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-Lemli-Opitz/RSH syndrome

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Has anyone heard of Mito kids having this syndrome?

Or any correlation of Mito and this diagnosis?

Has any been genetically tested for this ?

Just not sure I can take another diagnosis for Joe.

BTW. I have been able to read all your posts but fatigue and

depression at this point have made it hard to keep up.

I am praying for all who are having tough times as I am right now.

Thanks for the support and information. What a wonderful group.

AnnMarie-

Complex IV

Married

to my best friend Rick, mom of (14), (11), Cassandra(5 1/2)

and Joe(4) - complex IV, lactic

acidosis, CP, tethered chord syndrome,

dysautonomia, and a smile that never quits :-)

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