Guest guest Posted March 20, 2004 Report Share Posted March 20, 2004 They have started her on citrolline and sodium phenylbuterate plus she is also taking carnitine and topamax and is on a low-protein diet. I was just wondering if anyone else out there has a similar sitution. Hayley is 3 years old. Thanks! ((HUGS))! ~Cathy Quote Link to comment Share on other sites More sharing options...
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