Re: Fwd: [FODSupport.org] Hospital Nightmare

[Guest guest]

Hi Jill. Wow can I sympathize! We have to ask for a neo-natal

specialist to draw blood from Abbey. Her veins are so hard to find.

And on more that one occasion they have " lost " her blood! It is so

frustrating to deal with people who have so little concern for these

kids who don't understand why they have to go through this. I'm soory

you had to deal with it but it does sound like you have a great Ped!

Hope Matt is feeling better.

>

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> 'Emotional and Practical Support'*

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>

> Hi all. Yesterday was another trip to the er for Matt. he has been

running

> 104 on motrin without any other symptoms. He wasnt really eating but

was

> tolerating his tube feeds nicely. I spoke with the geneticist Weds.

night who said to

> have my ped take a look at him in the morning. I could tell when he

woke up

> that he didnt look right, so I brought him right in and the ped.

agreed. Off to

> the er we went. This is where the nightmare began. After about 10

sticks,

> they were finally able to draw his blood. I waited and waited for

the results. In

> the meantime, I bolus fed him,because they could not get the iv in.

At one

> point he actually said he was hungry and I asked one of the nurses

if they could

> get him something to eat. Of course they never bothered to get him

anything.

> here is this poor sick 3 year old sking for food and being ignored!

Finally my

> ped stopped by and she got him something to eat. His fever had gone up

> again(they never checked it). I could tell by feeling him. I had to

stomp my feet to

> get motrin. Then they asked if he had peed yet. I said I would

assume so--it

> had been hours. Well, they never put a urine bag on him. Of course I

carry one

> in my bag (doesnt every mother?) so I got the sample myself. Finally

4 hours

> after his bloods were drawn, everyone realized the tubes had never

shown up at

> the lab and nobody knew where they were. Can you believe that the

nurse who

> drew the blood finally admitted that she forgot to send it to the

lab!!!!!!! I

> thoiught I was going to kill someone. When the results finally came

back, they

> werent any good because the blood had sat for so long it had started

to clot.

> They told me that the results were inaccurate because the blood hd

sat around

> for so long. They wanted to repeat the tests, but at this point he

looked

> alittle better so I walked out. I had been there for 8 hours and

accomplished

> nothing. I feel like complaining to the head of the emergency

department, but I

> am afraid if I do that the next time we are there,we will be treated

worse. Any

> thoughts? Thanks for letting me vent. Jill, Matts mom, scad

>

>