Re: Wonders Never Cease(long) .

[Guest guest]

I am doing a dance for joy for you in my chair! I am thrilled for you. Way to

go Ava!

fabegirls fabegirls@...> wrote:

I just wanted to share some good news. My dh took Ava to see Dr.

Ponseti and called me after the appt. She did NOT need the second

tenotomy. Hooray!! When we were there in Sept. he felt she definitly

would need another but it was to soon then. He said come back in Dec.

and we'll do it then. Todays visit was great. He turned her feet in

to R 60, L 50 they were 70-60. She has only been in the s for

6wks 23/7, he said we could go down to 21/7 but wants her to stand

flat on them. She is only 6mnths. Thank God for the saucer. That is

about the only thing that she can stand in. He said her heels are

coming down and she is about 90% corrected but the key is to have her

bearing weight in and out of shoes and keeping the shoes as tight as

we have. She does get pressure sores across the top of her feet and

they don't go away when the shoes are off for the hour but Dr. P said

it was o.k. as long as the skin doesn't break. It hasn't. He also had

Dr. Mercuendo (sp?) examin her as well an they agreed she is an

exceptional case of Atypical CF. Her R is still very tight but he

feels she will do good with the weight bearing. We go back in 3mnths.

I have to tell you all I was expecting the worse. If anyone has any

ideas about standing her up in the shoes other then when on my lap

Please..Please...let me know of them. I am sure there is more from

the visit but I can't think of it right now. Thanks for sharing:)

KK

Livi 01/22/03

Ava 05/27/04 Bilat Atypical CF s 21/7

[Guest guest]

That is wonderful news!!!

& Grace )

>

> I just wanted to share some good news. My dh took Ava to see Dr.

> Ponseti and called me after the appt. She did NOT need the second

> tenotomy. Hooray!! When we were there in Sept. he felt she

definitly

> would need another but it was to soon then. He said come back in

Dec.

> and we'll do it then. Todays visit was great. He turned her feet in

> to R 60, L 50 they were 70-60. She has only been in the s

for

> 6wks 23/7, he said we could go down to 21/7 but wants her to stand

> flat on them. She is only 6mnths. Thank God for the saucer. That is

> about the only thing that she can stand in. He said her heels are

> coming down and she is about 90% corrected but the key is to have

her

> bearing weight in and out of shoes and keeping the shoes as tight

as

> we have. She does get pressure sores across the top of her feet and

> they don't go away when the shoes are off for the hour but Dr. P

said

> it was o.k. as long as the skin doesn't break. It hasn't. He also

had

> Dr. Mercuendo (sp?) examin her as well an they agreed she is an

> exceptional case of Atypical CF. Her R is still very tight but he

> feels she will do good with the weight bearing. We go back in

3mnths.

> I have to tell you all I was expecting the worse. If anyone has any

> ideas about standing her up in the shoes other then when on my lap

> Please..Please...let me know of them. I am sure there is more from

> the visit but I can't think of it right now. Thanks for sharing:)

>

> KK

> Livi 01/22/03

> Ava 05/27/04 Bilat Atypical CF s 21/7

[Guest guest]

That's excellent news!!! I have a question about something you

posted. You said something about pressure sores. What are those? My

son's feet get really red and last night they almost looked a little

purple. During the hour his shoes were off they definitely looked

better, but should I still keep the shoes on as tight as I have

been? He doesn't seem to mind, but his feet look really red,

especially the ankles.

>

> I just wanted to share some good news. My dh took Ava to see Dr.

> Ponseti and called me after the appt. She did NOT need the second

> tenotomy. Hooray!! When we were there in Sept. he felt she

definitly

> would need another but it was to soon then. He said come back in

Dec.

> and we'll do it then. Todays visit was great. He turned her feet

in

> to R 60, L 50 they were 70-60. She has only been in the s

for

> 6wks 23/7, he said we could go down to 21/7 but wants her to stand

> flat on them. She is only 6mnths. Thank God for the saucer. That

is

> about the only thing that she can stand in. He said her heels are

> coming down and she is about 90% corrected but the key is to have

her

> bearing weight in and out of shoes and keeping the shoes as tight

as

> we have. She does get pressure sores across the top of her feet

and

> they don't go away when the shoes are off for the hour but Dr. P

said

> it was o.k. as long as the skin doesn't break. It hasn't. He also

had

> Dr. Mercuendo (sp?) examin her as well an they agreed she is an

> exceptional case of Atypical CF. Her R is still very tight but he

> feels she will do good with the weight bearing. We go back in

3mnths.

> I have to tell you all I was expecting the worse. If anyone has

any

> ideas about standing her up in the shoes other then when on my lap

> Please..Please...let me know of them. I am sure there is more from

> the visit but I can't think of it right now. Thanks for sharing:)

>

> KK

> Livi 01/22/03

> Ava 05/27/04 Bilat Atypical CF s 21/7

[Guest guest]

Yes, they are from pinkish red to almost dark purplish in color

almost like the start of a bruise. The purple color goes away but the

redness doesn't. He said it was ok as long as the skin doesn't break.

I don't recall if your in the Markells or s. If your in the

Markells I would be careful that his feet are not slipping, causing

them to rube against the ankle. Redness across the top of the foot is

common because that is where the pressure is applied to keep the foot

back and heel down. Hope it helps.

KK

> >

> > I just wanted to share some good news. My dh took Ava to see Dr.

> > Ponseti and called me after the appt. She did NOT need the second

> > tenotomy. Hooray!! When we were there in Sept. he felt she

> definitly

> > would need another but it was to soon then. He said come back in

> Dec.

> > and we'll do it then. Todays visit was great. He turned her feet

> in

> > to R 60, L 50 they were 70-60. She has only been in the s

> for

> > 6wks 23/7, he said we could go down to 21/7 but wants her to

stand

> > flat on them. She is only 6mnths. Thank God for the saucer. That

> is

> > about the only thing that she can stand in. He said her heels are

> > coming down and she is about 90% corrected but the key is to have

> her

> > bearing weight in and out of shoes and keeping the shoes as tight

> as

> > we have. She does get pressure sores across the top of her feet

> and

> > they don't go away when the shoes are off for the hour but Dr. P

> said

> > it was o.k. as long as the skin doesn't break. It hasn't. He also

> had

> > Dr. Mercuendo (sp?) examin her as well an they agreed she is an

> > exceptional case of Atypical CF. Her R is still very tight but he

> > feels she will do good with the weight bearing. We go back in

> 3mnths.

> > I have to tell you all I was expecting the worse. If anyone has

> any

> > ideas about standing her up in the shoes other then when on my

lap

> > Please..Please...let me know of them. I am sure there is more

from

> > the visit but I can't think of it right now. Thanks for sharing:)

> >

> > KK

> > Livi 01/22/03

> > Ava 05/27/04 Bilat Atypical CF s 21/7

[Guest guest]

That's so awesome!!! Who cares about a long message when it's such

great news!!???!?!?!

, mommy of:

Guinevere, on, Ava 8/4/04 right CF DBB 23/7

> >

> > I just wanted to share some good news. My dh took Ava to see Dr.

> > Ponseti and called me after the appt. She did NOT need the

second

> > tenotomy. Hooray!! When we were there in Sept. he felt she

> definitly

> > would need another but it was to soon then. He said come back in

> Dec.

> > and we'll do it then. Todays visit was great. He turned her feet

> in

> > to R 60, L 50 they were 70-60. She has only been in the

s

> for

> > 6wks 23/7, he said we could go down to 21/7 but wants her to

stand

> > flat on them. She is only 6mnths. Thank God for the saucer. That

> is

> > about the only thing that she can stand in. He said her heels

are

> > coming down and she is about 90% corrected but the key is to

have

> her

> > bearing weight in and out of shoes and keeping the shoes as

tight

> as

> > we have. She does get pressure sores across the top of her feet

> and

> > they don't go away when the shoes are off for the hour but Dr. P

> said

> > it was o.k. as long as the skin doesn't break. It hasn't. He

also

> had

> > Dr. Mercuendo (sp?) examin her as well an they agreed she is an

> > exceptional case of Atypical CF. Her R is still very tight but

he

> > feels she will do good with the weight bearing. We go back in

> 3mnths.

> > I have to tell you all I was expecting the worse. If anyone has

> any

> > ideas about standing her up in the shoes other then when on my

lap

> > Please..Please...let me know of them. I am sure there is more

from

> > the visit but I can't think of it right now. Thanks for

sharing:)

> >

> > KK

> > Livi 01/22/03

> > Ava 05/27/04 Bilat Atypical CF s 21/7