Guest guest Posted December 13, 2004 Report Share Posted December 13, 2004 A girl that I have been speaking to who lives in the next town over from mine was told that the child she is carrying has clubfoot. She isn't due until March. Yesterday, she told me that when she had another ultrasound they said it was definitely clubfoot but it wasn't that bad. Can the level of severity be told through ultrasound? Is there a such thing as telling how bad it is or is it that you either have clubfoot or you don't? Obviously, I am aware of atypical clubfoot but that is not diagnosed until after birth correct? Mommy to (12-17-98) and Christian (1-30-04) LCF - DBB 23/7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2004 Report Share Posted December 13, 2004 We found out through ultra sound and we were told they could not tell the severity of it until it was born. They looked for other 'things' and decided the c/f was an 'isolated anomoly' which in fact it was. We were shown the pictures of his feet from the scan and they pretty much looked like that when he came out!! All a thing of the past now!! Rach -- clubfoot via ultrasound question A girl that I have been speaking to who lives in the next town over from mine was told that the child she is carrying has clubfoot. She isn't due until March. Yesterday, she told me that when she had another ultrasound they said it was definitely clubfoot but it wasn't that bad. Can the level of severity be told through ultrasound? Is there a such thing as telling how bad it is or is it that you either have clubfoot or you don't? Obviously, I am aware of atypical clubfoot but that is not diagnosed until after birth correct? Mommy to (12-17-98) and Christian (1-30-04) LCF - DBB 23/7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2004 Report Share Posted December 13, 2004 When Kelsey's was diagnosed during ultrasound they told me that it did not look severe but that there as no way of really telling until she was born so I think it may just be a guess, at least from the perspective of the specialist that we saw. Jenni Gerace wrote: >A girl that I have been speaking to who lives in the next town over from >mine was told that the child she is carrying has clubfoot. She isn't due >until March. Yesterday, she told me that when she had another ultrasound >they said it was definitely clubfoot but it wasn't that bad. Can the level >of severity be told through ultrasound? Is there a such thing as telling >how bad it is or is it that you either have clubfoot or you don't? >Obviously, I am aware of atypical clubfoot but that is not diagnosed until >after birth correct? > > > > > >Mommy to (12-17-98) and > >Christian (1-30-04) LCF - DBB 23/7 > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2004 Report Share Posted December 13, 2004 , Here is some information on ultrasounds and when clubfoot developes from different sources. A number of parents on different internet groups have had their childs clubfoot identified on a prenatal ultrasound. In Dr. Ponseti's 1996 book on page 50, he says, " Present day sonography applied to the study of fetal development in utero has opened a new dimension in this field. Under sonography, we and others ... have observed that an apparently normal foot of an 11- week- old fetus turns into a clubfoot at 14 weeks within a uterine cavity filled with abundant amniotic fluid. The congenital clubfoot, therefore, seems to be a developmental anomaly originating after the third month of intrauterine life and not an embryonic malformation. " Other information from Dr. Ponseti on when clubfoot begins to develope can be seen in his 2001 article on treating relapses. " The clubfoot in otherwise normal children is a developmental anomaly originating after the third month of intrauterine life. It is induced by an unknown dysfunction in the posterior and medial aspects of the lower leg, ankle and foot ... " " The period of dysfunction causing the deformity starting in the middle third of pregnancy lasts to the third or fourth year of life. In mild cases, it may start in late fetal life, and remain active for only a few months after birth. In all cases, the resulting fibrosis is most pronounced from a few weeks preceding birth, to a few months after birth. This is the period when collagen accretion is greatest in tendons and ligaments of normal mammals and presumably also of man. The speed of growth of the foot decreases after the first year of life, diminishing greatly after five years. " http://groups.yahoo.com/group/nosurgery4clubfoot/message/13223 At the 3rd International Congress on Clubfoot in San Diego last August 2002, Dr. Henri Bensahel of Paris, France presented a study they had done on 5,000 ultrasounds since 1998. Their studies results said that clubfoot by ultrasound " is easier (to identify) when the investigation is made around the 20th week of pregnancy. By that time, the talipes equinovarus can be well screened. The calf is less developed than usual and the comparison is easier if the clubfoot is unilateral. The diagnosis is also suspected by looking at the shape of the foot and it's ability to move. However, the confirmation of (it being a) true clubfoot is made (at) the time of the physical exam at birth ... In our study, the prenatal diagnosis of clubfoot could be made from the 12th week to the 34th week of pregnancy. " " Thanks to the ultrasound investigation during pregnancy, we can evaluate the type of deformity of the foot although we are not able to (determine) the degree of severity. The severity is not related to the time of the prenatal diagnosis. " A poll on that ultrasound question at the Ponseti site had 22 responses with these results. Diagnosed during 2nd trimester - 8 or 36% Diagnosed during 3rd trimester - 0 Diagnosed after birth - 14 - 63% http://groups.yahoo.com/group/nosurgery4clubfoot/surveys?id=59565 At our own ultrasound, it was not brought up, but later the U of Iowa doctors looked at our ultrasound snapshot picture and were able to identify that the clubfoot was there and had been missed. Clubfoot can be seen in ultrasounds, but it can't really be determined for sure if it is a real clubfoot until after the baby is born and is examined. Some children have what is called postional clubfoot which may look like clubfoot on an ultrasound, but is passively correctable and needs little or no treatment to be resolved. " Real " clubfoot will need treatment to correct. One study in London on 14 children published in the Journal of Bone and Joint surgery in August 2000, indicated that 32% of their sample really didn't have " true " clubfoot. They said " A total of 32% of feet required no treatment and so could be considered functional false-positive results on the scan. " From Medline is this abstract of the Londond study, " Clinical outcome of congenital talipes equinovarus diagnosed antenatally by ultrasound. " Tillett RL, Fisk NM, K, Hunt DM. Department of Orthopaedics, St 's Hospital, London, England. " Congenital talipes equinovarus is a common anomaly which can now be diagnosed prenatally on a routine ultrasound scan at 20 weeks of gestation. Prenatal counselling is increasingly offered to parents with affected fetuses, but it is difficult to counsel parents if there is a chance that the fetus may not have talipes. Our study correlates the prenatal ultrasound findings of 14 infants diagnosed as having unilateral or bilateral talipes during their routine 20- week ultrasound scan with their clinical findings at birth and the treatment received. No feet diagnosed as talipes on the ultrasound scan were completely normal at birth and therefore there were no true false-positive results. One foot graded as normal at 20 weeks was found to have a mild grade-1 talipes at birth, but did not require treatment other than simple stretches. A total of 32% of feet required no treatment and so could be considered functional false- positive results on the scan. Serial casting was required by 13% of feet and surgical treatment by 55%. The severity of the talipes is difficult to establish before birth. A number of patients are likely to need surgical treatment, but a proportion will have talipes so mildly that no treatment will be required. In counselling parents at 20 weeks, orthopaedic surgeons need to know whether or not there is a small chance that the ultrasound diagnosis could be wrong and also that the talipes may be so mild that the foot will not require treatment. " PMID: 10990315 [PubMed - indexed for MEDLINE] http://www.ncbi.nlm.nih.gov/entrez/query.fcgi? cmd=Retrieve&db=pubmed&dopt=Abstract&list_uids=10990315 The following study indicated that for 103 children born with clubfoot at an Australian hospital only 25% were picked up on ultrasounds. The abstract does not say whether or not all of the 103 mothers had had ultrasounds or not. J Pediatr Orthop 1999 Jan-Feb;19(1):11-3 Prenatal ultrasound diagnosis of clubfoot. Burgan HE, Furness ME, BK. Women's and Children's Hospital, Adelaide, South Australia. Prenatal ultrasound diagnosis of clubfoot is increasing. Of 103 patients with clubfoot diagnosed at birth, 26 (25.2%) positive prenatal scans were identified with the earliest diagnosis being made at 15 weeks. A questionnaire assessment indicated that 17 (65.4%) deemed that the explanation of the baby's condition was clear. With an increasing incidence of antenatal detection, it is suggested that parents require adequate antenatal counseling by a specialist in the area of clubfoot to improve the understanding of the natural history and treatment of this condition. PMID: 9890279 [PubMed - indexed for MEDLINE] and (3-17-99) http://www.vh.org/pediatric/patient/orthopaedics/clubfeet/egbert.html > A girl that I have been speaking to who lives in the next town over from > mine was told that the child she is carrying has clubfoot. She isn't due > until March. Yesterday, she told me that when she had another ultrasound > they said it was definitely clubfoot but it wasn't that bad. Can the level > of severity be told through ultrasound? Is there a such thing as telling > how bad it is or is it that you either have clubfoot or you don't? > Obviously, I am aware of atypical clubfoot but that is not diagnosed until > after birth correct? > > > > > > Mommy to (12-17-98) and > > Christian (1-30-04) LCF - DBB 23/7 > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2004 Report Share Posted December 13, 2004 I don't think they can tell the degree of it from the U/S. When they told me (at 20 week u/s) that was going to have clubfoot, they said it may not be that severe and that it may even correct itself before birth. Which I honestly don't see how that can be possible. Anyway, they had no idea how severe it was and I had several u/s's because I was so worried about it. It turned out that she had a more severe case than the norm. Shook Retail Operations Manager/Baking Instructor Vie de France Yamazaki, Inc. 2070 Chain Bridge Rd. Suite 500 Vienna, VA 22182 x374 x374 fax Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2004 Report Share Posted December 13, 2004 My understanding is that they can diagnose the clubbing but the severerity can't be told until the bundle of joy is here. That is what my ortho told me. He saw the u/s picts and said, yup that is clubbbed feet, don't know how bad it is till he is here. Gerace cgerace@...> wrote:A girl that I have been speaking to who lives in the next town over from mine was told that the child she is carrying has clubfoot. She isn't due until March. Yesterday, she told me that when she had another ultrasound they said it was definitely clubfoot but it wasn't that bad. Can the level of severity be told through ultrasound? Is there a such thing as telling how bad it is or is it that you either have clubfoot or you don't? Obviously, I am aware of atypical clubfoot but that is not diagnosed until after birth correct? Mommy to (12-17-98) and Christian (1-30-04) LCF - DBB 23/7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2004 Report Share Posted December 14, 2004 I was told by both my OBG & Specialist that the severity could not be diagnosed until after the baby was born. I was seeing a specialist for 2 mo. because they thought my cervix was funneling - thank god it wasn't but I had several 3D sonograms to be sure - They still couldn't tell how bad his feet were. In fact, they guessed it was probably a severe case but after he got here he wasn't as bad as they originally thought. Those little guys can get into so many different positions & are so flexible I think it's really hard to determine. Gerace cgerace@...> wrote:A girl that I have been speaking to who lives in the next town over from mine was told that the child she is carrying has clubfoot. She isn't due until March. Yesterday, she told me that when she had another ultrasound they said it was definitely clubfoot but it wasn't that bad. Can the level of severity be told through ultrasound? Is there a such thing as telling how bad it is or is it that you either have clubfoot or you don't? Obviously, I am aware of atypical clubfoot but that is not diagnosed until after birth correct? Mommy to (12-17-98) and Christian (1-30-04) LCF - DBB 23/7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2004 Report Share Posted December 15, 2004 Hi there I was told at my 14 week U.S. that my son has bcf and they told me that there was no way of telling how bad it was but that we would have to wait untill he was born to find that out. Jen and 07-11-04 bcf 16\7 clubfoot via ultrasound question A girl that I have been speaking to who lives in the next town over from mine was told that the child she is carrying has clubfoot. She isn't due until March. Yesterday, she told me that when she had another ultrasound they said it was definitely clubfoot but it wasn't that bad. Can the level of severity be told through ultrasound? Is there a such thing as telling how bad it is or is it that you either have clubfoot or you don't? Obviously, I am aware of atypical clubfoot but that is not diagnosed until after birth correct? Mommy to (12-17-98) and Christian (1-30-04) LCF - DBB 23/7 Quote Link to comment Share on other sites More sharing options...
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