Guest guest Posted November 27, 2004 Report Share Posted November 27, 2004 Jayme, Good luck with your Dr's appt. Although the no sleeping may not change, your baby shouldn't hate the DBB. After a few days, it shouldn't be an issue anymore. Also, you really need to do the 23/7 for the bar. In the first 3 months, you have to be really dilligent about keeping the bar on. Otherwise, their feet start to turn back and then putting the DBB on will be uncomfortable and she will cry. After you get through the first three months and start cutting hours, it really does get easier. Also, I had the same problem with Rose and breastfeeding. The nurses said she was " practicing " in the womb and she sucked her lower lip. She just never got the hang of it so I started pumping. When she was just over a month old, I said enough is enough and switched to formula. My husband thought I was copping out but let me make the decision. There are not enough hours in the day to pump and feed separately, especially if you have another child. I don't want to start a war over breastfeeding vs bottlefeeding, but there is a lot to be said for pouring the formula into a bottle and into your baby. I didn't use the powder stuff, I bought the condensed liquid and really liked it. Rose did just great on formula. There are those babies that latch on with very little problem and do really well but there are others that just dont' have the skills or patience for the breast. Best of luck, Robin & Rose 3/12/03 Right club foot jayme nelson jayme@...> wrote: Hi everyone. I want to thank you for all of your wonderful information. My 2 month old Ava hates her DBB, which we just got. We aren't sleeping much, and I feel like the meanest mommy in the whole wide world. Her feet slip out of them almost every night, and it is frustrating. I am still trying to pump for her (nursing didn't work well with her- we ended up in the hospital for failure to thrive for 6 days when she was just 2 weeks old). Between pumping, bottling, bracing, stretching, and trying to assure my 4 year-old that I still love her just the same, I am drained! It is so nice to hear others are going through similar situations. I'm not sure our DBB is set correctly. No one has looked at it and her feet just seem way too close together. Also, the bar clamps onto the shoes, and sometimes the shoes fall off the bar. I see there are holes in the bottom of the shoes, which should probably be utilized right now (from pics I've seen on the web). I have enjoyed reading about the Ponseti Method. I guess I have been in denial this whole time since my family doctor told me from day 1 that she did not have club foot, but the orthopedic disagreed. I felt stuck in the middle, so I just assumed it was positioning. (It was obvious something was wrong upon delivery when everyone in the room got quiet and I asked, " What's wrong with my baby? " ) But after 4 weeks of casting, and finally looking for support out here on the web I am now convinced that she definitely has bilateral clubfoot. Her feet looked just like those in the pictures on many websites I visited. I can't wait for Monday when we have our next doctor's visit because I am so much more educated now and I feel confident to have a list of questions to force him to answer (he doesn't spend much time talking with his patients). Thanks so much for all of your help. I better get back to holding her. That seems to be the only way she is comforted when she has the braces on. Does nights and naptimes sound like enough to all of you, after having just finished with casting? From my research, I see 23 hours is recommended. Hmmm. So many questions! Thanks, Jayme Independent Sales Director for the Pampered Chef fullnelson@...> fullnelson@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2004 Report Share Posted November 27, 2004 What a long night! I really think these DBB's are set wrong. Has anyone heard of using a clamp to clamp the shoes? It seems like there should be a bar to screw into the bottom. Also, I think her feet are much too close together. Why is my doctor telling me that I only need the DBB during naps and bedtimes and only shoes in between? How do I tactfully ask about this? How can I be SURE these are set right? Ava woke up every 20-30 minutes SCREAMING! I finally took them off at 4 this morning, to check for blisters, but didn't see much. Her heels were a little red. Is this normal? I left them off until 7:00 and they were still a little red. Is there a way to find out if my doctor is even qualified to treat this? I am in Sioux Falls, SD and he comes highly recommended as an Orthopedic Doctor. Thanks, Jayme Independent Sales Director for the Pampered Chef fullnelson@...> fullnelson@... Re: New to DBB Jayme, Good luck with your Dr's appt. Although the no sleeping may not change, your baby shouldn't hate the DBB. After a few days, it shouldn't be an issue anymore. Also, you really need to do the 23/7 for the bar. In the first 3 months, you have to be really dilligent about keeping the bar on. Otherwise, their feet start to turn back and then putting the DBB on will be uncomfortable and she will cry. After you get through the first three months and start cutting hours, it really does get easier. Also, I had the same problem with Rose and breastfeeding. The nurses said she was " practicing " in the womb and she sucked her lower lip. She just never got the hang of it so I started pumping. When she was just over a month old, I said enough is enough and switched to formula. My husband thought I was copping out but let me make the decision. There are not enough hours in the day to pump and feed separately, especially if you have another child. I don't want to start a war over breastfeeding vs bottlefeeding, but there is a lot to be said for pouring the formula into a bottle and into your baby. I didn't use the powder stuff, I bought the condensed liquid and really liked it. Rose did just great on formula. There are those babies that latch on with very little problem and do really well but there are others that just dont' have the skills or patience for the breast. Best of luck, Robin & Rose 3/12/03 Right club foot jayme nelson jayme@...> wrote: Hi everyone. I want to thank you for all of your wonderful information. My 2 month old Ava hates her DBB, which we just got. We aren't sleeping much, and I feel like the meanest mommy in the whole wide world. Her feet slip out of them almost every night, and it is frustrating. I am still trying to pump for her (nursing didn't work well with her- we ended up in the hospital for failure to thrive for 6 days when she was just 2 weeks old). Between pumping, bottling, bracing, stretching, and trying to assure my 4 year-old that I still love her just the same, I am drained! It is so nice to hear others are going through similar situations. I'm not sure our DBB is set correctly. No one has looked at it and her feet just seem way too close together. Also, the bar clamps onto the shoes, and sometimes the shoes fall off the bar. I see there are holes in the bottom of the shoes, which should probably be utilized right now (from pics I've seen on the web). I have enjoyed reading about the Ponseti Method. I guess I have been in denial this whole time since my family doctor told me from day 1 that she did not have club foot, but the orthopedic disagreed. I felt stuck in the middle, so I just assumed it was positioning. (It was obvious something was wrong upon delivery when everyone in the room got quiet and I asked, " What's wrong with my baby? " ) But after 4 weeks of casting, and finally looking for support out here on the web I am now convinced that she definitely has bilateral clubfoot. Her feet looked just like those in the pictures on many websites I visited. I can't wait for Monday when we have our next doctor's visit because I am so much more educated now and I feel confident to have a list of questions to force him to answer (he doesn't spend much time talking with his patients). Thanks so much for all of your help. I better get back to holding her. That seems to be the only way she is comforted when she has the braces on. Does nights and naptimes sound like enough to all of you, after having just finished with casting? From my research, I see 23 hours is recommended. Hmmm. So many questions! Thanks, Jayme Independent Sales Director for the Pampered Chef fullnelson@...> fullnelson@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2004 Report Share Posted November 27, 2004 I tried the pumping because a) I wanted an emergency ration in the freezer lest I got sick and needed meds he couldn't have, and because hubby wanted to be able to take Everett out once in a while, or let me go some place baby-less so he'd have breast milk to drink, but the whole thing was such a pain in the hiney. I couldn't get my milk to let down unless I was nursing at the same time on the other breast, so holding him and a pump was really cumbersome, I spilled more milk than i saved. Then it never failed, either my husband or my other son wanted to come " watch " ....stand around visiting and that made me so uncomfortable (embarassed?) my milk would freeze up. Nursing was OK, but pumping in front of an audience all I could think of was " Mooo, I'm a cow. " Then any time I gave Everett a bottle instead of breast he would totally resist the breast for a few days afterwards, this major battle to get him back nursing....Ugh. I threw the bottles away and the pump turned in to his sleepy machine that would hum and vibrate him to bed. Life and feeding really smoothed out after that and if we wanted to go seperate directions we just timed it out so Everett didn't need to nurse. The time goes by so fast, pretty soon he was on solids and sippy cups so 'Dad can take him when ever he wants to. s. Jayme, Also, I had the same problem with Rose and breastfeeding. The nurses said she was " practicing " in the womb and she sucked her lower lip. She just never got the hang of it so I started pumping. When she was just over a month old, I said enough is enough and switched to formula. My husband thought I was copping out but let me make the decision. There are not enough hours in the day to pump and feed separately, especially if you have another child. I don't want to start a war over breastfeeding vs bottlefeeding, but there is a lot to be said for pouring the formula into a bottle and into your baby. I didn't use the powder stuff, I bought the condensed liquid and really liked it. Rose did just great on formula. There are those babies that latch on with very little problem and do really well but there are others that just dont' have the skills or patience for the breast. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2004 Report Share Posted November 27, 2004 Sounds like you have trouble in the wings Jayme....how long has your baby been in the DBB? How far apart are the feet set? At what degree of angle? There are a lot of factors to consider here. Try to tell us more and we can try to help you get it figured out, OK? Typically the baby should begin wearing the DBB 23 hours a day 7 days a week for the first 3 months, and the feet (heels) should be set shoulder-width apart and the toes turned out 70 degrees. There are variations to some of this depending on certain cases, but always shoulder-width. Too narrow or too wide often causes a lot of discomfort. s. What a long night! I really think these DBB's are set wrong. Has anyone heard of using a clamp to clamp the shoes? It seems like there should be a bar to screw into the bottom. Also, I think her feet are much too close together. Why is my doctor telling me that I only need the DBB during naps and bedtimes and only shoes in between? How do I tactfully ask about this? How can I be SURE these are set right? Ava woke up every 20-30 minutes SCREAMING! I finally took them off at 4 this morning, to check for blisters, but didn't see much. Her heels were a little red. Is this normal? I left them off until 7:00 and they were still a little red. Is there a way to find out if my doctor is even qualified to treat this? I am in Sioux Falls, SD and he comes highly recommended as an Orthopedic Doctor. Thanks, Jayme Independent Sales Director for the Pampered Chef fullnelson@...> fullnelson@... Re: New to DBB Jayme, Good luck with your Dr's appt. Although the no sleeping may not change, your baby shouldn't hate the DBB. After a few days, it shouldn't be an issue anymore. Also, you really need to do the 23/7 for the bar. In the first 3 months, you have to be really dilligent about keeping the bar on. Otherwise, their feet start to turn back and then putting the DBB on will be uncomfortable and she will cry. After you get through the first three months and start cutting hours, it really does get easier. Also, I had the same problem with Rose and breastfeeding. The nurses said she was " practicing " in the womb and she sucked her lower lip. She just never got the hang of it so I started pumping. When she was just over a month old, I said enough is enough and switched to formula. My husband thought I was copping out but let me make the decision. There are not enough hours in the day to pump and feed separately, especially if you have another child. I don't want to start a war over breastfeeding vs bottlefeeding, but there is a lot to be said for pouring the formula into a bottle and into your baby. I didn't use the powder stuff, I bought the condensed liquid and really liked it. Rose did just great on formula. There are those babies that latch on with very little problem and do really well but there are others that just dont' have the skills or patience for the breast. Best of luck, Robin & Rose 3/12/03 Right club foot jayme nelson jayme@...> wrote: Hi everyone. I want to thank you for all of your wonderful information. My 2 month old Ava hates her DBB, which we just got. We aren't sleeping much, and I feel like the meanest mommy in the whole wide world. Her feet slip out of them almost every night, and it is frustrating. I am still trying to pump for her (nursing didn't work well with her- we ended up in the hospital for failure to thrive for 6 days when she was just 2 weeks old). Between pumping, bottling, bracing, stretching, and trying to assure my 4 year-old that I still love her just the same, I am drained! It is so nice to hear others are going through similar situations. I'm not sure our DBB is set correctly. No one has looked at it and her feet just seem way too close together. Also, the bar clamps onto the shoes, and sometimes the shoes fall off the bar. I see there are holes in the bottom of the shoes, which should probably be utilized right now (from pics I've seen on the web). I have enjoyed reading about the Ponseti Method. I guess I have been in denial this whole time since my family doctor told me from day 1 that she did not have club foot, but the orthopedic disagreed. I felt stuck in the middle, so I just assumed it was positioning. (It was obvious something was wrong upon delivery when everyone in the room got quiet and I asked, " What's wrong with my baby? " ) But after 4 weeks of casting, and finally looking for support out here on the web I am now convinced that she definitely has bilateral clubfoot. Her feet looked just like those in the pictures on many websites I visited. I can't wait for Monday when we have our next doctor's visit because I am so much more educated now and I feel confident to have a list of questions to force him to answer (he doesn't spend much time talking with his patients). Thanks so much for all of your help. I better get back to holding her. That seems to be the only way she is comforted when she has the braces on. Does nights and naptimes sound like enough to all of you, after having just finished with casting? From my research, I see 23 hours is recommended. Hmmm. So many questions! Thanks, Jayme Independent Sales Director for the Pampered Chef fullnelson@...> fullnelson@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2004 Report Share Posted November 27, 2004 Her heels are 3 inches apart in the brace. Her shoulders are farther than that! I am afraid her little legs are going to break, or her hips will be injured. Should I just leave her out of the bar until Monday? I tried calling the hospital in Iowa City where Ponseti is and they said to call back on Monday morning. So, hopefully I can find a doctor who will stick with this method or I will drive to Iowa City, fortunately it is only 400 miles away. Thanks everyone! Jayme Independent Sales Director for the Pampered Chef fullnelson@...> fullnelson@... Re: New to DBB Jayme, Good luck with your Dr's appt. Although the no sleeping may not change, your baby shouldn't hate the DBB. After a few days, it shouldn't be an issue anymore. Also, you really need to do the 23/7 for the bar. In the first 3 months, you have to be really dilligent about keeping the bar on. Otherwise, their feet start to turn back and then putting the DBB on will be uncomfortable and she will cry. After you get through the first three months and start cutting hours, it really does get easier. Also, I had the same problem with Rose and breastfeeding. The nurses said she was " practicing " in the womb and she sucked her lower lip. She just never got the hang of it so I started pumping. When she was just over a month old, I said enough is enough and switched to formula. My husband thought I was copping out but let me make the decision. There are not enough hours in the day to pump and feed separately, especially if you have another child. I don't want to start a war over breastfeeding vs bottlefeeding, but there is a lot to be said for pouring the formula into a bottle and into your baby. I didn't use the powder stuff, I bought the condensed liquid and really liked it. Rose did just great on formula. There are those babies that latch on with very little problem and do really well but there are others that just dont' have the skills or patience for the breast. Best of luck, Robin & Rose 3/12/03 Right club foot jayme nelson jayme@...> wrote: Hi everyone. I want to thank you for all of your wonderful information. My 2 month old Ava hates her DBB, which we just got. We aren't sleeping much, and I feel like the meanest mommy in the whole wide world. Her feet slip out of them almost every night, and it is frustrating. I am still trying to pump for her (nursing didn't work well with her- we ended up in the hospital for failure to thrive for 6 days when she was just 2 weeks old). Between pumping, bottling, bracing, stretching, and trying to assure my 4 year-old that I still love her just the same, I am drained! It is so nice to hear others are going through similar situations. I'm not sure our DBB is set correctly. No one has looked at it and her feet just seem way too close together. Also, the bar clamps onto the shoes, and sometimes the shoes fall off the bar. I see there are holes in the bottom of the shoes, which should probably be utilized right now (from pics I've seen on the web). I have enjoyed reading about the Ponseti Method. I guess I have been in denial this whole time since my family doctor told me from day 1 that she did not have club foot, but the orthopedic disagreed. I felt stuck in the middle, so I just assumed it was positioning. (It was obvious something was wrong upon delivery when everyone in the room got quiet and I asked, " What's wrong with my baby? " ) But after 4 weeks of casting, and finally looking for support out here on the web I am now convinced that she definitely has bilateral clubfoot. Her feet looked just like those in the pictures on many websites I visited. I can't wait for Monday when we have our next doctor's visit because I am so much more educated now and I feel confident to have a list of questions to force him to answer (he doesn't spend much time talking with his patients). Thanks so much for all of your help. I better get back to holding her. That seems to be the only way she is comforted when she has the braces on. Does nights and naptimes sound like enough to all of you, after having just finished with casting? From my research, I see 23 hours is recommended. Hmmm. So many questions! Thanks, Jayme Independent Sales Director for the Pampered Chef fullnelson@...> fullnelson@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2004 Report Share Posted November 27, 2004 Jayme-- Good luck! You are doing a fantastic job of finding out as much as you can about your daughter's condition. From what you have told us, it does sound like there is something fishy about your daughter's treatment. Was she casted before she was put into the DBB/FAB? If so, how many casts and were they above or below the knee? Did she have the Achilles tenotomy procedure? How do her feet look now compared to when she was born? Typically, a corrected foot looks pretty much like a normal foot, with some extra skin at the ankle. In the Ponseti method, the foot usually looks overcorrected for quite some time. So my 17 month old son, for instance, walks with his feet pointing away from each other like they are while he is in his DBB/FAB instead of pointing straight ahead as mine do. Many families on this board have traveled from all over the US and the world to be treated in Iowa. If you do end up taking your daughter there, they will be able to give you tips about where to stay and so on. I don't know of anyone who has regretting making the trip to see Dr Ponseti. This group is truely amazing--not just for the scope and breadth of its experience, but also for its compassion. Welcome! Please keep us posted. Naomi The Family Naomi Hannah(02/21/01) Jonah(06/20/03, bilateral clubfoot, FAB 14/7) jayme nelson jayme@...> wrote: Her heels are 3 inches apart in the brace. Her shoulders are farther than that! I am afraid her little legs are going to break, or her hips will be injured. Should I just leave her out of the bar until Monday? I tried calling the hospital in Iowa City where Ponseti is and they said to call back on Monday morning. So, hopefully I can find a doctor who will stick with this method or I will drive to Iowa City, fortunately it is only 400 miles away. Thanks everyone! Jayme Independent Sales Director for the Pampered Chef fullnelson@...> fullnelson@... Re: New to DBB Jayme, Good luck with your Dr's appt. Although the no sleeping may not change, your baby shouldn't hate the DBB. After a few days, it shouldn't be an issue anymore. Also, you really need to do the 23/7 for the bar. In the first 3 months, you have to be really dilligent about keeping the bar on. Otherwise, their feet start to turn back and then putting the DBB on will be uncomfortable and she will cry. After you get through the first three months and start cutting hours, it really does get easier. Also, I had the same problem with Rose and breastfeeding. The nurses said she was " practicing " in the womb and she sucked her lower lip. She just never got the hang of it so I started pumping. When she was just over a month old, I said enough is enough and switched to formula. My husband thought I was copping out but let me make the decision. There are not enough hours in the day to pump and feed separately, especially if you have another child. I don't want to start a war over breastfeeding vs bottlefeeding, but there is a lot to be said for pouring the formula into a bottle and into your baby. I didn't use the powder stuff, I bought the condensed liquid and really liked it. Rose did just great on formula. There are those babies that latch on with very little problem and do really well but there are others that just dont' have the skills or patience for the breast. Best of luck, Robin & Rose 3/12/03 Right club foot jayme nelson jayme@...> wrote: Hi everyone. I want to thank you for all of your wonderful information. My 2 month old Ava hates her DBB, which we just got. We aren't sleeping much, and I feel like the meanest mommy in the whole wide world. Her feet slip out of them almost every night, and it is frustrating. I am still trying to pump for her (nursing didn't work well with her- we ended up in the hospital for failure to thrive for 6 days when she was just 2 weeks old). Between pumping, bottling, bracing, stretching, and trying to assure my 4 year-old that I still love her just the same, I am drained! It is so nice to hear others are going through similar situations. I'm not sure our DBB is set correctly. No one has looked at it and her feet just seem way too close together. Also, the bar clamps onto the shoes, and sometimes the shoes fall off the bar. I see there are holes in the bottom of the shoes, which should probably be utilized right now (from pics I've seen on the web). I have enjoyed reading about the Ponseti Method. I guess I have been in denial this whole time since my family doctor told me from day 1 that she did not have club foot, but the orthopedic disagreed. I felt stuck in the middle, so I just assumed it was positioning. (It was obvious something was wrong upon delivery when everyone in the room got quiet and I asked, " What's wrong with my baby? " ) But after 4 weeks of casting, and finally looking for support out here on the web I am now convinced that she definitely has bilateral clubfoot. Her feet looked just like those in the pictures on many websites I visited. I can't wait for Monday when we have our next doctor's visit because I am so much more educated now and I feel confident to have a list of questions to force him to answer (he doesn't spend much time talking with his patients). Thanks so much for all of your help. I better get back to holding her. That seems to be the only way she is comforted when she has the braces on. Does nights and naptimes sound like enough to all of you, after having just finished with casting? From my research, I see 23 hours is recommended. Hmmm. So many questions! Thanks, Jayme Independent Sales Director for the Pampered Chef fullnelson@...> fullnelson@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2004 Report Share Posted November 27, 2004 Hi Jayme, I would RUN to Dr. Ponseti if I were you...3 inches apart...no wonder she is fussy. Do not feel too badly, you would have no way of knowing this as of course you trust your doctor, he is supposed to be " the expert " . If it were me, I would leave the brace off and schedule an appointment with Dr. P as soon as possible! You are relatively close, the drive will be so worth it!!! Your little Ava will receive the absolute best care out there for Club foot! Good luck and please keep us posted! & Grace Unilateral RCF (treated by serial casting *Ponseti method* in the Dennis Browne brace 23/7 - hours to be reduced to 16 on Dec. 7th) > > Hi everyone. > > I want to thank you for all of your wonderful information. My 2 month > old Ava hates her DBB, which we just got. We aren't sleeping much, and > I feel like the meanest mommy in the whole wide world. Her feet slip > out of them almost every night, and it is frustrating. > > I am still trying to pump for her (nursing didn't work well with her- we > ended up in the hospital for failure to thrive for 6 days when she was > just 2 weeks old). Between pumping, bottling, bracing, stretching, and > trying to assure my 4 year-old that I still love her just the same, I am > drained! It is so nice to hear others are going through similar > situations. > > I'm not sure our DBB is set correctly. No one has looked at it and her > feet just seem way too close together. Also, the bar clamps onto the > shoes, and sometimes the shoes fall off the bar. I see there are holes > in the bottom of the shoes, which should probably be utilized right now > (from pics I've seen on the web). I have enjoyed reading about the > Ponseti Method. I guess I have been in denial this whole time since my > family doctor told me from day 1 that she did not have club foot, but > the orthopedic disagreed. I felt stuck in the middle, so I just assumed > it was positioning. (It was obvious something was wrong upon delivery > when everyone in the room got quiet and I asked, " What's wrong with my > baby? " ) But after 4 weeks of casting, and finally looking for support > out here on the web I am now convinced that she definitely has bilateral > clubfoot. Her feet looked just like those in the pictures on many > websites I visited. I can't wait for Monday when we have our next > doctor's visit because I am so much more educated now and I feel > confident to have a list of questions to force him to answer (he doesn't > spend much time talking with his patients). > > Thanks so much for all of your help. I better get back to holding her. > That seems to be the only way she is comforted when she has the braces > on. Does nights and naptimes sound like enough to all of you, after > having just finished with casting? From my research, I see 23 hours is > recommended. Hmmm. > > So many questions! > > Thanks, > > Jayme > Independent Sales Director > for the Pampered Chef > fullnelson@s... > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2004 Report Share Posted November 27, 2004 Hi Jayme, The first doc saw also did the nighttime (didn't even do nap) with the DBB after 2 months of 23/7 and said to use the shoes the whole rest of the time --- this is not Ponseti protocol!! I found this out finally when was 10 months old. We had to go through the casting, a 2nd tenotomy and FT DBB wear again. Just recently Dr Herzenberg (whom sees now) included in a tutorial for a group of doctors and he even mentioned the use of the shoes without the bar. Said there is NOTHING in the shoes that does anything by themselves. The treatment is the DBB, not the shoes! With your mentioning of your doctor saying to use the shoes FT, I would highly recommend getting a second opinion. There are others on this board who can probably point you in the right direction to find a Ponseti qualified doc close to you. I don't have that info with me at the relatives house (here for the holidays). Good luck! Marilouise 9/9/03, LCF, DBB 12-16/24 Owen and 3/20/99 > > Hi everyone. > > I want to thank you for all of your wonderful information. My 2 month > old Ava hates her DBB, which we just got. We aren't sleeping much, and > I feel like the meanest mommy in the whole wide world. Her feet slip > out of them almost every night, and it is frustrating. > > I am still trying to pump for her (nursing didn't work well with her- we > ended up in the hospital for failure to thrive for 6 days when she was > just 2 weeks old). Between pumping, bottling, bracing, stretching, and > trying to assure my 4 year-old that I still love her just the same, I am > drained! It is so nice to hear others are going through similar > situations. > > I'm not sure our DBB is set correctly. No one has looked at it and her > feet just seem way too close together. Also, the bar clamps onto the > shoes, and sometimes the shoes fall off the bar. I see there are holes > in the bottom of the shoes, which should probably be utilized right now > (from pics I've seen on the web). I have enjoyed reading about the > Ponseti Method. I guess I have been in denial this whole time since my > family doctor told me from day 1 that she did not have club foot, but > the orthopedic disagreed. I felt stuck in the middle, so I just assumed > it was positioning. (It was obvious something was wrong upon delivery > when everyone in the room got quiet and I asked, " What's wrong with my > baby? " ) But after 4 weeks of casting, and finally looking for support > out here on the web I am now convinced that she definitely has bilateral > clubfoot. Her feet looked just like those in the pictures on many > websites I visited. I can't wait for Monday when we have our next > doctor's visit because I am so much more educated now and I feel > confident to have a list of questions to force him to answer (he doesn't > spend much time talking with his patients). > > Thanks so much for all of your help. I better get back to holding her. > That seems to be the only way she is comforted when she has the braces > on. Does nights and naptimes sound like enough to all of you, after > having just finished with casting? From my research, I see 23 hours is > recommended. Hmmm. > > So many questions! > > Thanks, > > Jayme > Independent Sales Director > for the Pampered Chef > fullnelson@s... > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2004 Report Share Posted November 27, 2004 Hi Jayme, The first doc saw also did the nighttime (didn't even do nap) with the DBB after 2 months of 23/7 and said to use the shoes the whole rest of the time --- this is not Ponseti protocol!! I found this out finally when was 10 months old. We had to go through the casting, a 2nd tenotomy and FT DBB wear again. Just recently Dr Herzenberg (whom sees now) included in a tutorial for a group of doctors and he even mentioned the use of the shoes without the bar. Said there is NOTHING in the shoes that does anything by themselves. The treatment is the DBB, not the shoes! With your mentioning of your doctor saying to use the shoes FT, I would highly recommend getting a second opinion. There are others on this board who can probably point you in the right direction to find a Ponseti qualified doc close to you. I don't have that info with me at the relatives house (here for the holidays). Good luck! Marilouise 9/9/03, LCF, DBB 12-16/24 Owen and 3/20/99 > > Hi everyone. > > I want to thank you for all of your wonderful information. My 2 month > old Ava hates her DBB, which we just got. We aren't sleeping much, and > I feel like the meanest mommy in the whole wide world. Her feet slip > out of them almost every night, and it is frustrating. > > I am still trying to pump for her (nursing didn't work well with her- we > ended up in the hospital for failure to thrive for 6 days when she was > just 2 weeks old). Between pumping, bottling, bracing, stretching, and > trying to assure my 4 year-old that I still love her just the same, I am > drained! It is so nice to hear others are going through similar > situations. > > I'm not sure our DBB is set correctly. No one has looked at it and her > feet just seem way too close together. Also, the bar clamps onto the > shoes, and sometimes the shoes fall off the bar. I see there are holes > in the bottom of the shoes, which should probably be utilized right now > (from pics I've seen on the web). I have enjoyed reading about the > Ponseti Method. I guess I have been in denial this whole time since my > family doctor told me from day 1 that she did not have club foot, but > the orthopedic disagreed. I felt stuck in the middle, so I just assumed > it was positioning. (It was obvious something was wrong upon delivery > when everyone in the room got quiet and I asked, " What's wrong with my > baby? " ) But after 4 weeks of casting, and finally looking for support > out here on the web I am now convinced that she definitely has bilateral > clubfoot. Her feet looked just like those in the pictures on many > websites I visited. I can't wait for Monday when we have our next > doctor's visit because I am so much more educated now and I feel > confident to have a list of questions to force him to answer (he doesn't > spend much time talking with his patients). > > Thanks so much for all of your help. I better get back to holding her. > That seems to be the only way she is comforted when she has the braces > on. Does nights and naptimes sound like enough to all of you, after > having just finished with casting? From my research, I see 23 hours is > recommended. Hmmm. > > So many questions! > > Thanks, > > Jayme > Independent Sales Director > for the Pampered Chef > fullnelson@s... > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2004 Report Share Posted November 27, 2004 Thanks for your nice words! She had 4 sets of casts, above the knee. One of them had to be removed the night they put it on. I was home alone (with my 3 ½ year old) and Ava wouldn’t stop screaming- 8 hours) I soaked them off and she was fine. We went in the next day for a new set and she was fine after that. Then I went in and the doctor said she was fixed and he told me to come back in a month. He told me she had to wear the bar with shoes at bed and naps, and left the room. The nurse handed me the bar and sent me to stride rite to get the shoes. No inspection ever- and I am no expert. But fortunately it got me looking on-line: everything happens for a reason! I was just told to go 4 days with the shoes on for 2 hours and then off for 2 hours, and after that to start with the bar. She kicks her heels out of the bar, I suspect because her feet aren’t ready for this device yet from what I am reading. Her feet don’t look ‘normal’. They look better, but not normal. One is worse than the other and if I hold her up with her feet below her (like a standing position) then she stands on the side/top of the one foot. They move easy enough which is what my orthopedic was referring me to. When my family doctor referred me to this orthopedic doctor, he warned me about his abruptness and very little discussion with the patients. He also said we don’t have a pediatric orthopedic doctor in the area- this is the closest thing to it. Her feet definitely don’t point out, they still tuck under. Thanks for the heart-felt welcome. You should all feel great about yourselves. Jayme Independent Sales Director for the Pampered Chef fullnelson@...> fullnelson@... Re: New to DBB Jayme, Good luck with your Dr's appt. Although the no sleeping may not change, your baby shouldn't hate the DBB. After a few days, it shouldn't be an issue anymore. Also, you really need to do the 23/7 for the bar. In the first 3 months, you have to be really dilligent about keeping the bar on. Otherwise, their feet start to turn back and then putting the DBB on will be uncomfortable and she will cry. After you get through the first three months and start cutting hours, it really does get easier. Also, I had the same problem with Rose and breastfeeding. The nurses said she was " practicing " in the womb and she sucked her lower lip. She just never got the hang of it so I started pumping. When she was just over a month old, I said enough is enough and switched to formula. My husband thought I was copping out but let me make the decision. There are not enough hours in the day to pump and feed separately, especially if you have another child. I don't want to start a war over breastfeeding vs bottlefeeding, but there is a lot to be said for pouring the formula into a bottle and into your baby. I didn't use the powder stuff, I bought the condensed liquid and really liked it. Rose did just great on formula. There are those babies that latch on with very little problem and do really well but there are others that just dont' have the skills or patience for the breast. Best of luck, Robin & Rose 3/12/03 Right club foot jayme nelson jayme@...> wrote: Hi everyone. I want to thank you for all of your wonderful information. My 2 month old Ava hates her DBB, which we just got. We aren't sleeping much, and I feel like the meanest mommy in the whole wide world. Her feet slip out of them almost every night, and it is frustrating. I am still trying to pump for her (nursing didn't work well with her- we ended up in the hospital for failure to thrive for 6 days when she was just 2 weeks old). Between pumping, bottling, bracing, stretching, and trying to assure my 4 year-old that I still love her just the same, I am drained! It is so nice to hear others are going through similar situations. I'm not sure our DBB is set correctly. No one has looked at it and her feet just seem way too close together. Also, the bar clamps onto the shoes, and sometimes the shoes fall off the bar. I see there are holes in the bottom of the shoes, which should probably be utilized right now (from pics I've seen on the web). I have enjoyed reading about the Ponseti Method. I guess I have been in denial this whole time since my family doctor told me from day 1 that she did not have club foot, but the orthopedic disagreed. I felt stuck in the middle, so I just assumed it was positioning. (It was obvious something was wrong upon delivery when everyone in the room got quiet and I asked, " What's wrong with my baby? " ) But after 4 weeks of casting, and finally looking for support out here on the web I am now convinced that she definitely has bilateral clubfoot. Her feet looked just like those in the pictures on many websites I visited. I can't wait for Monday when we have our next doctor's visit because I am so much more educated now and I feel confident to have a list of questions to force him to answer (he doesn't spend much time talking with his patients). Thanks so much for all of your help. I better get back to holding her. That seems to be the only way she is comforted when she has the braces on. Does nights and naptimes sound like enough to all of you, after having just finished with casting? From my research, I see 23 hours is recommended. Hmmm. So many questions! Thanks, Jayme Independent Sales Director for the Pampered Chef fullnelson@...> fullnelson@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2004 Report Share Posted November 27, 2004 If her feet are tucking under and she's standing on the sides/tops she's not corrected and no shoe in the world is going to help her. The DBB doesn't correct a foot, it maintains correction as she grows. Also, the four day so of wearing them off and on, she was losing correction (not that she had much by the sound of it).....honey just quit this guy and drive up to Iowa City.... you and your family can stay in the Mc House and if your other kid is in school, just take her school work with you and do it there. I'm not over simplifying it, we cn all help you over the hurdles here with the details, OK? Get your appointment in Iowa, get on the RMD house waiting list (they almost always have rooms and if not they usually do with in a day or two after yoru arrival), and rejoice in the comfort of knowing you're in the best hands possible. s. Re: New to DBB Jayme, Good luck with your Dr's appt. Although the no sleeping may not change, your baby shouldn't hate the DBB. After a few days, it shouldn't be an issue anymore. Also, you really need to do the 23/7 for the bar. In the first 3 months, you have to be really dilligent about keeping the bar on. Otherwise, their feet start to turn back and then putting the DBB on will be uncomfortable and she will cry. After you get through the first three months and start cutting hours, it really does get easier. Also, I had the same problem with Rose and breastfeeding. The nurses said she was " practicing " in the womb and she sucked her lower lip. She just never got the hang of it so I started pumping. When she was just over a month old, I said enough is enough and switched to formula. My husband thought I was copping out but let me make the decision. There are not enough hours in the day to pump and feed separately, especially if you have another child. I don't want to start a war over breastfeeding vs bottlefeeding, but there is a lot to be said for pouring the formula into a bottle and into your baby. I didn't use the powder stuff, I bought the condensed liquid and really liked it. Rose did just great on formula. There are those babies that latch on with very little problem and do really well but there are others that just dont' have the skills or patience for the breast. Best of luck, Robin & Rose 3/12/03 Right club foot jayme nelson jayme@...> wrote: Hi everyone. I want to thank you for all of your wonderful information. My 2 month old Ava hates her DBB, which we just got. We aren't sleeping much, and I feel like the meanest mommy in the whole wide world. Her feet slip out of them almost every night, and it is frustrating. I am still trying to pump for her (nursing didn't work well with her- we ended up in the hospital for failure to thrive for 6 days when she was just 2 weeks old). Between pumping, bottling, bracing, stretching, and trying to assure my 4 year-old that I still love her just the same, I am drained! It is so nice to hear others are going through similar situations. I'm not sure our DBB is set correctly. No one has looked at it and her feet just seem way too close together. Also, the bar clamps onto the shoes, and sometimes the shoes fall off the bar. I see there are holes in the bottom of the shoes, which should probably be utilized right now (from pics I've seen on the web). I have enjoyed reading about the Ponseti Method. I guess I have been in denial this whole time since my family doctor told me from day 1 that she did not have club foot, but the orthopedic disagreed. I felt stuck in the middle, so I just assumed it was positioning. (It was obvious something was wrong upon delivery when everyone in the room got quiet and I asked, " What's wrong with my baby? " ) But after 4 weeks of casting, and finally looking for support out here on the web I am now convinced that she definitely has bilateral clubfoot. Her feet looked just like those in the pictures on many websites I visited. I can't wait for Monday when we have our next doctor's visit because I am so much more educated now and I feel confident to have a list of questions to force him to answer (he doesn't spend much time talking with his patients). Thanks so much for all of your help. I better get back to holding her. That seems to be the only way she is comforted when she has the braces on. Does nights and naptimes sound like enough to all of you, after having just finished with casting? From my research, I see 23 hours is recommended. Hmmm. So many questions! Thanks, Jayme Independent Sales Director for the Pampered Chef fullnelson@...> fullnelson@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2004 Report Share Posted November 27, 2004 If her feet are tucking under and she's standing on the sides/tops she's not corrected and no shoe in the world is going to help her. The DBB doesn't correct a foot, it maintains correction as she grows. Also, the four day so of wearing them off and on, she was losing correction (not that she had much by the sound of it).....honey just quit this guy and drive up to Iowa City.... you and your family can stay in the Mc House and if your other kid is in school, just take her school work with you and do it there. I'm not over simplifying it, we cn all help you over the hurdles here with the details, OK? Get your appointment in Iowa, get on the RMD house waiting list (they almost always have rooms and if not they usually do with in a day or two after yoru arrival), and rejoice in the comfort of knowing you're in the best hands possible. s. Re: New to DBB Jayme, Good luck with your Dr's appt. Although the no sleeping may not change, your baby shouldn't hate the DBB. After a few days, it shouldn't be an issue anymore. Also, you really need to do the 23/7 for the bar. In the first 3 months, you have to be really dilligent about keeping the bar on. Otherwise, their feet start to turn back and then putting the DBB on will be uncomfortable and she will cry. After you get through the first three months and start cutting hours, it really does get easier. Also, I had the same problem with Rose and breastfeeding. The nurses said she was " practicing " in the womb and she sucked her lower lip. She just never got the hang of it so I started pumping. When she was just over a month old, I said enough is enough and switched to formula. My husband thought I was copping out but let me make the decision. There are not enough hours in the day to pump and feed separately, especially if you have another child. I don't want to start a war over breastfeeding vs bottlefeeding, but there is a lot to be said for pouring the formula into a bottle and into your baby. I didn't use the powder stuff, I bought the condensed liquid and really liked it. Rose did just great on formula. There are those babies that latch on with very little problem and do really well but there are others that just dont' have the skills or patience for the breast. Best of luck, Robin & Rose 3/12/03 Right club foot jayme nelson jayme@...> wrote: Hi everyone. I want to thank you for all of your wonderful information. My 2 month old Ava hates her DBB, which we just got. We aren't sleeping much, and I feel like the meanest mommy in the whole wide world. Her feet slip out of them almost every night, and it is frustrating. I am still trying to pump for her (nursing didn't work well with her- we ended up in the hospital for failure to thrive for 6 days when she was just 2 weeks old). Between pumping, bottling, bracing, stretching, and trying to assure my 4 year-old that I still love her just the same, I am drained! It is so nice to hear others are going through similar situations. I'm not sure our DBB is set correctly. No one has looked at it and her feet just seem way too close together. Also, the bar clamps onto the shoes, and sometimes the shoes fall off the bar. I see there are holes in the bottom of the shoes, which should probably be utilized right now (from pics I've seen on the web). I have enjoyed reading about the Ponseti Method. I guess I have been in denial this whole time since my family doctor told me from day 1 that she did not have club foot, but the orthopedic disagreed. I felt stuck in the middle, so I just assumed it was positioning. (It was obvious something was wrong upon delivery when everyone in the room got quiet and I asked, " What's wrong with my baby? " ) But after 4 weeks of casting, and finally looking for support out here on the web I am now convinced that she definitely has bilateral clubfoot. Her feet looked just like those in the pictures on many websites I visited. I can't wait for Monday when we have our next doctor's visit because I am so much more educated now and I feel confident to have a list of questions to force him to answer (he doesn't spend much time talking with his patients). Thanks so much for all of your help. I better get back to holding her. That seems to be the only way she is comforted when she has the braces on. Does nights and naptimes sound like enough to all of you, after having just finished with casting? From my research, I see 23 hours is recommended. Hmmm. So many questions! Thanks, Jayme Independent Sales Director for the Pampered Chef fullnelson@...> fullnelson@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2004 Report Share Posted November 28, 2004 Thanks! I will call Dr. P first thing in the morning. Thanks for your wonderful advice! I took Ava out of shoes and brace and I will wait for the EXPERTISE of a Ponseti doctor, perhaps Ponseti himself. :-) Does anyone know how insurance works? Do I need a referral from my family doctor? I have been printing all of your emails to show him if necessary. I know we aren’t medically trained, but I guarantee most of you mothers out there have more knowledge of the Ponseti method than most Orthopedic doctors out there ‘practicing’ it! I can’t say it enough: I am so thankful for you all! I am so glad we had so much pain with this bar—Not glad that my baby was in pain, but glad that it got me to do some research myself. I wish I would’ve done it sooner, but I’m glad she still quite young (2 ½ months). Thank you for making a difference! Jayme Independent Sales Director for the Pampered Chef fullnelson@...> fullnelson@... Re: New to DBB If her feet are tucking under and she's standing on the sides/tops she's not corrected and no shoe in the world is going to help her. The DBB doesn't correct a foot, it maintains correction as she grows. Also, the four day so of wearing them off and on, she was losing correction (not that she had much by the sound of it).....honey just quit this guy and drive up to Iowa City.... you and your family can stay in the Mc House and if your other kid is in school, just take her school work with you and do it there. I'm not over simplifying it, we cn all help you over the hurdles here with the details, OK? Get your appointment in Iowa, get on the RMD house waiting list (they almost always have rooms and if not they usually do with in a day or two after yoru arrival), and rejoice in the comfort of knowing you're in the best hands possible. s. Re: New to DBB Jayme, Good luck with your Dr's appt. Although the no sleeping may not change, your baby shouldn't hate the DBB. After a few days, it shouldn't be an issue anymore. Also, you really need to do the 23/7 for the bar. In the first 3 months, you have to be really dilligent about keeping the bar on. Otherwise, their feet start to turn back and then putting the DBB on will be uncomfortable and she will cry. After you get through the first three months and start cutting hours, it really does get easier. Also, I had the same problem with Rose and breastfeeding. The nurses said she was " practicing " in the womb and she sucked her lower lip. She just never got the hang of it so I started pumping. When she was just over a month old, I said enough is enough and switched to formula. My husband thought I was copping out but let me make the decision. There are not enough hours in the day to pump and feed separately, especially if you have another child. I don't want to start a war over breastfeeding vs bottlefeeding, but there is a lot to be said for pouring the formula into a bottle and into your baby. I didn't use the powder stuff, I bought the condensed liquid and really liked it. Rose did just great on formula. There are those babies that latch on with very little problem and do really well but there are others that just dont' have the skills or patience for the breast. Best of luck, Robin & Rose 3/12/03 Right club foot jayme nelson jayme@...> wrote: Hi everyone. I want to thank you for all of your wonderful information. My 2 month old Ava hates her DBB, which we just got. We aren't sleeping much, and I feel like the meanest mommy in the whole wide world. Her feet slip out of them almost every night, and it is frustrating. I am still trying to pump for her (nursing didn't work well with her- we ended up in the hospital for failure to thrive for 6 days when she was just 2 weeks old). Between pumping, bottling, bracing, stretching, and trying to assure my 4 year-old that I still love her just the same, I am drained! It is so nice to hear others are going through similar situations. I'm not sure our DBB is set correctly. No one has looked at it and her feet just seem way too close together. Also, the bar clamps onto the shoes, and sometimes the shoes fall off the bar. I see there are holes in the bottom of the shoes, which should probably be utilized right now (from pics I've seen on the web). I have enjoyed reading about the Ponseti Method. I guess I have been in denial this whole time since my family doctor told me from day 1 that she did not have club foot, but the orthopedic disagreed. I felt stuck in the middle, so I just assumed it was positioning. (It was obvious something was wrong upon delivery when everyone in the room got quiet and I asked, " What's wrong with my baby? " ) But after 4 weeks of casting, and finally looking for support out here on the web I am now convinced that she definitely has bilateral clubfoot. Her feet looked just like those in the pictures on many websites I visited. I can't wait for Monday when we have our next doctor's visit because I am so much more educated now and I feel confident to have a list of questions to force him to answer (he doesn't spend much time talking with his patients). Thanks so much for all of your help. I better get back to holding her. That seems to be the only way she is comforted when she has the braces on. Does nights and naptimes sound like enough to all of you, after having just finished with casting? From my research, I see 23 hours is recommended. Hmmm. So many questions! Thanks, Jayme Independent Sales Director for the Pampered Chef fullnelson@...> fullnelson@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2004 Report Share Posted November 28, 2004 Hi Jayme, Good for you!! You are going to be so happy you made this decision! You are right, Ava is still so young and she will be out of the casts (done correctly with the Ponseti method) and into her brace before you know it! There have been some threads recently regarding insurance, you can do a search at the top of the page if you would like. Be sure to let us know what Dr. Ponseti says when you call on Monday! I am very happy for you and your little girl, you will have this all sorted out in no time!! & Grace ) > > Hi everyone. > > I want to thank you for all of your wonderful information. My 2 month > old Ava hates her DBB, which we just got. We aren't sleeping much, and > I feel like the meanest mommy in the whole wide world. Her feet slip > out of them almost every night, and it is frustrating. > > I am still trying to pump for her (nursing didn't work well with her- we > ended up in the hospital for failure to thrive for 6 days when she was > just 2 weeks old). Between pumping, bottling, bracing, stretching, and > trying to assure my 4 year-old that I still love her just the same, I am > drained! It is so nice to hear others are going through similar > situations. > > I'm not sure our DBB is set correctly. No one has looked at it and her > feet just seem way too close together. Also, the bar clamps onto the > shoes, and sometimes the shoes fall off the bar. I see there are holes > in the bottom of the shoes, which should probably be utilized right now > (from pics I've seen on the web). I have enjoyed reading about the > Ponseti Method. I guess I have been in denial this whole time since my > family doctor told me from day 1 that she did not have club foot, but > the orthopedic disagreed. I felt stuck in the middle, so I just assumed > it was positioning. (It was obvious something was wrong upon delivery > when everyone in the room got quiet and I asked, " What's wrong with my > baby? " ) But after 4 weeks of casting, and finally looking for support > out here on the web I am now convinced that she definitely has bilateral > clubfoot. Her feet looked just like those in the pictures on many > websites I visited. I can't wait for Monday when we have our next > doctor's visit because I am so much more educated now and I feel > confident to have a list of questions to force him to answer (he doesn't > spend much time talking with his patients). > > Thanks so much for all of your help. I better get back to holding her. > That seems to be the only way she is comforted when she has the braces > on. Does nights and naptimes sound like enough to all of you, after > having just finished with casting? From my research, I see 23 hours is > recommended. Hmmm. > > So many questions! > > Thanks, > > Jayme > Independent Sales Director > for the Pampered Chef > fullnelson@s... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2004 Report Share Posted November 28, 2004 Jayme, All insurances treat these things differently so you will need to check with your specific insurance carrier. Some have specific guidelines for referrals and network physicians etc. Check you policy information and call to confirm benefits with your company. Be sure to keep track of who you speak to and what they tell you. This could be valuable later if they try to deny converage. It is always best to check you policy and check what it says in writing because that will always win out over what you are told on the phone. Good luck. Jenni jayme nelson wrote: >Thanks! I will call Dr. P first thing in the morning. Thanks for your >wonderful advice! > >I took Ava out of shoes and brace and I will wait for the EXPERTISE of a >Ponseti doctor, perhaps Ponseti himself. :-) Does anyone know how >insurance works? Do I need a referral from my family doctor? > >I have been printing all of your emails to show him if necessary. I >know we aren’t medically trained, but I guarantee most of you mothers >out there have more knowledge of the Ponseti method than most Orthopedic >doctors out there ‘practicing’ it! > >I can’t say it enough: I am so thankful for you all! I am so glad we >had so much pain with this bar—Not glad that my baby was in pain, but >glad that it got me to do some research myself. I wish I would’ve done >it sooner, but I’m glad she still quite young (2 ½ months). > >Thank you for making a difference! > >Jayme >Independent Sales Director >for the Pampered Chef > fullnelson@...> fullnelson@... > > > > > Re: New to DBB > >If her feet are tucking under and she's standing on the sides/tops she's >not corrected and no shoe in the world is going to help her. The DBB >doesn't correct a foot, it maintains correction as she grows. Also, the >four day so of wearing them off and on, she was losing correction (not >that she had much by the sound of it).....honey just quit this guy and >drive up to Iowa City.... you and your family can stay in the >Mc House and if your other kid is in school, just take her school >work with you and do it there. I'm not over simplifying it, we cn all >help you over the hurdles here with the details, OK? Get your >appointment in Iowa, get on the RMD house waiting list (they almost >always have rooms and if not they usually do with in a day or two after >yoru arrival), and rejoice in the comfort of knowing you're in the best >hands possible. >s. > > Re: New to DBB > >Jayme, > >Good luck with your Dr's appt. Although the no sleeping may not change, >your baby shouldn't hate the DBB. After a few days, it shouldn't be an >issue anymore. Also, you really need to do the 23/7 for the bar. In >the first 3 months, you have to be really dilligent about keeping the >bar on. Otherwise, their feet start to turn back and then putting the >DBB on will be uncomfortable and she will cry. After you get through >the first three months and start cutting hours, it really does get >easier. > >Also, I had the same problem with Rose and breastfeeding. The nurses >said she was " practicing " in the womb and she sucked her lower lip. She >just never got the hang of it so I started pumping. When she was just >over a month old, I said enough is enough and switched to formula. My >husband thought I was copping out but let me make the decision. There >are not enough hours in the day to pump and feed separately, especially >if you have another child. I don't want to start a war over >breastfeeding vs bottlefeeding, but there is a lot to be said for >pouring the formula into a bottle and into your baby. I didn't use the >powder stuff, I bought the condensed liquid and really liked it. Rose >did just great on formula. There are those babies that latch on with >very little problem and do really well but there are others that just >dont' have the skills or patience for the breast. > >Best of luck, > >Robin & Rose >3/12/03 >Right club foot > >jayme nelson jayme@...> wrote: > >Hi everyone. > >I want to thank you for all of your wonderful information. My 2 month >old Ava hates her DBB, which we just got. We aren't sleeping much, and >I feel like the meanest mommy in the whole wide world. Her feet slip >out of them almost every night, and it is frustrating. > >I am still trying to pump for her (nursing didn't work well with her- we >ended up in the hospital for failure to thrive for 6 days when she was >just 2 weeks old). Between pumping, bottling, bracing, stretching, and >trying to assure my 4 year-old that I still love her just the same, I am >drained! It is so nice to hear others are going through similar >situations. > >I'm not sure our DBB is set correctly. No one has looked at it and her >feet just seem way too close together. Also, the bar clamps onto the >shoes, and sometimes the shoes fall off the bar. I see there are holes >in the bottom of the shoes, which should probably be utilized right now >(from pics I've seen on the web). I have enjoyed reading about the >Ponseti Method. I guess I have been in denial this whole time since my >family doctor told me from day 1 that she did not have club foot, but >the orthopedic disagreed. I felt stuck in the middle, so I just assumed >it was positioning. (It was obvious something was wrong upon delivery >when everyone in the room got quiet and I asked, " What's wrong with my >baby? " ) But after 4 weeks of casting, and finally looking for support >out here on the web I am now convinced that she definitely has bilateral >clubfoot. Her feet looked just like those in the pictures on many >websites I visited. I can't wait for Monday when we have our next >doctor's visit because I am so much more educated now and I feel >confident to have a list of questions to force him to answer (he doesn't >spend much time talking with his patients). > >Thanks so much for all of your help. I better get back to holding her. >That seems to be the only way she is comforted when she has the braces >on. Does nights and naptimes sound like enough to all of you, after >having just finished with casting? From my research, I see 23 hours is >recommended. Hmmm. > >So many questions! > >Thanks, > >Jayme >Independent Sales Director >for the Pampered Chef >fullnelson@...> fullnelson@... > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2004 Report Share Posted November 29, 2004 Hi Jayme, Welcome to the group! You are right to feel that something is not right and the fact that her feet cannot be flat on the floor indicates she does have clubfeet. I am glad you are fairly close to Dr. Ponseti. I look forward to hearing about your discussion with his office. You have done well by going with your gut!! You are on the right track and hope we can help put your mind at ease! Louisa 6-27-99 Zoe 2-22-04 RCF FAB 16/7 > > Hi everyone. > > I want to thank you for all of your wonderful information. My 2 month > old Ava hates her DBB, which we just got. We aren't sleeping much, and > I feel like the meanest mommy in the whole wide world. Her feet slip > out of them almost every night, and it is frustrating. > > I am still trying to pump for her (nursing didn't work well with her- we > ended up in the hospital for failure to thrive for 6 days when she was > just 2 weeks old). Between pumping, bottling, bracing, stretching, and > trying to assure my 4 year-old that I still love her just the same, I am > drained! It is so nice to hear others are going through similar > situations. > > I'm not sure our DBB is set correctly. No one has looked at it and her > feet just seem way too close together. Also, the bar clamps onto the > shoes, and sometimes the shoes fall off the bar. I see there are holes > in the bottom of the shoes, which should probably be utilized right now > (from pics I've seen on the web). I have enjoyed reading about the > Ponseti Method. I guess I have been in denial this whole time since my > family doctor told me from day 1 that she did not have club foot, but > the orthopedic disagreed. I felt stuck in the middle, so I just assumed > it was positioning. (It was obvious something was wrong upon delivery > when everyone in the room got quiet and I asked, " What's wrong with my > baby? " ) But after 4 weeks of casting, and finally looking for support > out here on the web I am now convinced that she definitely has bilateral > clubfoot. Her feet looked just like those in the pictures on many > websites I visited. I can't wait for Monday when we have our next > doctor's visit because I am so much more educated now and I feel > confident to have a list of questions to force him to answer (he doesn't > spend much time talking with his patients). > > Thanks so much for all of your help. I better get back to holding her. > That seems to be the only way she is comforted when she has the braces > on. Does nights and naptimes sound like enough to all of you, after > having just finished with casting? From my research, I see 23 hours is > recommended. Hmmm. > > So many questions! > > Thanks, > > Jayme > Independent Sales Director > for the Pampered Chef > fullnelson@s... > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2004 Report Share Posted November 29, 2004 Hi Jayme! Okay, so now that makes THREE Ava's on this board with club feet!!! I'm starting to think we should spread the message not to name your child Ava! But it's such a darn cute name!!! Anyway, I was thinking that a 2 month old would probably only have a 6 inch bar. And if both feet are set at 70 degrees external rotation, then the heels would really only be about 3 inches or so apart. Don't you measure the width of the bar from the bolts? It really seems like there are plenty of other issues with Ava's treatment to justify a trip to Dr. P. though! Somebody let me know if I'm right please!!! :-) , Mommy of: Guinevere, on, and ANOTHER AVA!! 8/4/04 right CF DBB 23/7 (7 whole days & counting!!!) > > jayme nelson wrote: > > Her heels are 3 inches apart in the brace. Her shoulders are > farther > > than that! I am afraid her little legs are going to break, or her > hips > > will be injured. Should I just leave her out of the bar until > Monday? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2004 Report Share Posted November 29, 2004 Dr. Ponseti instructed me with the shoes that I measure from the center of the heel, not the external distance between heels. s. Hi Jayme! Okay, so now that makes THREE Ava's on this board with club feet!!! I'm starting to think we should spread the message not to name your child Ava! But it's such a darn cute name!!! Anyway, I was thinking that a 2 month old would probably only have a 6 inch bar. And if both feet are set at 70 degrees external rotation, then the heels would really only be about 3 inches or so apart. Don't you measure the width of the bar from the bolts? It really seems like there are plenty of other issues with Ava's treatment to justify a trip to Dr. P. though! Somebody let me know if I'm right please!!! :-) , Mommy of: Guinevere, on, and ANOTHER AVA!! 8/4/04 right CF DBB 23/7 (7 whole days & counting!!!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2004 Report Share Posted November 29, 2004 I don't have the s, I have the Markells. Does anybody know where you're supposed to measure on them? > Dr. Ponseti instructed me with the shoes that I measure from the center of the heel, not the external distance between heels. > s. > > Hi Jayme! > Okay, so now that makes THREE Ava's on this board with club feet!!! > I'm starting to think we should spread the message not to name your > child Ava! But it's such a darn cute name!!! > Anyway, I was thinking that a 2 month old would probably only have a > 6 inch bar. And if both feet are set at 70 degrees external > rotation, then the heels would really only be about 3 inches or so > apart. Don't you measure the width of the bar from the bolts? > It really seems like there are plenty of other issues with Ava's > treatment to justify a trip to Dr. P. though! Somebody let me know > if I'm right please!!! :-) > , Mommy of: > Guinevere, on, and ANOTHER AVA!! 8/4/04 right CF DBB 23/7 (7 > whole days & counting!!!) Quote Link to comment Share on other sites More sharing options...
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