Re: Re: treadmill testing

November 10, 2004

Wow, bug, I am impressed. Good for you. I totally agree on our need

for exercise, all the mito references I have seen say that. The trick,

of course, is for us each to figure out what is a good amount, and what

is too much. I can walk 2ish miles, but can't run to save my life!

Maybe I should up the ante and set the bar higher for myself.....

>

> Hi Steve, I can relate to what you're talking about. Sometimes I

> get this feeling if I'm dehydrated and sometimes it comes on by

> itself. I've learned to work around it. Obviously, you should

> discuss any exercise program with your doctors. However, I found

> that if I gradually increased my exercise (first outside because I

> was afraid I'd wipe out on the treadmill) over a few years time, I

> was able to get to the point I am now where I can actually jog 3-6

> miles several days per week. I walk an additional two days and rest

> one. I also was able to increase my strength in my arms by starting

> with canned foods and ultimately dumbells. All of the specialists

> and researchers incourage us to exercise. You might have to have

> supervised exercise with a therapist to start. This way they can

> monitor your progress and hopefully prevent you from crashing. It's

> essential that you get some sort of exercise to avoid losing the

> muscle you have. I've been able to gain some muscle and only have

> severe weakness when I get an infection or metabolic crash. I've by

> far increased my overall mobility. Hang in there and remember to

> keep your doctors informed about your condition !

>

> bug

>

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