Guest guest Posted March 23, 2004 Report Share Posted March 23, 2004 Well, we went to Seattle and saw DR Saneto, he was good. I am afraid though that I am even more frustrated than I was before, he wants us to do a nerve study (the conduction thing) on all limbs. DS was like more tests and frankly so was I. I mean really it isn't going to change anything, he will still be sick and they still can't fix him, I guess I am just getting to a point where I am feeling enough already. Is the nerve study like the muscle bio in that it can come back "normal" and yet there still be a problem? I think for me that is one of the hardest thing for me to deal with, no test to 100% show. Took blood to see if the vitamin cocktail is needed. So more tests, more waiting for results and still no name...sorry for the pity party. J, Mom to 15, mito unknown, Mirella, 3 months, status unknown (showing some signs but could be because she was early) Quote Link to comment Share on other sites More sharing options...
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