Guest guest Posted February 15, 2004 Report Share Posted February 15, 2004 Hi all, Does anyone have experience with the different locations for tubes to go in? I'm afraid that my son, Asher, may have to have a feeding tube soon and, although no dr has mentioned the J-tube as an option, I've wondered if it would be better than the G-tube they keep talking about. The reason is that they have not ruled out gastric motility problems as at least one of the reasons that Ash does not seem to like to eat. He does not throw up often like a lot of gastric motility kids but does have reflux - I'm thinking that the J-tube might allow him to get nutrition if he does have gastric motility problems.{he's been dx as failure to thrive, has trouble gaining or even keeping on weight} Anyone know the pros and cons of these things? Anne R Mom to Ash (don't know diagnosis yet, myopathy? mito? pyruvate dehy...?) and Sam (no myopathy, no mito, but primary immune deficiency) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2004 Report Share Posted February 15, 2004 has had a G tube since he was 2. We are doing a fundoplication this week because he is vomiting extremely badly and has had 10 hospital admissions this past year. We tried a GJ tube in October and it was a dismal failure. has severe autonomic issues when he is in crisis. This causes his gut/intestines etc to not move. We could not feed into his intestine without causing him great pain or for him to vomit green bile. Also, he had a reaction to the material the GJ tube is made out of (it contains PVC) which in turn caused an abscess. Anyhow we spoke with the surgeon who is doing the fundo about a J tube (direct access to the bowel) He said he prefers to exhaust all options of feeding into the stomach. He has not had very many kids who have had successful J tubes. Just passing on the info we were given. It is a hard decision isn't it? Alison Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2004 Report Share Posted February 15, 2004 has had a G tube since he was 2. We are doing a fundoplication this week because he is vomiting extremely badly and has had 10 hospital admissions this past year. We tried a GJ tube in October and it was a dismal failure. has severe autonomic issues when he is in crisis. This causes his gut/intestines etc to not move. We could not feed into his intestine without causing him great pain or for him to vomit green bile. Also, he had a reaction to the material the GJ tube is made out of (it contains PVC) which in turn caused an abscess. Anyhow we spoke with the surgeon who is doing the fundo about a J tube (direct access to the bowel) He said he prefers to exhaust all options of feeding into the stomach. He has not had very many kids who have had successful J tubes. Just passing on the info we were given. It is a hard decision isn't it? Alison Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2004 Report Share Posted February 15, 2004 has had a G tube since he was 2. We are doing a fundoplication this week because he is vomiting extremely badly and has had 10 hospital admissions this past year. We tried a GJ tube in October and it was a dismal failure. has severe autonomic issues when he is in crisis. This causes his gut/intestines etc to not move. We could not feed into his intestine without causing him great pain or for him to vomit green bile. Also, he had a reaction to the material the GJ tube is made out of (it contains PVC) which in turn caused an abscess. Anyhow we spoke with the surgeon who is doing the fundo about a J tube (direct access to the bowel) He said he prefers to exhaust all options of feeding into the stomach. He has not had very many kids who have had successful J tubes. Just passing on the info we were given. It is a hard decision isn't it? Alison Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.