guest guest]

LOL! How true!

s.

-I could give you a few different reasons to stop

at 2!! :-)

, mommy of:

Guinevere, on & Ava (3 little monkeys--I'm WAY outnumbered!)

[Guest guest]

Are you asking for example if both pregnancies happened in December? If so, no,

their birthdays are April and September. Curious though, what were you

thinking might be occurring here?

s.

I know this is a crazy question, but were your children conceived

around the same time?

> I'm wavering between wanting and fearing, I'm batting 2 out of 2

here, both bcf.

> s.

>

> It gives me hope to have a 3rd baby after 2nd has

R CF.

>

> Sharon

>

>

[Guest guest]

I just don't know - seems like it could just go either way. I guess if I got

another case of cf I'd be able to handle it with my eyes closed by now, huh.

s.

Re: Jolly Jumper - good or bad for CF - Holly's

baby

ee, with the percentages being what they are, wouldn't your

chances of having a bby with straight tootsies would be really high!

Just my thoughts.

>

>

>

>

[Guest guest]

Hi ,

It's a puzzler with my kids. was born to a previous marriage where there

was no cf issues on either side of our family, so it was a total surprise when

he came with them. Like you I hadn't gone for any testing but a routine early

u/s that did not pick them up. My midwife on the other hand was NOT sweet.

More like she was offended to deliver a defected product. Myself, I was not

the least bit concerned until she started telling me (immediately post partum!)

it was probably my fault and I'm lucky it was his feet and not his head I

ruined. I cried for days. The orthos finally convinced me it wasn't my

fault.

With Everett, yes there is cf on his father's side, two cases of it. So with

and those other two, we had teh u/s look for cf and found them. We

expected it, honestly, and we wanted to be prepared this time so we could

arrange to go to Iowa asap.

ee

Re: Jolly Jumper - good or bad for CF - Holly's

baby

S-

Didn't you write that your BIL had CF too? Or was that someone

different? It's really strange how you have 2 for 2, and others have

only 1 out of 3 or more. I really wish they could find out what

causes it. I know for us we had 2 healthy kids, so it wasn't even a

thought in my head that something could be wrong. We had a low-level

U/S at 18 weeks, but of course they didn't find anything. We didn't

want to know the sex, so she didn't spend much time on the " bottom

half " . It's funny, because they offered us a " Level 2 " U/S because

we hadn't had any other testing done, and we said no. Now I wonder

if they had done a Level 2--would they have found her CF? What would

my reaction have been? I was so calm when they told me after she was

born--of course, my midwife was so cute about it: " her foot's just a

little bent, but the pediatrician will look at it. " Plus there's

that natural 'who cares?' feeling you have after delivering...you

just want to SLEEP!!! I didn't get upset until our first visit with

the ortho. And for some reason, all along people were telling us it

was probably positional, and when the ortho told us no, it was a

congenital club foot, hereditary, that REALLY got me upset. I can't

explain why... Anyway, all this is more than I'm sure you wanted to

know, but CF is stress. I don't want to have any more kids, for a

variety of reasons, but the CF is one. Not because the child might

have a " birth defect " or whatever, we never get much testing when pg

because we just don't care about that. But because it would be #4

(OMG!!!), and I know now how much time the treatment involves. Of

course, having said all that--I must admit I didn't have much " say "

over the conception of numbers 1,2 or 3--so what makes me think I'm

going to be able to stop here????

, mommy of:

Guinevere, on, Ava (my 3 little accidents...I mean angels!!!)

> >

> >

> >

> >

[Guest guest]

I did have a major flu pregnant with . Hmmmm, but I was healthy as a

horse with Everett. Now with there was no history of CF, but he had

it....with Everett no flu but it had occured on his daddy's side. Who knows.

With the my BIL and in-law-nephew, both of them with cf have multiple other

issues as well. One with ceribal palsey (?) and the other, his thigh bones

didn't grow.

s.

I know this may sound crazy, but I've heard one theory that mothers

that were in their first trimester during the flu season may have a

higher likelihood towards clubfeet. Something about a germ??? I know

this may sound hoakie, but I was curious to test the theory. I

looked at the bday poll and August and September have the highest %.

Who knows???

> > I'm wavering between wanting and fearing, I'm batting 2 out of 2

> here, both bcf.

> > s.

> >

> > It gives me hope to have a 3rd baby after 2nd has

> R CF.

> >

> > Sharon

> >

> >

>

>

>

[Guest guest]

Maternal stress huh? I was so sick when pregnant with Kelsey, I was in

the hospital pretty much once a week for IV fluids because I couldn't

keep anything down for the first 12-14 weeks. I was on several

anti-nausea medications during this time and I questioned as to whether

or not those would have caused it and was told no. But maternal stress

would certainly have been a factor with all of that.

Jenni

Daiga Grady wrote:

>I hadn't heard about that theory. I don't recall being sick with

>Owen but that's not to say it didn't happen - preggo brain! LOL! I

>do recall reading something about a possible link having to do with

>maternal stress in the 1st trimester.

>

>Daiga

>

>

>>>

>>>

>>>>I'm wavering between wanting and fearing, I'm batting 2 out of

>>>>

>>>>

>2

>

>

>>>here, both bcf.

>>>

>>>

>>>>s.

>>>>

>>>> It gives me hope to have a 3rd baby after 2nd has

>>>>

>>>>

>>>R CF.

>>>

>>>

>>>>

>>>>Sharon

>>>>

>>>>

>>>>

>>>>

>>>

[Guest guest]

I wasn't stressed at all, in reverse I experienced the deepest serenity I'd ever

known.

s.

Re: Jolly Jumper - good or bad for CF - Holly's

baby

I was completely stressed out and I did have a bad cold. Who knows?

I drove myself crazy in the beginning trying to figure it out, but I

realized it wasn't the best use of my time. Now I focus on Nate and

correcting his feet.

> > > > I'm wavering between wanting and fearing, I'm batting 2 out

of

> 2

> > > here, both bcf.

> > > > s.

> > > >

> > > > It gives me hope to have a 3rd baby after 2nd has

> > > R CF.

> > > >

> > > > Sharon

> > > >

> > > >

> > >

> > >

> > >