Guest guest Posted September 19, 2004 Report Share Posted September 19, 2004 Hi Tam, Haven't done any research. Here have been my experiences thus far: When I went for my OB appointment, I took some info. about Ponseti method. My doc said I should talk to the nurse because she was going to have a baby with clubfoot. So I sought her out, and she said, " yes, the baby has clubfoot, but it will also have spina bifida, and we have no idea how severe, so I'm putting off doing anything about the clubfoot (like research), until we get the spina bifida dealt with. " I guess the baby might not make it, so the clubfoot might not need treatment. Also, one of my students' had a sister born with trisomy 18 and clubfeet who wasn't expected to survive the delivery. She managed to live 8 weeks. That's all I can add, but you could start researching by doing a google search. I have been doing " research " on clubfoot treatment in China and have found out there are several organizations sending teams of doctors/healthcare workers to lots of developing countries to treat all kinds of health problems including clubfoot, so I've been emailing them to make sure they know about the POnseti alternative... Hope this helps! Joanne W. mom to big Zoe, 3-25-01, right clubfoot starting adoption paperwork TOMORROW for a baby with clubfoot www.geocities.com/joannewalton2003/clubfootstory.html Message: 1 Date: Fri, 17 Sep 2004 12:43:41 -0700 (PDT) Subject: Re: spina bifida has anyone read anything about club foot being linked to spina bifida. also Ethan has no dorsiflexion at all and no feeling on the top of his foot. so hopefully we see a neuro soon. ===== Tam _________________________________________________________________ Get ready for school! Find articles, homework help and more in the Back to School Guide! http://special.msn.com/network/04backtoschool.armx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2004 Report Share Posted September 19, 2004 Oh how exciting for you! Tell us about your new baby! s. starting adoption paperwork TOMORROW for a baby with clubfoot www.geocities.com/joannewalton2003/clubfootstory.html Message: 1 Date: Fri, 17 Sep 2004 12:43:41 -0700 (PDT) Subject: Re: spina bifida has anyone read anything about club foot being linked to spina bifida. also Ethan has no dorsiflexion at all and no feeling on the top of his foot. so hopefully we see a neuro soon. ===== Tam _________________________________________________________________ Get ready for school! Find articles, homework help and more in the Back to School Guide! http://special.msn.com/network/04backtoschool.armx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2004 Report Share Posted September 28, 2004 Bill. What about leaving the shoes and bar on 23/7 for a longer time (years). Will that help with reocurring relapses? Is leaving them on 23/7 not realistic over longer periods of time? The relapses has to be very frustrating at this point. I would be terrified to ever take the shoes off. Shook Retail Operations Manager/Baking Instructor Vie de France Yamazaki, Inc. 2070 Chain Bridge Rd. Suite 500 Vienna, VA 22182 x374 x374 fax Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2004 Report Share Posted September 28, 2004 Bill. I am not educated enough about sb, so I apologize if I was offending in any way. It sounds like you have tough decisions to make daily. As they say, one day at a time, one hurdle at a time. Best of luck with all of Sam's treatments. Shook Retail Operations Manager/Baking Instructor Vie de France Yamazaki, Inc. 2070 Chain Bridge Rd. Suite 500 Vienna, VA 22182 x374 x374 fax Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2004 Report Share Posted September 28, 2004 That's sad to hear. You and Sam will have some tough rows to hoe. s. Re: spina bifida susan, leaving the shoes on 23/7 for years would create problems of its own. for instance, keeping his knees in that slightly bent position as well as his feet would pretty much assure that he would develop joint contractures. sam will likely one day walk with the help of braces and crutches/walker (like many sb kids). cant do that with the bar 23/7, so keeping him in that would mean he would never learn to walk at all. and even if he were in the bar forever, the muscle imbalances never go away, so its not even clear that that would help. at some point it becomes a choice of bad choices. keep him in the bar forever to keep his feet straight or do some surgery to keep his feet flat plantigrade so that he can learn to walk (such as it is). i mean, he is not going to walk as you or i know that term, let alone running or jumping, so surgery remains a possibility for us. > Bill. > What about leaving the shoes and bar on 23/7 for a longer time (years). > Will that help with reocurring relapses? Is leaving them on 23/7 not > realistic over longer periods of time? The relapses has to be very > frustrating at this point. I would be terrified to ever take the shoes > off. > > > > > > Shook > Retail Operations Manager/Baking Instructor > Vie de France Yamazaki, Inc. > 2070 Chain Bridge Rd. Suite 500 > Vienna, VA 22182 > x374 > x374 > fax > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2004 Report Share Posted September 28, 2004 Certainly you have to look at it as just one part of a complex puzzle - good point that right for one is not always right for another. s. it is worthwhile to point out, however, that surgery to correct clubfoot is not never appropriate, depending on circumstances. Quote Link to comment Share on other sites More sharing options...
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