Guest guest Posted November 25, 2004 Report Share Posted November 25, 2004 Oh Jenni, I am really feeling for you and Kelsey right now!!! I can't say that I can give you any advise as Grace is still an itty bitty thing but I know you will get advise and words of encouragment from some other mommies that had to have their little ones in the brace 23/7 at her age. Try to hang in there!! Give Kelsey a big hug from us!!! & Grace > I hate this stupid contraction. Kelsey got it on Monday. I thought all > was smooth sailing because she slept well and everything seemed to be > going well but she has been miserable since. They fit fine, because > when I take them off, there are no marks or anything. She doesn't seem > to be in pain but she has barely slept and during the day, never smiles > anymore until she gets her hour out of the shoes. She just started > walking last week with the cast and now she can't do it with those > stupid shoes on. Her knees are raw now from trying to walk on her > knees. She doesn't understand what is going on and looks to me to help > her and I can't. My sunny, happy child has disappeared and it is so > frustrating. I am beginning to believe that 11 months old is too late > to begin this method of treatment, at least for Kelsey. I am gearing > up now for another night of sleepless hell thanks to this torture device. > > Jenni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2004 Report Share Posted November 25, 2004 My son is still itty bitty too, but I feel for you on the smiling thing. He just didn't seem to be happy at all when the shoes are on, but when we take them off he smiles and seems to be happy again. I think he's finally getting used to it so he's smiles with them on. I remember reading on here about some kids walking with the bar on or something like that. She'll get used to it soon enough kids are tough and learn how to adapt. Holly athan 9/03/04 LCF, DBB 23/7 > I hate this stupid contraction. Kelsey got it on Monday. I thought all > was smooth sailing because she slept well and everything seemed to be > going well but she has been miserable since. They fit fine, because > when I take them off, there are no marks or anything. She doesn't seem > to be in pain but she has barely slept and during the day, never smiles > anymore until she gets her hour out of the shoes. She just started > walking last week with the cast and now she can't do it with those > stupid shoes on. Her knees are raw now from trying to walk on her > knees. She doesn't understand what is going on and looks to me to help > her and I can't. My sunny, happy child has disappeared and it is so > frustrating. I am beginning to believe that 11 months old is too late > to begin this method of treatment, at least for Kelsey. I am gearing > up now for another night of sleepless hell thanks to this torture device. > > Jenni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2004 Report Share Posted November 25, 2004 Jenni... Trust me.. I know what u are going through. I have cursed at the shoes, thrown them across my house, and just cried my eyes out because was so miserable in the shoes. I felt like I was torturing him for 3 months. I know he hated everytime I would put them back on his feet... but it paid off in the end. He has now been in them for 5 months and only wears them at night. He is only 9 months and not yet crawling, so I don't know what Kelsey is going through. But I do know that the shoes work and you will get through this tough time. doesn't mind now when I put them on. He is just completely used to them and sleeps just fine. Stay strong and hang in there. We are here for you. 2/9/04 BLCF DBB 12/7 Jenni Cypher jcypher@...> wrote: I hate this stupid contraction. Kelsey got it on Monday. I thought all was smooth sailing because she slept well and everything seemed to be going well but she has been miserable since. They fit fine, because when I take them off, there are no marks or anything. She doesn't seem to be in pain but she has barely slept and during the day, never smiles anymore until she gets her hour out of the shoes. She just started walking last week with the cast and now she can't do it with those stupid shoes on. Her knees are raw now from trying to walk on her knees. She doesn't understand what is going on and looks to me to help her and I can't. My sunny, happy child has disappeared and it is so frustrating. I am beginning to believe that 11 months old is too late to begin this method of treatment, at least for Kelsey. I am gearing up now for another night of sleepless hell thanks to this torture device. Jenni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2004 Report Share Posted November 25, 2004 Jenni, Did you ever check the outward rotation of that cast with a protractor? I know her dbb is set at 70 degrees, you did mention that right? If that cast wasn't at 70 degrees the DBB set so far out is *absolutely* going to bother her. I would expect no less in such a situation. I would bet my life that the cast was not 70 degrees. Not even close. Unfortunately though, if her foot is being forced to 70 degrees in the brace it's going to be uncomfortable. It isn't too late to do this, but it has to be done right for it to work on a child of ANY age. When the foot is corrected properly the child is not upset in the DBB. If this weren't the case, the rest of us with happy babies would not be here. If the shoes aren't causing blisters or sores but she is just unhappy look to how it's set. It *should* be at 70 degrees but if the last cast wasn't at that angle you will need to set the shoes no more than the last cast and then consider getting her casted and corrected properly so she can wear the brace without problems. Dr. Ponseti told me this himself. For now, try setting the shoes to match that cast and see how she reacts. Don't give up on this - you won't regret it. I know it's frustrating right now, so many of us have had such troubles so we do understand. You're doing a great job and your daughter will thank you for your perseverance someday. Please know that you aren't alone and we're here to help you. hugs! Kori At 02:20 PM 11/25/2004, you wrote: >I hate this stupid contraction. Kelsey got it on Monday. I thought all >was smooth sailing because she slept well and everything seemed to be >going well but she has been miserable since. They fit fine, because >when I take them off, there are no marks or anything. She doesn't seem >to be in pain but she has barely slept and during the day, never smiles >anymore until she gets her hour out of the shoes. She just started >walking last week with the cast and now she can't do it with those >stupid shoes on. Her knees are raw now from trying to walk on her >knees. She doesn't understand what is going on and looks to me to help >her and I can't. My sunny, happy child has disappeared and it is so >frustrating. I am beginning to believe that 11 months old is too late >to begin this method of treatment, at least for Kelsey. I am gearing >up now for another night of sleepless hell thanks to this torture device. > >Jenni > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2004 Report Share Posted November 25, 2004 Jenni, This is such good advise!!! If her foot was not casted to 70% then you may need one more cast done to get her there. You got the shoes on Monday, so she should be adjusting to them by now. Just my opinion but I would definately follow this advise!!!! & Grace > > >I hate this stupid contraction. Kelsey got it on Monday. I thought all > >was smooth sailing because she slept well and everything seemed to be > >going well but she has been miserable since. They fit fine, because > >when I take them off, there are no marks or anything. She doesn't seem > >to be in pain but she has barely slept and during the day, never smiles > >anymore until she gets her hour out of the shoes. She just started > >walking last week with the cast and now she can't do it with those > >stupid shoes on. Her knees are raw now from trying to walk on her > >knees. She doesn't understand what is going on and looks to me to help > >her and I can't. My sunny, happy child has disappeared and it is so > >frustrating. I am beginning to believe that 11 months old is too late > >to begin this method of treatment, at least for Kelsey. I am gearing > >up now for another night of sleepless hell thanks to this torture device. > > > >Jenni > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2004 Report Share Posted November 25, 2004 > Jenni, > > Did you ever check the outward rotation of that cast with a protractor? How do you measure the 70 degrees? has his last casts on and next we get the DBB. I want to make sure his feet are at the correct rotation, but don't know where you measure from. and 11/10/03 bilateral clubfeet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2004 Report Share Posted November 25, 2004 Kori, I just emailed Dr. Von Stein with a host of questions about the brace including again this issue with the angle. At this point, my dilemma is that I am not sure if she is uncomfortable or just mad. She is a baby that has always been a major creature of habit. She has to have everything just so particularly at bedtime. She once kept us up nights, screaming all the while, for almost a week because I had thrown the blanket she had been using in the laundry in the basement, not realizing that it was critical for her routine. So, it is not altogether impossible for her to take a long time to adjust to this thing. I guess it is second nature as a mother but after her first round of crappy treatment and some other medical issues, I currently have almost no faith in anyone in the medical profession. I know that I have to be her advocate and make the best decisions for her, I am just always second guessing myself and everyone else. I know that Dr. Ponseti comes highly recommended but so have other Doctors in our life that have let us down so I just don't know what to trust anymore. Thanks for the support and the information. Jenni. frogabog wrote: >Jenni, > >Did you ever check the outward rotation of that cast with a protractor? I >know her dbb is set at 70 degrees, you did mention that right? If that >cast wasn't at 70 degrees the DBB set so far out is *absolutely* going to >bother her. I would expect no less in such a situation. I would bet my >life that the cast was not 70 degrees. Not even close. Unfortunately >though, if her foot is being forced to 70 degrees in the brace it's going >to be uncomfortable. It isn't too late to do this, but it has to be done >right for it to work on a child of ANY age. When the foot is corrected >properly the child is not upset in the DBB. If this weren't the case, the >rest of us with happy babies would not be here. If the shoes aren't >causing blisters or sores but she is just unhappy look to how it's set. It >*should* be at 70 degrees but if the last cast wasn't at that angle you >will need to set the shoes no more than the last cast and then consider >getting her casted and corrected properly so she can wear the brace without >problems. Dr. Ponseti told me this himself. For now, try setting the shoes >to match that cast and see how she reacts. Don't give up on this - you >won't regret it. I know it's frustrating right now, so many of us have had >such troubles so we do understand. You're doing a great job and your >daughter will thank you for your perseverance someday. Please know that >you aren't alone and we're here to help you. > >hugs! > >Kori > > > > > >At 02:20 PM 11/25/2004, you wrote: > > > >>I hate this stupid contraction. Kelsey got it on Monday. I thought all >>was smooth sailing because she slept well and everything seemed to be >>going well but she has been miserable since. They fit fine, because >>when I take them off, there are no marks or anything. She doesn't seem >>to be in pain but she has barely slept and during the day, never smiles >>anymore until she gets her hour out of the shoes. She just started >>walking last week with the cast and now she can't do it with those >>stupid shoes on. Her knees are raw now from trying to walk on her >>knees. She doesn't understand what is going on and looks to me to help >>her and I can't. My sunny, happy child has disappeared and it is so >>frustrating. I am beginning to believe that 11 months old is too late >>to begin this method of treatment, at least for Kelsey. I am gearing >>up now for another night of sleepless hell thanks to this torture device. >> >>Jenni >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2004 Report Share Posted November 25, 2004 Jenni, I'm so sorry you're having trouble with the DBB. Ava seems okay during the day. But her hour off I was doing around 8-9 pm, and when I put it back on she would be really miserable. Last night she screamed for two hours. I finally took it off & she fell asleep & then I put it back on her. But I'm not really sure if that's what cured the crying. I know she has no red spots or blisters or anything, and the DBB is set the same as her cast. I think it's just a pain in the tookus to these babies before they get used to it. And Ava's only 3 months, so I can imagine the nightmare it must be for you an 11 month old. I moved her off hour to 4-5 today, and so far she's sleeping okay. Anyway, I know it's awful to see your baby upset & feel so helpless. Those big eyes look at you & you feel like the most awful mother ever. But I'm sure we'll all get through it. Like I said before, believe it or not, one day we'll actually look back and miss these days!!!! , mommy of: Guinevere, on, Ava 8/4/04 right CF DBB 23/7 (day 4 & counting!!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2004 Report Share Posted November 26, 2004 My son was in the FAB from around 7 weeks and I too hated it. He had blisters on both heels and cried constantly with pain. In the end he went back to casts to heel the blisters. We cut a huge hole in the back of his shoe and he then was 'ok' with them. He is now 19 months and he runs round with his lovely straight feet and I think back to that time and think I don t know how I got through it. I have had some nights where he really doesn't want it on and I hated it again but I have Never left it off and he only wears them at night. In the mornings he says shoes and wants them off and I will be glad when they are gone. I have been up in the night with him crying and I just don't know what was wrong and always think it was the shoes, but, of course I will never know what he would have been like without them. We have changed his cot now to a 'car' bed and he has slept for 10 whole nights it is great. His feet are lovely and I am glad I have perservered. Take care Rach, Steve & Connor -- DBB sucks I hate this stupid contraction. Kelsey got it on Monday. I thought all was smooth sailing because she slept well and everything seemed to be going well but she has been miserable since. They fit fine, because when I take them off, there are no marks or anything. She doesn't seem to be in pain but she has barely slept and during the day, never smiles anymore until she gets her hour out of the shoes. She just started walking last week with the cast and now she can't do it with those stupid shoes on. Her knees are raw now from trying to walk on her knees. She doesn't understand what is going on and looks to me to help her and I can't. My sunny, happy child has disappeared and it is so frustrating. I am beginning to believe that 11 months old is too late to begin this method of treatment, at least for Kelsey. I am gearing up now for another night of sleepless hell thanks to this torture device. Jenni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2004 Report Share Posted November 26, 2004 The easiest way is to get a $.69 protractor from the grocery store. Then point 0 degrees straight out where the middle of the knee points to (put the protractor on the bottom of the cast, under the foot) and measure where the midline (center) of the foot points to on the protractor. It won't be totally accurate, meaning you won't be able to tell 66 degrees from 67 degrees because you're guessing where all those midlines are to measure with but it's close enough. And you *can* work your way up to 70 degrees if the cast isn't set that far out. But I wouldn't want to work up to 70 from much less than 60. Much less than that, it would be best to have another casting IMO. Kori At 06:07 PM 11/25/2004, you wrote: > > > Jenni, > > > > Did you ever check the outward rotation of that cast with a >protractor? > > > >How do you measure the 70 degrees? has his last casts on and >next we get the DBB. I want to make sure his feet are at the correct >rotation, but don't know where you measure from. > > > > and 11/10/03 bilateral clubfeet > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2004 Report Share Posted November 26, 2004 I know it's rough, and how sad your daughter is depressed about this change in her life - please though, stick it out. She and you will both learn how to manuver in the brace, it will become normal, her happiness will return, and her hours in it will reduce as time goes by. I've been both the non-Ponseti and the Ponseti route....Ponseti's method is so much better. I know that's hard for you to believe right now, and watching our babies be unhappy is the worst torture on a Momma, but do give it time, I'm betting she'll adjust pretty soon and learn all kinds of new tricks. Show her she can still stand up, and even push toys with it on, maybe that'll cheer her up some. hugs to you both. s. DBB sucks I hate this stupid contraction. Kelsey got it on Monday. I thought all was smooth sailing because she slept well and everything seemed to be going well but she has been miserable since. They fit fine, because when I take them off, there are no marks or anything. She doesn't seem to be in pain but she has barely slept and during the day, never smiles anymore until she gets her hour out of the shoes. She just started walking last week with the cast and now she can't do it with those stupid shoes on. Her knees are raw now from trying to walk on her knees. She doesn't understand what is going on and looks to me to help her and I can't. My sunny, happy child has disappeared and it is so frustrating. I am beginning to believe that 11 months old is too late to begin this method of treatment, at least for Kelsey. I am gearing up now for another night of sleepless hell thanks to this torture device. Jenni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2004 Report Share Posted November 26, 2004 I know it's rough, and how sad your daughter is depressed about this change in her life - please though, stick it out. She and you will both learn how to manuver in the brace, it will become normal, her happiness will return, and her hours in it will reduce as time goes by. I've been both the non-Ponseti and the Ponseti route....Ponseti's method is so much better. I know that's hard for you to believe right now, and watching our babies be unhappy is the worst torture on a Momma, but do give it time, I'm betting she'll adjust pretty soon and learn all kinds of new tricks. Show her she can still stand up, and even push toys with it on, maybe that'll cheer her up some. hugs to you both. s. DBB sucks I hate this stupid contraction. Kelsey got it on Monday. I thought all was smooth sailing because she slept well and everything seemed to be going well but she has been miserable since. They fit fine, because when I take them off, there are no marks or anything. She doesn't seem to be in pain but she has barely slept and during the day, never smiles anymore until she gets her hour out of the shoes. She just started walking last week with the cast and now she can't do it with those stupid shoes on. Her knees are raw now from trying to walk on her knees. She doesn't understand what is going on and looks to me to help her and I can't. My sunny, happy child has disappeared and it is so frustrating. I am beginning to believe that 11 months old is too late to begin this method of treatment, at least for Kelsey. I am gearing up now for another night of sleepless hell thanks to this torture device. Jenni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2004 Report Share Posted November 26, 2004 , it seems odd to me he's only wearing them at night if he's not standing/cruising/walking yet. How many hours? s. Re: DBB sucks Jenni... Trust me.. I know what u are going through. I have cursed at the shoes, thrown them across my house, and just cried my eyes out because was so miserable in the shoes. I felt like I was torturing him for 3 months. I know he hated everytime I would put them back on his feet... but it paid off in the end. He has now been in them for 5 months and only wears them at night. He is only 9 months and not yet crawling, so I don't know what Kelsey is going through. But I do know that the shoes work and you will get through this tough time. doesn't mind now when I put them on. He is just completely used to them and sleeps just fine. Stay strong and hang in there. We are here for you. 2/9/04 BLCF DBB 12/7 Jenni Cypher jcypher@...> wrote: I hate this stupid contraction. Kelsey got it on Monday. I thought all was smooth sailing because she slept well and everything seemed to be going well but she has been miserable since. They fit fine, because when I take them off, there are no marks or anything. She doesn't seem to be in pain but she has barely slept and during the day, never smiles anymore until she gets her hour out of the shoes. She just started walking last week with the cast and now she can't do it with those stupid shoes on. Her knees are raw now from trying to walk on her knees. She doesn't understand what is going on and looks to me to help her and I can't. My sunny, happy child has disappeared and it is so frustrating. I am beginning to believe that 11 months old is too late to begin this method of treatment, at least for Kelsey. I am gearing up now for another night of sleepless hell thanks to this torture device. Jenni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2004 Report Share Posted November 26, 2004 Thanks everyone. Today and last night were better. We moved Kelsey back into her own room (she has been sharing with her sister) and she slept in her Pack and Play with the soft sides. She woke up a few times during the night but I let her fuss a little bit and she went back to sleep on her own. I think it helped with not having the sides of the crib to bang into. Then, today she was much more her normal self. I think that she has just been expressing her displeasure as she tends to do when anything in her life changes. She does not like change at all. So, I will just continue to count down the days until we are out of this 23/7 stuff. I am at least glad that the 23/7 is happening in the winter when she won't miss playing outside etc. ALso, I know with the holidays that the 3 months will pass even faster. I will count down to February 28 when we can get out of the 23/7 stuff. Thanks to everyone for talking me down off of the ledge yet again. Jenni Number23 wrote: >I know it's rough, and how sad your daughter is depressed about this change in her life - please though, stick it out. She and you will both learn how to manuver in the brace, it will become normal, her happiness will return, and her hours in it will reduce as time goes by. I've been both the non-Ponseti and the Ponseti route....Ponseti's method is so much better. I know that's hard for you to believe right now, and watching our babies be unhappy is the worst torture on a Momma, but do give it time, I'm betting she'll adjust pretty soon and learn all kinds of new tricks. Show her she can still stand up, and even push toys with it on, maybe that'll cheer her up some. > hugs to you both. >s. > > DBB sucks > > > >I hate this stupid contraction. Kelsey got it on Monday. I thought all >was smooth sailing because she slept well and everything seemed to be >going well but she has been miserable since. They fit fine, because >when I take them off, there are no marks or anything. She doesn't seem >to be in pain but she has barely slept and during the day, never smiles >anymore until she gets her hour out of the shoes. She just started >walking last week with the cast and now she can't do it with those >stupid shoes on. Her knees are raw now from trying to walk on her >knees. She doesn't understand what is going on and looks to me to help >her and I can't. My sunny, happy child has disappeared and it is so >frustrating. I am beginning to believe that 11 months old is too late >to begin this method of treatment, at least for Kelsey. I am gearing >up now for another night of sleepless hell thanks to this torture device. > >Jenni > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2004 Report Share Posted November 26, 2004 Thanks everyone. Today and last night were better. We moved Kelsey back into her own room (she has been sharing with her sister) and she slept in her Pack and Play with the soft sides. She woke up a few times during the night but I let her fuss a little bit and she went back to sleep on her own. I think it helped with not having the sides of the crib to bang into. Then, today she was much more her normal self. I think that she has just been expressing her displeasure as she tends to do when anything in her life changes. She does not like change at all. So, I will just continue to count down the days until we are out of this 23/7 stuff. I am at least glad that the 23/7 is happening in the winter when she won't miss playing outside etc. ALso, I know with the holidays that the 3 months will pass even faster. I will count down to February 28 when we can get out of the 23/7 stuff. Thanks to everyone for talking me down off of the ledge yet again. Jenni Number23 wrote: >I know it's rough, and how sad your daughter is depressed about this change in her life - please though, stick it out. She and you will both learn how to manuver in the brace, it will become normal, her happiness will return, and her hours in it will reduce as time goes by. I've been both the non-Ponseti and the Ponseti route....Ponseti's method is so much better. I know that's hard for you to believe right now, and watching our babies be unhappy is the worst torture on a Momma, but do give it time, I'm betting she'll adjust pretty soon and learn all kinds of new tricks. Show her she can still stand up, and even push toys with it on, maybe that'll cheer her up some. > hugs to you both. >s. > > DBB sucks > > > >I hate this stupid contraction. Kelsey got it on Monday. I thought all >was smooth sailing because she slept well and everything seemed to be >going well but she has been miserable since. They fit fine, because >when I take them off, there are no marks or anything. She doesn't seem >to be in pain but she has barely slept and during the day, never smiles >anymore until she gets her hour out of the shoes. She just started >walking last week with the cast and now she can't do it with those >stupid shoes on. Her knees are raw now from trying to walk on her >knees. She doesn't understand what is going on and looks to me to help >her and I can't. My sunny, happy child has disappeared and it is so >frustrating. I am beginning to believe that 11 months old is too late >to begin this method of treatment, at least for Kelsey. I am gearing >up now for another night of sleepless hell thanks to this torture device. > >Jenni > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2004 Report Share Posted November 26, 2004 Nothing like a good night's sleep to readjust some attitude. Sorry I didn't mention that about sleeping in a play pen, it's what we had to do also cuz of the crib bar banging. Everett is sleeping even better with his new sleep sack, you may want to check in to that too. Glad things seem to be on the mend! s. Thanks everyone. Today and last night were better. We moved Kelsey back into her own room (she has been sharing with her sister) and she slept in her Pack and Play with the soft sides. She woke up a few times during the night but I let her fuss a little bit and she went back to sleep on her own. I think it helped with not having the sides of the crib to bang into. Then, today she was much more her normal self. I think that she has just been expressing her displeasure as she tends to do when anything in her life changes. She does not like change at all. So, I will just continue to count down the days until we are out of this 23/7 stuff. I am at least glad that the 23/7 is happening in the winter when she won't miss playing outside etc. ALso, I know with the holidays that the 3 months will pass even faster. I will count down to February 28 when we can get out of the 23/7 stuff. Thanks to everyone for talking me down off of the ledge yet again. Jenni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2004 Report Share Posted November 26, 2004 Nothing like a good night's sleep to readjust some attitude. Sorry I didn't mention that about sleeping in a play pen, it's what we had to do also cuz of the crib bar banging. Everett is sleeping even better with his new sleep sack, you may want to check in to that too. Glad things seem to be on the mend! s. Thanks everyone. Today and last night were better. We moved Kelsey back into her own room (she has been sharing with her sister) and she slept in her Pack and Play with the soft sides. She woke up a few times during the night but I let her fuss a little bit and she went back to sleep on her own. I think it helped with not having the sides of the crib to bang into. Then, today she was much more her normal self. I think that she has just been expressing her displeasure as she tends to do when anything in her life changes. She does not like change at all. So, I will just continue to count down the days until we are out of this 23/7 stuff. I am at least glad that the 23/7 is happening in the winter when she won't miss playing outside etc. ALso, I know with the holidays that the 3 months will pass even faster. I will count down to February 28 when we can get out of the 23/7 stuff. Thanks to everyone for talking me down off of the ledge yet again. Jenni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2004 Report Share Posted November 26, 2004 Jenni, I'm sorry you guys are having such a difficult time. With her being a creature of habit the sunny side is that once she gets used to it she will be happy with it. My son is also all about routines and is a creature of habit. He has been in his DBB for over three years now. On a few occassions we have mentioned to him that probably on his next birthday he won't be wearing his night night shoes anymore. He gets very angry and says he WANTS his night night shoes. Looking for sunnier days coming your way! Pam and (8-12-01) > > > > > > > >>I hate this stupid contraction. Kelsey got it on Monday. I thought all > >>was smooth sailing because she slept well and everything seemed to be > >>going well but she has been miserable since. They fit fine, because > >>when I take them off, there are no marks or anything. She doesn't seem > >>to be in pain but she has barely slept and during the day, never smiles > >>anymore until she gets her hour out of the shoes. She just started > >>walking last week with the cast and now she can't do it with those > >>stupid shoes on. Her knees are raw now from trying to walk on her > >>knees. She doesn't understand what is going on and looks to me to help > >>her and I can't. My sunny, happy child has disappeared and it is so > >>frustrating. I am beginning to believe that 11 months old is too late > >>to begin this method of treatment, at least for Kelsey. I am gearing > >>up now for another night of sleepless hell thanks to this torture device. > >> > >>Jenni > >> > >> > >> > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2004 Report Share Posted November 27, 2004 Stories like this are so nice! Makes us think we can and will get through this!! Thanks! Lori _____ From: Rach Sent: Friday, November 26, 2004 12:24 AM To: nosurgery4clubfoot Subject: Re: DBB sucks My son was in the FAB from around 7 weeks and I too hated it. He had blisters on both heels and cried constantly with pain. In the end he went back to casts to heel the blisters. We cut a huge hole in the back of his shoe and he then was 'ok' with them. He is now 19 months and he runs round with his lovely straight feet and I think back to that time and think I don t know how I got through it. I have had some nights where he really doesn't want it on and I hated it again but I have Never left it off and he only wears them at night. In the mornings he says shoes and wants them off and I will be glad when they are gone. I have been up in the night with him crying and I just don't know what was wrong and always think it was the shoes, but, of course I will never know what he would have been like without them. We have changed his cot now to a 'car' bed and he has slept for 10 whole nights it is great. His feet are lovely and I am glad I have perservered. Take care Rach, Steve & Connor -- DBB sucks I hate this stupid contraction. Kelsey got it on Monday. I thought all was smooth sailing because she slept well and everything seemed to be going well but she has been miserable since. They fit fine, because when I take them off, there are no marks or anything. She doesn't seem to be in pain but she has barely slept and during the day, never smiles anymore until she gets her hour out of the shoes. She just started walking last week with the cast and now she can't do it with those stupid shoes on. Her knees are raw now from trying to walk on her knees. She doesn't understand what is going on and looks to me to help her and I can't. My sunny, happy child has disappeared and it is so frustrating. I am beginning to believe that 11 months old is too late to begin this method of treatment, at least for Kelsey. I am gearing up now for another night of sleepless hell thanks to this torture device. Jenni Quote Link to comment Share on other sites More sharing options...
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