Re: new parent,have questions,diet vs enzymes??

[Guest guest]

Welcome to the site!

I will let others answer your questions, I just wanted to say that we

do not flame here, so don't worry. We speak our mind, but respect

the opinions viewed as long as they don't hurt anyone. If anything,

this board supports and builds up and encourages one to find answers.

So, good luck, post a lot, and learn!

Devin

> hi,

> wow,what a find! this listserv has so much info, i am

overwhemlmed!

> i have a 3yr old girl, high functioning autism & severe apraxia of

> speech. thru testing we have found she is allergic to gluten,

casein,

> eggs & more, just starting to go cf & cut down on gluten. kirkman

has

> reccomended to use enzymes with the gfcf diet, does anyone have

> experience with not strictly enforcing the diet, but using enzymes

> instead? so far cutting down on gluten has been pretty

unsuccesfull,

> since she has not liked any subsitute foods,(like crackers, corn

> cereals etc.) are the enzymes in kirkman's complete with dpp IV

> without using the diet strictly? thanks for any info,please no

> flames, i truly would appreciate help in deciding what is the best

to

> try to help my little girl. we are supplementing with supernuthera

&

> have been doing aba with great results so far. thanks! annie's mom

[Guest guest]

Hi, I'm pretty new here too and just wanted to say that you're not

alone. My 3 year old son was just dx'd with PDD and has

language/speech problems, but with high intellectual abilities and

truly adores affection (so I guess he'd be mild? high functioning?

not sure of these labels yet). Point is, I've had him on a CF diet

with good results, I think, but have never managed to go truly GF and

gave up trying. We've been on enzymes for a week, and I can't tell

you yet how it's going to work out but so far so good. So don't feel

like a heel for not going strictly GFCF. I know that if I absolutely

had to, for his sake, I would find a way to do it. But I'm hoping

the enzymes do the trick. Good luck to you and stick around!

> hi,

> wow,what a find! this listserv has so much info, i am

overwhemlmed!

> i have a 3yr old girl, high functioning autism & severe apraxia of

> speech. thru testing we have found she is allergic to gluten,

casein,

> eggs & more, just starting to go cf & cut down on gluten. kirkman

has

> reccomended to use enzymes with the gfcf diet, does anyone have

> experience with not strictly enforcing the diet, but using enzymes

> instead? so far cutting down on gluten has been pretty

unsuccesfull,

> since she has not liked any subsitute foods,(like crackers, corn

> cereals etc.) are the enzymes in kirkman's complete with dpp IV

> without using the diet strictly? thanks for any info,please no

> flames, i truly would appreciate help in deciding what is the best

to

> try to help my little girl. we are supplementing with supernuthera

&

> have been doing aba with great results so far. thanks! annie's mom

[Guest guest]

From personal experience I can tell you that the gfcf diet didn't

work for us until strictly enforced. It was tough and my daughter

hated, hated, hated giving up her favorite foods and literally lived

on rice pasta with sauce and Gorilla munch cereal/rice milk for quite

awhile. The amazing thing is after awhile not only did she accept

substitutes for her favorite foods(She loves grilled Tofutti cheese

sandwiches and pbj on gfcf homemade bread) but she started trying new

foods she wouldn't touch before like hotdogs, waffles, etc. Now mind

you she'd still probably kill for a big bowl of mac and cheese LOL

but she generally likes her foods. Have you tried ordering from

places like Miss.Robens? We started trying enzymes just last week

after being completely gfcf since last summer and so far they have

helped with a couple of food infractions(thank you holidays!) so

we'll see. I would be thrilled beyond words if she could eventually

eat some of her old favorites. She loves Tofutti ice cream but I

would love to take her to an ice cream stand again!! Good luck.

Kathy

> hi,

> wow,what a find! this listserv has so much info, i am

overwhemlmed!

> i have a 3yr old girl, high functioning autism & severe apraxia of

> speech. thru testing we have found she is allergic to gluten,

casein,

> eggs & more, just starting to go cf & cut down on gluten. kirkman

has

> reccomended to use enzymes with the gfcf diet, does anyone have

> experience with not strictly enforcing the diet, but using enzymes

> instead? so far cutting down on gluten has been pretty

unsuccesfull,

> since she has not liked any subsitute foods,(like crackers, corn

> cereals etc.) are the enzymes in kirkman's complete with dpp IV

> without using the diet strictly? thanks for any info,please no

> flames, i truly would appreciate help in deciding what is the best

to

> try to help my little girl. we are supplementing with supernuthera

&

> have been doing aba with great results so far. thanks! annie's mom

[Guest guest]

> hi,

> wow,what a find! this listserv has so much info, i am overwhemlmed!

> i have a 3yr old girl, high functioning autism & severe apraxia of

> speech. thru testing we have found she is allergic to gluten,

casein,

> eggs & more, just starting to go cf & cut down on gluten. kirkman

has

> reccomended to use enzymes with the gfcf diet, does anyone have

> experience with not strictly enforcing the diet, but using enzymes

> instead?

I use enzymes from this site

http://www.houstonni.com/

My son can have casein now, plus many other foods he did not

tolerate before enzymes, but they do not help him with gluten or eggs,

or a few other foods. But some children enzymes help with all foods,

so you would have to see how the specific enzymes you choose, work

with your own child.

so far cutting down on gluten has been pretty

unsuccesfull,

> since she has not liked any subsitute foods,(like crackers, corn

> cereals etc.) are the enzymes in kirkman's complete with dpp IV

> without using the diet strictly?

I have heard conflicting information from Kirkman on whether those

enzymes are recommended for use without being at least mostly gfcf,

and using the enzymes only for infractions. So I would recommend you

either ask Kirkman what is their recommendation, or you can just use

them however you want, whether or not gfcf, and see if they help your

child.

> thanks for any info,please no

> flames,

If you want flames, I can give you urls of sites where if you even so

much as ASK a question that is not within the current philosophy, you

will receive major flames. However, THIS site is not one of those

sites. Welcome!

i truly would appreciate help in deciding what is the best

to

> try to help my little girl. we are supplementing with supernuthera &

> have been doing aba with great results so far. thanks! annie's mom

Congrats on your current great results!

Dana

[Guest guest]

> hi,

> wow,what a find! this listserv has so much info, i am

overwhemlmed!

> i have a 3yr old girl, high functioning autism & severe apraxia of

> speech. thru testing we have found she is allergic to gluten,

casein,

> eggs & more, just starting to go cf & cut down on gluten. kirkman

has

> reccomended to use enzymes with the gfcf diet, does anyone have

> experience with not strictly enforcing the diet, but using enzymes

> instead? so far cutting down on gluten has been pretty

unsuccesfull,

> since she has not liked any subsitute foods,(like crackers, corn

> cereals etc.) are the enzymes in kirkman's complete with dpp IV

> without using the diet strictly? thanks for any info,please no

> flames, i truly would appreciate help in deciding what is the best

to

> try to help my little girl. we are supplementing with supernuthera

&

> have been doing aba with great results so far. thanks! annie's mom

Hi Annie's Mom!

I will repeat what Devin said. I have belonged to this group for

almost three months (and lurked longer than that) and have never seen

any flaming. We support each other, whether you stay with the diet

or not. There is no judging. So welcome - and you are right, this

site was more info, and knowledgeable people than any others I belong

to.

My son NIcholas will be three in two days, and he is high functioning

as well. We started the GFCF diet when he was 1.10 and had great

results immediately. Unfortunately, we did not find he ever did

adjust well to the foods. We obeyed it to the letter (no

infringements) but he ended up eating nothing but french fries, GFCF

donuts/cookies (Kinnikinnick.com is the best GFCF foods), GFCF toast

with cinnamon/brn. sugar and bananas. I tried so many different

foods, but he never would eat them. I was very frustrated, so for

us, when I heard about the enzymes, I knew this would be the way to

go for us. We have been on the enzymes for almost three months, and

the results have been spectacular. We are able to " cheat " on the

diet, although we try to limit the amount of casein or gluten at one

sitting. Nick not only did not regress with the enzymes + no diet,

he improved even further. Some choose to stay with the diet and use

the enzymes only to " catch " any unknown peptides and this works well

for them. BY the way, we are on the Houston enzymes.

[Guest guest]

Hi, Annie's mom!

My son was gluten-free, casein-free, soy-free, corn-free, and dozens

of other stuff free for about a year before we started the enzymes

from Houston's. We did some planned infractions, then I slowly

started taking my son off the diet with the use of the enzymes with

all foods.

My son benefited from the diet, but he kept developing food

sensitivities and I feared we were running out of options other than

to try to just rotate some foods. At first, I started the enzymes

with all foods and just did some infractions. Not only did my son

not react to the infractions, but his behavior changed dramatically.

His teachers reported many improvements within two weeks of starting

the enzymes. The enzymes were obviously breaking down problem foods

I wasn't even aware were a problem.

My son has been off the diet for nearly eight months and is doing

well. He still stims at home, but all other areas have improved

significantly. You can read our story in the files section at this

site.

I can't give you much info about Kirkman's stand on the diet, because

it has changed a few times and some of the info. from them has been

conflicting, so I'm not sure what it is currently. I would check

their site and/or call them to get a definitive answer. Many of us

here, though, have had success with going off the diet with the

Houston enzymes if that is any comfort to you.

Hope this helps,

> hi,

> wow,what a find! this listserv has so much info, i am

overwhemlmed!

> i have a 3yr old girl, high functioning autism & severe apraxia of

> speech. thru testing we have found she is allergic to gluten,

casein,

> eggs & more, just starting to go cf & cut down on gluten. kirkman

has

> reccomended to use enzymes with the gfcf diet, does anyone have

> experience with not strictly enforcing the diet, but using enzymes

> instead? so far cutting down on gluten has been pretty

unsuccesfull,

> since she has not liked any subsitute foods,(like crackers, corn

> cereals etc.) are the enzymes in kirkman's complete with dpp IV

> without using the diet strictly? thanks for any info,please no

> flames, i truly would appreciate help in deciding what is the best

to

> try to help my little girl. we are supplementing with supernuthera

&

> have been doing aba with great results so far. thanks! annie's mom