Guest guest Posted March 16, 2004 Report Share Posted March 16, 2004 I haven't posted in a long time, so I'm not sure if anyone will remember me. My son Ronan is 4 years old and has a probable complex IV defeciency.He is highly affected,has a g-tube, is nonverbal, in a wheelchair,very low tone except for his dystonia. We are considering a portacath. Although he isn't hospitalized too often (may be 3 to 6 max per year), the past few hospitalizations have been more severe and he has required TPN and bipap during hospitalization. Also, because of his dystonia, his IV's usually only last 2 days max. What experiences have you had with portacath? Ronan is very thin and sleeps on his tummy, what locations are the best. Have they been farily easy to maintain? Ronan has always done well with anesthetics if he is healthy going in. Any input would be greatly apprectiated. Quote Link to comment Share on other sites More sharing options...
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