Darla

[Guest guest]

Darla, I am worried for you. You have a lot going on. Do you get

a chance to be alone? to take a break? even if it is walking around

the grocery story aimlessley.

I know you pray a lot. Have you offered it all up to God and let it

go. I know it is easier said then done but it will help to ease the

fear and worry.

Take care of yourself.

Geri-Anne and Wyatt, Complex I

> Thanks for the note . It really has been

frustrating and some what a panicking week for me. I too read the E-

medicine articles and began to panic. I also remember how several

of the children that have had short lives have battled high lactic

acid issues and how major organs can choose to shut down due to it.

That plus this mysterious virus is almost too much added onto

already overwhelming health issues. We have wondered if whooping

cough might be the culprit as the symptoms are so similar but REALLY

hope it is not. Luke is just beginning to improve and hasn't

coughed as much and is breathing easier he says. (After 1 month!)

I just can't imagine Asenath or Porrah having this long of an

illness I worry how they will be able to spit out all the phlegm

buildup and how they will react to not being able to breath.

Steroids suppress the immune system, so if my healthy kids are

having such a difficult time, how can Asenath actually get through

it?! Or Porrah, we do not know what all is going on in her and

being so young; to deal with this, especially since she already has

reflux issues and gagging! That is what makes me start to panic.

Not knowing how they will handle this illness if they get it

Asenath already has begun it and swallows lots after coughing and

has an ear infection. She is starting antibiotics tonight and

hopefully it will help her. I just have a lot of fear right now.

You don't know how grateful I am to have this group to talk with. I

know you all understand.

> With Porrah's eating issues, she is doing a little better but

still is battling the problems. We have a GI appointment on the 2nd

and hopefully she will do ok until then. She is doing better today

than the past two days following the anesthesia thankfully!

>

> Darla: mommy to Asenath, Zipporrah, and the gang

>

>

> Re: -stress issue

>

> Darla,

>

> I printed all of your emails and thought I would respond to all

three

> in this one.

>

> Luke- Yes pursue, when you have time, giving him the opportunity

to

> speak with some one outside of the family. It make take more than

one

> visit for him to feel comfortable enough with that person to

really

> open up. I'm so sorry that they are still ill with the lingering

> unknown virus. How frustrating and scary to have that lingering

in

> your home. Ada, also had a difficult time kicking it. I

supplemented

> her with mega Vit C & Fish Oil & Zinc Lozenges. and lots of Rest,

> rest, rest.

>

> As far as Asenath & Porrah catching it, oh my, let's hope......,

> watch carefully. IV's really helped pull Lily back from the brink

of

> the illness/seizure cycle a few times.

>

> How is Zipporrah doing with the nursing/eating? did you get any

> advice/help from whiteman when you spoke with him?

>

> I'm sorry Dr whiteman reported back to you with the news that he

did.

> Thankful that the MRI etc was normal. Lily had high lactic acid.

I

> remember reading an E Medicine article on Lactic acidosis and

pretty

> much panicking! That was near the beginning of the journey, we

> become " use to " so many things that one shouldn't. Anyways,

Lily's

> levels were quite high off and on, more high than low. We never

did

> have it " treated " per se. Hopefully Whiteman will take a more pro-

> active course with her, since he is the expert.

>

> My thoughts are with you and yours,

>

>

> Please contact mito-owner with any problems or

questions.

>

>