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MITO: Puffer Reactions

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Hey guys,

I am so sorry to hear so many here are having difficult times. Please know that I pray for all here everyday.

We have been having our own share of problems lately. We found out that part of 's breathing problems were from athsma adn some from weak muscles. Well be began on Flovent and albuterol. After 6 weeks they upped her flovent to max dose of 220 (2 puffs twice a day) with the albuterol. We she has had so many problems on the increased dose. Severe aggression, tics, face broke out severely and an emotional roller coaster like we have never been on before. Our mito Dr told us that the puffers would not do this........can I say STUPID!

We are on all kinds of meds that are working for her that are for something else.......SOOOOOOOOOO. The pulmonologist was very understanding and was very nice. He was not even our regular pul. ours was outa the country. We have been in the pits for the past four weeks and I am tapped out. We began reduced flovent today at 110.

Has anyone else had this kinda thing happen?

For those of you who are of the praying kind please lift us up....I am totally outa gas and am having a very hard time dealing with all of the abuse verbal and physical. I know she really cant help the way she is behaving but I just am so tired I want to RUN!!!!

Thanks bunches and blessings to all of you,

Horsley

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