Guest guest Posted January 4, 2004 Report Share Posted January 4, 2004 Is Baclofen a medication that can be taken "as needed"? had a feeding tube placed on Nov 26th 2002,she broke it off on Dec 4th 2002.After her 2nd surgery, to retreve the broken part and replace the tube (she also had a abcess in her belly and had pnumonia) she started having really bad jerking/screaming spells.She was started on 40mg daily of Baclofen. This has since been increased to 80mg daily. My problem with all this is she sleeps ALL the time.I would say she is sleeping 23 hrs a day,every day.I wake her up to try to get her to eat,she does still eat some by mouth when she can stay awake,or give her meds. She is losing all her muscle tone,she doesn't move around any.She doesn't talk anymore,even if she tries answering yes or no she can't be understood, it's like she doesn't have enough air to get even simple sounds out.I think some of this may be due to the Baclofen,it does affect the respitatory system.I know she has needed O2 more often. also takes 1875mg Depakote,3mg Clonazapam,and 25mg Zoloft daily plus the usual cocktail of MCT oil,Carnitor,QGel,vit B1,B2,B12,Biotin and 2 multi vits.She also take 1 birth control pill daily (none of the sugar pills),this helps control hormones,stops her period, thus helps with seizures. I want her to be comfortable,but at the same time I would like for her to be able to enjoy a few things too. She used to love going out to eat and shoping,even if it was just for groceries.Now it's sleep,sleep and more sleep. As usual all suggestions are appreciated. You are all in my prayers. , Mom to Quote Link to comment Share on other sites More sharing options...
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