Guest guest Posted September 27, 2004 Report Share Posted September 27, 2004 Hi, Juli, and welcome. It's a shame you are having trouble getting consistent care for Bethany. In a way, though, it's good that the doctor you've seen is willing to admit he's not capable of handling it well.. Clubfoot is a complicated enough condition that it requires a doctor very skilled and experienced in treating it. Can you tell us what part of the country you are in? Hopefully we can help guide you. Your daughter is at an age at which it's important to get on track soon.. If her feet aren't fully corrected, there's no way the DBB shoes will be comfortable for her, and also won't do any good.. Here is a good place to start for gathering info, and to learn about the Ponseti method of treatment and doctors who are skilled in it: http://www.vh.org/pediatric/patient/orthopaedics/clubfeet/index.html and Claire > Hello everyone. My name is July and my daughter Bethany (6mo old) > has club feet. Very severe. Her feet have been corrected to a point > but for some reason the Dennis Brown Shoe makes blisters on her > ankles. Her current doctor referred us to Shriners but it's > difficult to get there on a regular basis so they referred us back > to our local doctor. My husband, daughter, and I just made a second > trip to Shriners at the current orthopedists request and he hadn't > even sent information to them. My ped informed me that the local > doctor doesn't really want the case. Any suggestions. I'm feeling > like she's not getting very good care anymore and I'm pretty angry > about the whole situation. Thanks for any support, Juli Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2004 Report Share Posted September 27, 2004 Hi Juli From what I have read from other posts, when a child develops blisters from the shoes it means their foot is not fully corrected. I agree with Theresa. If you post where what area of the country you live in they will be able to direct you to the closest doctor. Mommy to 12/17/98 and Christian 1/30/04 _____ From: akhushtal_svn Sent: Sunday, September 26, 2004 11:50 PM To: nosurgery4clubfoot Subject: Glad I found you! Hello everyone. My name is July and my daughter Bethany (6mo old) has club feet. Very severe. Her feet have been corrected to a point but for some reason the Dennis Brown Shoe makes blisters on her ankles. Her current doctor referred us to Shriners but it's difficult to get there on a regular basis so they referred us back to our local doctor. My husband, daughter, and I just made a second trip to Shriners at the current orthopedists request and he hadn't even sent information to them. My ped informed me that the local doctor doesn't really want the case. Any suggestions. I'm feeling like she's not getting very good care anymore and I'm pretty angry about the whole situation. Thanks for any support, Juli Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2004 Report Share Posted September 27, 2004 Juli - don't walk, RUN from those doctors!!!! Your baby at 6 months still has time for a proper correction, even with severe feet!!!! It's worth the drive to a ponseti certified dr. or Ponseti himself. Time is ticking though and you only have one shot to do this right before these quacks mess her up for life...people come from all over the world to Iowa. We drive 12 hours. Others drive for days....if there's a will there's way. Look up Angel Flights for help. s. Glad I found you! Hello everyone. My name is July and my daughter Bethany (6mo old) has club feet. Very severe. Her feet have been corrected to a point but for some reason the Dennis Brown Shoe makes blisters on her ankles. Her current doctor referred us to Shriners but it's difficult to get there on a regular basis so they referred us back to our local doctor. My husband, daughter, and I just made a second trip to Shriners at the current orthopedists request and he hadn't even sent information to them. My ped informed me that the local doctor doesn't really want the case. Any suggestions. I'm feeling like she's not getting very good care anymore and I'm pretty angry about the whole situation. Thanks for any support, Juli Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2004 Report Share Posted September 27, 2004 Juli - don't walk, RUN from those doctors!!!! Your baby at 6 months still has time for a proper correction, even with severe feet!!!! It's worth the drive to a ponseti certified dr. or Ponseti himself. Time is ticking though and you only have one shot to do this right before these quacks mess her up for life...people come from all over the world to Iowa. We drive 12 hours. Others drive for days....if there's a will there's way. Look up Angel Flights for help. s. Glad I found you! Hello everyone. My name is July and my daughter Bethany (6mo old) has club feet. Very severe. Her feet have been corrected to a point but for some reason the Dennis Brown Shoe makes blisters on her ankles. Her current doctor referred us to Shriners but it's difficult to get there on a regular basis so they referred us back to our local doctor. My husband, daughter, and I just made a second trip to Shriners at the current orthopedists request and he hadn't even sent information to them. My ped informed me that the local doctor doesn't really want the case. Any suggestions. I'm feeling like she's not getting very good care anymore and I'm pretty angry about the whole situation. Thanks for any support, Juli Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2004 Report Share Posted September 27, 2004 juli, It's definately true. You do need to find a Ponseti certified Dr., or Dr. Ponsetti himself. We started our daughter's treatment with Dr. Ponseti at 6 1/2 mo. old. Our first doctor was at a dead end with her as well. She had very severe atypical club feet. After 4 casts and a tenotomy with Dr. Ponseti, her feet were corrected. He is amazing! She has been it the shoes now for about 4 wks. You won't regret traveling the extra distance to seek the most experienced Dr. to help your baby's feet. Trust me, it will be worth it. Good luck with everything! Claire-(01/16/04)BL Atypical cf > Juli - don't walk, RUN from those doctors!!!! Your baby at 6 months still has time for a proper correction, even with severe feet!!!! It's worth the drive to a ponseti certified dr. or Ponseti himself. Time is ticking though and you only have one shot to do this right before these quacks mess her up for life...people come from all over the world to Iowa. We drive 12 hours. Others drive for days....if there's a will there's way. Look up Angel Flights for help. > s. > > > Glad I found you! > > > Hello everyone. My name is July and my daughter Bethany (6mo old) > has club feet. Very severe. Her feet have been corrected to a point > but for some reason the Dennis Brown Shoe makes blisters on her > ankles. Her current doctor referred us to Shriners but it's > difficult to get there on a regular basis so they referred us back > to our local doctor. My husband, daughter, and I just made a second > trip to Shriners at the current orthopedists request and he hadn't > even sent information to them. My ped informed me that the local > doctor doesn't really want the case. Any suggestions. I'm feeling > like she's not getting very good care anymore and I'm pretty angry > about the whole situation. Thanks for any support, Juli > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2004 Report Share Posted September 27, 2004 juli, It's definately true. You do need to find a Ponseti certified Dr., or Dr. Ponsetti himself. We started our daughter's treatment with Dr. Ponseti at 6 1/2 mo. old. Our first doctor was at a dead end with her as well. She had very severe atypical club feet. After 4 casts and a tenotomy with Dr. Ponseti, her feet were corrected. He is amazing! She has been it the shoes now for about 4 wks. You won't regret traveling the extra distance to seek the most experienced Dr. to help your baby's feet. Trust me, it will be worth it. Good luck with everything! Claire-(01/16/04)BL Atypical cf > Juli - don't walk, RUN from those doctors!!!! Your baby at 6 months still has time for a proper correction, even with severe feet!!!! It's worth the drive to a ponseti certified dr. or Ponseti himself. Time is ticking though and you only have one shot to do this right before these quacks mess her up for life...people come from all over the world to Iowa. We drive 12 hours. Others drive for days....if there's a will there's way. Look up Angel Flights for help. > s. > > > Glad I found you! > > > Hello everyone. My name is July and my daughter Bethany (6mo old) > has club feet. Very severe. Her feet have been corrected to a point > but for some reason the Dennis Brown Shoe makes blisters on her > ankles. Her current doctor referred us to Shriners but it's > difficult to get there on a regular basis so they referred us back > to our local doctor. My husband, daughter, and I just made a second > trip to Shriners at the current orthopedists request and he hadn't > even sent information to them. My ped informed me that the local > doctor doesn't really want the case. Any suggestions. I'm feeling > like she's not getting very good care anymore and I'm pretty angry > about the whole situation. Thanks for any support, Juli > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2004 Report Share Posted September 27, 2004 juli, It's definately true. You do need to find a Ponseti certified Dr., or Dr. Ponsetti himself. We started our daughter's treatment with Dr. Ponseti at 6 1/2 mo. old. Our first doctor was at a dead end with her as well. She had very severe atypical club feet. After 4 casts and a tenotomy with Dr. Ponseti, her feet were corrected. He is amazing! She has been it the shoes now for about 4 wks. You won't regret traveling the extra distance to seek the most experienced Dr. to help your baby's feet. Trust me, it will be worth it. Good luck with everything! Claire-(01/16/04)BL Atypical cf > Juli - don't walk, RUN from those doctors!!!! Your baby at 6 months still has time for a proper correction, even with severe feet!!!! It's worth the drive to a ponseti certified dr. or Ponseti himself. Time is ticking though and you only have one shot to do this right before these quacks mess her up for life...people come from all over the world to Iowa. We drive 12 hours. Others drive for days....if there's a will there's way. Look up Angel Flights for help. > s. > > > Glad I found you! > > > Hello everyone. My name is July and my daughter Bethany (6mo old) > has club feet. Very severe. Her feet have been corrected to a point > but for some reason the Dennis Brown Shoe makes blisters on her > ankles. Her current doctor referred us to Shriners but it's > difficult to get there on a regular basis so they referred us back > to our local doctor. My husband, daughter, and I just made a second > trip to Shriners at the current orthopedists request and he hadn't > even sent information to them. My ped informed me that the local > doctor doesn't really want the case. Any suggestions. I'm feeling > like she's not getting very good care anymore and I'm pretty angry > about the whole situation. Thanks for any support, Juli > > > > > > Quote Link to comment Share on other sites More sharing options...
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