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Re: spina bifida-Joanne

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Joanne!!!!!!

I just saw your note about adopting a clubfoot baby in your signature

line!!!!!!!! CONGRATS! Do you have an actual child selected, or are

you just intending to adopt and waiting for a clubfoot child to be

available for adoption?

Keep us posted!

&

> Hi Tam,

> Haven't done any research. Here have been my experiences thus far:

>

> When I went for my OB appointment, I took some info. about Ponseti

method.

> My doc said I should talk to the nurse because she was going to

have a baby

> with clubfoot. So I sought her out, and she said, " yes, the baby

has

> clubfoot, but it will also have spina bifida, and we have no idea

how

> severe, so I'm putting off doing anything about the clubfoot (like

> research), until we get the spina bifida dealt with. " I guess the

baby might

> not make it, so the clubfoot might not need treatment.

>

> Also, one of my students' had a sister born with trisomy 18 and

clubfeet who

> wasn't expected to survive the delivery. She managed to live 8

weeks.

>

> That's all I can add, but you could start researching by doing a

google

> search.

>

> I have been doing " research " on clubfoot treatment in China and

have found

> out there are several organizations sending teams of

doctors/healthcare

> workers to lots of developing countries to treat all kinds of

health

> problems including clubfoot, so I've been emailing them to make

sure they

> know about the POnseti alternative...

>

> Hope this helps!

> Joanne W. mom to big Zoe, 3-25-01, right clubfoot

> starting adoption paperwork TOMORROW for a baby with clubfoot

> www.geocities.com/joannewalton2003/clubfootstory.html

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