Re: New to diet/super nu thera/autism from birth questions

March 11, 2001

Hi,

Welcome to the group! After I type this up I will get it over to the web

site at GFCFDiet.com to add to the success stories : )

I have had my son on this diet since Oct. He was born Autistic but wasn't dx

until he was 2 1/2 years old. They just kept telling me he was PDD and he

would catch up. Well he's 5 years old now and hasn't " caught up " BUT since

starting this diet in October we have gone from an all day head banging and

screaming to just maybe one tantrum a day. He has since learned to put his

own shoes on and change his pull-ups (not potted trained yet that's next on

the list ). He was sort of verbal but with only using one or two words

when prompted. Today he is spontaneously talking, wanting to be involved in

conversations, he also makes eye contact and loves to play board games. He

still couldn't tell you his whole day at Pre-K in a story but he does try to

say what he did with short one-word phrases.

He is high functioning Autistic and has a photographic memory but lacks the

abstract way of communicating. If it weren't for the Diet and vitamin

therapy we wouldn't be where we are today. I am a firm believer in the diet.

I use Kirmans vitamins, Nu Thera-P5P, TMG w/ folic acid, EFA, Beta Glucan,

and Pro-Biotic. They are all in the capsules that I pull apart and put in

his drinks or on his sandwiches.

The tricks I used on my son to get him to eat cereals and milks, were I

emptied the box or containers of the items he use to like and switched it

with something that he could have. They all looked similar to what he had.

Worked like a charm For example, he would not touch the Amazon Grinolla

Munch because of the Grilla on the box. But they look like Kixs cereal. It

just so happened that week Kixs was running Clifford the Big Red Dog (his

favorite at the time) and when I switched the bags he went crazy and ate the

cereal up he loved it

Good luck with the diet hope you see great results. It's not hard once you

get the hang of it.

Have a great day!

Terri in TN

5yrs old (Autistic)

GFCF since October 2000

14 yrs old (Celiac)

GF Started March 2001

March 11, 2001

Welcome,

My three year old son would not take liquid SNT at all, I wore it also.

We then tried the hypo allergenic capsules. I would cut them open and put

in soft mixable foods, being hypoallergenic it was tasteless and it worked

for us.

Good luck, CASSIE

March 11, 2001

> I have a couple other questions -- how did you get your children to

> drink a milk subsitute? My refrigerator is packed full of rejected

> brands. I have even tried making it chocolate (against my

> nutritionists advice) and no luck. I wouldn't worry about it but I

> don't know how else I'll get calcium in him...and I'd rather he not

> drink juice all the time which is what he does now that we have

> removed milk as an option...

I feel I have finally settled into the diet and found tricks that

work for me. In a wierd sense the tendency of my child to extreme

self-limitation of food has helped. He has 3 or 4 things he will

consistently eat and I solved my calcium problem by working with

that. He has GFCF waffles without syrup for breakfast everyday. I

used Ca fortified rice or soy milk as the liquid in them and add

powdered calcium from Kirkmans to the dry ingredients. I actually

make up multiple ziplock containers of the dry ingredients when I get

a chance on a weekend or evening and so making the waffles is just

pulling out a box of mix and adding egg, liquid and vanilla. I keep

leftovers and reheat for the next day or two. Because he is so

consistent in what he eats I can ensure I put enough calcium in the

dry mix.

> Also we are starting a liquid form of Super Nu Thera which my son

is

> not amused by. It has turned into a battle trying to get this in

his

> mouth (and I wear most of it!) This is flavored with a strong

> coconut flavor and I can't think of anything my son would eat or

> drink that I could hide this stuff in.... Any ideas? I am also

> starting cod liver oil in another week - is this just as bad?

My son will only drink an orange flavored juice, and again I solved

the liquid vitamin / CLO problem by working with this. He takes his

supplements in the juice, but when I add stuff I always give it to

him in those juice boxes with closed tops and straws. That minimizes

any odor. I keep the CLO in the fridge and wipe the jar mouth after

every use which seems to keep it from going too fishy smelling or

tasting. I built up amounts gradually until I was able to put the

daily dose in 2-3 juice boxes which when he finishes them get

refilled with regular juice to try and get the last of the

supplements mixed in. I also got alcohol free orange flavoring

essence and keep it in a dropper bottle and add several drops of it

to each supplement juice box which helps disguise other flavors. This

has been the only way I could get the stuff in him. I am trying to

stop thumbsucking now as well and am trying that by rubbing CLO on

his thumbs. I figure it'll either make him stop sucking his thumb or

teach him to like CLO - either way I win ;-)

Good luck - the diet gets easier. For us it has helped quite a bit,

but was worth it if only because it reduced BMs from five burning

acidic ones a day to two normal and (wonder of wonders) helped him to

sleep through the night. I'm still not quite recovered from a year of

most nights up several hours but boy is it great to have a kid who

sleeps 10 hours a night consistently. I know many don't get this

effect but we did and it was worth every hassle of the diet.

jan

March 12, 2001

I thought Rice Dream had traces of barley extract- Read under the ingredient

label- it's not GF/!!

March 12, 2001

I thought Rice Dream had traces of barley extract- Read under the ingredient

label- it's not GF/!!

March 12, 2001

> Hi,

> We just started the diet about 1 week ago (working with a

> nutritionist who dragged me to this point kicking & screaming!) My

> son is 5 and has been developmentally delayed & autistic from birth.

> I am wondering if anyone else has a child like this who was helped by

> this diet. It seems from what I've read that it helps children who

> develop typically and then regress, but I've not read anything about

> it helping children like my son. (can you tell I'm trying to weasel

> out of doing this?) Is there any research being done on this?

> Any websites or info would be appreciated!

My daughter was autistic from birth, I believe due to many

factors, the biggest of which I attribute to that darn Hep. B vaccine! The hope

I can offer you is that she has fully recovered through dietary intervention,

supplementation, and therapy. I know how overwhelming thi can be at first and

easy to buck, I tried to find reasons it would not work for us as well. We went

casein free almost 5 years before we went gluten free!You might want to get

Serroussi's book, Unraveling the Mystery... someone posted you can get it

for half price at s.com. Her son recovered as well.

>

> I have a couple other questions -- how did you get your children to

> drink a milk subsitute? My refrigerator is packed full of rejected

> brands. I have even tried making it chocolate (against my

> nutritionists advice) and no luck. I wouldn't worry about it but I

> don't know how else I'll get calcium in him...and I'd rather he not

> drink juice all the time which is what he does now that we have

> removed milk as an option...

>

was not accepting of sub. at first either. I am casein free as

well, and it even took me a while to drink someof this stuff. I personally like

Whitewave Silk the best, and it comes in chocolate, vanilla, and plain. If you

have not tried it I would highly recommend it. It is the closest in consistency

that I have found.

> Also we are starting a liquid form of Super Nu Thera which my son is

> not amused by. It has turned into a battle trying to get this in his

> mouth (and I wear most of it!) This is flavored with a strong

> coconut flavor and I can't think of anything my son would eat or

> drink that I could hide this stuff in.... Any ideas? I am also

> starting cod liver oil in another week - is this just as bad?

>

We did not have any luck with hiding the liquid form of sper- nu-

thera in anything! I have found for children who cannot swallow pills, the

powder form to be the most acceptable. It can be mixed in pudding, applesauce,

or any other mushy food.

>

Thanks for any advice you can throw my way!

Welcome, and good luck. Hang in there as I know the first month or so can be so

very overwhelming.

> Donna

>

March 12, 2001

Hi!

If you've already gone cf cold turkey, just delete this, but what I did

with my son was to mix Rice Dream Original with regular milk, slowly

eliminating the milk and leaving the Rice Dream. I've heard from many

people that the Soy substitutes are very strong in flavor -- my son wouldn't

go near them either. I also dilute his juice 50/50 with water, since he

mainly drinks juice too. Oh, one more thing -- you can get calcium gel-caps

that you can snip and squeeze into his foods/ beverages.

Good luck!

Re: New to diet/super nu thera/autism from birth

questions

>

> > Hi,

> > We just started the diet about 1 week ago (working with a

> > nutritionist who dragged me to this point kicking & screaming!) My

> > son is 5 and has been developmentally delayed & autistic from birth.

> > I am wondering if anyone else has a child like this who was helped by

> > this diet. It seems from what I've read that it helps children who

> > develop typically and then regress, but I've not read anything about

> > it helping children like my son. (can you tell I'm trying to weasel

> > out of doing this?) Is there any research being done on this?

> > Any websites or info would be appreciated!

>

> My daughter was autistic from birth, I believe due to many

factors, the biggest of which I attribute to that darn Hep. B vaccine! The

hope I can offer you is that she has fully recovered through dietary

intervention, supplementation, and therapy. I know how overwhelming thi can

be at first and easy to buck, I tried to find reasons it would not work for

us as well. We went casein free almost 5 years before we went gluten

free!You might want to get Serroussi's book, Unraveling the Mystery...

someone posted you can get it for half price at s.com. Her son

recovered as well.

> >

> > I have a couple other questions -- how did you get your children to

> > drink a milk subsitute? My refrigerator is packed full of rejected

> > brands. I have even tried making it chocolate (against my

> > nutritionists advice) and no luck. I wouldn't worry about it but I

> > don't know how else I'll get calcium in him...and I'd rather he not

> > drink juice all the time which is what he does now that we have

> > removed milk as an option...

> >

>

> was not accepting of sub. at first either. I am casein

free as well, and it even took me a while to drink someof this stuff. I

personally like Whitewave Silk the best, and it comes in chocolate, vanilla,

and plain. If you have not tried it I would highly recommend it. It is the

closest in consistency that I have found.

>

> > Also we are starting a liquid form of Super Nu Thera which my son is

> > not amused by. It has turned into a battle trying to get this in his

> > mouth (and I wear most of it!) This is flavored with a strong

> > coconut flavor and I can't think of anything my son would eat or

> > drink that I could hide this stuff in.... Any ideas? I am also

> > starting cod liver oil in another week - is this just as bad?

> >

>

> We did not have any luck with hiding the liquid form of sper-

nu- thera in anything! I have found for children who cannot swallow pills,

the powder form to be the most acceptable. It can be mixed in pudding,

applesauce, or any other mushy food..

> >

>

> Thanks for any advice you can throw my way!

>

> Welcome, and good luck. Hang in there as I know the first month or so can

be so very overwhelming.

>

> > Donna

> >

>

March 12, 2001