Re: How to talk to non-Ponseti doctor

[Guest guest]

You know this question comes up a lot - almost seems like we need to get

together and work out a " Form Letter " to some degree (and keep a copy in our

files) that parents can adapt to their individual case then forward to their

non-Ponseti doctors listing all the facts, research, etc., in terminology that a

doctor would both respect and understand. I'd volunteer but don't get me lying

to you! LOL! I could not explain it but it sounds like a project right up

's alley.

s.

How to talk to non-Ponseti doctor

My husband and I were admiring our son 's feet tonight.

went through two non-Ponseti doctors who were unable to correct his

feet. He had serial casts from the time he was four days old, but

they were only up to his knees and the doctor tried to push his feet

into position. It was nothing like what the Ponseti doctor did. He

wore Markell shoes without the dbb for 6 weeks, then back to more

casts. Finally at 6 months of age the doctor sent us to another

orthopedic surgeon who recommended major surgery. Luckily, before he

ever had the surgery I found out about Dr. Ponseti and joined this

group.

I am in awe of the fact that after 6 casts and a tenotomy with a

Ponseti doctor his feet are now perfect. I am still upset that so few

doctors use the Ponseti method and that there are no doctors in Maine

using it. I've spoken with my pediatrician about the Ponseti method

and she seemed very interested and said she would look it up on the

internet. I'm hoping their practice will refer future clubfoot babies

to a Ponseti doctor in Massachusetts.

Now I feel like I need to write a letter to my former orthopedic

surgeon and the one he referred me to. How do I tactfully tell them

about the Ponseti method and what's it done for without

sounding like I'm criticizing them? What have others done?

Thanks,

and 11/10/03 bilateral clubfeet dbb 23/7

[Guest guest]

OOH good idea about putting something together! Could someone

who knows him perhaps post asking him if he would be interested? I

could see this making a difference! If it convinced just one doctor

to use the Ponseti method, it would be so worth it!!!

& Grace

> You know this question comes up a lot - almost seems like we need

to get together and work out a " Form Letter " to some degree (and keep

a copy in our files) that parents can adapt to their individual case

then forward to their non-Ponseti doctors listing all the facts,

research, etc., in terminology that a doctor would both respect and

understand. I'd volunteer but don't get me lying to you! LOL! I

could not explain it but it sounds like a project right up 's

alley.

> s.

>

> How to talk to non-Ponseti doctor

>

>

>

>

> My husband and I were admiring our son 's feet tonight.

> went through two non-Ponseti doctors who were unable to correct his

> feet. He had serial casts from the time he was four days old, but

> they were only up to his knees and the doctor tried to push his

feet

> into position. It was nothing like what the Ponseti doctor did. He

> wore Markell shoes without the dbb for 6 weeks, then back to more

> casts. Finally at 6 months of age the doctor sent us to another

> orthopedic surgeon who recommended major surgery. Luckily, before

he

> ever had the surgery I found out about Dr. Ponseti and joined this

> group.

>

> I am in awe of the fact that after 6 casts and a tenotomy with a

> Ponseti doctor his feet are now perfect. I am still upset that so

few

> doctors use the Ponseti method and that there are no doctors in

Maine

> using it. I've spoken with my pediatrician about the Ponseti method

> and she seemed very interested and said she would look it up on the

> internet. I'm hoping their practice will refer future clubfoot

babies

> to a Ponseti doctor in Massachusetts.

>

> Now I feel like I need to write a letter to my former orthopedic

> surgeon and the one he referred me to. How do I tactfully tell them

> about the Ponseti method and what's it done for without

> sounding like I'm criticizing them? What have others done?

>

> Thanks,

> and 11/10/03 bilateral clubfeet dbb 23/7

>

>

>

>

>

>

>