What does Mayo and CCF prescribe?

[Guest guest]

Hi, I was wondering for those who have been to Mayo and CCF what the

doctors have told you to give your children. Our boys are on

Carnitine, Periactin (for migraines) Vitamin B-12, Creatine. Our son

Jack (8.5) is doing great. Our son Joe (10.5) is not doing well. He

is losing more tone and muscles in his trunk area and legs.

Yesterday the PT told us that he might be in a wheel chair by 13.

This killed us and Joe...We are now talking about taking him to Mayo

or CCF. However, is it worth it if he is already on the same

medication that Mayo or CCF is prescribing?

The funny thing is Joe can still swim. He will be swimming at the US

National Disability Championships in April. Why he can do this, we do

not know.However, we want to keep him going. We want him to stay

strong.

Your comments and thoughts are very appreciated.

Thanks,