Guest guest Posted February 10, 2004 Report Share Posted February 10, 2004 Joe gets botox every 3 months for the spasticity in his legs and hips from his CP issues. It has been a great addition to his therapy. We have also done the serial casting once and that has had incredible results. We consulted Dr. Cohen before doing the botox and he was ok with it. He also wears DAFO braces on his legs. Hope this helps. AnnMarie- Complex IV Married to my best friend Rick, mom of (14), (11), Cassandra(5 1/2) and Joe(4) - complex IV, lactic acidosis, CP, tethered chord syndrome, dysautonomia, and a smile that never quits :-) Wsklsvjk@... wrote: I have recently taken my son to his doctor. He recomends Botox shots and treatments for . We were recently in a car accident, and has been in severe pain, back and legs. He already uses wheelchair at school, and fore arm cruches for short distance. If anyone has used the Botox shots for Mito, please let me know. Thanks for ant help you can give. 's mom. Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2004 Report Share Posted February 10, 2004 Joe gets botox every 3 months for the spasticity in his legs and hips from his CP issues. It has been a great addition to his therapy. We have also done the serial casting once and that has had incredible results. We consulted Dr. Cohen before doing the botox and he was ok with it. He also wears DAFO braces on his legs. Hope this helps. AnnMarie- Complex IV Married to my best friend Rick, mom of (14), (11), Cassandra(5 1/2) and Joe(4) - complex IV, lactic acidosis, CP, tethered chord syndrome, dysautonomia, and a smile that never quits :-) Wsklsvjk@... wrote: I have recently taken my son to his doctor. He recomends Botox shots and treatments for . We were recently in a car accident, and has been in severe pain, back and legs. He already uses wheelchair at school, and fore arm cruches for short distance. If anyone has used the Botox shots for Mito, please let me know. Thanks for ant help you can give. 's mom. Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2004 Report Share Posted February 10, 2004 Joe gets botox every 3 months for the spasticity in his legs and hips from his CP issues. It has been a great addition to his therapy. We have also done the serial casting once and that has had incredible results. We consulted Dr. Cohen before doing the botox and he was ok with it. He also wears DAFO braces on his legs. Hope this helps. AnnMarie- Complex IV Married to my best friend Rick, mom of (14), (11), Cassandra(5 1/2) and Joe(4) - complex IV, lactic acidosis, CP, tethered chord syndrome, dysautonomia, and a smile that never quits :-) Wsklsvjk@... wrote: I have recently taken my son to his doctor. He recomends Botox shots and treatments for . We were recently in a car accident, and has been in severe pain, back and legs. He already uses wheelchair at school, and fore arm cruches for short distance. If anyone has used the Botox shots for Mito, please let me know. Thanks for ant help you can give. 's mom. Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2004 Report Share Posted February 10, 2004 We have been using botox injections for about two years. We use it to loosen the muscles in Wyatt's hips and upper thighs. The muscles are so tight that they are starting to pull Wyatt's hip out of socket. When they do the botox they typically sedate your child. They can also put a topical treatment on the spot they are going to inject first. We have never bothered to do that. It takes about an hour for that to work. The sedation takes about 10 minutes to kick in and the injeciton of botox takes about 5 minutes. I have friends who do not sedate, but just use the topical treatment instead. I guess you can do it either way. I do let the doc know that because of the mito Wyatt is MH so they have oxgyen available when they sedate him. For the sedation they basically use a form of ativan, which is what we use when his seizures won't stop. If you have any questions, e-mail. Good Luck. Geri-Anne and Wyatt, Complex I > I have recently taken my son to his doctor. He recomends Botox shots > and treatments for . We were recently in a car accident, and has > been in severe pain, back and legs. He already uses wheelchair at school, and > fore arm cruches for short distance. If anyone has used the Botox shots for > Mito, please let me know. Thanks for ant help you can give. 's mom. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2004 Report Share Posted February 10, 2004 We have been using botox injections for about two years. We use it to loosen the muscles in Wyatt's hips and upper thighs. The muscles are so tight that they are starting to pull Wyatt's hip out of socket. When they do the botox they typically sedate your child. They can also put a topical treatment on the spot they are going to inject first. We have never bothered to do that. It takes about an hour for that to work. The sedation takes about 10 minutes to kick in and the injeciton of botox takes about 5 minutes. I have friends who do not sedate, but just use the topical treatment instead. I guess you can do it either way. I do let the doc know that because of the mito Wyatt is MH so they have oxgyen available when they sedate him. For the sedation they basically use a form of ativan, which is what we use when his seizures won't stop. If you have any questions, e-mail. Good Luck. Geri-Anne and Wyatt, Complex I > I have recently taken my son to his doctor. He recomends Botox shots > and treatments for . We were recently in a car accident, and has > been in severe pain, back and legs. He already uses wheelchair at school, and > fore arm cruches for short distance. If anyone has used the Botox shots for > Mito, please let me know. Thanks for ant help you can give. 's mom. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2004 Report Share Posted February 10, 2004 We have been using botox injections for about two years. We use it to loosen the muscles in Wyatt's hips and upper thighs. The muscles are so tight that they are starting to pull Wyatt's hip out of socket. When they do the botox they typically sedate your child. They can also put a topical treatment on the spot they are going to inject first. We have never bothered to do that. It takes about an hour for that to work. The sedation takes about 10 minutes to kick in and the injeciton of botox takes about 5 minutes. I have friends who do not sedate, but just use the topical treatment instead. I guess you can do it either way. I do let the doc know that because of the mito Wyatt is MH so they have oxgyen available when they sedate him. For the sedation they basically use a form of ativan, which is what we use when his seizures won't stop. If you have any questions, e-mail. Good Luck. Geri-Anne and Wyatt, Complex I > I have recently taken my son to his doctor. He recomends Botox shots > and treatments for . We were recently in a car accident, and has > been in severe pain, back and legs. He already uses wheelchair at school, and > fore arm cruches for short distance. If anyone has used the Botox shots for > Mito, please let me know. Thanks for ant help you can give. 's mom. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2004 Report Share Posted February 11, 2004 Hi laura, just wanted to put in my 2 cents worth about the botox . I have fybromyalgia and have done a little bit of reading about the use of botox for people with chronic pain(fibro,migraines,etc) Just wanted to let you know that it was an option I was going to try, but thankfully i lucked out and my body is responding well to topomax(aniticonvulsant). Just make sure that, if you decide to try the botox for , that the dr giving the injections is VERY experienced. From what i've read there have been alot of deaths from overdoses of botox. goodluck with you decision! Mama to Master http://www.geocities.com/jacobchilds Quote Link to comment Share on other sites More sharing options...
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