Re: -Lemli-Opitz/RSH syndrome

[Guest guest]

AnnMarie,

I have never heard of this disorder. I did look it up and it does

have some of the same characteristics that mito kids can have. Why

do they think that he has this? Have they done genetics testing for

this in your family? Would this change anything that you do for him?

I am so sorry that you are feeling overwhelmed by all of this. It

is understandable. I don't think there is a person her who doens't

feel this way sometimes. please know that we understand and are here

for you. I will be thinking of you and your family.

Dawn