Guest guest Posted December 16, 2004 Report Share Posted December 16, 2004 Tara, It's wonderful to hear from you again. You have been such a great source of information and support to our list since it began and meeting you in Cleveland at the conference (in I think 1999) was one of the highlights of my trip there. We have certainly missed you but understand how life takes turns that give us different priorities. I'm glad to read that they have found something to assist you medically and especially glad to know that this will help keep you out of the hospital. Frequent trips for hospitalization are not pleasant. I'm so sorry to read about your son's autism diagnosis and hope that the school he attends is suitable to meet those special needs. Autistic children usually have an area where they excel so it will be interesting to hear what you find is his and no - I can't believe he's 7 1/2 but I should be able to because he was born about the same time as Branden. Where do these years go? I know you don't want to think of the possibility of Mito for him even though you feel things point in that direction. Remember, some Mito patients aren't as severely affected as others - even in the same family. I can attest to this with my own having 3 children and 7 grandchildren diagnosed. The degree of severity varies in all of us. It's a very strange disease, as you well know. Please stay as well as you can and I sincerely hope that you and your family have a wonderful Holiday and a very Happy New Year with better health and happy days. You will see 2005 much sooner than most of us here on the list. I also hope that you pop in once in a while like this to let us know how you all are doing. Hugs! Alice Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2004 Report Share Posted December 16, 2004 Tara, It's wonderful to hear from you again. You have been such a great source of information and support to our list since it began and meeting you in Cleveland at the conference (in I think 1999) was one of the highlights of my trip there. We have certainly missed you but understand how life takes turns that give us different priorities. I'm glad to read that they have found something to assist you medically and especially glad to know that this will help keep you out of the hospital. Frequent trips for hospitalization are not pleasant. I'm so sorry to read about your son's autism diagnosis and hope that the school he attends is suitable to meet those special needs. Autistic children usually have an area where they excel so it will be interesting to hear what you find is his and no - I can't believe he's 7 1/2 but I should be able to because he was born about the same time as Branden. Where do these years go? I know you don't want to think of the possibility of Mito for him even though you feel things point in that direction. Remember, some Mito patients aren't as severely affected as others - even in the same family. I can attest to this with my own having 3 children and 7 grandchildren diagnosed. The degree of severity varies in all of us. It's a very strange disease, as you well know. Please stay as well as you can and I sincerely hope that you and your family have a wonderful Holiday and a very Happy New Year with better health and happy days. You will see 2005 much sooner than most of us here on the list. I also hope that you pop in once in a while like this to let us know how you all are doing. Hugs! Alice Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2004 Report Share Posted December 16, 2004 It's great to hear from you too, Gaye. Happy Holidays. How are you doing? Alice Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2004 Report Share Posted December 16, 2004 It's great to hear from you too, Gaye. Happy Holidays. How are you doing? Alice Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2004 Report Share Posted December 20, 2004 > > The most difficult aspect in the past year has been dealing with > > my son's diagnosis of high functioning autism. Rhys has been in > > Year 3 this year (hard to believe he is 7 1/2) and has done well > > academically, but his health has been shocking. It is looking more > > and more like he probably has mito, but we really don't want to > > look at that right now. We do everything as if he was, and are > > praying that he isn't. I just hate seeing him suffer. We are in the same boat with my 4-year-old, who is diagnosed with PDD (pervasive developmental disorder), autism is a type of PDD. Really depends on doctor whether a child is diagnosed with PDD NOS (not otherwise specified) or high functioning autism. He had some blood tests done and it showed high lactate and a high lactate/pyruvate ratio, but he was a bit upset when they took the blood, so that may have affected the results. He is being followed up at the MDA clinic I go to. There were some interesting results for some of his neurological signs, so he will continue to be followed up even though his diagnosis is really only beginning. We're here to support each other, feel free to share. Take care, RH Quote Link to comment Share on other sites More sharing options...
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