Guest guest Posted March 3, 2004 Report Share Posted March 3, 2004 hi anne, glad to hear that asher is doing well. my daughter was put on alimentum when she was a baby, b/c it was the only formula that she tolerated. she is now four and has been on peptamen jr. (for the mct oil) and she is gtube fed. so, hopefully, your son will tolerate the formula just fine. hope everthing continues to go smoothly. take care, bethany mom to brennan 7, palmer & anna grace (leighs) 4 > Hi all, > > I just wanted to quickly e-mail you all and let you know Asher had his > surgery Tuesday for his G-tube. I've been staying at the hospital with him and this > e-mail is my first quick break home for a shower and to check my e- mail. > Unfortunately, I am not able to keep up with everyone's mail right now - but my > thoughts are with all of you. > > Asher seems to be doing fairly well. Some pain (that's to be expected) but > they've begun feedings. I'm anxious and the docs are pretty unknowledgeable > about what to feed him b/c we don't know if Ash does have a metabolic disorder or > which one he does have, so I'm nervous about whatever formula we give him. I > know there are special amounts of fat, protein, and carbs different metabolic > disorders require - but, for now, the gastro felt Alimentum would be the best > b/c it has fewer long chain fatty acids. Any one know much about this? > > Also, the surgeon said that Asher had an " incredibly distended colon " filled > with gas so we now know motility issues are a big part of why he doesn't eat. > I'm thinking that in the next few months, after we get a report from Shoffner, > we may need to head to a ped gastroenterologist who specializes in > neuromuscular disorders - anyone know of one????? > > Thanks, > Anne R Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2004 Report Share Posted March 3, 2004 hi anne, glad to hear that asher is doing well. my daughter was put on alimentum when she was a baby, b/c it was the only formula that she tolerated. she is now four and has been on peptamen jr. (for the mct oil) and she is gtube fed. so, hopefully, your son will tolerate the formula just fine. hope everthing continues to go smoothly. take care, bethany mom to brennan 7, palmer & anna grace (leighs) 4 > Hi all, > > I just wanted to quickly e-mail you all and let you know Asher had his > surgery Tuesday for his G-tube. I've been staying at the hospital with him and this > e-mail is my first quick break home for a shower and to check my e- mail. > Unfortunately, I am not able to keep up with everyone's mail right now - but my > thoughts are with all of you. > > Asher seems to be doing fairly well. Some pain (that's to be expected) but > they've begun feedings. I'm anxious and the docs are pretty unknowledgeable > about what to feed him b/c we don't know if Ash does have a metabolic disorder or > which one he does have, so I'm nervous about whatever formula we give him. I > know there are special amounts of fat, protein, and carbs different metabolic > disorders require - but, for now, the gastro felt Alimentum would be the best > b/c it has fewer long chain fatty acids. Any one know much about this? > > Also, the surgeon said that Asher had an " incredibly distended colon " filled > with gas so we now know motility issues are a big part of why he doesn't eat. > I'm thinking that in the next few months, after we get a report from Shoffner, > we may need to head to a ped gastroenterologist who specializes in > neuromuscular disorders - anyone know of one????? > > Thanks, > Anne R Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2004 Report Share Posted March 3, 2004 hi anne, glad to hear that asher is doing well. my daughter was put on alimentum when she was a baby, b/c it was the only formula that she tolerated. she is now four and has been on peptamen jr. (for the mct oil) and she is gtube fed. so, hopefully, your son will tolerate the formula just fine. hope everthing continues to go smoothly. take care, bethany mom to brennan 7, palmer & anna grace (leighs) 4 > Hi all, > > I just wanted to quickly e-mail you all and let you know Asher had his > surgery Tuesday for his G-tube. I've been staying at the hospital with him and this > e-mail is my first quick break home for a shower and to check my e- mail. > Unfortunately, I am not able to keep up with everyone's mail right now - but my > thoughts are with all of you. > > Asher seems to be doing fairly well. Some pain (that's to be expected) but > they've begun feedings. I'm anxious and the docs are pretty unknowledgeable > about what to feed him b/c we don't know if Ash does have a metabolic disorder or > which one he does have, so I'm nervous about whatever formula we give him. I > know there are special amounts of fat, protein, and carbs different metabolic > disorders require - but, for now, the gastro felt Alimentum would be the best > b/c it has fewer long chain fatty acids. Any one know much about this? > > Also, the surgeon said that Asher had an " incredibly distended colon " filled > with gas so we now know motility issues are a big part of why he doesn't eat. > I'm thinking that in the next few months, after we get a report from Shoffner, > we may need to head to a ped gastroenterologist who specializes in > neuromuscular disorders - anyone know of one????? > > Thanks, > Anne R Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.