Re: I feel like giving up-long

[Guest guest]

Dear Stacey:

I just want you to know that we have gone through what you've gone through

with trying the enzymes. There seemed to be many problems in the beginning,

and it could be that you are now cleaning out his system, which makes his

behavior worse (from what I have read). All I know is that, once we got over

that initial two or three week period of things being worse than ever,

behavior-wise, improvements began to show -- enough so, that my son's teacher

began pointing out the improvements she could see at school.

I also feel for you, with your husband being out of town, and trying to teach

helpful relatives the importance of reading labels. It's a constant

struggle. We were just on vacation, visiting with my parents, and trying to

convince everybody that foods should not be left out where my son can get to

them was horrendous! But keep trying -- it will get better.

Do you belong to any kind of a support group? I've found that helps me out a

lot.

Kris

[Guest guest]

-Stacey,

Sorry you are so down and your son is doing so badly. My humble

opinion is that it is probably the supps not the enzymes. My son does

not do well on most suppliments. We have tried 3 different times to

add suppliments and each time it failed us terribly. The most gains we

have made with him have been diet/enzymes/yeast treatment (and even

the nystatin was tough so we switched) and amimo acid replacement. I

would try stopping all supps x-cept enzymes and maybe magnesium/ and

try to keep your chin up. Patti

-- In @y..., " Stacey " <staceydaniel@m...> wrote:

> Hi group

>

> Today is day 11 on enzymes. We are still doing ZP only but have

worked up to one capsule at meals and less for snacks. This post is

mainly about my discouragement and needing to vent. My little boy

seems to be doing more worse than ever. I thought things were

leveling off over the weekend cause he seemed so happy but now we are

back on the rollercoaster. I guess we have always had it pretty good

considering his outbursts and tantrums have always been minimal. The

stimming that had faded somewhat is back big time and he seems to be

slipping away faster and faster. We have been doing the diet since

Feb ( not sure if we were 100%) and now enzymes and are trying

various other supplements. I feel like he is doing worse now then

what he did prior to me monkeying around with his system. We have

switched to another DAN doctor and today we had to go get blood drawn.

Always an ordeal. My heart cried for him. They had to strap him

into the papoose to get the blood and he screamed so hard. He's only

2 1/2 so he does not understand why we are doing this to him. I try

to explain to him but I don't know if he understands or not.

>

> Our ABA program is also having problems so that adds to the stress.

He just seems to be moving backward instead of forward and we are not

making gains. I keep wondering " is this all worth it? " I keep

telling myself to stick to the enzymes for a couple more weeks and

just get past that 3 week mark so I will know if there is going to be

any improvement but he just seems to be getting worse and more

autistic. I am having trouble just keeping up with everything. Every

day there is some type of therapy and I have not been able to develop

a system for tracking supplements and I just can't get my mind

organized enough to think about it. If we are not at therapy then we

are off to another doctor. Where does this end? When will life get

any easier? Do I need a college degree to manage a special needs

child? My husband is out of town (again) and I am alone here with my

child. I feel like I am chained to the house because therapies run

around the clock. I would try letting my MIL care for my son some but

I don't trust her to follow the diet or supplements. She gave him

some rotisserie chicken the other day from Kroger and never bothered

to read the label about the seasonings they used on the chicken. It's

so exasperating and I feel like I have no way out. I am watching my

little boy turn away from me more an more everyday and I am feeling

powerless today. Some days I do better than this at handling

everything, but other days (like today) I just don't have it in me to

hold up.

>

> Has anyone else here who started enzymes been through this

regression when you started? What did you do? Did you give up or

keep on going?

>

> I am sorry this is a long venting post. I had to get this out.

Even though I have never met the people on this board in person, I

feel like I am among friends here and people who understand when no

one else does. Thanks to everyone who has helped us along the way.

>

> Stacey

> Atlanta GA

>

>

>

[Guest guest]

Stacey, Hi, your post touched me so much. I also feel overwhelmed

so much of the time. We have made excel sheets of supplements and

also for chelating (which we do on the weekends). This at least

makes it easy for me to keep track of his supps. Last time I went

to the dr. I asked him for some sort of med for stess such as

xanax. I don't know what he gave me, I rarely take it but when my

heart is about to break and I can't be sane or nice any longer I

take it. I resisted this for a long time but I was getting so

stressed out from the diligence of taking care of an autistic child

that I really needed it. My son is doing well and I sometimes have

to sit down and remember to appreciate all of his accomplishments

but in my heart I know I am still waiting for the one missing piece

that will cure him completely. I pray for my family, my son and all

the other children every day. Hang in there and try to get your mil

trained in the ways of gfcf, supps, enzymes, etc. I know it sounds

impossible but my mil lived with us for a year and she was

suprizingly trainable. good luck, Maddie

> Hi group

>

> Today is day 11 on enzymes. We are still doing ZP only but have

worked up to one capsule at meals and less for snacks. This post is

mainly about my discouragement and needing to vent. My little boy

seems to be doing more worse than ever. I thought things were

leveling off over the weekend cause he seemed so happy but now we

are back on the rollercoaster. I guess we have always had it pretty

good considering his outbursts and tantrums have always been

minimal. The stimming that had faded somewhat is back big time and

he seems to be slipping away faster and faster. We have been doing

the diet since Feb ( not sure if we were 100%) and now enzymes and

are trying various other supplements. I feel like he is doing worse

now then what he did prior to me monkeying around with his system.

We have switched to another DAN doctor and today we had to go get

blood drawn. Always an ordeal. My heart cried for him. They had

to strap him into the papoose to get the blood and he screamed so

hard. He's only 2 1/2 so he does not understand why we are doing

this to him. I try to explain to him but I don't know if he

understands or not.

>

> Our ABA program is also having problems so that adds to the

stress. He just seems to be moving backward instead of forward and

we are not making gains. I keep wondering " is this all worth it? "

I keep telling myself to stick to the enzymes for a couple more

weeks and just get past that 3 week mark so I will know if there is

going to be any improvement but he just seems to be getting worse

and more autistic. I am having trouble just keeping up with

everything. Every day there is some type of therapy and I have not

been able to develop a system for tracking supplements and I just

can't get my mind organized enough to think about it. If we are

not at therapy then we are off to another doctor. Where does this

end? When will life get any easier? Do I need a college degree to

manage a special needs child? My husband is out of town (again) and

I am alone here with my child. I feel like I am chained to the

house because therapies run around the clock. I would try letting

my MIL care for my son some but I don't trust her to follow the diet

or supplements. She gave him some rotisserie chicken the other day

from Kroger and never bothered to read the label about the

seasonings they used on the chicken. It's so exasperating and I

feel like I have no way out. I am watching my little boy turn away

from me more an more everyday and I am feeling powerless today.

Some days I do better than this at handling everything, but other

days (like today) I just don't have it in me to hold up.

>

> Has anyone else here who started enzymes been through this

regression when you started? What did you do? Did you give up or

keep on going?

>

> I am sorry this is a long venting post. I had to get this out.

Even though I have never met the people on this board in person, I

feel like I am among friends here and people who understand when no

one else does. Thanks to everyone who has helped us along the way.

>

> Stacey

> Atlanta GA

>

>

>