Re: getting ready for the DBB

[Guest guest]

, we did not need much more in supplies for the DBB other than

socks with the grippers on the bottom. We have not had any issues with

sores, blisters etc so I don't know much there.

As for the time in the shoes, I think several of us have been given

different advice on our older children. My Kelsey went into the DBB at

12 months old, was already beginning to walk, and we were still told by

our ortho and Dr. Ponseti that she would have to wear them still for 23

hours a day for the full three months. Other have also been told a

shorter period of time for their older children but mine still has the

full time so I feel this must differ with each Doctor for each child.

Good luck with the DBB.

Jenni

jaymz3372 wrote:

>Hi,

>My DS will be out of his casts and getting his shoes/DBB on the

>23rd. Are there any supplies I should purchase in

>advance....anything to have on hand if I notice pressure sores or if

>his heels slip, etc.

>Also, I was told that since my DS is 17 months old and stands that

>he will only need to wear be in the DBB for 23 hours a day for 1-4

>weeks. Then he will go to night and naps. Does this sound familiar?

>Thank you,

>

>Proud Mommy to -love of my life

>17 months old, microcephaly, bilateral ptosis (repaired 1/04), GERD

>(and associated eating challenges), bilateral club feet (tenatomy

>12/04), left kidney: hydronephrosis due to Grade V reflux, right

>kidney: low functioning due to cysts on upper 20%, undescended

>testes (corrected 9/04), possible milk allergy, low muscle tone,

>global delays, undiagnosed syndrome...

>

>

>

>

>

>

>

[Guest guest]

>

> Hi,

> My DS will be out of his casts and getting his shoes/DBB on the

> 23rd. Are there any supplies I should purchase in

> advance....anything to have on hand if I notice pressure sores or

if

> his heels slip, etc.

> Also, I was told that since my DS is 17 months old and stands that

> he will only need to wear be in the DBB for 23 hours a day for 1-4

> weeks. Then he will go to night and naps. Does this sound

familiar?

> Thank you,

>

> Proud Mommy to -love of my life

> 17 months old, microcephaly, bilateral ptosis (repaired 1/04), GERD

> (and associated eating challenges), bilateral club feet (tenatomy

> 12/04), left kidney: hydronephrosis due to Grade V reflux, right

> kidney: low functioning due to cysts on upper 20%, undescended

> testes (corrected 9/04), possible milk allergy, low muscle tone,

> global delays, undiagnosed syndrome...

is 13 months old and just got his dbb. He also stands, but

isn't walking yet and we were told 23/7 for two months. I know others

have said Dr. Ponseti recommends 3 months, but when I asked him he

thought our Dr. said 2 months because of 's age.

I would get some moleskin from the drug store. You can cut small

pieces to cushion any red spots on their feet so they don't turn into

sores.

Good luck!

and 11/10/03 bilateral clubfeet dbb 23/7

[Guest guest]

Hi and congrats on getting past the casting stage! If you haven't yet,

check out the tips and tricks post I send to the lists periodically. As

far as supplies, other than socks you might want to get some pipe foam and

that cloth athletic tape to pad the bar, especially since he's older you'll

want a little protection lol! (for your furniture, floors and

self!). Moleskin is also a good thing to have around, and I love the

DuoDerm for sores although let's hope there aren't any to put DuoDerm on in

the first place!

As far as the recommendation of 1-4 weeks 23/7... I would think that 1w

would be FAR too little time 23/7 to do any good. It seems that this full

time period of DBB wear is essential in keeping these feet corrected, one

week IMO would be about useless. 4w perhaps would be enough, but I would

want to consult with Dr. Ponseti about this if it were me. I would think

that 2mo would be about minimum but I am not sure about that. I also would

ask Dr. P. about what times you should reduce to after the full time wear

because many docs are reducing to 10-12hr right off the bat and my personal

feeling is this is way too soon to be reduced that much. There's got to be

a reason Dr. Ponseti schedules babies for 18 hours first, then 16, then 14,

and finally 12 after about a year of wear. So ask him what he would

recommend, at least that way you will know what you *should* be doing.

Bracing for whatever times you like is easy enough, it's not like the doc

is there spying on you. Parents are able to brace less than recommended,

so you can brace more if you desire ~} Now is the time to do it though

because they only get older and bigger... and it's much harder to add

hours later than it is to add them now.

Oh, and another thing about the 1-4w full time wear... at this age it

takes a little time to form habits. And for effective bracing, it needs to

be a habit or the child will learn that you take them off when he

whines. So the full time wear serves multiple purposes, one being the

formation of the habit so the child accepts that he must wear the brace

when mama tells him so.

I hope it goes smoothly for you but remember, we're here to help if you

need it so don't be afraid to ask whatever you need on the lists. :~}

Kori

At 10:23 AM 12/19/2004, you wrote:

>Hi,

>My DS will be out of his casts and getting his shoes/DBB on the

>23rd. Are there any supplies I should purchase in

>advance....anything to have on hand if I notice pressure sores or if

>his heels slip, etc.

>Also, I was told that since my DS is 17 months old and stands that

>he will only need to wear be in the DBB for 23 hours a day for 1-4

>weeks. Then he will go to night and naps. Does this sound familiar?

>Thank you,

>

>Proud Mommy to -love of my life

>17 months old, microcephaly, bilateral ptosis (repaired 1/04), GERD

>(and associated eating challenges), bilateral club feet (tenatomy

>12/04), left kidney: hydronephrosis due to Grade V reflux, right

>kidney: low functioning due to cysts on upper 20%, undescended

>testes (corrected 9/04), possible milk allergy, low muscle tone,

>global delays, undiagnosed syndrome...

>

>

>

>

>

>

>